Susan Wiley
Biographic Data
| ID | 5545744 |
|---|---|
| NAME | Susan Wiley |
| GIVEN NAMES | Susan |
| FAMILY NAME | Wiley |
| SIGNATURE | WILEY S |
| AFFILIATIONS | Cincinnati Children's Hospital Medical Center |
| VERIFIED | No |
| TOTAL WORKS | 4 |
| TOTAL CITATIONS | 2 |
| WORKS AS AUTHOR | 4 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2014 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
A Roadmap for Accelerating Research in Intellectual and Developmental Disabilities Using PCORnet®
OBJECTIVE: This project sought to (1) identify critical gaps in knowledge of intellectual/developmental disabilities (IDD) clinical care and accelerate research by identifying a set of high-priority patient-centered comparative clinical effectiveness research (CER) questions that may be answered using PCORnet and (2) provide recommendations to advance CER for people with IDD (PwIDD). BACKGROUND: National-scale research is needed to better identif…
Evaluating Processing Speed and Reaction Time Outcome Measures in Children and Adolescents with Down Syndrome
Reliable and valid cognitive outcome measures, including examiner-administered and computer-facilitated assessments of processing speed and reaction time, are necessary for future clinical trials that include individuals with Down syndrome (DS). The current study evaluated the score distributions and psychometric properties of four examiner-administered and three computerized processing speed and reaction time measures. Participants included 97 i…
Factors Associated with Early Intervention Intensity for Children Who Are Deaf or Hard of Hearing
We quantified the intensity of early intervention (EI) services allocated to 1262 children who were deaf or hard of hearing (DHH) within a state program and identified factors associated with intervention intensity. Child specific data were collected on children born between 2008 and 2014. Data from Individualized Family Service Plans of children enrolled in Part C EI programming were evaluated for the type and duration of services during their E…
Needs of Parents of Children Who Are Deaf/Hard of Hearing With Autism Spectrum Disorder
Little is known about children who are deaf or hard of hearing (D/HH) with a coexisting autism spectrum disorder (ASD). The objective of our study was to understand the needs of children who are D/HH with coexisting ASD. We posed questions for group discussion about diagnostic process, impact of dual diagnosis on communication, and helpful resources. Four parents of three children participated. Challenges in the diagnostic process included the ch…
A Roadmap for Accelerating Research in Intellectual and Developmental Disabilities Using PCORnet®
OBJECTIVE: This project sought to (1) identify critical gaps in knowledge of intellectual/developmental disabilities (IDD) clinical care and accelerate research by identifying a set of high-priority patient-centered comparative clinical effectiveness research (CER) questions that may be answered using PCORnet and (2) provide recommendations to advance CER for people with IDD (PwIDD). BACKGROUND: National-scale research is needed to better identif…
Needs of Parents of Children Who Are Deaf/Hard of Hearing With Autism Spectrum Disorder
Little is known about children who are deaf or hard of hearing (D/HH) with a coexisting autism spectrum disorder (ASD). The objective of our study was to understand the needs of children who are D/HH with coexisting ASD. We posed questions for group discussion about diagnostic process, impact of dual diagnosis on communication, and helpful resources. Four parents of three children participated. Challenges in the diagnostic process included the ch…
Factors Associated with Early Intervention Intensity for Children Who Are Deaf or Hard of Hearing
We quantified the intensity of early intervention (EI) services allocated to 1262 children who were deaf or hard of hearing (DHH) within a state program and identified factors associated with intervention intensity. Child specific data were collected on children born between 2008 and 2014. Data from Individualized Family Service Plans of children enrolled in Part C EI programming were evaluated for the type and duration of services during their E…
Evaluating Processing Speed and Reaction Time Outcome Measures in Children and Adolescents with Down Syndrome
Reliable and valid cognitive outcome measures, including examiner-administered and computer-facilitated assessments of processing speed and reaction time, are necessary for future clinical trials that include individuals with Down syndrome (DS). The current study evaluated the score distributions and psychometric properties of four examiner-administered and three computerized processing speed and reaction time measures. Participants included 97 i…
A Roadmap for Accelerating Research in Intellectual and Developmental Disabilities Using PCORnet®
OBJECTIVE: This project sought to (1) identify critical gaps in knowledge of intellectual/developmental disabilities (IDD) clinical care and accelerate research by identifying a set of high-priority patient-centered comparative clinical effectiveness research (CER) questions that may be answered using PCORnet and (2) provide recommendations to advance CER for people with IDD (PwIDD). BACKGROUND: National-scale research is needed to better identif…
Psychology (3 works) · Audiology (2 works) · Down syndrome and intellectual disability research (2 works) · Family and Disability Support Research (2 works) · Medicine (2 works) · Psychiatry (2 works) · Assistive Technology in Communication and Mobility (1 work) · Augmentative (1 work) · Augmentative and alternative communication (1 work) · Autism (1 work)