Jan Willem Gorter
Biographic Data
| ID | 6073584 |
|---|---|
| NAME | Jan Willem Gorter |
| GIVEN NAMES | Jan Willem |
| FAMILY NAME | Gorter |
| SIGNATURE | GORTER J W |
| AFFILIATIONS | McMaster University |
| ORCID | 0000-0002-3012-2119 |
| VERIFIED | Yes |
| TOTAL WORKS | 12 |
| TOTAL CITATIONS | 4 |
| AUTHOR COUNT | 12 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1998 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Transition to adulthood in Duchenne Muscular Dystrophy
Background: For youth living with neurodisabilities and rare conditions, transitioning from pediatric to adult care results in significant loss of services and supports. This article examines transition-related health systems, policies and provider roles in the context of Duchenne muscular dystrophy (DMD). DMD is a multi-systemic X-linked disorder mainly characterized by progressive muscle degeneration, with about 30% of patients presenting with …
A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity
INTRODUCTION: The transition from paediatric to adult health care (i.e., 'health care transition') poses many challenges for youth with medical complexity (YMC) and their families. YMC need specific approaches to supporting transition, tailored to individual youth and family contexts. In this study, we examine the contextual factors influencing families' transition experiences and describe their recommendations for improving the experience. METHO…
Stimulating inclusive outdoor play
Inclusive play is a critical catalyst for social inclusion and has developmental benefits for all children. This research explores barriers that adult stakeholders perceive towards inclusion of children with disabilities in ‘playing together’ with peers with and without disabilities. Insights were gathered through four focus groups (n = 37) involving young adults with a disability, parents of children with and without disabilities, healthcare and…
“Filling in the gap”
INTRODUCTION: In families of children with a neurodisability, siblings have unique experiences that can shape their identity. There is limited information about the developmental process of how siblings form their identity. This study aims to understand the identity construction of young siblings who have a sibling with a neurodisability. METHODS: As part of a patient-oriented research program, we engaged with our Sibling Youth Advisory Council i…
The TRUST Study—TRansition US Together
Transition readiness improved at each follow-up, the greatest increase was seen after the Toolkit was shared. Parent-adolescent communication quality did not appear to impact changes in transition readiness
Caregiver identity in health research
Engaging healthcare users and families in health research studies as partners – rather than as ‘research subjects’ in the traditional sense – is a growing trend in healthcare. This article is based on interviews with mothers of children with disabilities who partner in research studies on behalf of their children. For these mothers, participating in research is an identity-building activity that (1) builds on and validates their caregiving roles …
Assistive Products and Technology to Facilitate Activities and Participation for Children with Disabilities
We aimed to identify activity limitations and participation restrictions encountered by children and youth with disabilities for which assistive products and technology could be helpful. We used a convergent, parallel, mixed-methods design involving a nationwide, French survey composed of closed questions (quantitative) and open questions (qualitative) that enlightened the quantitative data. A total of 1055 responses were received, and 962 includ…
Population-Based Teacher-Rated Assessment of Anxiety Among Canadian Kindergarten Children
Despite anxiety being a prevalent mental health problem in children, little data exist on the pervasiveness and levels of anxiety symptoms in kindergarteners. Data from the Early Development Instrument, a teacher-completed, population-level measure of child development, were collected across Canada from 2004 to 2015. The final analytic sample consisted of 974,319 children of whom 2.6% were classified as "highly anxious". Compared to children who …
Covid-19-Related Psychological and Psychosocial Distress Among Parents and Youth With Physical Illness
Despite the initial thrust of research aimed at understanding the impact of the COVID-19 pandemic on youth with physical illness and their parents, knowledge gaps in the literature remain, providing the impetus for additional investigation. This study described changes in psychological distress from prior to during the COVID-19 pandemic for parents and youth with physical illness, compared parent-proxy and youth self-reported perceptions of COVID…
Mental–Physical Multimorbidity in Youth
Trajectories of Depressive Symptoms in Canadian Emerging Adults
Objectives. We identified courses of depressive symptoms in an epidemiological sample of emerging adults. Methods. We used latent class growth modeling to identify trajectories of depressive symptoms measured by the 12-item Center for Epidemiological Studies Depression Scale (CES-D) during a 14-year follow-up of 2825 Canadian youths aged 10 to 25 years enrolled in the National Longitudinal Survey of Children and Youth between 1994 and 2009. Resul…
Nature Development by Natuurmonumenten
Trajectories of Depressive Symptoms in Canadian Emerging Adults
Objectives. We identified courses of depressive symptoms in an epidemiological sample of emerging adults. Methods. We used latent class growth modeling to identify trajectories of depressive symptoms measured by the 12-item Center for Epidemiological Studies Depression Scale (CES-D) during a 14-year follow-up of 2825 Canadian youths aged 10 to 25 years enrolled in the National Longitudinal Survey of Children and Youth between 1994 and 2009. Resul…
Nature Development by Natuurmonumenten
Nature Development by Natuurmonumenten
Trajectories of Depressive Symptoms in Canadian Emerging Adults
Objectives. We identified courses of depressive symptoms in an epidemiological sample of emerging adults. Methods. We used latent class growth modeling to identify trajectories of depressive symptoms measured by the 12-item Center for Epidemiological Studies Depression Scale (CES-D) during a 14-year follow-up of 2825 Canadian youths aged 10 to 25 years enrolled in the National Longitudinal Survey of Children and Youth between 1994 and 2009. Resul…
Mental–Physical Multimorbidity in Youth
Covid-19-Related Psychological and Psychosocial Distress Among Parents and Youth With Physical Illness
Despite the initial thrust of research aimed at understanding the impact of the COVID-19 pandemic on youth with physical illness and their parents, knowledge gaps in the literature remain, providing the impetus for additional investigation. This study described changes in psychological distress from prior to during the COVID-19 pandemic for parents and youth with physical illness, compared parent-proxy and youth self-reported perceptions of COVID…
Population-Based Teacher-Rated Assessment of Anxiety Among Canadian Kindergarten Children
Despite anxiety being a prevalent mental health problem in children, little data exist on the pervasiveness and levels of anxiety symptoms in kindergarteners. Data from the Early Development Instrument, a teacher-completed, population-level measure of child development, were collected across Canada from 2004 to 2015. The final analytic sample consisted of 974,319 children of whom 2.6% were classified as "highly anxious". Compared to children who …
Assistive Products and Technology to Facilitate Activities and Participation for Children with Disabilities
We aimed to identify activity limitations and participation restrictions encountered by children and youth with disabilities for which assistive products and technology could be helpful. We used a convergent, parallel, mixed-methods design involving a nationwide, French survey composed of closed questions (quantitative) and open questions (qualitative) that enlightened the quantitative data. A total of 1055 responses were received, and 962 includ…
“Filling in the gap”
INTRODUCTION: In families of children with a neurodisability, siblings have unique experiences that can shape their identity. There is limited information about the developmental process of how siblings form their identity. This study aims to understand the identity construction of young siblings who have a sibling with a neurodisability. METHODS: As part of a patient-oriented research program, we engaged with our Sibling Youth Advisory Council i…
The TRUST Study—TRansition US Together
Transition readiness improved at each follow-up, the greatest increase was seen after the Toolkit was shared. Parent-adolescent communication quality did not appear to impact changes in transition readiness
Caregiver identity in health research
Engaging healthcare users and families in health research studies as partners – rather than as ‘research subjects’ in the traditional sense – is a growing trend in healthcare. This article is based on interviews with mothers of children with disabilities who partner in research studies on behalf of their children. For these mothers, participating in research is an identity-building activity that (1) builds on and validates their caregiving roles …
A Socioecological Approach to Support the Transition to Adult Care for Youth With Medical Complexity
INTRODUCTION: The transition from paediatric to adult health care (i.e., 'health care transition') poses many challenges for youth with medical complexity (YMC) and their families. YMC need specific approaches to supporting transition, tailored to individual youth and family contexts. In this study, we examine the contextual factors influencing families' transition experiences and describe their recommendations for improving the experience. METHO…
Stimulating inclusive outdoor play
Inclusive play is a critical catalyst for social inclusion and has developmental benefits for all children. This research explores barriers that adult stakeholders perceive towards inclusion of children with disabilities in ‘playing together’ with peers with and without disabilities. Insights were gathered through four focus groups (n = 37) involving young adults with a disability, parents of children with and without disabilities, healthcare and…
Transition to adulthood in Duchenne Muscular Dystrophy
Background: For youth living with neurodisabilities and rare conditions, transitioning from pediatric to adult care results in significant loss of services and supports. This article examines transition-related health systems, policies and provider roles in the context of Duchenne muscular dystrophy (DMD). DMD is a multi-systemic X-linked disorder mainly characterized by progressive muscle degeneration, with about 30% of patients presenting with …
Psychology (9 works) · Developmental psychology (5 works) · Medicine (5 works) · Adolescent and Pediatric Healthcare (4 works) · Political science (4 works) · Psychiatry (4 works) · Anxiety (3 works) · Childhood Cancer Survivors' Quality of Life (3 works) · Clinical Psychology (3 works) · Clinical Psychology (3 works)