Gill Windle
Biographic Data
| ID | 6168048 |
|---|---|
| NAME | Gill Windle |
| GIVEN NAMES | Gill |
| FAMILY NAME | Windle |
| SIGNATURE | WINDLE G |
| AFFILIATIONS | Bangor University |
| ORCID | 0000-0003-0479-1172 |
| VERIFIED | Yes |
| TOTAL WORKS | 18 |
| TOTAL CITATIONS | 27 |
| AUTHOR COUNT | 18 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2004 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 3 |
The psychometric properties of a new outcome measure of resilience for people living with dementia
This study presents preliminary field-testing and validation of the Bangor Dementia Resilience Scale, a new psychometrically sound resilience measure for people living with mild to moderate dementia. The scale may be a valuable tool for practitioners to provide strengths-based and person-centred support to maintain and enhance the resilience of people living with dementia, and evaluating the extent to which health and social care services may imp…
Experiences of dementia in farming communities
Farming communities experience significant rates of dementia, however research exploring the support needs of this population is scarce. In response, this scoping review examined published literature on the experiences of dementia in farming communities. Five databases were searched for peer-reviewed articles and a general google search conducted for grey literature. Eighteen articles were included in the review. The majority (n = 12) were grey l…
It’s a Postcode Lottery”
National dementia strategies are government policies that guide the provision of appropriate support for people living with dementia. These strategies, developed through extensive stakeholder engagement, should be tailored to the cultural and demographic needs of a country. Using a mixed methods survey design, this study explored the aims of the Dementia Action Plan (2018-2022) for Wales (UK) around assessment, diagnosis, and post-diagnostic supp…
The Diagnostic Pathway Experiences of People Living with Rare Dementia and Their Family Caregivers
The pathways for receiving a diagnosis of a rare type of dementia are poorly understood. Diagnostic challenges decrease access to relevant health promotion activities and post-diagnostic support. This study was focused on pathways experienced by people affected by rare dementia in Wales, United Kingdom (UK), considering the practical, emotional, and economic consequences. Semi-structured interviews were completed with 10 people affected by rare d…
Dementia in rural settings
Rural areas tend to be inhabited by more older people and thus have a higher prevalence of dementia. Combined with lower population densities and more sparse geography, rural areas pose numerous barriers and costs relating to support and resource provision. This may leave people with dementia in rural places at a significant disadvantage, leading to a heavy reliance on informal support networks. The present study explores the personal experiences…
Knowledge Is Power
This paper describes the process used by a group of people living with young-onset dementia to inform the development and delivery of a post-diagnosis peer guide. It draws on the four stages of human-centered design and applies them in a new context of supporting resilience for people following a diagnosis of dementia. (1) Discover: The group discussed in-depth their perspectives on what it takes to be resilient while living with dementia and how…
Hard to Reach and Hidden
Young dementia carers (YDCs) rarely receive appropriate training and support. Their visibility and identification remain dangerously low, and, consequently, support initiatives being developed are failing to reach them. This study explored the success (or failure) of YDC identification pathways as well as the barriers and enablers to their implementation. An explorative qualitative approach was followed, drawing on the experiences of parents of Y…
Adaptation of an eHealth Intervention
iSupport' is an online psychoeducation and skills development intervention created by the World Health Organisation to support people with dementia. This project adapted iSupport for carers of people with rare dementias (iSupport RDC), creating a new resource to support the health and wellbeing of this underserved population. The adaptation involved three phases: (1) Co-design methods to generate preliminary adaptations; (2) Analysis of phase one…
ISupport for Young Carers
Young dementia carers need to be recognised and supported in their role. They need help to understand the illness, what changes are expected and how it can affect their family member. Many support services, partly due to the COVID pandemic, have moved online and have been shown to be acceptable as they are low cost and reduce access barriers. iSupport is an evidence-informed e-health training programme developed by the World Health Organization (…
Using art for public engagement
Creative outputs engage the public and can be used to share research. This paper reports on public engagement activities that were part of the research project Dementia and Imagination (D&I). We found that artwork and creative activities effectively engaged a range of audiences and challenged negative ideas about dementia. For the project team, public engagement developed relationships with collaborators and connected the research to different co…
Re-thinking social exclusion in later life
Social exclusion is a dynamic multi-dimensional process that is interactive in nature. The complex interplay between domains, whereby each domain can act as a determinant, indicator and/or outcome of social exclusion, hinders understanding of the process and the mechanisms through which social exclusion exists. This article highlights the need to disentangle these pathways and move beyond descriptive accounts of social exclusion, presenting a new…
The role of the visual arts in the resilience of people living with dementia in care homes
This study responds to a gap in the literature relating to the resilience of people living with dementia in care homes. We applied an ecopsychosocial framework of resilience, theorising that sources of resilience may be personal, social and structural. Visual arts enrichment activities were examined to see how they might provide opportunities for resilience. The data used for this study were qualitative and originated from people with dementia ag…
Health and social exclusion in older age
BACKGROUND: Social exclusion of the elderly is a key policy focus but evidence on the processes linking health and social exclusion is hampered by the variety of ways that health is used in social exclusion research. We investigated longitudinal associations between health and social exclusion using an analytical framework that did not conflate them. METHODS: Data employed in this study came from 4 waves of Understanding Society, the UK Household…
Carrying out research across the arts and humanities and social sciences
This paper analyses how the methodological approach for a major Arts and Humanities Research Council and Economic and Social Research Council-funded project entitled Dementia and Imagination Footnote1 was formulated. This multidisciplinary project brings together the arts and humanities with the social sciences with their different epistemological philosophies and subsequent understandings of research methods. The main objective was to determine …
What is resilience? A review and concept analysis
The complexities of defining what appears to be the relatively simple concept of resilience are widely recognized. This paper analyses the concept of resilience from a range of disciplinary perspectives and clarifies a definition in order to inform research, policy and practice. The work takes a life course approach to resilience, examining evidence derived from research across the lifespan. It incorporates the methods of systematic review, conce…
A methodological review of resilience measurement scales
BACKGROUND: The evaluation of interventions and policies designed to promote resilience, and research to understand the determinants and associations, require reliable and valid measures to ensure data quality. This paper systematically reviews the psychometric rigour of resilience measurement scales developed for use in general and clinical populations. METHODS: Eight electronic abstract databases and the internet were searched and reference lis…
Reliability and Validity of the Older Americans Resources and Services (Oars) Social Resources Scale in Six European Countries
Differences across countries make it unlikely that researchers can develop a single social resources scale that would have item equivalence in multiple countries
Variations in subjective wellbeing
This study examines the mediating role of psychological resources on life satisfaction, an indicator of subjective wellbeing. The evidence identifies several life events and changing circumstances that can be potentially detrimental to the wellbeing of older adults. Based on the literature, a theoretical model was developed with the hypothesis that adaptation to potentially adverse events draws on psychological resources central to the self. The …
Variations in subjective wellbeing
This study examines the mediating role of psychological resources on life satisfaction, an indicator of subjective wellbeing. The evidence identifies several life events and changing circumstances that can be potentially detrimental to the wellbeing of older adults. Based on the literature, a theoretical model was developed with the hypothesis that adaptation to potentially adverse events draws on psychological resources central to the self. The …
Re-thinking social exclusion in later life
Social exclusion is a dynamic multi-dimensional process that is interactive in nature. The complex interplay between domains, whereby each domain can act as a determinant, indicator and/or outcome of social exclusion, hinders understanding of the process and the mechanisms through which social exclusion exists. This article highlights the need to disentangle these pathways and move beyond descriptive accounts of social exclusion, presenting a new…
Health and social exclusion in older age
BACKGROUND: Social exclusion of the elderly is a key policy focus but evidence on the processes linking health and social exclusion is hampered by the variety of ways that health is used in social exclusion research. We investigated longitudinal associations between health and social exclusion using an analytical framework that did not conflate them. METHODS: Data employed in this study came from 4 waves of Understanding Society, the UK Household…
Carrying out research across the arts and humanities and social sciences
This paper analyses how the methodological approach for a major Arts and Humanities Research Council and Economic and Social Research Council-funded project entitled Dementia and Imagination Footnote1 was formulated. This multidisciplinary project brings together the arts and humanities with the social sciences with their different epistemological philosophies and subsequent understandings of research methods. The main objective was to determine …
The role of the visual arts in the resilience of people living with dementia in care homes
This study responds to a gap in the literature relating to the resilience of people living with dementia in care homes. We applied an ecopsychosocial framework of resilience, theorising that sources of resilience may be personal, social and structural. Visual arts enrichment activities were examined to see how they might provide opportunities for resilience. The data used for this study were qualitative and originated from people with dementia ag…
Reliability and Validity of the Older Americans Resources and Services (Oars) Social Resources Scale in Six European Countries
Differences across countries make it unlikely that researchers can develop a single social resources scale that would have item equivalence in multiple countries
Variations in subjective wellbeing
This study examines the mediating role of psychological resources on life satisfaction, an indicator of subjective wellbeing. The evidence identifies several life events and changing circumstances that can be potentially detrimental to the wellbeing of older adults. Based on the literature, a theoretical model was developed with the hypothesis that adaptation to potentially adverse events draws on psychological resources central to the self. The …
Reliability and Validity of the Older Americans Resources and Services (Oars) Social Resources Scale in Six European Countries
Differences across countries make it unlikely that researchers can develop a single social resources scale that would have item equivalence in multiple countries
What is resilience? A review and concept analysis
The complexities of defining what appears to be the relatively simple concept of resilience are widely recognized. This paper analyses the concept of resilience from a range of disciplinary perspectives and clarifies a definition in order to inform research, policy and practice. The work takes a life course approach to resilience, examining evidence derived from research across the lifespan. It incorporates the methods of systematic review, conce…
A methodological review of resilience measurement scales
BACKGROUND: The evaluation of interventions and policies designed to promote resilience, and research to understand the determinants and associations, require reliable and valid measures to ensure data quality. This paper systematically reviews the psychometric rigour of resilience measurement scales developed for use in general and clinical populations. METHODS: Eight electronic abstract databases and the internet were searched and reference lis…
Carrying out research across the arts and humanities and social sciences
This paper analyses how the methodological approach for a major Arts and Humanities Research Council and Economic and Social Research Council-funded project entitled Dementia and Imagination Footnote1 was formulated. This multidisciplinary project brings together the arts and humanities with the social sciences with their different epistemological philosophies and subsequent understandings of research methods. The main objective was to determine …
Health and social exclusion in older age
BACKGROUND: Social exclusion of the elderly is a key policy focus but evidence on the processes linking health and social exclusion is hampered by the variety of ways that health is used in social exclusion research. We investigated longitudinal associations between health and social exclusion using an analytical framework that did not conflate them. METHODS: Data employed in this study came from 4 waves of Understanding Society, the UK Household…
Using art for public engagement
Creative outputs engage the public and can be used to share research. This paper reports on public engagement activities that were part of the research project Dementia and Imagination (D&I). We found that artwork and creative activities effectively engaged a range of audiences and challenged negative ideas about dementia. For the project team, public engagement developed relationships with collaborators and connected the research to different co…
Re-thinking social exclusion in later life
Social exclusion is a dynamic multi-dimensional process that is interactive in nature. The complex interplay between domains, whereby each domain can act as a determinant, indicator and/or outcome of social exclusion, hinders understanding of the process and the mechanisms through which social exclusion exists. This article highlights the need to disentangle these pathways and move beyond descriptive accounts of social exclusion, presenting a new…
The role of the visual arts in the resilience of people living with dementia in care homes
This study responds to a gap in the literature relating to the resilience of people living with dementia in care homes. We applied an ecopsychosocial framework of resilience, theorising that sources of resilience may be personal, social and structural. Visual arts enrichment activities were examined to see how they might provide opportunities for resilience. The data used for this study were qualitative and originated from people with dementia ag…
ISupport for Young Carers
Young dementia carers need to be recognised and supported in their role. They need help to understand the illness, what changes are expected and how it can affect their family member. Many support services, partly due to the COVID pandemic, have moved online and have been shown to be acceptable as they are low cost and reduce access barriers. iSupport is an evidence-informed e-health training programme developed by the World Health Organization (…
Knowledge Is Power
This paper describes the process used by a group of people living with young-onset dementia to inform the development and delivery of a post-diagnosis peer guide. It draws on the four stages of human-centered design and applies them in a new context of supporting resilience for people following a diagnosis of dementia. (1) Discover: The group discussed in-depth their perspectives on what it takes to be resilient while living with dementia and how…
Hard to Reach and Hidden
Young dementia carers (YDCs) rarely receive appropriate training and support. Their visibility and identification remain dangerously low, and, consequently, support initiatives being developed are failing to reach them. This study explored the success (or failure) of YDC identification pathways as well as the barriers and enablers to their implementation. An explorative qualitative approach was followed, drawing on the experiences of parents of Y…
Adaptation of an eHealth Intervention
iSupport' is an online psychoeducation and skills development intervention created by the World Health Organisation to support people with dementia. This project adapted iSupport for carers of people with rare dementias (iSupport RDC), creating a new resource to support the health and wellbeing of this underserved population. The adaptation involved three phases: (1) Co-design methods to generate preliminary adaptations; (2) Analysis of phase one…
It’s a Postcode Lottery”
National dementia strategies are government policies that guide the provision of appropriate support for people living with dementia. These strategies, developed through extensive stakeholder engagement, should be tailored to the cultural and demographic needs of a country. Using a mixed methods survey design, this study explored the aims of the Dementia Action Plan (2018-2022) for Wales (UK) around assessment, diagnosis, and post-diagnostic supp…
The Diagnostic Pathway Experiences of People Living with Rare Dementia and Their Family Caregivers
The pathways for receiving a diagnosis of a rare type of dementia are poorly understood. Diagnostic challenges decrease access to relevant health promotion activities and post-diagnostic support. This study was focused on pathways experienced by people affected by rare dementia in Wales, United Kingdom (UK), considering the practical, emotional, and economic consequences. Semi-structured interviews were completed with 10 people affected by rare d…
Dementia in rural settings
Rural areas tend to be inhabited by more older people and thus have a higher prevalence of dementia. Combined with lower population densities and more sparse geography, rural areas pose numerous barriers and costs relating to support and resource provision. This may leave people with dementia in rural places at a significant disadvantage, leading to a heavy reliance on informal support networks. The present study explores the personal experiences…
The psychometric properties of a new outcome measure of resilience for people living with dementia
This study presents preliminary field-testing and validation of the Bangor Dementia Resilience Scale, a new psychometrically sound resilience measure for people living with mild to moderate dementia. The scale may be a valuable tool for practitioners to provide strengths-based and person-centred support to maintain and enhance the resilience of people living with dementia, and evaluating the extent to which health and social care services may imp…
Experiences of dementia in farming communities
Farming communities experience significant rates of dementia, however research exploring the support needs of this population is scarce. In response, this scoping review examined published literature on the experiences of dementia in farming communities. Five databases were searched for peer-reviewed articles and a general google search conducted for grey literature. Eighteen articles were included in the review. The majority (n = 12) were grey l…
Psychology (16 works) · Medicine (12 works) · Dementia (11 works) · Gerontology (8 works) · Political science (8 works) · Sociology (7 works) · Computer Science (6 works) · Health disparities and outcomes (6 works) · Nursing (6 works) · Psychiatry (6 works)