Paula Jacobs
Biographic Data
| ID | 6249534 |
|---|---|
| NAME | Paula Jacobs |
| GIVEN NAMES | Paula |
| FAMILY NAME | Jacobs |
| SIGNATURE | JACOBS P |
| AFFILIATIONS | University of Edinburgh |
| ORCID | 0000-0001-5593-5899 |
| VERIFIED | Yes |
| TOTAL WORKS | 7 |
| TOTAL CITATIONS | 18 |
| AUTHOR COUNT | 7 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2019 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 2 |
Ostensibly small moments and their ethical implications in research with care experienced children and young people
Over recent decades, a focus on children’s rights has led to their increased involvement in research. However, ethical reflections on dynamics which shape and produce children’s voice within research encounters remain under-explored. Social work research involving children on sensitive topics must balance their right to participate with avoiding harm. This paper reflects on two vignettes from our longitudinal study on care-experienced children in…
Couples with intellectual disability where one partner has dementia – a scoping review exploring relationships in the context of dementia and intellectual disability
Relationships and marriages between couples with intellectual disability are to be celebrated, as is the longer life expectancy now enjoyed by many with intellectual disability. However, dementia disproportionately affects people with intellectual disability, especially people with Down's syndrome. Research into experiences of couples without intellectual disability who are affected by dementia suggests that a relational perspective provides heal…
Identifying core measures to be used in mental health research with care experienced young people
What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?”
Old age is still an under-researched stage in the lives of people with a learning disability. Providing support to people towards the end of their lives can be challenging for services and involves complex ethical decision-making processes. This study explores the experiences of social care staff in two life-sharing communities where adults with a learning disability and staff live together. Four main themes were identified, highlighting differen…
An agenda for future research regarding the mental health of young people with care experience
Young people who are currently or were previously in state care have consistently been found to have much higher rates of mental health and neurodevelopmental difficulties than the general youth population. While a number of high-quality reviews highlight what research has been undertaken in relation to the mental health of young people with care experience and the gaps in our knowledge and understanding, there is, until now, no consensus, so far…
Making narrative portraits
This paper proposes the method of ‘narrative portraiture’, which, located within the wider field of narrative studies, offers an analytical tool to narrative data. Two research projects, one on disability and one on identity, are used to illustrate how the method can be applied. While the paper will focus on the methodological benefits and limitations of the approach, throughout the article we also highlight the ethical concern of representation.…
Who decides? – transitions from school to adult services for and with young people with severe intellectual disabilities
The transition from school to adult services for young people with severe intellectual disabilities has been identified as an area of concern, particularly with regards to how young people can be involved in meaningful ways. Additionally, although available resources and organisational practices seem to play important roles, there seems to be a lack of understanding as to how societal influences shape the process. Our study presents case studies …
Making narrative portraits
This paper proposes the method of ‘narrative portraiture’, which, located within the wider field of narrative studies, offers an analytical tool to narrative data. Two research projects, one on disability and one on identity, are used to illustrate how the method can be applied. While the paper will focus on the methodological benefits and limitations of the approach, throughout the article we also highlight the ethical concern of representation.…
Who decides? – transitions from school to adult services for and with young people with severe intellectual disabilities
The transition from school to adult services for young people with severe intellectual disabilities has been identified as an area of concern, particularly with regards to how young people can be involved in meaningful ways. Additionally, although available resources and organisational practices seem to play important roles, there seems to be a lack of understanding as to how societal influences shape the process. Our study presents case studies …
An agenda for future research regarding the mental health of young people with care experience
Young people who are currently or were previously in state care have consistently been found to have much higher rates of mental health and neurodevelopmental difficulties than the general youth population. While a number of high-quality reviews highlight what research has been undertaken in relation to the mental health of young people with care experience and the gaps in our knowledge and understanding, there is, until now, no consensus, so far…
Who decides? – transitions from school to adult services for and with young people with severe intellectual disabilities
The transition from school to adult services for young people with severe intellectual disabilities has been identified as an area of concern, particularly with regards to how young people can be involved in meaningful ways. Additionally, although available resources and organisational practices seem to play important roles, there seems to be a lack of understanding as to how societal influences shape the process. Our study presents case studies …
Making narrative portraits
This paper proposes the method of ‘narrative portraiture’, which, located within the wider field of narrative studies, offers an analytical tool to narrative data. Two research projects, one on disability and one on identity, are used to illustrate how the method can be applied. While the paper will focus on the methodological benefits and limitations of the approach, throughout the article we also highlight the ethical concern of representation.…
What is my experience of what I am in relation to people who I have shared my life with for the last 34 years?”
Old age is still an under-researched stage in the lives of people with a learning disability. Providing support to people towards the end of their lives can be challenging for services and involves complex ethical decision-making processes. This study explores the experiences of social care staff in two life-sharing communities where adults with a learning disability and staff live together. Four main themes were identified, highlighting differen…
An agenda for future research regarding the mental health of young people with care experience
Young people who are currently or were previously in state care have consistently been found to have much higher rates of mental health and neurodevelopmental difficulties than the general youth population. While a number of high-quality reviews highlight what research has been undertaken in relation to the mental health of young people with care experience and the gaps in our knowledge and understanding, there is, until now, no consensus, so far…
Couples with intellectual disability where one partner has dementia – a scoping review exploring relationships in the context of dementia and intellectual disability
Relationships and marriages between couples with intellectual disability are to be celebrated, as is the longer life expectancy now enjoyed by many with intellectual disability. However, dementia disproportionately affects people with intellectual disability, especially people with Down's syndrome. Research into experiences of couples without intellectual disability who are affected by dementia suggests that a relational perspective provides heal…
Identifying core measures to be used in mental health research with care experienced young people
Ostensibly small moments and their ethical implications in research with care experienced children and young people
Over recent decades, a focus on children’s rights has led to their increased involvement in research. However, ethical reflections on dynamics which shape and produce children’s voice within research encounters remain under-explored. Social work research involving children on sensitive topics must balance their right to participate with avoiding harm. This paper reflects on two vignettes from our longitudinal study on care-experienced children in…
Psychology (5 works) · Medicine (4 works) · Psychiatry (4 works) · Gerontology (3 works) · Healthcare innovation and challenges (3 works) · Nursing (3 works) · Political science (3 works) · Child Welfare and Adoption (2 works) · Developmental psychology (2 works) · Environmental health (2 works)