Lea Skovgaard
Biographic Data
| ID | 6458907 |
|---|---|
| NAME | Lea Skovgaard |
| GIVEN NAMES | Lea |
| FAMILY NAME | Skovgaard |
| SIGNATURE | SKOVGAARD L |
| AFFILIATIONS | University of Copenhagen |
| ORCID | 0000-0001-5491-6928 |
| VERIFIED | Yes |
| TOTAL WORKS | 3 |
| TOTAL CITATIONS | 1 |
| AUTHOR COUNT | 3 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2022 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 1 |
Population curation: The construction of mutual obligation between individual and state in Danish precision medicine
How do precision medicine initiatives (re)organize relations between individuals and populations? In this article, we investigate how the curation of national genomic populations enacts communities and, in so doing, constructs mutual obligation between individuals and the state. Drawing on ethnographic fieldwork in the Danish National Genome Center (DNGC), we show how members of advisory bodies negotiated the inclusion criteria for two different …
Use of tissue and health data: Attachments and detachments among an enabling public
Personalized medicine aims at tailoring treatment to the individual person through the sourcing of multiple health data from the population. The realization of these ambitions rest on the ability to reuse health data. But what does it take to reuse tissue and data collected from individuals in connection with treatment, for future purposes? It takes an “enabling public” consisting of not only people providing tissue and data, but also clinicians,…
Data authority: Public debate about personalized medicine in Denmark
Personalized medicine has generated massive investments in data integration initiatives and stimulated new flows of health data among multiple actors. Such flows raise questions as to who should be able to access data, for which purposes, and how this access and use should be regulated. We suggest thinking of these questions as matters of ‘data authority’: who can legitimately do what with health data? In this article, we analyze a public debate …
Population curation: The construction of mutual obligation between individual and state in Danish precision medicine
How do precision medicine initiatives (re)organize relations between individuals and populations? In this article, we investigate how the curation of national genomic populations enacts communities and, in so doing, constructs mutual obligation between individuals and the state. Drawing on ethnographic fieldwork in the Danish National Genome Center (DNGC), we show how members of advisory bodies negotiated the inclusion criteria for two different …
Data authority: Public debate about personalized medicine in Denmark
Personalized medicine has generated massive investments in data integration initiatives and stimulated new flows of health data among multiple actors. Such flows raise questions as to who should be able to access data, for which purposes, and how this access and use should be regulated. We suggest thinking of these questions as matters of ‘data authority’: who can legitimately do what with health data? In this article, we analyze a public debate …
Use of tissue and health data: Attachments and detachments among an enabling public
Personalized medicine aims at tailoring treatment to the individual person through the sourcing of multiple health data from the population. The realization of these ambitions rest on the ability to reuse health data. But what does it take to reuse tissue and data collected from individuals in connection with treatment, for future purposes? It takes an “enabling public” consisting of not only people providing tissue and data, but also clinicians,…
Population curation: The construction of mutual obligation between individual and state in Danish precision medicine
How do precision medicine initiatives (re)organize relations between individuals and populations? In this article, we investigate how the curation of national genomic populations enacts communities and, in so doing, constructs mutual obligation between individuals and the state. Drawing on ethnographic fieldwork in the Danish National Genome Center (DNGC), we show how members of advisory bodies negotiated the inclusion criteria for two different …
Ethics in Clinical Research (3 works) · Law (3 works) · Political science (3 works) · Sociology (3 works) · Computer Science (2 works) · Law (2 works) · Medicine (2 works) · Nursing (2 works) · Population (2 works) · Public health (2 works)