Joseph A Stramondo
Biographic Data
| ID | 6559028 |
|---|---|
| NAME | Joseph A Stramondo |
| GIVEN NAMES | Joseph A |
| FAMILY NAME | Stramondo |
| SIGNATURE | STRAMONDO J A |
| AFFILIATIONS | San Diego State University |
| ORCID | 0000-0003-1890-7164 |
| VERIFIED | Yes |
| TOTAL WORKS | 13 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 13 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2011 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 0 |
Nothing about Us without Us in Precision Medicine: A Call to Reframe Disability Difference in Genetics and Genomics
Sixty‐one million Americans and approximately a billion people worldwide live with some form of disability that limits one or more major life activities. The field of precision medicine continues to grapple with how to best serve disability communities. In this paper, we suggest that precision medicine faces an ethical tension between its goal to treat or cure disabling conditions and views that consider disability as a marginalized identity. We …
Expressed Ableism
With increased frequency, reproductive technologies are placing prospective parents in the position of choosing whether to bring a disabled child into the world. The most well-known objection to the act of “selecting against disability” is known as the Expressivist Argument. The argument claims that such acts express a negative or disrespectful message about disabled people and that one has a moral reason to avoid sending such messages. We have t…
How Disability Activism Advances Disability Bioethics
In this paper, I argue that, even when disability rights activists are most clearly acting as activists, they can advance the scholarly activity of disability bioethics. In particular, I will argue that even engaging in non-violent direct action, including civil disobedience, is an important way in which disability rights activists directly support the efforts of disability bioethics scholars. I will begin by drawing upon Hilde Lindemann’s work o…
Tragic Choices: Disability, Triage, and Equity Amidst a Global Pandemic
In this paper, I make three arguments regarding Crisis Standards of Care developed during the COVID-19 pandemic. First, I argue against the consideration of third person quality of life judgments that deprioritize disabled or chronically ill people on a basis other than their survival, even if protocols use the language of health to justify maintaining the supposedly higher well-being of non-disabled people. Second, while it may be unavoidable th…
Bioethics, Adaptive Preferences, and Judging the Quality of a Life with Disability
Both mainstream and disability bioethics sometimes contend that the self-assessment of disabled people about their own well-being is distorted by adaptive preferences that are only held because other, better options are unavailable. I will argue that both of the most common ways of understanding adaptive preferences—the autonomy-based account and the well-being account—would reject blanket claims that disabled people’s QOL self-assessment has bee…
How to (Consistently) Reject the Options Argument
It is commonly thought that disability is a harm or “bad difference” because having a disability restricts valuable options in life. In his recent essay “Disability, Options and Well-Being,” Thomas Crawley offers a novel defense of this style of reasoning (formulated as the Options Argument) and argues that we and like-minded critics of this brand of argument are guilty of an inconsistency. Our aim in this article is to explain why our view avoid…
The right to assistive technology
Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule …
Disability and the Damaging Master Narrative of an Open Future
It is sometimes argued that medical professionals should protect a future child's rights by prohibiting disabled parents from using technology to deliberately have a disabled child because disability is taken as an inevitable, severe threat to a child's otherwise “open” future. I will first argue that the open future that allegedly protects a child's future autonomy is precluded by the very conditions needed to develop that future autonomy. Any c…
Why Bioethics Needs a Disability Moral Psychology
The deeply entrenched, sometimes heated conflict between the disability movement and the profession of bioethics is well known and well documented. Critiques of prenatal diagnosis and selective abortion are probably the most salient and most sophisticated of disability studies scholars’ engagements with bioethics, but there are many other topics over which disability activists and scholars have encountered the field of bioethics in an adversarial…
Competence, Voluntariness, and Oppressive Socialization: A Feminist Critique of the Threshold Elements of Informed Consent
Feminists have argued that oppressive socialization undermines the liberal model of autonomy. We contend that this argument can also be employed effectively as a challenge to the standard bioethical model of informed consent. We claim that the standard model is inadequate because it relies on presumptions of procedural autonomy and rational choice that overlook the problem of how agents are often socialized so that they adopt and internalize oppr…
Seeing the forest through the trees: What the radical feminist critique of prostitution can teach us about the sale of kidneys by living suppliers
Recent scholarship suggests that the practices of selling sex and selling kidneys can be understood as examples of serious harms that are sometimes chosen by autonomous individuals who find themselves in difficult straits. This analogy between kidney sales by live suppliers and prostitution deserves careful, rigorous consideration. Ideas about autonomy, paternalism, systemic oppression, commodification, and the human body are at the core of each …
Doing ethics from experience: Pragmatic suggestions for a feminist disability advocate’s response to prenatal diagnosis
While disability theory and feminist theory share a great deal in their methodology and could potentially share quite a bit in their political commitments, there is a tension or conflict between these two approaches as they evaluate prenatal diagnosis. For the feminist disability advocate, this can be thought of as a type of ideological double bind. This paper will dissolve this tension by way of John Dewey’s version of American pragmatism. First…
No prominent works on this page.
Doing ethics from experience: Pragmatic suggestions for a feminist disability advocate’s response to prenatal diagnosis
While disability theory and feminist theory share a great deal in their methodology and could potentially share quite a bit in their political commitments, there is a tension or conflict between these two approaches as they evaluate prenatal diagnosis. For the feminist disability advocate, this can be thought of as a type of ideological double bind. This paper will dissolve this tension by way of John Dewey’s version of American pragmatism. First…
Seeing the forest through the trees: What the radical feminist critique of prostitution can teach us about the sale of kidneys by living suppliers
Recent scholarship suggests that the practices of selling sex and selling kidneys can be understood as examples of serious harms that are sometimes chosen by autonomous individuals who find themselves in difficult straits. This analogy between kidney sales by live suppliers and prostitution deserves careful, rigorous consideration. Ideas about autonomy, paternalism, systemic oppression, commodification, and the human body are at the core of each …
Competence, Voluntariness, and Oppressive Socialization: A Feminist Critique of the Threshold Elements of Informed Consent
Feminists have argued that oppressive socialization undermines the liberal model of autonomy. We contend that this argument can also be employed effectively as a challenge to the standard bioethical model of informed consent. We claim that the standard model is inadequate because it relies on presumptions of procedural autonomy and rational choice that overlook the problem of how agents are often socialized so that they adopt and internalize oppr…
Why Bioethics Needs a Disability Moral Psychology
The deeply entrenched, sometimes heated conflict between the disability movement and the profession of bioethics is well known and well documented. Critiques of prenatal diagnosis and selective abortion are probably the most salient and most sophisticated of disability studies scholars’ engagements with bioethics, but there are many other topics over which disability activists and scholars have encountered the field of bioethics in an adversarial…
The right to assistive technology
Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule …
Disability and the Damaging Master Narrative of an Open Future
It is sometimes argued that medical professionals should protect a future child's rights by prohibiting disabled parents from using technology to deliberately have a disabled child because disability is taken as an inevitable, severe threat to a child's otherwise “open” future. I will first argue that the open future that allegedly protects a child's future autonomy is precluded by the very conditions needed to develop that future autonomy. Any c…
Tragic Choices: Disability, Triage, and Equity Amidst a Global Pandemic
In this paper, I make three arguments regarding Crisis Standards of Care developed during the COVID-19 pandemic. First, I argue against the consideration of third person quality of life judgments that deprioritize disabled or chronically ill people on a basis other than their survival, even if protocols use the language of health to justify maintaining the supposedly higher well-being of non-disabled people. Second, while it may be unavoidable th…
Bioethics, Adaptive Preferences, and Judging the Quality of a Life with Disability
Both mainstream and disability bioethics sometimes contend that the self-assessment of disabled people about their own well-being is distorted by adaptive preferences that are only held because other, better options are unavailable. I will argue that both of the most common ways of understanding adaptive preferences—the autonomy-based account and the well-being account—would reject blanket claims that disabled people’s QOL self-assessment has bee…
How to (Consistently) Reject the Options Argument
It is commonly thought that disability is a harm or “bad difference” because having a disability restricts valuable options in life. In his recent essay “Disability, Options and Well-Being,” Thomas Crawley offers a novel defense of this style of reasoning (formulated as the Options Argument) and argues that we and like-minded critics of this brand of argument are guilty of an inconsistency. Our aim in this article is to explain why our view avoid…
How Disability Activism Advances Disability Bioethics
In this paper, I argue that, even when disability rights activists are most clearly acting as activists, they can advance the scholarly activity of disability bioethics. In particular, I will argue that even engaging in non-violent direct action, including civil disobedience, is an important way in which disability rights activists directly support the efforts of disability bioethics scholars. I will begin by drawing upon Hilde Lindemann’s work o…
Expressed Ableism
With increased frequency, reproductive technologies are placing prospective parents in the position of choosing whether to bring a disabled child into the world. The most well-known objection to the act of “selecting against disability” is known as the Expressivist Argument. The argument claims that such acts express a negative or disrespectful message about disabled people and that one has a moral reason to avoid sending such messages. We have t…
Nothing about Us without Us in Precision Medicine: A Call to Reframe Disability Difference in Genetics and Genomics
Sixty‐one million Americans and approximately a billion people worldwide live with some form of disability that limits one or more major life activities. The field of precision medicine continues to grapple with how to best serve disability communities. In this paper, we suggest that precision medicine faces an ethical tension between its goal to treat or cure disabling conditions and views that consider disability as a marginalized identity. We …
Law (11 works) · Political science (11 works) · Sociology (11 works) · Psychology (10 works) · Ethics in medical practice (6 works) · Medicine (6 works) · Philosophy (6 works) · Social Psychology (6 works) · Autonomy (5 works) · Environmental ethics (5 works)