Emily E Anderson
Biographic Data
| ID | 6635538 |
|---|---|
| NAME | Emily E Anderson |
| GIVEN NAMES | Emily E |
| FAMILY NAME | Anderson |
| SIGNATURE | ANDERSON E E |
| AFFILIATIONS | Loyola University Chicago |
| ORCID | 0000-0003-2197-1239 |
| VERIFIED | Yes |
| TOTAL WORKS | 21 |
| TOTAL CITATIONS | 14 |
| WORKS AS AUTHOR | 21 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2006 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 3 |
Ethical Issues Conducting Research During War and Violent Conflict
Global health engagement increasingly occurs in the context of war and violent conflict. Many health‐related decisions are made which should be guided by evidence. Health research is needed to provide evidence, yet conducting research in conflict settings raises multiple ethical issues. However, the ethical issues involved in conducting research during war and violent conflict have received insufficient attention. The literature suggests that the…
A Scoping Review of Empirical Research on Research Ethics Board Membership and Expertise
REB membership and its local idioculture play a key role in the decisions made. Little evidence exists as to what composition of membership expertise and training creates the conditions for a board to be most effective. This scoping review of the empirical research on REB membership and expertise aims to outline what evidence has been gathered and what gaps exist. Our main research question was: What empirical research exists on how research ethi…
Characterization of Individuals and Institutions using Cirtification Online Human Research Protections Training for Community Researchers
Accessible, high-quality human research protections (HRP) training is essential to the ethical conduct of research. Here we describe the development and implementation of CIRTification Online, a comprehensive, freely available, and now completely online HRP training program designed specifically for community researchers. We characterize the over 5,800 individuals and 58 institutions that have used CIRTification Online during its first five years…
Advancing Doctoral and Postdoctoral International Bioethics Training Programs Supported by the D43 National Institutes of Health (NIH) Fogarty Mechanism
Advancing doctoral and postdoctoral international bioethics training in low-and-middle income countries (LMICs) is essential to address the emerging and reemerging healthcare needs of local populations. The COVID-19 pandemic underscored the need for sustenance of global collaboration and rapid adaptability in the future to further prioritize research frameworks to benefit LMICs. Thus, the purpose of the manuscript is to share the successes, chall…
Fogarty-Funded Research Ethics Training Programs in Eastern Europe
Low and middle-income countries (LMICs) in Eastern Europe are attractive to global companies as sites for clinical trials, but there are gaps in research oversight and limited in-country expertise in research ethics, raising concerns that research participants may be at risk of exploitation and harm. Three NIH Fogarty International Center-funded research ethics training programs in Eastern Europe address these gaps, developed by partnerships betw…
Revitalizing preschool minds
Introduction: Brain health interventions seek to cultivate enduring, health-promoting behaviors for an enhanced quality of life. Despite this objective, achieving sustained adoption and engagement of healthy lifestyle behaviors remains a challenge, prompting the exploration of innovative avenues for promoting brain health. The potential of integrating brain health education in younger populations is particularly promising, given the likelihood of…
Engaging key stakeholders to overcome barriers to studying the quality of research ethics oversight
The primary purpose of Institutional Review Boards (IRBs) is to protect the rights and welfare of human research participants. Evaluation and measurement of how IRBs satisfy this purpose and other important goals are open questions that demand empirical research. Research on IRBs, and the Human Research Protection Programs (HRPPs) of which they are often a part, is necessary to inform evidence-based practices, policies, and approaches to quality …
A Vision for “Ethics and Community Collaborations”
Progress in Community Health Partnerships: Research, Education, and Action - Volume 14, Issue 3, Fall 2020
Beyond the Manuscript
Progress in Community Health Partnerships: Research, Education, and Action - Volume 14, Issue 3, Fall 2020
Against Consent Form Language Requiring Multiple or Specific Methods of Contraception
Abstracts From the PRIM&R 2016 Advancing Ethical Research Conference
Restricted accessAbstractFirst published online December 22, 2016Abstracts From the PRIM&R 2016 Advancing Ethical Research ConferenceEmily E. AndersonView all authors and affiliationsVolume 11, Issue 5https://doi.org/10.1177/1556264616682711
Cirtification
The curriculum, as well as information and materials to help potential users promote acceptance of the curriculum by their local institutional review boards (IRBs), are freely available online at www.go.uic.edu/CIRT. Ideally, community research partners who complete CIRTification will not only learn about the importance of protecting research participants but also be empowered to substantially contribute to the ethical practices of their respecti…
Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial
Awareness of Federal Regulatory Mechanisms Relevant to Community-Engaged Research
Few studies or investigators involved in community-engaged research or community-based participatory research have examined awareness and adoption of federal regulatory mechanisms. We conducted a survey of investigators affiliated with the 10 National Institutes of Health (NIH) Centers for Population Health and Health Disparities. A questionnaire designed to capture experience with the conduct and oversight of community-engaged research, and awar…
Views of Academic and Community Partners Regarding Participant Protections and Research Integrity
When community partners have direct interaction with human research participants, it is important to consider potential threats to participant protections and research integrity. Few studies have directly compared the views of academic and community partners. This pilot focus group study explores the views of academic partners (APs) and community partners (CPs) regarding challenges to the protection of research participants and research integrity…
Research Ethics Education for Community-Engaged Research
Community engagement is increasingly becoming an integral part of research. “Community-engaged research” (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We—a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR—have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2)…
Direct-to-Consumer Personal Genome Services
Genetic tests have been developed for approximately 1,500 diseases. Most of these tests have not yet been incorporated into standard primary care due to limited evidence regarding their clinical validity and utility; the complex and not wellunderstood role that genes play in the development of many common diseases; physicians' limited knowledge of genetics; and public fear of genetic discrimination Despite these concerns, genetic tests are increa…
Assessing and Improving Research Participants' Understanding of Risk
EVIDENCE THAT LAY PEOPLE FREQUENTLY misinterpret risk raises concerns for the ethical conduct of human research, which requires adequate disclosure, understanding, and appreciation of risk information. Review of the risk communication research literature suggests new directions for empirical research on human research ethics: Investigation is needed on how to best assess and improve potential and enrolled subjects' understanding of risk informati…
The Logic of Ethnic Business Distribution in Multiethnic Cities
The authors propose a model for understanding ethnic business locations in multiethnic cities. The central argument of the framework is that the location of ethnic businesses reflects the match between the neighborhood business environment and the unique locational demand of the ethnic businesses involved in particular industrial sectors. Hypotheses were tested by a data set of Chinese businesses in the Toronto area drawn from business directorie…
What We Talk about When We Talk about Goals
Editor's introduction to a Virtual Mentor issue on the goals of medicine, in which authors explore how the goals of medicine are set and suggest how to approach decision making when patient requests seem to stretch the boundaries of medicine proper. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
Parental Consent for Pediatric Research
Despite an historic emphasis on protecting children from research risks, over the last few decades medicine has come to recognize the need to include children in systematic efforts to evaluate treatments in order to ensure their safe and effective medical care. In her new book, "Children in Medical Research: Access Versus Protection," Lainie Friedman Ross, MD, assesses the state of human subjects protections in pediatric research Ethical analyses…
The Logic of Ethnic Business Distribution in Multiethnic Cities
The authors propose a model for understanding ethnic business locations in multiethnic cities. The central argument of the framework is that the location of ethnic businesses reflects the match between the neighborhood business environment and the unique locational demand of the ethnic businesses involved in particular industrial sectors. Hypotheses were tested by a data set of Chinese businesses in the Toronto area drawn from business directorie…
Cirtification
The curriculum, as well as information and materials to help potential users promote acceptance of the curriculum by their local institutional review boards (IRBs), are freely available online at www.go.uic.edu/CIRT. Ideally, community research partners who complete CIRTification will not only learn about the importance of protecting research participants but also be empowered to substantially contribute to the ethical practices of their respecti…
Views of Academic and Community Partners Regarding Participant Protections and Research Integrity
When community partners have direct interaction with human research participants, it is important to consider potential threats to participant protections and research integrity. Few studies have directly compared the views of academic and community partners. This pilot focus group study explores the views of academic partners (APs) and community partners (CPs) regarding challenges to the protection of research participants and research integrity…
A Vision for “Ethics and Community Collaborations”
Progress in Community Health Partnerships: Research, Education, and Action - Volume 14, Issue 3, Fall 2020
Advancing Doctoral and Postdoctoral International Bioethics Training Programs Supported by the D43 National Institutes of Health (NIH) Fogarty Mechanism
Advancing doctoral and postdoctoral international bioethics training in low-and-middle income countries (LMICs) is essential to address the emerging and reemerging healthcare needs of local populations. The COVID-19 pandemic underscored the need for sustenance of global collaboration and rapid adaptability in the future to further prioritize research frameworks to benefit LMICs. Thus, the purpose of the manuscript is to share the successes, chall…
Assessing and Improving Research Participants' Understanding of Risk
EVIDENCE THAT LAY PEOPLE FREQUENTLY misinterpret risk raises concerns for the ethical conduct of human research, which requires adequate disclosure, understanding, and appreciation of risk information. Review of the risk communication research literature suggests new directions for empirical research on human research ethics: Investigation is needed on how to best assess and improve potential and enrolled subjects' understanding of risk informati…
Parental Consent for Pediatric Research
Despite an historic emphasis on protecting children from research risks, over the last few decades medicine has come to recognize the need to include children in systematic efforts to evaluate treatments in order to ensure their safe and effective medical care. In her new book, "Children in Medical Research: Access Versus Protection," Lainie Friedman Ross, MD, assesses the state of human subjects protections in pediatric research Ethical analyses…
What We Talk about When We Talk about Goals
Editor's introduction to a Virtual Mentor issue on the goals of medicine, in which authors explore how the goals of medicine are set and suggest how to approach decision making when patient requests seem to stretch the boundaries of medicine proper. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
Assessing and Improving Research Participants' Understanding of Risk
EVIDENCE THAT LAY PEOPLE FREQUENTLY misinterpret risk raises concerns for the ethical conduct of human research, which requires adequate disclosure, understanding, and appreciation of risk information. Review of the risk communication research literature suggests new directions for empirical research on human research ethics: Investigation is needed on how to best assess and improve potential and enrolled subjects' understanding of risk informati…
The Logic of Ethnic Business Distribution in Multiethnic Cities
The authors propose a model for understanding ethnic business locations in multiethnic cities. The central argument of the framework is that the location of ethnic businesses reflects the match between the neighborhood business environment and the unique locational demand of the ethnic businesses involved in particular industrial sectors. Hypotheses were tested by a data set of Chinese businesses in the Toronto area drawn from business directorie…
Direct-to-Consumer Personal Genome Services
Genetic tests have been developed for approximately 1,500 diseases. Most of these tests have not yet been incorporated into standard primary care due to limited evidence regarding their clinical validity and utility; the complex and not wellunderstood role that genes play in the development of many common diseases; physicians' limited knowledge of genetics; and public fear of genetic discrimination Despite these concerns, genetic tests are increa…
Research Ethics Education for Community-Engaged Research
Community engagement is increasingly becoming an integral part of research. “Community-engaged research” (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We—a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR—have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2)…
Views of Academic and Community Partners Regarding Participant Protections and Research Integrity
When community partners have direct interaction with human research participants, it is important to consider potential threats to participant protections and research integrity. Few studies have directly compared the views of academic and community partners. This pilot focus group study explores the views of academic partners (APs) and community partners (CPs) regarding challenges to the protection of research participants and research integrity…
Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial
Awareness of Federal Regulatory Mechanisms Relevant to Community-Engaged Research
Few studies or investigators involved in community-engaged research or community-based participatory research have examined awareness and adoption of federal regulatory mechanisms. We conducted a survey of investigators affiliated with the 10 National Institutes of Health (NIH) Centers for Population Health and Health Disparities. A questionnaire designed to capture experience with the conduct and oversight of community-engaged research, and awar…
Cirtification
The curriculum, as well as information and materials to help potential users promote acceptance of the curriculum by their local institutional review boards (IRBs), are freely available online at www.go.uic.edu/CIRT. Ideally, community research partners who complete CIRTification will not only learn about the importance of protecting research participants but also be empowered to substantially contribute to the ethical practices of their respecti…
Abstracts From the PRIM&R 2016 Advancing Ethical Research Conference
Restricted accessAbstractFirst published online December 22, 2016Abstracts From the PRIM&R 2016 Advancing Ethical Research ConferenceEmily E. AndersonView all authors and affiliationsVolume 11, Issue 5https://doi.org/10.1177/1556264616682711
Against Consent Form Language Requiring Multiple or Specific Methods of Contraception
A Vision for “Ethics and Community Collaborations”
Progress in Community Health Partnerships: Research, Education, and Action - Volume 14, Issue 3, Fall 2020
Beyond the Manuscript
Progress in Community Health Partnerships: Research, Education, and Action - Volume 14, Issue 3, Fall 2020
Engaging key stakeholders to overcome barriers to studying the quality of research ethics oversight
The primary purpose of Institutional Review Boards (IRBs) is to protect the rights and welfare of human research participants. Evaluation and measurement of how IRBs satisfy this purpose and other important goals are open questions that demand empirical research. Research on IRBs, and the Human Research Protection Programs (HRPPs) of which they are often a part, is necessary to inform evidence-based practices, policies, and approaches to quality …
Revitalizing preschool minds
Introduction: Brain health interventions seek to cultivate enduring, health-promoting behaviors for an enhanced quality of life. Despite this objective, achieving sustained adoption and engagement of healthy lifestyle behaviors remains a challenge, prompting the exploration of innovative avenues for promoting brain health. The potential of integrating brain health education in younger populations is particularly promising, given the likelihood of…
A Scoping Review of Empirical Research on Research Ethics Board Membership and Expertise
REB membership and its local idioculture play a key role in the decisions made. Little evidence exists as to what composition of membership expertise and training creates the conditions for a board to be most effective. This scoping review of the empirical research on REB membership and expertise aims to outline what evidence has been gathered and what gaps exist. Our main research question was: What empirical research exists on how research ethi…
Characterization of Individuals and Institutions using Cirtification Online Human Research Protections Training for Community Researchers
Accessible, high-quality human research protections (HRP) training is essential to the ethical conduct of research. Here we describe the development and implementation of CIRTification Online, a comprehensive, freely available, and now completely online HRP training program designed specifically for community researchers. We characterize the over 5,800 individuals and 58 institutions that have used CIRTification Online during its first five years…
Advancing Doctoral and Postdoctoral International Bioethics Training Programs Supported by the D43 National Institutes of Health (NIH) Fogarty Mechanism
Advancing doctoral and postdoctoral international bioethics training in low-and-middle income countries (LMICs) is essential to address the emerging and reemerging healthcare needs of local populations. The COVID-19 pandemic underscored the need for sustenance of global collaboration and rapid adaptability in the future to further prioritize research frameworks to benefit LMICs. Thus, the purpose of the manuscript is to share the successes, chall…
Fogarty-Funded Research Ethics Training Programs in Eastern Europe
Low and middle-income countries (LMICs) in Eastern Europe are attractive to global companies as sites for clinical trials, but there are gaps in research oversight and limited in-country expertise in research ethics, raising concerns that research participants may be at risk of exploitation and harm. Three NIH Fogarty International Center-funded research ethics training programs in Eastern Europe address these gaps, developed by partnerships betw…
Ethical Issues Conducting Research During War and Violent Conflict
Global health engagement increasingly occurs in the context of war and violent conflict. Many health‐related decisions are made which should be guided by evidence. Health research is needed to provide evidence, yet conducting research in conflict settings raises multiple ethical issues. However, the ethical issues involved in conducting research during war and violent conflict have received insufficient attention. The literature suggests that the…
Ethics in Clinical Research (14 works) · Ethics in medical practice (12 works) · Political science (12 works) · Medicine (10 works) · Psychology (10 works) · Research ethics (10 works) · Public relations (8 works) · Medical education (7 works) · Computer Science (6 works) · Engineering ethics (6 works)