Caroline B Terwee
Biographic Data
| ID | 6683856 |
|---|---|
| NAME | Caroline B Terwee |
| GIVEN NAMES | Caroline B |
| FAMILY NAME | Terwee |
| SIGNATURE | TERWEE C B |
| AFFILIATIONS | Amsterdam University Medical Centers |
| ORCID | 0000-0003-4570-2826 |
| VERIFIED | Yes |
| TOTAL WORKS | 50 |
| TOTAL CITATIONS | 4 |
| WORKS AS AUTHOR | 50 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2003 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Making sense of PROM outcomes
Graphs are often used to increase patient understanding of Patient Reported Outcome Measure (PROM) scores. We aimed to investigate which graph visualization options are best interpreted by children. We conducted a quantitative study to assess children’s interpretation accuracy and perceived clarity of different PROM visualizations graphs through a test, and a qualitative study using ‘think aloud’ interviews about the same visualizations to explor…
Cosmin reporting guideline for studies on measurement properties of patient‐reported outcome measures
Explanation & Elaboration document of the Cosmin Reporting Guideline 2.0 for studies on measurement properties of patient-reported outcome measures
Reducing patient burden of PROMs in healthcare through advanced computerized adaptive testing stopping rules
We conclude that the current approach allows us to determine an optimal SER threshold that improves measurement efficiency, especially when floor/ceiling effects are present in the target population. The threshold values will vary depending on the θ distribution of the target population and the IRT model parameters
Systematic reviews of patient-reported outcome measures (PROMs)
Templates complementing the PRISMA-COSMIN for OMIs 2024 reporting guidance can be used to standardize and enhance the clarity and usefulness of OMI systematic reviews focusing on PROMs. They comprise a comprehensive set of tools to effectively report OMI systematic reviews, in service of end-users who are selecting OMIs
Outcome measurement instruments used to measure diet-related outcomes in infancy
INTRODUCTION: Supporting positive diet behaviours during infancy is essential to support child health and prevent childhood obesity. How infant diet-related outcomes are measured in trials is crucial to determining intervention effectiveness. This scoping review examined what and how outcome measurement instruments are currently used to measure 13 infant diet-related outcomes from a previously developed core outcome set. METHODS: The databases EM…
Effect of present state bias on minimal important change estimates
We recommend the unconstrained LIRT- and LCFA-based MIC methods to estimate anchor-based MICs, irrespective of the degree of PSB. The APM-method is a feasible alternative if PSB is limited
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs)
PRISMA-COSMIN for OMIs 2024 consists of two checklists (full reports; abstracts), their corresponding explanation and elaboration documents detailing the rationale and examples for each item, and a data flow diagram. PRISMA-COSMIN for OMIs 2024 can improve the reporting of systematic reviews of OMIs, fostering their reproducibility and allowing end-users to appraise the quality of OMIs and select the most appropriate OMI for a specific applicatio…
Extending the PROMIS item bank “ability to participate in social roles and activities”
We extended the PROMIS-APSRA item bank and improved its psychometric quality. Our study contributes to PROMIS measurement innovation, which allows for the addition of new items to existing item banks, without changing the interpretation of the scores and while maintaining the comparability of the scores with other PROMIS instruments
Cosmin guideline for systematic reviews of patient-reported outcome measures version 2.0
The quality of systematic reviews of PROMs can be improved by using this updated version of the COSMIN guideline for systematic reviews of PROMs. Improved quality will lead to better PROM selection and increased standardization of PROM use
Estimating meaningful thresholds for multi-item questionnaires using item response theory
The new IRT method perfectly recovers meaningful (interpretational) thresholds for multi-item questionnaires, provided that the data satisfy the assumptions for IRT analysis
Estimating anchor-based minimal important change using longitudinal confirmatory factor analysis
Development of a standard set of PROs and generic PROMs for Dutch medical specialist care
We developed a consensus-based standard set of Generic PROMs and a set of recommendations to facilitate healthcare system wide implementation across Dutch medical specialist care
Suitability of the animated activity questionnaire for use as computer adaptive test
The almost non-verbal AAQ-CAT is an innovative and efficient tool in patients with hip/knee osteoarthritis from various countries, measuring activity limitations with lower respondent burden, but similar precision and construct validity compared to the full AAQ
Measurement properties of the Dutch PROMIS-29 v2.1 profile in people with and without chronic conditions
Sufficient structural validity, internal consistency and measurement invariance were found, both in the entire sample and in subsamples with and without chronic diseases. Requirements for sufficient evidence for construct validity were (almost) met for most subscales. Future studies should investigate test-retest reliability, measurement error, and responsiveness of the PROMIS-29
Psychometric properties of the Patient-Reported Outcomes Measurement Information System (PROMIS®) pediatric item bank peer relationships in the Dutch general population
The pediatric PROMIS Peer Relationships item bank was successfully validated for use within the Dutch population and reference data are now available
Cosmin reporting guideline for studies on measurement properties of patient-reported outcome measures
The impact of lockdown during the Covid-19 pandemic on mental and social health of children and adolescents
This study showed that governmental regulations regarding lockdown pose a serious mental/social health threat on children/adolescents that should be brought to the forefront of political decision-making and mental healthcare policy, intervention, and prevention
Translation and cross-cultural adaptation of Nepali versions of the Patient-Reported Outcomes Measurement Information System (PROMIS®) Pain Intensity, Pain Interference, Pain Behavior, Depression, and…
Assessing baseline dependency of anchor-based minimal important change (MIC)
MIC baseline dependency should not be tested in subgroups based on stratification on the baseline PROM score. Instead, one or more of the suggested alternative methods should be used
Psychometric properties of the Dutch-Flemish PROMIS® pediatric item banks Anxiety and Depressive Symptoms in a general population
Proposal to extend the PROMIS® item bank v2.0 ‘Ability to Participate in Social Roles and Activities’
The relevance, comprehensibility and comprehensiveness of the 17 proposed items were supported. Whether the proposed extension of the item bank leads to better psychometric properties of the item bank should be tested in a large-scale field study
Development of a Patient-Reported Outcomes Measurement Information System (PROMIS®) short form for measuring physical function in geriatric rehabilitation patients
The PROMIS-PF-GR was developed from the PROMIS-PF and has good content validity, structural validity, measurement invariance, and internal consistency in Dutch geriatric rehabilitation patients. We recommend to confirm the content validity of the PROMIS-PF-GR in other countries
Translation, cross-cultural and construct validity of the Dutch–Flemish PROMIS® upper extremity item bank v2.0
Differential item functioning of the PROMIS physical function, pain interference, and pain behavior item banks across patients with different musculoskeletal disorders and persons from the general pop…
Methodological challenges in quality of life research among Turkish and Moroccan ethnic minority cancer patients
The large population of first generation Turkish and Moroccan immigrants who moved to Western Europe in the 1960s and 1970s is now reaching an age at which the incidence of chronic diseases, including cancer, rises sharply. To date, little attention has been paid to the health-related quality of life (HRQOL) of these ethnic minority groups, primarily due to the paucity of well translated and validated measures, but also because of a range of meth…
On assessing responsiveness of health-related quality of life instruments
Health-related and overall quality of life of patients with chronic hip and knee complaints in general practice
Minimally important change determined by a visual method integratingan anchor-based and a distribution-based approach
The anchor-based MIC distribution method provides a general framework, applicable to all kind of anchors. This method forces researchers to choose and justify their choice of an appropriate anchor and to define minimal importance on that anchor. The MIC is not an invariable characteristic of a measurement instrument, but may depend, among other things, on the perspective from which minimal importance is considered and the baseline values on the m…
Evaluation of Cross-sectional and Longitudinal Construct Validity of Two Vision-related Quality of Life Questionnaires
Quality criteria were proposed for measurement properties of health status questionnaires
Methodological challenges in quality of life research among Turkish and Moroccan ethnic minority cancer patients
The large population of first generation Turkish and Moroccan immigrants who moved to Western Europe in the 1960s and 1970s is now reaching an age at which the incidence of chronic diseases, including cancer, rises sharply. To date, little attention has been paid to the health-related quality of life (HRQOL) of these ethnic minority groups, primarily due to the paucity of well translated and validated measures, but also because of a range of meth…
Evaluation of the psychometric properties of the SF-36 health survey for use among Turkish and Moroccan ethnic minority populations in the Netherlands
The results generally support the use of the SF-36 for general population research among Turkish and Moroccan ethnic minorities in the Netherlands. Additional studies are needed to confirm the psychometrics of the questionnaire when used among these populations in other Western European countries
Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instruments
The use of these search filters will contribute to evidence-based selection of measurement instruments in all medical fields
The Cosmin study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes
The Cosmin checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments
The resulting COSMIN checklist could be useful when selecting a measurement instrument, peer-reviewing a manuscript, designing or reporting a study on measurement properties, or for educational purposes
Measurement in Medicine
The success of the Apgar score demonstrates the astounding power of an appropriate clinical instrument. This down-to-earth book provides practical advice, underpinned by theoretical principles, on developing and evaluating measurement instruments in all fields of medicine. It equips you to choose the most appropriate instrument for specific purposes. The book covers measurement theories, methods and criteria for evaluating and selecting instrumen…
Rating the methodological quality in systematic reviews of studies on measurement properties
Based on experience in testing this scoring system on 46 articles, the COSMIN checklist with the proposed scoring system seems to be a useful tool for assessing the methodological quality of studies included in systematic reviews of measurement properties
Testing the psychometric properties of the Participation Scale in Eastern Nepal
The results of the analyses suggest that the psychometric properties of the P-scale are sufficient in the context of Eastern Nepal. Use of the P-scale will require (re-) confirmation of its validity in each new cultural context
Isoqol recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research
Measurement error of waist circumference
Objective It is not clear whether measuring waist circumference in clinical practice is problematic because the measurement error is unclear, as well as what constitutes a clinically relevant change. The present study aimed to summarize what is known from state-of-the-art research. Design To identify the magnitude of the measurement error of waist circumference measurements from the literature, a search was conducted in PubMed from 1975 to Februa…
Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease
Dutch–Flemish translation of 17 item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)
Dutch–Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®
The Dutch-Flemish PROMIS items are linguistically equivalent to the original USA version. Short forms are now available for use, and entire item banks are ready for cross-cultural validation in the Netherlands and Flanders
Development and validation of a questionnaire assessing the perceived control in health care among older adults with care needs in the Netherlands
Our questionnaire revealed sufficient construct validity and internal consistency. The instrument provides a basis for further quantitative research regarding control, especially in relation to health care-related outcomes
Cosmin Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures
The COSMIN Risk of Bias checklist was developed exclusively for use in systematic reviews of PROMs to distinguish this application from other purposes of assessing the methodological quality of studies on measurement properties, such as guidance for designing or reporting a study on the measurement properties
Item usage in a multidimensional computerized adaptive test (MCAT) measuring health-related quality of life
Our results strengthen the claim that relatively short item banks may suffice when using polytomous items (and no content constraints/exposure control mechanisms), especially when using MCAT
Validation of the PROMIS Sleep Disturbance and Sleep-Related Impairment item banks in Dutch adolescents
While the PROMIS Sleep Disturbance-23 for adolescents and PROMIS Sleep-Related Impairment-11 for adolescents provide a framework to assess adolescent sleep, additional research is needed to replicate these findings in a larger and more diverse sample
Cosmin guideline for systematic reviews of patient-reported outcome measures
The COSMIN guideline for systematic reviews of PROMs includes methodology to combine the methodological quality of studies on measurement properties with the quality of the PROM itself (i.e., its measurement properties). This enables reviewers to draw transparent conclusions and making evidence-based recommendations on the quality of PROMs, and supports the evidence-based selection of PROMs for use in research and in clinical practice
Validation of two PROMIS item banks for measuring social participation in the Dutch general population
The PROMIS participation item banks showed sufficient psychometric properties in a general Dutch population and can be used as CAT. PROMIS CATs allow reliable and valid measurement of participation in an efficient and user-friendly way with limited administration time
Differential item functioning of the PROMIS physical function, pain interference, and pain behavior item banks across patients with different musculoskeletal disorders and persons from the general pop…
Medicine (40 works) · Psychology (39 works) · Clinical Psychology (24 works) · Clinical Psychology (23 works) · Psychometrics (23 works) · Computer Science (21 works) · Mathematics (18 works) · Statistics (18 works) · Public health (16 works) · Quality of Life Research (14 works)