Sylvia Nabukenya
Biographic Data
| ID | 6764061 |
|---|---|
| NAME | Sylvia Nabukenya |
| GIVEN NAMES | Sylvia |
| FAMILY NAME | Nabukenya |
| SIGNATURE | NABUKENYA S |
| AFFILIATIONS | Infectious Diseases Institute |
| ORCID | 0000-0001-5868-7376 |
| VERIFIED | Yes |
| TOTAL WORKS | 5 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 5 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2023 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 0 |
Ethical review of AI health research
The use of artificial intelligence (AI) in health research of both communicable and non-communicable diseases has shown an improvement in diagnosis, reduced researchers’ workload, and facilitated real-time data analysis. However, several ethical concerns on public trust, privacy, accountability and fairness regarding access to AI have been pointed out to expose the users of AI to harm. Whereas AI technologies continue to grow rapidly in health re…
“Should researchers return individual pharmacogenomics results to participants? ” A descriptive qualitative study on stakeholder perspectives involved in HIV/Aids research and treatment in Uganda
The return of individual pharmacogenomic research results is increasingly recognized as an ethical obligation, reflecting participants’ right to information and researchers’ duty of care. However, implementing this in low-resource settings poses significant ethical and logistical challenges. We explored stakeholders’ attitudes and challenges to the process of returning individual pharmacogenomics research results in Uganda. Between September 2021…
Culturally appropriate terminologies in health research
Background The language used in research and health programs is crucial in influencing participation and ensuring the acceptability of programs and the adoption of research outcomes. The use of alienating language may present a barrier for research participants hence the need to identify accurate, respectful, relevant, and acceptable terms for respective study populations. The study explored commonly used terminologies during research involving p…
‘ It is a complex process, but it’s very important to return these results to participants’ . Stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics researc…
This study aimed to explore stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV. A qualitative approach to investigation involved five focus group discussions with 30 Community representatives, 12 key informant interviews with researchers, and 12 in-depth interviews with research ethics committee members. In total, 54 stakeholders who were involved in pharma…
Research Participants’ Preferences for Individual Results of Pharmacogenomics Research
Little is known about whether people living with HIV would like to receive their results from pharmacogenomics research. This study explored the factors influencing participants' preferences and the reasons for their desire to receive individual results from pharmacogenomics research. We employed a convergent parallel mixed methods study design comprising a survey of 225 research participants and 5 deliberative focus group discussions with 30 pur…
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Research Participants’ Preferences for Individual Results of Pharmacogenomics Research
Little is known about whether people living with HIV would like to receive their results from pharmacogenomics research. This study explored the factors influencing participants' preferences and the reasons for their desire to receive individual results from pharmacogenomics research. We employed a convergent parallel mixed methods study design comprising a survey of 225 research participants and 5 deliberative focus group discussions with 30 pur…
‘ It is a complex process, but it’s very important to return these results to participants’ . Stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics researc…
This study aimed to explore stakeholders’ perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV. A qualitative approach to investigation involved five focus group discussions with 30 Community representatives, 12 key informant interviews with researchers, and 12 in-depth interviews with research ethics committee members. In total, 54 stakeholders who were involved in pharma…
Culturally appropriate terminologies in health research
Background The language used in research and health programs is crucial in influencing participation and ensuring the acceptability of programs and the adoption of research outcomes. The use of alienating language may present a barrier for research participants hence the need to identify accurate, respectful, relevant, and acceptable terms for respective study populations. The study explored commonly used terminologies during research involving p…
Ethical review of AI health research
The use of artificial intelligence (AI) in health research of both communicable and non-communicable diseases has shown an improvement in diagnosis, reduced researchers’ workload, and facilitated real-time data analysis. However, several ethical concerns on public trust, privacy, accountability and fairness regarding access to AI have been pointed out to expose the users of AI to harm. Whereas AI technologies continue to grow rapidly in health re…
“Should researchers return individual pharmacogenomics results to participants? ” A descriptive qualitative study on stakeholder perspectives involved in HIV/Aids research and treatment in Uganda
The return of individual pharmacogenomic research results is increasingly recognized as an ethical obligation, reflecting participants’ right to information and researchers’ duty of care. However, implementing this in low-resource settings poses significant ethical and logistical challenges. We explored stakeholders’ attitudes and challenges to the process of returning individual pharmacogenomics research results in Uganda. Between September 2021…
Psychology (5 works) · Medicine (4 works) · Political science (4 works) · Qualitative research (4 works) · Social science (4 works) · Sociology (4 works) · Ethics in Clinical Research (3 works) · Family medicine (3 works) · HIV Research and Treatment (3 works) · Pharmacogenomics (3 works)