Lesley Henley
Biographic Data
| ID | 6764097 |
|---|---|
| NAME | Lesley Henley |
| GIVEN NAMES | Lesley |
| FAMILY NAME | Henley |
| SIGNATURE | HENLEY L |
| AFFILIATIONS | University of Cape Town |
| VERIFIED | No |
| TOTAL WORKS | 6 |
| TOTAL CITATIONS | 3 |
| WORKS AS AUTHOR | 6 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2000 |
| LATEST PUBLICATION YEAR | 2012 |
| H-INDEX | 1 |
Changes to the law on consent in South Africa
BACKGROUND: The National Health Act, No 61, 2003 in South Africa is the first effort made by the government to protect health-related research participants under law. Implemented on March 1, 2012, the law mandates active consent from a parent or legal guardian for all research conducted with research participants under the age of 18 years. This paper focuses on the Act's implications for school-based adolescent sexual and reproductive health rese…
Does the Requirement of Getting Active Consent from Parents in School-Based Research Result in a Biased Sample? An Empirical Study
Active parental consent is a requirement that may threaten the validity of including minors in research. This study investigated possible sources of bias between the responses of children whose parents actively consented to their participation in a school-based survey and those of children whose parents were nonresponders. Due to a serious administrative error in a study to examine health-related quality of life (HRQoL), all 514 eligible schoolch…
Ethics in Health Research
Ethics in Health Research
End of Life in HIV‐infected Children Who Died in Hospital
The aim of this study was to evaluate terminal care among hospitalized children who died of HIV/AIDS. The design was a retrospective chart review of the terminal hospitalization. The setting was a public, secondary and tertiary children's hospital in Cape Town, South Africa (SA). The patients included a consecutive series of in‐patient deaths from HIV‐related causes. The main outcome measures included: documentation of do not resuscitate (DNR) or…
Rationing and children's constitutional health-care rights
A commitment to equality of basic opportunities, or equality and equity respectively in the Bill of Rights and the White Paper on Health, provides the legal and moral foundation for future health-care for children in South Africa. In reality, extreme need and scarcity will seriously limit the government's ability to fulfil its commitment to equal health-care rights for children, making rationing inevitable. To achieve equality of basic opportunit…
Does the Requirement of Getting Active Consent from Parents in School-Based Research Result in a Biased Sample? An Empirical Study
Active parental consent is a requirement that may threaten the validity of including minors in research. This study investigated possible sources of bias between the responses of children whose parents actively consented to their participation in a school-based survey and those of children whose parents were nonresponders. Due to a serious administrative error in a study to examine health-related quality of life (HRQoL), all 514 eligible schoolch…
Rationing and children's constitutional health-care rights
A commitment to equality of basic opportunities, or equality and equity respectively in the Bill of Rights and the White Paper on Health, provides the legal and moral foundation for future health-care for children in South Africa. In reality, extreme need and scarcity will seriously limit the government's ability to fulfil its commitment to equal health-care rights for children, making rationing inevitable. To achieve equality of basic opportunit…
End of Life in HIV‐infected Children Who Died in Hospital
The aim of this study was to evaluate terminal care among hospitalized children who died of HIV/AIDS. The design was a retrospective chart review of the terminal hospitalization. The setting was a public, secondary and tertiary children's hospital in Cape Town, South Africa (SA). The patients included a consecutive series of in‐patient deaths from HIV‐related causes. The main outcome measures included: documentation of do not resuscitate (DNR) or…
Ethics in Health Research
Ethics in Health Research
Changes to the law on consent in South Africa
BACKGROUND: The National Health Act, No 61, 2003 in South Africa is the first effort made by the government to protect health-related research participants under law. Implemented on March 1, 2012, the law mandates active consent from a parent or legal guardian for all research conducted with research participants under the age of 18 years. This paper focuses on the Act's implications for school-based adolescent sexual and reproductive health rese…
Does the Requirement of Getting Active Consent from Parents in School-Based Research Result in a Biased Sample? An Empirical Study
Active parental consent is a requirement that may threaten the validity of including minors in research. This study investigated possible sources of bias between the responses of children whose parents actively consented to their participation in a school-based survey and those of children whose parents were nonresponders. Due to a serious administrative error in a study to examine health-related quality of life (HRQoL), all 514 eligible schoolch…
Medicine (4 works) · Ethics and Legal Issues in Pediatric Healthcare (3 works) · Ethics in Clinical Research (3 works) · Law (3 works) · Political science (3 works) · Sociology (3 works) · Alternative medicine (2 works) · Childhood Cancer Survivors' Quality of Life (2 works) · Informed consent (2 works) · Nursing (2 works)