Ellen A Lipstein
Biographic Data
| ID | 6764130 |
|---|---|
| NAME | Ellen A Lipstein |
| GIVEN NAMES | Ellen A |
| FAMILY NAME | Lipstein |
| SIGNATURE | LIPSTEIN E A |
| AFFILIATIONS | Cincinnati Children's Hospital Medical Center |
| ORCID | 0000-0002-3488-8971 |
| VERIFIED | Yes |
| TOTAL WORKS | 5 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 5 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2015 |
| LATEST PUBLICATION YEAR | 2023 |
| H-INDEX | 0 |
Adolescents’ and Parents’ Perspectives on a Novel Decision-Making Process for Return of Results in Genomic Research
To understand whether they found a two-step decision process helpful and why, adolescent-parent dyads participating in a study investigating return of genomic testing results were asked about their decision-making experience. Responses were qualitatively coded and analyzed using thematic analysis. Adolescents and parents found both joint and independent decision-making stages helpful. Regarding independent decision-making, adolescents appreciated…
Pilot trial of iBDecide
INTRODUCTION: This pilot, randomized controlled trial aimed to evaluate the usability, among adolescents and young adults (AYAs) with ulcerative colitis (UC), of a web-based tool ('iBDecide') designed to facilitate shared decision making (SDM). METHODS: AYAs with UC (n = 35) were randomized to intervention (iBDecide, n = 14) and control (n = 12) arms before a scheduled clinic visit. We measured the usability of iBDecide, SDM, preferred decision-m…
Analyzing longitudinal qualitative data
BACKGROUND: Longitudinal qualitative research methods can add depth and understanding to health care research, especially on topics such as chronic conditions, adherence and changing health policies. In this manuscript we describe when and how to undertake two different applied approaches to analyzing longitudinal qualitative data: a recurrent cross-sectional approach and a trajectory approach. RESULTS: A recurrent cross-sectional approach is mos…
Making decisions about chronic disease treatment
OBJECTIVE: To compare factors considered by parents to those considered by adolescents making decisions about chronic disease treatments. METHODS: We conducted individual interviews with 15 parent-adolescent dyads in which the adolescent had either juvenile idiopathic arthritis or Crohn's disease. Questions focused on treatment decisions, with an emphasis on the factors that influenced each individual's preferences related to biologic therapies. …
Shared Decision Making in the Care of Children with Developmental and Behavioral Disorders
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Shared Decision Making in the Care of Children with Developmental and Behavioral Disorders
Analyzing longitudinal qualitative data
BACKGROUND: Longitudinal qualitative research methods can add depth and understanding to health care research, especially on topics such as chronic conditions, adherence and changing health policies. In this manuscript we describe when and how to undertake two different applied approaches to analyzing longitudinal qualitative data: a recurrent cross-sectional approach and a trajectory approach. RESULTS: A recurrent cross-sectional approach is mos…
Making decisions about chronic disease treatment
OBJECTIVE: To compare factors considered by parents to those considered by adolescents making decisions about chronic disease treatments. METHODS: We conducted individual interviews with 15 parent-adolescent dyads in which the adolescent had either juvenile idiopathic arthritis or Crohn's disease. Questions focused on treatment decisions, with an emphasis on the factors that influenced each individual's preferences related to biologic therapies. …
Pilot trial of iBDecide
INTRODUCTION: This pilot, randomized controlled trial aimed to evaluate the usability, among adolescents and young adults (AYAs) with ulcerative colitis (UC), of a web-based tool ('iBDecide') designed to facilitate shared decision making (SDM). METHODS: AYAs with UC (n = 35) were randomized to intervention (iBDecide, n = 14) and control (n = 12) arms before a scheduled clinic visit. We measured the usability of iBDecide, SDM, preferred decision-m…
Adolescents’ and Parents’ Perspectives on a Novel Decision-Making Process for Return of Results in Genomic Research
To understand whether they found a two-step decision process helpful and why, adolescent-parent dyads participating in a study investigating return of genomic testing results were asked about their decision-making experience. Responses were qualitatively coded and analyzed using thematic analysis. Adolescents and parents found both joint and independent decision-making stages helpful. Regarding independent decision-making, adolescents appreciated…
Medicine (4 works) · Computer Science (3 works) · Patient-Provider Communication in Healthcare (3 works) · Psychology (3 works) · Adolescent and Pediatric Healthcare (2 works) · Clinical Psychology (2 works) · Developmental psychology (2 works) · Disease (2 works) · Health care (2 works) · Nursing (2 works)