Fiona Crotty
Biographic Data
| ID | 6777483 |
|---|---|
| NAME | Fiona Crotty |
| GIVEN NAMES | Fiona |
| FAMILY NAME | Crotty |
| SIGNATURE | CROTTY F |
| AFFILIATIONS | 22q11 Ireland |
| VERIFIED | No |
| TOTAL WORKS | 2 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 2 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2017 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 0 |
Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland
Introduction: This research reflects on multi-stakeholder perspectives on the outcomes, enablers, barriers and lessons learnt from a 7 year Public Patient Involvement (PPI) partnership with a rare disease patient charity. Context: In 2014, families of children with the rare disorder, 22q11.2 deletion syndrome (22q) reported frustration and exhaustion as they sought care from a range of different healthcare providers who were unaware of their chil…
Developing integrated care in the context of rare chromosomal conditions
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
No prominent works on this page.
Developing integrated care in the context of rare chromosomal conditions
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland
Introduction: This research reflects on multi-stakeholder perspectives on the outcomes, enablers, barriers and lessons learnt from a 7 year Public Patient Involvement (PPI) partnership with a rare disease patient charity. Context: In 2014, families of children with the rare disorder, 22q11.2 deletion syndrome (22q) reported frustration and exhaustion as they sought care from a range of different healthcare providers who were unaware of their chil…
Family medicine (2 works) · Medicine (2 works) · Biomedical Ethics and Regulation (1 work) · Computer Science (1 work) · Congenital Heart Disease Studies (1 work) · Context (archaeology (1 work) · Disease (1 work) · Genomics and Rare Diseases (1 work) · Geography (1 work) · Internal Medicine (1 work)