Krista Recsei
Biographic Data
| ID | 6778009 |
|---|---|
| NAME | Krista Recsei |
| GIVEN NAMES | Krista |
| FAMILY NAME | Recsei |
| SIGNATURE | RECSEI K |
| ORCID | 0000-0001-9494-7905 |
| VERIFIED | Yes |
| TOTAL WORKS | 2 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 2 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2021 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 0 |
There's huge value in just bringing people together”: A rare disease organisation community of practice for integrated rare disease care
Background: The value of lived experience and advocacy for health system and policy improvement is well understood. However, there are capacity constraints for people living with a rare disease and the organisations that represent them. Although individually rare, collectively the >7000 known rare diseases impact approximately 6% of the population. Delayed diagnosis, limited treatment options and disease complexity are commonly experienced. Build…
Evaluating the model of offering expanded genetic carrier screening to high school students within the Sydney Jewish community
Programs offering reproductive genetic carrier screening (RGCS) to high school students within the Ashkenazi Jewish community in several countries including Canada and Australia have demonstrated high uptake and retention of educational messages over time. This study was undertaken to evaluate whether testing for an expanded number of conditions in a high school setting would impact the effectiveness of education. In this questionnaire-based stud…
No prominent works on this page.
Evaluating the model of offering expanded genetic carrier screening to high school students within the Sydney Jewish community
Programs offering reproductive genetic carrier screening (RGCS) to high school students within the Ashkenazi Jewish community in several countries including Canada and Australia have demonstrated high uptake and retention of educational messages over time. This study was undertaken to evaluate whether testing for an expanded number of conditions in a high school setting would impact the effectiveness of education. In this questionnaire-based stud…
There's huge value in just bringing people together”: A rare disease organisation community of practice for integrated rare disease care
Background: The value of lived experience and advocacy for health system and policy improvement is well understood. However, there are capacity constraints for people living with a rare disease and the organisations that represent them. Although individually rare, collectively the >7000 known rare diseases impact approximately 6% of the population. Delayed diagnosis, limited treatment options and disease complexity are commonly experienced. Build…
Action plan (1 works) · Archaeology (1 works) · Cystic Fibrosis Research Advances (1 works) · Disease (1 works) · Epidemiology (1 works) · Family medicine (1 works) · General partnership (1 works) · Genomics and Rare Diseases (1 works) · Geography (1 works) · Health care (1 works)