Stefanie Blain-Morae
Biographic Data
| ID | 73927 |
|---|---|
| NAME | Stefanie Blain-Morae |
| GIVEN NAMES | Stefanie |
| FAMILY NAME | Blain-Morae |
| SIGNATURE | BLAIN-MORAE S |
| AFFILIATIONS | McGill University |
| ORCID | 0000-0001-7837-6700 |
| VERIFIED | Yes |
| TOTAL WORKS | 11 |
| TOTAL CITATIONS | 8 |
| AUTHOR COUNT | 11 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2020 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 2 |
Piece of Mind
Many of the important research advances in understanding and treating Parkinson’s disease never leave the academic sphere, as communication barriers limit accessibility for, and engagement with, broader audiences. To increase meaningful dialogue between academic researchers and community stakeholders, Piece of Mind: Parkinson’s brought together neuroscientists, people with Parkinson’s disease (PD), and artists to co-create a knowledge translation…
Resonance
A growing number of individuals live with medical conditions and injuries that render them minimally communicative. Assessing their level of consciousness and awareness is a major challenge that has profound implications for care decisions and their relationships. Resonance: a novel brain-computer interface assemblage, is designed to detect and augment expressions of consciousness in minimally communicative individuals. Resonance consists of (1) …
Situated Personhood
For caregivers of minimally communicative individuals, providing support in the absence of clearly meaningful responses is ethically fraught. We conducted a secondary analysis of qualitative data from caregivers of individuals who are minimally communicative, including persons with advanced dementia and individuals in disorders of consciousness. Our analysis led to two central claims: (1) Personhood is a threshold concept that is situated, relati…
Piece of Mind
While peer-reviewed articles and conferences are appropriate for disseminating research findings within academia, they are less effective for translating scientific knowledge into meaningful and practical applications. Moreover, exchanging knowledge with nonacademic stakeholders is a crucial yet often overlooked step in ensuring that research aligns with the needs and reality of knowledge users. This is particularly problematic in dementia and Al…
Brain-Computer Interfaces, Inclusive Innovation, and the Promise of Restoration
Over the last two decades, researchers have promised “neuroprosthetics” for use in physical rehabilitation and to treat patients with paralysis. Fulfilling this promise is not merely a technical challenge but is accompanied by consequential practical, ethical, and social implications that warrant sociological investigation and careful deliberation. In response, this paper explores how rehabilitation professionals evaluate the development and appl…
Assessing the Effects of Nature on Physiological States Using Wearable Technologies
Nature therapy and forest bathing (FB) have been shown to have quantifiable positive effects on human health, but the physiological effects of a guided interactive nature activity remain unexplored. Autonomic nervous system responses to a guided nature walk (Nature Break) were assessed through the continuous measurement of the electrodermal activity (EDA), fingertip temperature, and heart rate (HR) of n = 48 participants, using a wearable sensor.…
We are still doing some magic”
Virtual clowning may be more beneficial for some clients than in-person clowning and has the potential to extend therapeutic clowning beyond its traditional domains of practice
Enacting agency
The movements of individuals with dementia were shaped by both program structure and individual/collective expressions of agency. The design of Mouvement de passage, based on open-ended structures and voluntary participation, provides a template for developing interventions that foster agency among these persons
When I hear my language, I travel back in time and I feel at home
Individuals with dementia and their carers often experience a rupture of relationships that co-occurs with declining functional and cognitive abilities, leading to their increased social exclusion in both intimate relationships and community settings. While initiatives have been developed to support meaningful interaction and participation in society, they have broadly ignored the significance of how cultural factors influence experiences of incl…
Working Together
Understanding and improving how diverse people work together is a core concern of applied social sciences. This article reports ethnographic observations on a participatory design project in which researchers and adults on the autism spectrum worked together on the design of a new technology—biomusic. Biomusic uses a smartphone application and a wearable sensor to measure physiological signals and translate them into auditory output. Ethnographer…
Do Publics Share Experts' Concerns about Brain-Computer Interfaces? A Trinational Survey on the Ethics of Neural Technology
Since the 1960s, scientists, engineers, and healthcare professionals have developed brain-computer interface (BCI) technologies, connecting the user's brain activity to communication or motor devices. This new technology has also captured the imagination of publics, industry, and ethicists. Academic ethics has highlighted the ethical challenges of BCIs, although these conclusions often rely on speculative or conceptual methods rather than empiric…
We are still doing some magic”
Virtual clowning may be more beneficial for some clients than in-person clowning and has the potential to extend therapeutic clowning beyond its traditional domains of practice
Enacting agency
The movements of individuals with dementia were shaped by both program structure and individual/collective expressions of agency. The design of Mouvement de passage, based on open-ended structures and voluntary participation, provides a template for developing interventions that foster agency among these persons
When I hear my language, I travel back in time and I feel at home
Individuals with dementia and their carers often experience a rupture of relationships that co-occurs with declining functional and cognitive abilities, leading to their increased social exclusion in both intimate relationships and community settings. While initiatives have been developed to support meaningful interaction and participation in society, they have broadly ignored the significance of how cultural factors influence experiences of incl…
Do Publics Share Experts' Concerns about Brain-Computer Interfaces? A Trinational Survey on the Ethics of Neural Technology
Since the 1960s, scientists, engineers, and healthcare professionals have developed brain-computer interface (BCI) technologies, connecting the user's brain activity to communication or motor devices. This new technology has also captured the imagination of publics, industry, and ethicists. Academic ethics has highlighted the ethical challenges of BCIs, although these conclusions often rely on speculative or conceptual methods rather than empiric…
Working Together
Understanding and improving how diverse people work together is a core concern of applied social sciences. This article reports ethnographic observations on a participatory design project in which researchers and adults on the autism spectrum worked together on the design of a new technology—biomusic. Biomusic uses a smartphone application and a wearable sensor to measure physiological signals and translate them into auditory output. Ethnographer…
Do Publics Share Experts' Concerns about Brain-Computer Interfaces? A Trinational Survey on the Ethics of Neural Technology
Since the 1960s, scientists, engineers, and healthcare professionals have developed brain-computer interface (BCI) technologies, connecting the user's brain activity to communication or motor devices. This new technology has also captured the imagination of publics, industry, and ethicists. Academic ethics has highlighted the ethical challenges of BCIs, although these conclusions often rely on speculative or conceptual methods rather than empiric…
Enacting agency
The movements of individuals with dementia were shaped by both program structure and individual/collective expressions of agency. The design of Mouvement de passage, based on open-ended structures and voluntary participation, provides a template for developing interventions that foster agency among these persons
When I hear my language, I travel back in time and I feel at home
Individuals with dementia and their carers often experience a rupture of relationships that co-occurs with declining functional and cognitive abilities, leading to their increased social exclusion in both intimate relationships and community settings. While initiatives have been developed to support meaningful interaction and participation in society, they have broadly ignored the significance of how cultural factors influence experiences of incl…
Brain-Computer Interfaces, Inclusive Innovation, and the Promise of Restoration
Over the last two decades, researchers have promised “neuroprosthetics” for use in physical rehabilitation and to treat patients with paralysis. Fulfilling this promise is not merely a technical challenge but is accompanied by consequential practical, ethical, and social implications that warrant sociological investigation and careful deliberation. In response, this paper explores how rehabilitation professionals evaluate the development and appl…
Assessing the Effects of Nature on Physiological States Using Wearable Technologies
Nature therapy and forest bathing (FB) have been shown to have quantifiable positive effects on human health, but the physiological effects of a guided interactive nature activity remain unexplored. Autonomic nervous system responses to a guided nature walk (Nature Break) were assessed through the continuous measurement of the electrodermal activity (EDA), fingertip temperature, and heart rate (HR) of n = 48 participants, using a wearable sensor.…
We are still doing some magic”
Virtual clowning may be more beneficial for some clients than in-person clowning and has the potential to extend therapeutic clowning beyond its traditional domains of practice
Situated Personhood
For caregivers of minimally communicative individuals, providing support in the absence of clearly meaningful responses is ethically fraught. We conducted a secondary analysis of qualitative data from caregivers of individuals who are minimally communicative, including persons with advanced dementia and individuals in disorders of consciousness. Our analysis led to two central claims: (1) Personhood is a threshold concept that is situated, relati…
Piece of Mind
While peer-reviewed articles and conferences are appropriate for disseminating research findings within academia, they are less effective for translating scientific knowledge into meaningful and practical applications. Moreover, exchanging knowledge with nonacademic stakeholders is a crucial yet often overlooked step in ensuring that research aligns with the needs and reality of knowledge users. This is particularly problematic in dementia and Al…
Piece of Mind
Many of the important research advances in understanding and treating Parkinson’s disease never leave the academic sphere, as communication barriers limit accessibility for, and engagement with, broader audiences. To increase meaningful dialogue between academic researchers and community stakeholders, Piece of Mind: Parkinson’s brought together neuroscientists, people with Parkinson’s disease (PD), and artists to co-create a knowledge translation…
Resonance
A growing number of individuals live with medical conditions and injuries that render them minimally communicative. Assessing their level of consciousness and awareness is a major challenge that has profound implications for care decisions and their relationships. Resonance: a novel brain-computer interface assemblage, is designed to detect and augment expressions of consciousness in minimally communicative individuals. Resonance consists of (1) …
Psychology (10 works) · Computer Science (7 works) · Sociology (7 works) · Political science (6 works) · Social Psychology (6 works) · Engineering (4 works) · Engineering ethics (4 works) · Public relations (4 works) · Art Therapy and Mental Health (3 works) · Dementia (3 works)