SAHRA GIBBON
Biographic Data
| ID | 7486316 |
|---|---|
| NAME | SAHRA GIBBON |
| GIVEN NAMES | SAHRA |
| FAMILY NAME | GIBBON |
| SIGNATURE | GIBBON S |
| VERIFIED | No |
| TOTAL WORKS | 16 |
| TOTAL CITATIONS | 14 |
| WORKS AS AUTHOR | 16 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2007 |
| LATEST PUBLICATION YEAR | 2022 |
| H-INDEX | 1 |
Consciously quarantined
Whilst quarantine has been experienced in a multitude of ways around the world, for some anthropologists the quietening of public movement was met with a flurry of attentive typing. For those who were consciously quarantined, a social science response to COVID-19 was sought at University College London through a call for posts as part of the UCL Medical Anthropology blog; capturing the real-time observations and scholarly reflections on the unfol…
Geneticization
The critique of geneticization was intended originally to raise critical questions about the consequences of genetic knowledge for concepts of health and identity. The diverse significance and scope of the concept has been explored by a range of anthropologists and extended by those interested in questions of health activism. An emerging understanding of genetic function and expression as predicated on environmental interactions raises new questi…
Inclusion and exclusion in the globalisation of genomics; the case of rare genetic disease in Brazil
Within the context of a globalising agenda for genetic research where 'global health' is increasingly seen as necessarily informed by and having to account for genomics, the focus on rare genetic diseases is becoming prominent. Drawing from ethnographic research carried out separately by both authors in Brazil, this paper examines how an emerging focus on two different arenas of rare genetic disease, cancer genetics and a class of degenerative ne…
Genetics and ethics in Latin America
Between personal and relational privacy
Drawing from perspectives of both bioethics and anthropology, this article explores how the boundaries between personal and relational privacy are negotiated by patients and practitioners in the context of an emerging domain of cancer genetics in Brazil. It reflects on the place of informed consent in the history of bioethics in North America in contrast to the development of bioethics in Brazil and the particular social cultural context in which…
Ancestry, Temporality, and Potentiality
In this paper I examine the variety of ways potential is articulated, entailed, and produced in how the field of cancer genetics is being constituted as a domain of transnational research and an emerging site of health-care intervention in southern Brazil. Drawing on analysis of fieldwork in Brazilian cancer-genetics clinics, I explore how different expressions of potential come to inform dynamically the pursuit of prevention, care, and research …
Identidades emergentes, genética e saúde
que também gerou, recentemente
Diviners and Pastoral Keepers
The ubiquity of a ‘lay/professional’ distinction in much medical sociology and anthropology has often produced a somewhat reified analysis of the relationship between doctors and patients, contributing to a description and perception of medicine as unified or monolithic (Mol and Berg 1998). Although this distinction has been useful in highlighting how patients’ ‘experience’ of new technologies and knowledge is constituted within their ‘lifeworld’…
Constructing Patienthood
Continuing an examination of the kinds of collective work of patients and practitioners at the clinical interface, this chapter examines how ‘care’ is constituted in predictive medicine. It examines what care means for being a patient and how particular cultural values, long associated with female identity, are central and essential to the ‘pastoral’ practices of cancer genetics. It explores how managing the ongoing distance between diagnostic ca…
Technologies of the Clinic
The constituting and transformatory role of technology in the development of different clinical and medical specialties has been central to science studies (Casper and Koenig 1996; Mol and Berg 1998). This perspective stands in contrast to what has been a somewhat more reluctant approach within anthropology to examine the material practices of bio-medicine itself (Lock and Lindenbaum 1993). Drawing on recent work situated across these disciplinar…
Conclusion
The practices explored in this book suggest a diverse number of cultural arenas, encompassed by and which connect to breast cancer, offer a particularly potent ‘social form’ (Rabinow 1999: 89) for the development and legitimisation of new genetic knowledge. As Margaret Lock points out the emergence of predictive genetic testing for breast cancer is in many ways a striking case of the way that ‘possible probabilities, based on poorly constructed s…
The Alchemy of Loss and Hope
Recent expansion and developments in the bio-sciences have been accompanied by the growth of a diverse and fairly heterogeneous range of ‘patient organisations’, who increasingly have some sort of stake in the direction and outcome of different arenas of scientific or medical research (Epstein 1996, 2007; Brown et al. 2004). Such developments are also now reflected in the field of genetics (Rabeharisoa and Callon 1998; Rabinow 1999; Stockdale 199…
Scientists and the Making of Genomics as Monuments for the Living
Although the practice of scientists has been central to social studies of science, the experiences, identities and subject positions of scientists themselves has been the subject of far less attention. There has been a tendency, as Traweek notes, to focus on ‘agonistic encounters’ or present the ‘self’ only in terms of ‘autonomy and initiative’, with little sense or understanding of how scientists experience or identify with the worlds in which t…
The Enrolment of ‘Patients’
This book starts by considering a group of persons who have traditionally been situated at the centre of analysis in medical anthropology, where attending to the embodied or narrative experience of a patient’s illness normally takes centre stage (Good 1993). However, as Landzelius and Dumit point out, the figure of the patient is currently ‘undergoing an accelerated process of change’ (2006). Responding to their calls for further ‘scrutiny’ and ‘…
Between Geno-hype and the Post-Genomic
An organisation funded in the name of mothers, sisters and daughters and dedicated to fighting breast cancer by focusing on the microbiology of the breast, appears to powerfully align the witnessing of loss and the value of female nurturance with a hunt for, what is seen by many who support the charity, in terms of a ‘cure’ for breast cancer. This chapter moves beyond an exclusive focus on the particular character of this form of activism, to exa…
Breast Cancer Genes and the Gendering of Knowledge
The book examines the social and cultural context of new genetic knowledge associated with breast cancer. It looks at how this knowledge and technologies are used and received in two contrasting socia
Ancestry, Temporality, and Potentiality
In this paper I examine the variety of ways potential is articulated, entailed, and produced in how the field of cancer genetics is being constituted as a domain of transnational research and an emerging site of health-care intervention in southern Brazil. Drawing on analysis of fieldwork in Brazilian cancer-genetics clinics, I explore how different expressions of potential come to inform dynamically the pursuit of prevention, care, and research …
Diviners and Pastoral Keepers
The ubiquity of a ‘lay/professional’ distinction in much medical sociology and anthropology has often produced a somewhat reified analysis of the relationship between doctors and patients, contributing to a description and perception of medicine as unified or monolithic (Mol and Berg 1998). Although this distinction has been useful in highlighting how patients’ ‘experience’ of new technologies and knowledge is constituted within their ‘lifeworld’…
Constructing Patienthood
Continuing an examination of the kinds of collective work of patients and practitioners at the clinical interface, this chapter examines how ‘care’ is constituted in predictive medicine. It examines what care means for being a patient and how particular cultural values, long associated with female identity, are central and essential to the ‘pastoral’ practices of cancer genetics. It explores how managing the ongoing distance between diagnostic ca…
Technologies of the Clinic
The constituting and transformatory role of technology in the development of different clinical and medical specialties has been central to science studies (Casper and Koenig 1996; Mol and Berg 1998). This perspective stands in contrast to what has been a somewhat more reluctant approach within anthropology to examine the material practices of bio-medicine itself (Lock and Lindenbaum 1993). Drawing on recent work situated across these disciplinar…
Conclusion
The practices explored in this book suggest a diverse number of cultural arenas, encompassed by and which connect to breast cancer, offer a particularly potent ‘social form’ (Rabinow 1999: 89) for the development and legitimisation of new genetic knowledge. As Margaret Lock points out the emergence of predictive genetic testing for breast cancer is in many ways a striking case of the way that ‘possible probabilities, based on poorly constructed s…
The Alchemy of Loss and Hope
Recent expansion and developments in the bio-sciences have been accompanied by the growth of a diverse and fairly heterogeneous range of ‘patient organisations’, who increasingly have some sort of stake in the direction and outcome of different arenas of scientific or medical research (Epstein 1996, 2007; Brown et al. 2004). Such developments are also now reflected in the field of genetics (Rabeharisoa and Callon 1998; Rabinow 1999; Stockdale 199…
Scientists and the Making of Genomics as Monuments for the Living
Although the practice of scientists has been central to social studies of science, the experiences, identities and subject positions of scientists themselves has been the subject of far less attention. There has been a tendency, as Traweek notes, to focus on ‘agonistic encounters’ or present the ‘self’ only in terms of ‘autonomy and initiative’, with little sense or understanding of how scientists experience or identify with the worlds in which t…
The Enrolment of ‘Patients’
This book starts by considering a group of persons who have traditionally been situated at the centre of analysis in medical anthropology, where attending to the embodied or narrative experience of a patient’s illness normally takes centre stage (Good 1993). However, as Landzelius and Dumit point out, the figure of the patient is currently ‘undergoing an accelerated process of change’ (2006). Responding to their calls for further ‘scrutiny’ and ‘…
Between Geno-hype and the Post-Genomic
An organisation funded in the name of mothers, sisters and daughters and dedicated to fighting breast cancer by focusing on the microbiology of the breast, appears to powerfully align the witnessing of loss and the value of female nurturance with a hunt for, what is seen by many who support the charity, in terms of a ‘cure’ for breast cancer. This chapter moves beyond an exclusive focus on the particular character of this form of activism, to exa…
Breast Cancer Genes and the Gendering of Knowledge
The book examines the social and cultural context of new genetic knowledge associated with breast cancer. It looks at how this knowledge and technologies are used and received in two contrasting socia
Identidades emergentes, genética e saúde
que também gerou, recentemente
Ancestry, Temporality, and Potentiality
In this paper I examine the variety of ways potential is articulated, entailed, and produced in how the field of cancer genetics is being constituted as a domain of transnational research and an emerging site of health-care intervention in southern Brazil. Drawing on analysis of fieldwork in Brazilian cancer-genetics clinics, I explore how different expressions of potential come to inform dynamically the pursuit of prevention, care, and research …
Genetics and ethics in Latin America
Between personal and relational privacy
Drawing from perspectives of both bioethics and anthropology, this article explores how the boundaries between personal and relational privacy are negotiated by patients and practitioners in the context of an emerging domain of cancer genetics in Brazil. It reflects on the place of informed consent in the history of bioethics in North America in contrast to the development of bioethics in Brazil and the particular social cultural context in which…
Geneticization
The critique of geneticization was intended originally to raise critical questions about the consequences of genetic knowledge for concepts of health and identity. The diverse significance and scope of the concept has been explored by a range of anthropologists and extended by those interested in questions of health activism. An emerging understanding of genetic function and expression as predicated on environmental interactions raises new questi…
Inclusion and exclusion in the globalisation of genomics; the case of rare genetic disease in Brazil
Within the context of a globalising agenda for genetic research where 'global health' is increasingly seen as necessarily informed by and having to account for genomics, the focus on rare genetic diseases is becoming prominent. Drawing from ethnographic research carried out separately by both authors in Brazil, this paper examines how an emerging focus on two different arenas of rare genetic disease, cancer genetics and a class of degenerative ne…
Consciously quarantined
Whilst quarantine has been experienced in a multitude of ways around the world, for some anthropologists the quietening of public movement was met with a flurry of attentive typing. For those who were consciously quarantined, a social science response to COVID-19 was sought at University College London through a call for posts as part of the UCL Medical Anthropology blog; capturing the real-time observations and scholarly reflections on the unfol…
Sociology (13 works) · Political science (11 works) · Race, Genetics, and Society (11 works) · Law (7 works) · Medicine (7 works) · Social science (7 works) · Epistemology (6 works) · Environmental ethics (4 works) · Health care (4 works) · Philosophy (4 works)