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Karen Sepucha

Biographic Data

ID7698895
NAMEKaren Sepucha
GIVEN NAMESKaren
FAMILY NAMESepucha
SIGNATURESEPUCHA K
AFFILIATIONSMassachusetts General Hospital
ORCID0000-0002-3762-3880
VERIFIEDYes
TOTAL WORKS11
TOTAL CITATIONS0
AUTHOR COUNT11
EDITOR COUNT0
FIRST PUBLICATION YEAR2006
LATEST PUBLICATION YEAR2024
H-INDEX0
  • Enacted stigma from family and drug use during opioid use disorder treatment

    Open Access•Valerie A Earnshaw, Natalie M Brousseau et al.•ARTICLE•Stigma and Health•2024

    Enacted stigma (i.e., experiences of discrimination from others) is associated with engagement in drug use among people with a wide range of stigmatized statuses. This association may be particularly concerning among people receiving treatment for opioid use disorder (OUD), among whom continued drug use may undermine treatment outcomes and increase risk of overdose. Although past research largely overlooks the source of enacted stigma, theory and…

  • Validation of the Impact Index

    Open Access•K D Valentine, Suzanne Brodney et al.•ARTICLE•Quality of Life Research•2021

  • Let’s Require Patients to Review a High-quality Decision Aid Before Receiving Important Tests and Treatments

    Open Access•Floyd Jackson Fowler, Michael J Barry et al.•ARTICLE•Medical Care•2021

    THE PROBLEM When providing medical care, choices often must be made among 2 or more medically reasonable options. In the United States, and elsewhere, most of those decisions are made by physicians, with patients being relatively uninformed and uninvolved, sometimes not even knowing more than 1 option existed.1–3 Many prominent groups have called for more shared decision making, asking physicians to make efforts to provide patients faced with a d…

  • What matters most

    Open Access•Marie-Anne Durand, Marie‐Anne Durand et al.•ARTICLE•BMC Public Health•2018

    NCT03136367 at ClinicalTrials.gov Protocol version: Manuscript based on study protocol version 2.2, 7 November 2017

  • Effectiveness of a decision aid for patients with depression

    Open Access•Lilisbeth Perestelo‐Pérez, Amado Rivero‐Santana et al.•ARTICLE•Health Expectations•2017

    BACKGROUND: Shared decision making is an important component of patient-centred care and decision aids are tools designed to support patients' decision making and help patients with depression to make informed choices. OBJECTIVE: The study aim was to assess the effectiveness of a web-based decision aid for patients with unipolar depression. DESIGN: Randomized controlled trial. SETTING AND PARTICIPANTS: Adults diagnosed with a major depressive dis…

  • Measuring the quality of surgical decisions for Latina breast cancer patients

    Open Access•Karen Sepucha, Sandra Feibelmann et al.•ARTICLE•Health Expectations•2015

    BACKGROUND: A high-quality decision for breast cancer surgery requires that patients are well informed, meaningfully involved in decision making, and receive treatments that match their goals. There is little in the existing literature that examines a comprehensive measure of decision quality for Latina breast cancer patients. OBJECTIVE: To examine the quality of surgical decisions among Latina breast cancer survivors and explore factors associat…

  • Shared Decision Making

    Open Access•Michael J Barry, Michael Barry et al.•ARTICLE•Health Expectations•2011

    See also The importance and complexity of regret in the measurement of good decisions: a systematic review and a content analysis of existing assessment instruments, by Joseph‐Williams et al

  • What does it take to have sustained use of decision aids? A programme evaluation for the Breast Cancer Initiative

    Open Access•Sandra Feibelmann, Theresa S Yang et al.•ARTICLE•Health Expectations•2011

    Background The Breast Cancer Initiative (BCI) was started in 2002 to disseminate breast cancer decision aids (PtDAs) to providers. Methods We analysed BCI programme data for 195 sites and determined the proportion of sites involved in each of five stages of dissemination and implementation of PtDAs. We conducted cross‐sectional mail and telephone surveys of 79 sites with the most interest in implementation. We examined barriers associated with su…

  • Development of instruments to measure the quality of breast cancer treatment decisions

    Open Access•Clara N Lee, Rosalie Dominik et al.•ARTICLE•Health Expectations•2010

    Background Women with early‐stage breast cancer face a multitude of decisions. The quality of a decision can be measured by the extent to which the treatment reflects what is most important to an informed patient. Reliable and valid measures of patients’ knowledge and their goals and concerns related to breast cancer treatments are needed to assess the decision quality. Objective To identify a set of key facts and goals relevant to each of three …

  • Implementing breast cancer decision aids in community sites

    Open Access•Kerry A Silvia, Elissa M Ozanne et al.•ARTICLE•Health Expectations•2008

    Objective To assess the feasibility of implementing four patient decision aids (PtDAs) for early stage breast cancer treatment decisions into routine clinical care in community settings. Background There is very limited information available about implementing decision aids into routine clinical practice and most of this information is based on academic centres; more information is needed about implementing them into routine clinical practice in …

  • Decision aids in routine practice

    Open Access•Kerry A Silvia, Karen R Sepucha et al.•ARTICLE•Health Expectations•2006

    Background Many decision aids have been developed to help patients make treatment and screening decisions; however, little is known about implementing them into routine clinical practice. Objective To assess the feasibility of implementing a patient decision aid (PtDA) for the early stage breast cancer surgical decision into routine clinical care. Design Structured individual interviews. Setting and participants A convenience sample of providers …

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  • Decision aids in routine practice

    Open Access•Kerry A Silvia, Karen R Sepucha et al.•ARTICLE•Health Expectations•2006

    Background Many decision aids have been developed to help patients make treatment and screening decisions; however, little is known about implementing them into routine clinical practice. Objective To assess the feasibility of implementing a patient decision aid (PtDA) for the early stage breast cancer surgical decision into routine clinical care. Design Structured individual interviews. Setting and participants A convenience sample of providers …

  • Implementing breast cancer decision aids in community sites

    Open Access•Kerry A Silvia, Elissa M Ozanne et al.•ARTICLE•Health Expectations•2008

    Objective To assess the feasibility of implementing four patient decision aids (PtDAs) for early stage breast cancer treatment decisions into routine clinical care in community settings. Background There is very limited information available about implementing decision aids into routine clinical practice and most of this information is based on academic centres; more information is needed about implementing them into routine clinical practice in …

  • Development of instruments to measure the quality of breast cancer treatment decisions

    Open Access•Clara N Lee, Rosalie Dominik et al.•ARTICLE•Health Expectations•2010

    Background Women with early‐stage breast cancer face a multitude of decisions. The quality of a decision can be measured by the extent to which the treatment reflects what is most important to an informed patient. Reliable and valid measures of patients’ knowledge and their goals and concerns related to breast cancer treatments are needed to assess the decision quality. Objective To identify a set of key facts and goals relevant to each of three …

  • Shared Decision Making

    Open Access•Michael J Barry, Michael Barry et al.•ARTICLE•Health Expectations•2011

    See also The importance and complexity of regret in the measurement of good decisions: a systematic review and a content analysis of existing assessment instruments, by Joseph‐Williams et al

  • What does it take to have sustained use of decision aids? A programme evaluation for the Breast Cancer Initiative

    Open Access•Sandra Feibelmann, Theresa S Yang et al.•ARTICLE•Health Expectations•2011

    Background The Breast Cancer Initiative (BCI) was started in 2002 to disseminate breast cancer decision aids (PtDAs) to providers. Methods We analysed BCI programme data for 195 sites and determined the proportion of sites involved in each of five stages of dissemination and implementation of PtDAs. We conducted cross‐sectional mail and telephone surveys of 79 sites with the most interest in implementation. We examined barriers associated with su…

  • Measuring the quality of surgical decisions for Latina breast cancer patients

    Open Access•Karen Sepucha, Sandra Feibelmann et al.•ARTICLE•Health Expectations•2015

    BACKGROUND: A high-quality decision for breast cancer surgery requires that patients are well informed, meaningfully involved in decision making, and receive treatments that match their goals. There is little in the existing literature that examines a comprehensive measure of decision quality for Latina breast cancer patients. OBJECTIVE: To examine the quality of surgical decisions among Latina breast cancer survivors and explore factors associat…

  • Effectiveness of a decision aid for patients with depression

    Open Access•Lilisbeth Perestelo‐Pérez, Amado Rivero‐Santana et al.•ARTICLE•Health Expectations•2017

    BACKGROUND: Shared decision making is an important component of patient-centred care and decision aids are tools designed to support patients' decision making and help patients with depression to make informed choices. OBJECTIVE: The study aim was to assess the effectiveness of a web-based decision aid for patients with unipolar depression. DESIGN: Randomized controlled trial. SETTING AND PARTICIPANTS: Adults diagnosed with a major depressive dis…

  • What matters most

    Open Access•Marie-Anne Durand, Marie‐Anne Durand et al.•ARTICLE•BMC Public Health•2018

    NCT03136367 at ClinicalTrials.gov Protocol version: Manuscript based on study protocol version 2.2, 7 November 2017

  • Validation of the Impact Index

    Open Access•K D Valentine, Suzanne Brodney et al.•ARTICLE•Quality of Life Research•2021

  • Let’s Require Patients to Review a High-quality Decision Aid Before Receiving Important Tests and Treatments

    Open Access•Floyd Jackson Fowler, Michael J Barry et al.•ARTICLE•Medical Care•2021

    THE PROBLEM When providing medical care, choices often must be made among 2 or more medically reasonable options. In the United States, and elsewhere, most of those decisions are made by physicians, with patients being relatively uninformed and uninvolved, sometimes not even knowing more than 1 option existed.1–3 Many prominent groups have called for more shared decision making, asking physicians to make efforts to provide patients faced with a d…

  • Enacted stigma from family and drug use during opioid use disorder treatment

    Open Access•Valerie A Earnshaw, Natalie M Brousseau et al.•ARTICLE•Stigma and Health•2024

    Enacted stigma (i.e., experiences of discrimination from others) is associated with engagement in drug use among people with a wide range of stigmatized statuses. This association may be particularly concerning among people receiving treatment for opioid use disorder (OUD), among whom continued drug use may undermine treatment outcomes and increase risk of overdose. Although past research largely overlooks the source of enacted stigma, theory and…

Medicine (10 works) · Patient-Provider Communication in Healthcare (9 works) · Family medicine (7 works) · Alternative medicine (6 works) · Breast cancer (6 works) · Cancer (6 works) · Decision aids (6 works) · Internal Medicine (6 works) · Psychology (5 works) · Global Cancer Incidence and Screening (4 works)

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