Karen Sepucha
Biographic Data
| ID | 7698895 |
|---|---|
| NAME | Karen Sepucha |
| GIVEN NAMES | Karen |
| FAMILY NAME | Sepucha |
| SIGNATURE | SEPUCHA K |
| AFFILIATIONS | Massachusetts General Hospital |
| ORCID | 0000-0002-3762-3880 |
| VERIFIED | Yes |
| TOTAL WORKS | 11 |
| TOTAL CITATIONS | 0 |
| AUTHOR COUNT | 11 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2006 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 0 |
Enacted stigma from family and drug use during opioid use disorder treatment
Enacted stigma (i.e., experiences of discrimination from others) is associated with engagement in drug use among people with a wide range of stigmatized statuses. This association may be particularly concerning among people receiving treatment for opioid use disorder (OUD), among whom continued drug use may undermine treatment outcomes and increase risk of overdose. Although past research largely overlooks the source of enacted stigma, theory and…
Validation of the Impact Index
Let’s Require Patients to Review a High-quality Decision Aid Before Receiving Important Tests and Treatments
THE PROBLEM When providing medical care, choices often must be made among 2 or more medically reasonable options. In the United States, and elsewhere, most of those decisions are made by physicians, with patients being relatively uninformed and uninvolved, sometimes not even knowing more than 1 option existed.1–3 Many prominent groups have called for more shared decision making, asking physicians to make efforts to provide patients faced with a d…
What matters most
NCT03136367 at ClinicalTrials.gov Protocol version: Manuscript based on study protocol version 2.2, 7 November 2017
Effectiveness of a decision aid for patients with depression
BACKGROUND: Shared decision making is an important component of patient-centred care and decision aids are tools designed to support patients' decision making and help patients with depression to make informed choices. OBJECTIVE: The study aim was to assess the effectiveness of a web-based decision aid for patients with unipolar depression. DESIGN: Randomized controlled trial. SETTING AND PARTICIPANTS: Adults diagnosed with a major depressive dis…
Measuring the quality of surgical decisions for Latina breast cancer patients
BACKGROUND: A high-quality decision for breast cancer surgery requires that patients are well informed, meaningfully involved in decision making, and receive treatments that match their goals. There is little in the existing literature that examines a comprehensive measure of decision quality for Latina breast cancer patients. OBJECTIVE: To examine the quality of surgical decisions among Latina breast cancer survivors and explore factors associat…
Shared Decision Making
See also The importance and complexity of regret in the measurement of good decisions: a systematic review and a content analysis of existing assessment instruments, by Joseph‐Williams et al
What does it take to have sustained use of decision aids? A programme evaluation for the Breast Cancer Initiative
Background The Breast Cancer Initiative (BCI) was started in 2002 to disseminate breast cancer decision aids (PtDAs) to providers. Methods We analysed BCI programme data for 195 sites and determined the proportion of sites involved in each of five stages of dissemination and implementation of PtDAs. We conducted cross‐sectional mail and telephone surveys of 79 sites with the most interest in implementation. We examined barriers associated with su…
Development of instruments to measure the quality of breast cancer treatment decisions
Background Women with early‐stage breast cancer face a multitude of decisions. The quality of a decision can be measured by the extent to which the treatment reflects what is most important to an informed patient. Reliable and valid measures of patients’ knowledge and their goals and concerns related to breast cancer treatments are needed to assess the decision quality. Objective To identify a set of key facts and goals relevant to each of three …
Implementing breast cancer decision aids in community sites
Objective To assess the feasibility of implementing four patient decision aids (PtDAs) for early stage breast cancer treatment decisions into routine clinical care in community settings. Background There is very limited information available about implementing decision aids into routine clinical practice and most of this information is based on academic centres; more information is needed about implementing them into routine clinical practice in …
Decision aids in routine practice
Background Many decision aids have been developed to help patients make treatment and screening decisions; however, little is known about implementing them into routine clinical practice. Objective To assess the feasibility of implementing a patient decision aid (PtDA) for the early stage breast cancer surgical decision into routine clinical care. Design Structured individual interviews. Setting and participants A convenience sample of providers …
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Decision aids in routine practice
Background Many decision aids have been developed to help patients make treatment and screening decisions; however, little is known about implementing them into routine clinical practice. Objective To assess the feasibility of implementing a patient decision aid (PtDA) for the early stage breast cancer surgical decision into routine clinical care. Design Structured individual interviews. Setting and participants A convenience sample of providers …
Implementing breast cancer decision aids in community sites
Objective To assess the feasibility of implementing four patient decision aids (PtDAs) for early stage breast cancer treatment decisions into routine clinical care in community settings. Background There is very limited information available about implementing decision aids into routine clinical practice and most of this information is based on academic centres; more information is needed about implementing them into routine clinical practice in …
Development of instruments to measure the quality of breast cancer treatment decisions
Background Women with early‐stage breast cancer face a multitude of decisions. The quality of a decision can be measured by the extent to which the treatment reflects what is most important to an informed patient. Reliable and valid measures of patients’ knowledge and their goals and concerns related to breast cancer treatments are needed to assess the decision quality. Objective To identify a set of key facts and goals relevant to each of three …
Shared Decision Making
See also The importance and complexity of regret in the measurement of good decisions: a systematic review and a content analysis of existing assessment instruments, by Joseph‐Williams et al
What does it take to have sustained use of decision aids? A programme evaluation for the Breast Cancer Initiative
Background The Breast Cancer Initiative (BCI) was started in 2002 to disseminate breast cancer decision aids (PtDAs) to providers. Methods We analysed BCI programme data for 195 sites and determined the proportion of sites involved in each of five stages of dissemination and implementation of PtDAs. We conducted cross‐sectional mail and telephone surveys of 79 sites with the most interest in implementation. We examined barriers associated with su…
Measuring the quality of surgical decisions for Latina breast cancer patients
BACKGROUND: A high-quality decision for breast cancer surgery requires that patients are well informed, meaningfully involved in decision making, and receive treatments that match their goals. There is little in the existing literature that examines a comprehensive measure of decision quality for Latina breast cancer patients. OBJECTIVE: To examine the quality of surgical decisions among Latina breast cancer survivors and explore factors associat…
Effectiveness of a decision aid for patients with depression
BACKGROUND: Shared decision making is an important component of patient-centred care and decision aids are tools designed to support patients' decision making and help patients with depression to make informed choices. OBJECTIVE: The study aim was to assess the effectiveness of a web-based decision aid for patients with unipolar depression. DESIGN: Randomized controlled trial. SETTING AND PARTICIPANTS: Adults diagnosed with a major depressive dis…
What matters most
NCT03136367 at ClinicalTrials.gov Protocol version: Manuscript based on study protocol version 2.2, 7 November 2017
Validation of the Impact Index
Let’s Require Patients to Review a High-quality Decision Aid Before Receiving Important Tests and Treatments
THE PROBLEM When providing medical care, choices often must be made among 2 or more medically reasonable options. In the United States, and elsewhere, most of those decisions are made by physicians, with patients being relatively uninformed and uninvolved, sometimes not even knowing more than 1 option existed.1–3 Many prominent groups have called for more shared decision making, asking physicians to make efforts to provide patients faced with a d…
Enacted stigma from family and drug use during opioid use disorder treatment
Enacted stigma (i.e., experiences of discrimination from others) is associated with engagement in drug use among people with a wide range of stigmatized statuses. This association may be particularly concerning among people receiving treatment for opioid use disorder (OUD), among whom continued drug use may undermine treatment outcomes and increase risk of overdose. Although past research largely overlooks the source of enacted stigma, theory and…
Medicine (10 works) · Patient-Provider Communication in Healthcare (9 works) · Family medicine (7 works) · Alternative medicine (6 works) · Breast cancer (6 works) · Cancer (6 works) · Decision aids (6 works) · Internal Medicine (6 works) · Psychology (5 works) · Global Cancer Incidence and Screening (4 works)