Kathryn M Porter
Biographic Data
| ID | 7709612 |
|---|---|
| NAME | Kathryn M Porter |
| GIVEN NAMES | Kathryn M |
| FAMILY NAME | Porter |
| SIGNATURE | PORTER K M |
| AFFILIATIONS | Seattle Children's Hospital |
| ORCID | 0000-0003-1930-9625 |
| VERIFIED | Yes |
| TOTAL WORKS | 3 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 3 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2015 |
| LATEST PUBLICATION YEAR | 2022 |
| H-INDEX | 0 |
Lessons learned about publication of results of community surveys when regulatory oversight has not occurred
We conducted a survey in an online forum without prior IRB approval which yielded information we wanted to share with the medical community. We sought approaches to ethically publish the survey's results. Address the ethical issues raised by considering publication of community forum perspectives without prior regulatory oversight or written informed consent. A research ethics consultation identified two approaches: 1) assessing community perspec…
Access and Management
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal leaders, clinicians, researchers, policy makers, and tribal …
Research on Medical Practices and the Patient-Physician Relationship
Research on medical practices involves comparing treatments in the clinical context in which they are used; 2014 draft regulatory guidance inaccurately categorizes the risks of treatments being studied as risks of the research itself, which could hamper the use of simplified informed consent processes that patients and researchers may prefer
No prominent works on this page.
Research on Medical Practices and the Patient-Physician Relationship
Research on medical practices involves comparing treatments in the clinical context in which they are used; 2014 draft regulatory guidance inaccurately categorizes the risks of treatments being studied as risks of the research itself, which could hamper the use of simplified informed consent processes that patients and researchers may prefer
Access and Management
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal leaders, clinicians, researchers, policy makers, and tribal …
Lessons learned about publication of results of community surveys when regulatory oversight has not occurred
We conducted a survey in an online forum without prior IRB approval which yielded information we wanted to share with the medical community. We sought approaches to ethically publish the survey's results. Address the ethical issues raised by considering publication of community forum perspectives without prior regulatory oversight or written informed consent. A research ethics consultation identified two approaches: 1) assessing community perspec…
Ethics in Clinical Research (3 works) · Medicine (3 works) · Alternative medicine (2 works) · Ethics in medical practice (2 works) · Patient-Provider Communication in Healthcare (2 works) · Political science (2 works) · Psychology (2 works) · Public relations (2 works) · Biomedical Ethics and Regulation (1 work) · Computer Science (1 work)