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Fiona Poland

Biographic Data

ID78887
NAMEFiona Poland
GIVEN NAMESFiona
FAMILY NAMEPoland
SIGNATUREPOLAND F
AFFILIATIONSUniversity of East Anglia
ORCID0000-0003-0003-6911
VERIFIEDYes
TOTAL WORKS26
TOTAL CITATIONS77
AUTHOR COUNT26
EDITOR COUNT0
FIRST PUBLICATION YEAR1987
LATEST PUBLICATION YEAR2024
H-INDEX5
  • Disjunctures in practice: Ethnographic observations of orthopaedic ward practices in the care of older adults with hip fracture and presumed cognitive impairment

    Open Access•Jane L Cross, Tamara Backhouse et al.•ARTICLE•Ageing and Society•2024•References: 42

    Organisational priorities for health care focus on efficiency as the health and care needs of populations increase. But evidence suggests that excessive planning can be counterproductive, leading to resistance from staff and patients, particularly those living with cognitive impairment. The current paper adds to this debate reporting an Institutional Ethnography of staff delivering care for older patients with cognitive impairment on acute orthop…

  • Why the trial researcher matters: Day-to-day work viewed through the lens of normalization process theory

    Open Access•Lindsay Dalgarno, Linda Birt et al.•ARTICLE•SSM - Qualitative Research in…•2023

    Researchers working in the field, the places where research-relevant activity happens, are essential to recruitment and data collection in randomised controlled trials (RCTs). This study aimed to understand the nature of this often invisible work. Data were generated through an RCT of a pharmacist-led medication management service for older people in care homes. The study was conducted over three years and employed seven Research Associates (RA) …

  • Can a disability studies-medical sociology rapprochement help re-value the work disabled people do within their rehabilitation

    Open Access•Harriet Cooper, Fiona Poland et al.•ARTICLE•Sociology of Health & Illness•2023•Cited by: 4•References: 10

    This paper draws attention to the health-related work that disabled people do when engaging with rehabilitation services. Medical sociology has a rich history of looking at the 'illness work' that patients do, while disability studies scholars have explored the cultural value placed upon paid work and the effects on social status of being unable to work. Yet, a longstanding froideur between these two disciplines, which have fundamentally opposed …

  • Exploring disconnected discourses about Patient and Public Involvement and Volunteer Involvement in English health and social care

    Open Access•Jurgen Grotz, Linda Birt et al.•ARTICLE•Health Expectations•2021

  • Structure and agency attributes of residents’ use of dining space during mealtimes in care homes for older people

    Open Access•Adriano Maluf, Francine Cheater et al.•ARTICLE•Health & Social Care in the…•2020•Cited by: 1•References: 6

    Research stresses that mealtimes in care homes for older people are vital social events in residents' lives. Mealtimes have great importance for residents as they provide a sense of normality, reinforce individuals' identities and orientate their routines. This ethnographic study aimed to understand residents' use of dining spaces during mealtimes, specifically examining residents' table assignment processes. Data were collected in summer 2015 in…

  • Everyone needs to understand each other’s systems”: Stakeholder views on the acceptability and viability of a Pharmacist Independent Prescriber role in care homes for older people in the UK

    Open Access•KATHLEEN LANE, Catherine M Bond et al.•ARTICLE•Health & Social Care in the…•2020•Cited by: 1•References: 1

    The role of an innovative Pharmacist Independent Prescriber (PIP) for care homes to optimise medications has not been examined. We explored stakeholders' views on issues and barriers that the PIP might address to inform a service specification for the PIP intervention in older people's care homes. Focus groups (n = 72 participants) and semi-structured interviews (n = 13) undertaken in 2015 across four sites in the United Kingdom captured the view…

  • Maintaining Social Connections in Dementia: A Qualitative Synthesis

    Open Access•Linda Birt, Rebecca Griffiths et al.•ARTICLE•Qualitative Health Research•2020•Cited by: 4•References: 54

    The clinical symptoms of dementia include difficulty with speech, poor short-term memory, and changes in behavior. These symptoms can affect how the person with dementia understands and performs in social interactions. This qualitative review investigated how people with mild to moderate dementia managed social connections. A systematic search of social science databases retrieved 13 articles; data were synthesized using thematic analysis. Result…

  • Making body work sequences visible: An Ethnographic Study of Acute Orthopaedic Hospital Wards

    Open Access•Tamara Backhouse, Simon P Hammond et al.•ARTICLE•Sociology of Health & Illness•2020•Cited by: 4•References: 14

    Within health and social care, academic attention is increasingly paid to understanding the nature and centrality of body work. Relatively little is known about how and where body work specifically fits into the wider work relations that produce it in healthcare settings. We draw on ethnographic observations of staff practice in three National Health Service acute hospital wards in the United Kingdom to make visible the micro-processes of patient…

  • Embedding patient and public involvement: Managing tacit and explicit expectations

    Open Access•Fiona Poland, Georgina Charlesworth et al.•ARTICLE•Health Expectations•2019

    BACKGROUND: Evidencing well-planned and implemented patient and public involvement (PPI) in a research project is increasingly required in funding bids and dissemination activities. There is a tacit expectation that involving people with experience of the condition under study will improve the integrity and quality of the research. This expectation remains largely unproblematized and unchallenged. OBJECTIVE: To critically evaluate the implementat…

  • Facilitators and barriers to co‐research by people with dementia and academic researchers: Findings from a qualitative study

    Open Access•Jacob Waite, Fiona Poland et al.•ARTICLE•Health Expectations•2019

    BACKGROUND: Public and patient involvement (PPI) is now established in dementia research. Barriers and facilitators to engagement from family carers and people in early stages of dementia have been explored. However, specific barriers and facilitators to co-research with people with dementia have not previously been investigated. OBJECTIVE: To discover the facilitators of, and barriers to, involving people with dementia as co-researchers, from th…

  • Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study

    Open Access•Elspeth Mathie, Helena Wythe et al.•ARTICLE•Health Expectations•2018

    BACKGROUND: Reciprocal relationships between researchers and patient and public involvement (PPI) contributors can enable successful PPI in research. However, research and anecdotal evidence suggest that researchers do not commonly provide feedback to PPI contributors thus preventing them from knowing whether, how or where their contributions were useful to researchers and research overall. AIMS: The aim of this study was to explore the variation…

  • Rehabilitation as a Disability Equality Issue: A Conceptual Shift for Disability Studies

    Open Access•Tom Shakespeare, Harriet Cooper et al.•ARTICLE•Social Inclusion•2018•Cited by: 3•References: 10

    Rehabilitation is a controversial subject in disability studies, often discussed in terms of oppression, normalisation, and unwanted intrusion. While there may be good reasons for positioning rehabilitation in this way, this has also meant that, as a lived experience, it is under-researched and neglected in disabilities literature, as we show by surveying leading disability studies journals. With some notable exceptions, rehabilitation research h…

  • On the character and production of 'active participation' in neuro-rehabilitation: An Actor-Network perspective

    Open Access•Simon Horton, Kathryn Mares et al.•ARTICLE•Sociology of Health & Illness•2017•Cited by: 1•References: 11

    The importance of patients' active involvement in neuro-rehabilitation after acquired brain injury has been consistently emphasised in recent years. However, most approaches fail to show how 'active participation' is practically enacted, focusing on individualised explanations of patient choice and behaviours, or notions of inherent patient traits. Using actor-network theory (ANT) as a sensitising concept, we investigated neuro-rehabilitation pra…

  • Shifting dementia discourses from deficit to active citizenship

    Open Access•Linda Birt, Fiona Poland et al.•ARTICLE•Sociology of Health & Illness•2017•Cited by: 11•References: 49

    Within western cultures, portrayals of dementia as 'a living death' are being challenged by people living with the diagnosis. Yet dementia remains one of the most feared conditions. The sociological lens of citizenship provides a conceptual framework for reviewing the role of society and culture in repositioning dementia away from deficit to a discourse of agency and interdependence. Awareness of cognitive change, and engaging with the diagnostic…

  • Negotiating and valuing spaces: The discourse of space and ‘home’ in care homes

    Open Access•Andrea Kenkmann, Fiona Poland et al.•ARTICLE•Health & Place•2016•Cited by: 6•References: 6

  • The impact of volunteering on the volunteer: Findings from a peer support programme for family carers of people with dementia

    Open Access•Georgina Charlesworth, James B Sinclair et al.•ARTICLE•Health & Social Care in the…•2016•Cited by: 5•References: 4

    With an ageing population, there are increasing numbers of experienced family carers (FCs) who could provide peer support to newer carers in a similar care situation. The aims of this paper are to: (i) use a cross-sectional study design to compare characteristics of volunteers and recipients of a peer support programme for FCs of people with dementia, in terms of demographic background, social networks and psychological well-being; and (ii) use a…

  • Involving service users in the development of the S upport at H ome: I nterventions to E nhance L ife in D ementia C arer S upporter P rogramme for family carers of people with dementia

    Open Access•Karen Burnell, KAREN J BURNELL et al.•ARTICLE•Health Expectations•2015

    BACKGROUND: Involving service users in research can be an effective way of improving the practicalities and acceptability of interventions for target end users. OBJECTIVES: The current paper presented two consensus methods, not commonly used in consultation with service users, to develop a peer support intervention for family carers of people with dementia (SHIELD Carer Supporter Programme). DESIGN: Study 1 was a modified Delphi process combined …

  • Positioning older men’s social interactions: A visual exploration of the space between acquaintanceship and strangerhood

    Pernille Sørensen, Fiona Poland•ARTICLE•Families Relationships and…•2015•Cited by: 1•References: 5

    In this article, we show how using a visual method enabled an exploration of the nuances of everyday encounters of older men living alone. It made visible more fleeting encounters, alerting us to the significance of such encounters. The article argues the need to pay more attention to social encounters, situated somewhere in the space between acquaintanceship and strangerhood. While not always easy to articulate verbally, characteristics of such …

  • Challenging Social Cognition Models of Adherence: Cycles of Discourse, Historical Bodies, and Interactional Order

    Open Access•Jamie Murdoch, C Salter et al.•ARTICLE•Qualitative Health Research•2015•Cited by: 4•References: 36

    Attempts to model individual beliefs as a means of predicting how people follow clinical advice have dominated adherence research, but with limited success. In this article, we challenge assumptions underlying this individualistic philosophy and propose an alternative formulation of context and its relationship with individual actions related to illness. Borrowing from Scollon and Scollon's three elements of social action-historical body, interac…

  • Older women's reduced contact with food in the Changes Around Food Experience (Cafe) study: Choices, adaptations and dynamism

    Open Access•KATHLEEN LANE, Fiona Poland et al.•ARTICLE•Ageing and Society•2014•Cited by: 5•References: 35

    Many older women reduce the amount of cooking and food preparation they do in later life. While cooking may be seen as traditionally associated with women's family roles, little is known about the impact of such reduced engagement with food on their lives. This paper presents the findings from a one-year qualitative study (Changes Around Food Experience, CAFE) of the impact of reduced contact with preparing and cooking meals from scratch for 40 w…

  • Resisting medications: Moral Discourses and Performances in Illness Narratives

    Open Access•Jamie Murdoch, C Salter et al.•ARTICLE•Sociology of Health & Illness•2013•Cited by: 11•References: 14

    Adherence research has been dominated by attitudinal approaches that isolate individual statements made in interviews and then assign a fixed attitude to the individual who made that statement. Despite much sociological research having raised questions about the notion of fixed attitudes, little research has theorised the process by which individual utterances about medicine-taking are produced as a form of resistance to medications within interv…

  • Social support needs for equity in health and social care: A thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis

    Open Access•José Carlos De Carvalho Leite, Maria De Lourdes Drachler et al.•ARTICLE•International Journal for Equity…•2011

    Changes in attitudes of health practitioners, policy makers and general public and more flexibly organised health and social care provision are needed to address equity issues in support needs expressed by people with CFS/ME, to be underpinned by research-based knowledge and communication, for public and professional education. Policy development should include shared decision-making and coordinated action across organizations working for people …

  • The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers

    Open Access•Luis Nacul, Luis C Nacul et al.•ARTICLE•BMC Public Health•2011

    ME/CFS is disabling and has a greater impact on functional status and well being than other chronic diseases such as cancer. The emotional burden of ME/CFS is felt by lay carers as well as by people with ME/CFS. We suggest the use of generic instruments such as SF-36, in combination of other objective outcome measurements, to describe patients and assess treatments

  • Analyzing Interactional Contexts in a Data-Sharing Focus Group

    Open Access•Jamie Murdoch, Fiona Poland et al.•ARTICLE•Qualitative Health Research•2010•Cited by: 3•References: 27

    In this article we describe the use of a data-sharing focus group for triangulation with face-to-face interviews. In contrast to member-checking triangulation, this focus group was undertaken to provide a different interactional context to analyze moral discourses in talk about asthma medicine taking. Using principles of discursive psychology to analyze data, participants adopted strategies to manage dilemmas of identification with research findi…

  • Professional Empowerment and Teaching Sociology to Health Care Professionals

    Ron Iphofen, Fiona Poland•ARTICLE•Teaching Sociology•1997•Cited by: 1

    The teaching of the social and behavioral sciences as disciplines within the education and training of health care professionals is a relatively new phenomenon in the United Kingdom. The push for their inclusion in medical, nursing, midwifery and radiography curricula is a consequence of major changes in the system and service of health care in Britain, which lent a greater urgency to the professionalization of these occupations. This, in turn, c…

Next
  • Patriarchy and pub culture

    Open Access•Fiona Poland•ARTICLE•Women s Studies International Forum•1987•Cited by: 12

  • Shifting dementia discourses from deficit to active citizenship

    Open Access•Linda Birt, Fiona Poland et al.•ARTICLE•Sociology of Health & Illness•2017•Cited by: 11•References: 49

    Within western cultures, portrayals of dementia as 'a living death' are being challenged by people living with the diagnosis. Yet dementia remains one of the most feared conditions. The sociological lens of citizenship provides a conceptual framework for reviewing the role of society and culture in repositioning dementia away from deficit to a discourse of agency and interdependence. Awareness of cognitive change, and engaging with the diagnostic…

  • Resisting medications: Moral Discourses and Performances in Illness Narratives

    Open Access•Jamie Murdoch, C Salter et al.•ARTICLE•Sociology of Health & Illness•2013•Cited by: 11•References: 14

    Adherence research has been dominated by attitudinal approaches that isolate individual statements made in interviews and then assign a fixed attitude to the individual who made that statement. Despite much sociological research having raised questions about the notion of fixed attitudes, little research has theorised the process by which individual utterances about medicine-taking are produced as a form of resistance to medications within interv…

  • Negotiating and valuing spaces: The discourse of space and ‘home’ in care homes

    Open Access•Andrea Kenkmann, Fiona Poland et al.•ARTICLE•Health & Place•2016•Cited by: 6•References: 6

  • The impact of volunteering on the volunteer: Findings from a peer support programme for family carers of people with dementia

    Open Access•Georgina Charlesworth, James B Sinclair et al.•ARTICLE•Health & Social Care in the…•2016•Cited by: 5•References: 4

    With an ageing population, there are increasing numbers of experienced family carers (FCs) who could provide peer support to newer carers in a similar care situation. The aims of this paper are to: (i) use a cross-sectional study design to compare characteristics of volunteers and recipients of a peer support programme for FCs of people with dementia, in terms of demographic background, social networks and psychological well-being; and (ii) use a…

  • Older women's reduced contact with food in the Changes Around Food Experience (Cafe) study: Choices, adaptations and dynamism

    Open Access•KATHLEEN LANE, Fiona Poland et al.•ARTICLE•Ageing and Society•2014•Cited by: 5•References: 35

    Many older women reduce the amount of cooking and food preparation they do in later life. While cooking may be seen as traditionally associated with women's family roles, little is known about the impact of such reduced engagement with food on their lives. This paper presents the findings from a one-year qualitative study (Changes Around Food Experience, CAFE) of the impact of reduced contact with preparing and cooking meals from scratch for 40 w…

  • Can a disability studies-medical sociology rapprochement help re-value the work disabled people do within their rehabilitation

    Open Access•Harriet Cooper, Fiona Poland et al.•ARTICLE•Sociology of Health & Illness•2023•Cited by: 4•References: 10

    This paper draws attention to the health-related work that disabled people do when engaging with rehabilitation services. Medical sociology has a rich history of looking at the 'illness work' that patients do, while disability studies scholars have explored the cultural value placed upon paid work and the effects on social status of being unable to work. Yet, a longstanding froideur between these two disciplines, which have fundamentally opposed …

  • Maintaining Social Connections in Dementia: A Qualitative Synthesis

    Open Access•Linda Birt, Rebecca Griffiths et al.•ARTICLE•Qualitative Health Research•2020•Cited by: 4•References: 54

    The clinical symptoms of dementia include difficulty with speech, poor short-term memory, and changes in behavior. These symptoms can affect how the person with dementia understands and performs in social interactions. This qualitative review investigated how people with mild to moderate dementia managed social connections. A systematic search of social science databases retrieved 13 articles; data were synthesized using thematic analysis. Result…

  • Making body work sequences visible: An Ethnographic Study of Acute Orthopaedic Hospital Wards

    Open Access•Tamara Backhouse, Simon P Hammond et al.•ARTICLE•Sociology of Health & Illness•2020•Cited by: 4•References: 14

    Within health and social care, academic attention is increasingly paid to understanding the nature and centrality of body work. Relatively little is known about how and where body work specifically fits into the wider work relations that produce it in healthcare settings. We draw on ethnographic observations of staff practice in three National Health Service acute hospital wards in the United Kingdom to make visible the micro-processes of patient…

  • Challenging Social Cognition Models of Adherence: Cycles of Discourse, Historical Bodies, and Interactional Order

    Open Access•Jamie Murdoch, C Salter et al.•ARTICLE•Qualitative Health Research•2015•Cited by: 4•References: 36

    Attempts to model individual beliefs as a means of predicting how people follow clinical advice have dominated adherence research, but with limited success. In this article, we challenge assumptions underlying this individualistic philosophy and propose an alternative formulation of context and its relationship with individual actions related to illness. Borrowing from Scollon and Scollon's three elements of social action-historical body, interac…

  • Rehabilitation as a Disability Equality Issue: A Conceptual Shift for Disability Studies

    Open Access•Tom Shakespeare, Harriet Cooper et al.•ARTICLE•Social Inclusion•2018•Cited by: 3•References: 10

    Rehabilitation is a controversial subject in disability studies, often discussed in terms of oppression, normalisation, and unwanted intrusion. While there may be good reasons for positioning rehabilitation in this way, this has also meant that, as a lived experience, it is under-researched and neglected in disabilities literature, as we show by surveying leading disability studies journals. With some notable exceptions, rehabilitation research h…

  • Analyzing Interactional Contexts in a Data-Sharing Focus Group

    Open Access•Jamie Murdoch, Fiona Poland et al.•ARTICLE•Qualitative Health Research•2010•Cited by: 3•References: 27

    In this article we describe the use of a data-sharing focus group for triangulation with face-to-face interviews. In contrast to member-checking triangulation, this focus group was undertaken to provide a different interactional context to analyze moral discourses in talk about asthma medicine taking. Using principles of discursive psychology to analyze data, participants adopted strategies to manage dilemmas of identification with research findi…

  • Structure and agency attributes of residents’ use of dining space during mealtimes in care homes for older people

    Open Access•Adriano Maluf, Francine Cheater et al.•ARTICLE•Health & Social Care in the…•2020•Cited by: 1•References: 6

    Research stresses that mealtimes in care homes for older people are vital social events in residents' lives. Mealtimes have great importance for residents as they provide a sense of normality, reinforce individuals' identities and orientate their routines. This ethnographic study aimed to understand residents' use of dining spaces during mealtimes, specifically examining residents' table assignment processes. Data were collected in summer 2015 in…

  • Everyone needs to understand each other’s systems”: Stakeholder views on the acceptability and viability of a Pharmacist Independent Prescriber role in care homes for older people in the UK

    Open Access•KATHLEEN LANE, Catherine M Bond et al.•ARTICLE•Health & Social Care in the…•2020•Cited by: 1•References: 1

    The role of an innovative Pharmacist Independent Prescriber (PIP) for care homes to optimise medications has not been examined. We explored stakeholders' views on issues and barriers that the PIP might address to inform a service specification for the PIP intervention in older people's care homes. Focus groups (n = 72 participants) and semi-structured interviews (n = 13) undertaken in 2015 across four sites in the United Kingdom captured the view…

  • On the character and production of 'active participation' in neuro-rehabilitation: An Actor-Network perspective

    Open Access•Simon Horton, Kathryn Mares et al.•ARTICLE•Sociology of Health & Illness•2017•Cited by: 1•References: 11

    The importance of patients' active involvement in neuro-rehabilitation after acquired brain injury has been consistently emphasised in recent years. However, most approaches fail to show how 'active participation' is practically enacted, focusing on individualised explanations of patient choice and behaviours, or notions of inherent patient traits. Using actor-network theory (ANT) as a sensitising concept, we investigated neuro-rehabilitation pra…

  • Positioning older men’s social interactions: A visual exploration of the space between acquaintanceship and strangerhood

    Pernille Sørensen, Fiona Poland•ARTICLE•Families Relationships and…•2015•Cited by: 1•References: 5

    In this article, we show how using a visual method enabled an exploration of the nuances of everyday encounters of older men living alone. It made visible more fleeting encounters, alerting us to the significance of such encounters. The article argues the need to pay more attention to social encounters, situated somewhere in the space between acquaintanceship and strangerhood. While not always easy to articulate verbally, characteristics of such …

  • Professional Empowerment and Teaching Sociology to Health Care Professionals

    Ron Iphofen, Fiona Poland•ARTICLE•Teaching Sociology•1997•Cited by: 1

    The teaching of the social and behavioral sciences as disciplines within the education and training of health care professionals is a relatively new phenomenon in the United Kingdom. The push for their inclusion in medical, nursing, midwifery and radiography curricula is a consequence of major changes in the system and service of health care in Britain, which lent a greater urgency to the professionalization of these occupations. This, in turn, c…

  • Patriarchy and pub culture

    Open Access•Fiona Poland•ARTICLE•Women s Studies International Forum•1987•Cited by: 12

  • Professional Empowerment and Teaching Sociology to Health Care Professionals

    Ron Iphofen, Fiona Poland•ARTICLE•Teaching Sociology•1997•Cited by: 1

    The teaching of the social and behavioral sciences as disciplines within the education and training of health care professionals is a relatively new phenomenon in the United Kingdom. The push for their inclusion in medical, nursing, midwifery and radiography curricula is a consequence of major changes in the system and service of health care in Britain, which lent a greater urgency to the professionalization of these occupations. This, in turn, c…

  • Analyzing Interactional Contexts in a Data-Sharing Focus Group

    Open Access•Jamie Murdoch, Fiona Poland et al.•ARTICLE•Qualitative Health Research•2010•Cited by: 3•References: 27

    In this article we describe the use of a data-sharing focus group for triangulation with face-to-face interviews. In contrast to member-checking triangulation, this focus group was undertaken to provide a different interactional context to analyze moral discourses in talk about asthma medicine taking. Using principles of discursive psychology to analyze data, participants adopted strategies to manage dilemmas of identification with research findi…

  • Social support needs for equity in health and social care: A thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis

    Open Access•José Carlos De Carvalho Leite, Maria De Lourdes Drachler et al.•ARTICLE•International Journal for Equity…•2011

    Changes in attitudes of health practitioners, policy makers and general public and more flexibly organised health and social care provision are needed to address equity issues in support needs expressed by people with CFS/ME, to be underpinned by research-based knowledge and communication, for public and professional education. Policy development should include shared decision-making and coordinated action across organizations working for people …

  • The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers

    Open Access•Luis Nacul, Luis C Nacul et al.•ARTICLE•BMC Public Health•2011

    ME/CFS is disabling and has a greater impact on functional status and well being than other chronic diseases such as cancer. The emotional burden of ME/CFS is felt by lay carers as well as by people with ME/CFS. We suggest the use of generic instruments such as SF-36, in combination of other objective outcome measurements, to describe patients and assess treatments

  • Resisting medications: Moral Discourses and Performances in Illness Narratives

    Open Access•Jamie Murdoch, C Salter et al.•ARTICLE•Sociology of Health & Illness•2013•Cited by: 11•References: 14

    Adherence research has been dominated by attitudinal approaches that isolate individual statements made in interviews and then assign a fixed attitude to the individual who made that statement. Despite much sociological research having raised questions about the notion of fixed attitudes, little research has theorised the process by which individual utterances about medicine-taking are produced as a form of resistance to medications within interv…

  • Older women's reduced contact with food in the Changes Around Food Experience (Cafe) study: Choices, adaptations and dynamism

    Open Access•KATHLEEN LANE, Fiona Poland et al.•ARTICLE•Ageing and Society•2014•Cited by: 5•References: 35

    Many older women reduce the amount of cooking and food preparation they do in later life. While cooking may be seen as traditionally associated with women's family roles, little is known about the impact of such reduced engagement with food on their lives. This paper presents the findings from a one-year qualitative study (Changes Around Food Experience, CAFE) of the impact of reduced contact with preparing and cooking meals from scratch for 40 w…

  • Involving service users in the development of the S upport at H ome: I nterventions to E nhance L ife in D ementia C arer S upporter P rogramme for family carers of people with dementia

    Open Access•Karen Burnell, KAREN J BURNELL et al.•ARTICLE•Health Expectations•2015

    BACKGROUND: Involving service users in research can be an effective way of improving the practicalities and acceptability of interventions for target end users. OBJECTIVES: The current paper presented two consensus methods, not commonly used in consultation with service users, to develop a peer support intervention for family carers of people with dementia (SHIELD Carer Supporter Programme). DESIGN: Study 1 was a modified Delphi process combined …

  • Positioning older men’s social interactions: A visual exploration of the space between acquaintanceship and strangerhood

    Pernille Sørensen, Fiona Poland•ARTICLE•Families Relationships and…•2015•Cited by: 1•References: 5

    In this article, we show how using a visual method enabled an exploration of the nuances of everyday encounters of older men living alone. It made visible more fleeting encounters, alerting us to the significance of such encounters. The article argues the need to pay more attention to social encounters, situated somewhere in the space between acquaintanceship and strangerhood. While not always easy to articulate verbally, characteristics of such …

  • Challenging Social Cognition Models of Adherence: Cycles of Discourse, Historical Bodies, and Interactional Order

    Open Access•Jamie Murdoch, C Salter et al.•ARTICLE•Qualitative Health Research•2015•Cited by: 4•References: 36

    Attempts to model individual beliefs as a means of predicting how people follow clinical advice have dominated adherence research, but with limited success. In this article, we challenge assumptions underlying this individualistic philosophy and propose an alternative formulation of context and its relationship with individual actions related to illness. Borrowing from Scollon and Scollon's three elements of social action-historical body, interac…

  • Negotiating and valuing spaces: The discourse of space and ‘home’ in care homes

    Open Access•Andrea Kenkmann, Fiona Poland et al.•ARTICLE•Health & Place•2016•Cited by: 6•References: 6

  • The impact of volunteering on the volunteer: Findings from a peer support programme for family carers of people with dementia

    Open Access•Georgina Charlesworth, James B Sinclair et al.•ARTICLE•Health & Social Care in the…•2016•Cited by: 5•References: 4

    With an ageing population, there are increasing numbers of experienced family carers (FCs) who could provide peer support to newer carers in a similar care situation. The aims of this paper are to: (i) use a cross-sectional study design to compare characteristics of volunteers and recipients of a peer support programme for FCs of people with dementia, in terms of demographic background, social networks and psychological well-being; and (ii) use a…

  • On the character and production of 'active participation' in neuro-rehabilitation: An Actor-Network perspective

    Open Access•Simon Horton, Kathryn Mares et al.•ARTICLE•Sociology of Health & Illness•2017•Cited by: 1•References: 11

    The importance of patients' active involvement in neuro-rehabilitation after acquired brain injury has been consistently emphasised in recent years. However, most approaches fail to show how 'active participation' is practically enacted, focusing on individualised explanations of patient choice and behaviours, or notions of inherent patient traits. Using actor-network theory (ANT) as a sensitising concept, we investigated neuro-rehabilitation pra…

  • Shifting dementia discourses from deficit to active citizenship

    Open Access•Linda Birt, Fiona Poland et al.•ARTICLE•Sociology of Health & Illness•2017•Cited by: 11•References: 49

    Within western cultures, portrayals of dementia as 'a living death' are being challenged by people living with the diagnosis. Yet dementia remains one of the most feared conditions. The sociological lens of citizenship provides a conceptual framework for reviewing the role of society and culture in repositioning dementia away from deficit to a discourse of agency and interdependence. Awareness of cognitive change, and engaging with the diagnostic…

  • Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study

    Open Access•Elspeth Mathie, Helena Wythe et al.•ARTICLE•Health Expectations•2018

    BACKGROUND: Reciprocal relationships between researchers and patient and public involvement (PPI) contributors can enable successful PPI in research. However, research and anecdotal evidence suggest that researchers do not commonly provide feedback to PPI contributors thus preventing them from knowing whether, how or where their contributions were useful to researchers and research overall. AIMS: The aim of this study was to explore the variation…

  • Rehabilitation as a Disability Equality Issue: A Conceptual Shift for Disability Studies

    Open Access•Tom Shakespeare, Harriet Cooper et al.•ARTICLE•Social Inclusion•2018•Cited by: 3•References: 10

    Rehabilitation is a controversial subject in disability studies, often discussed in terms of oppression, normalisation, and unwanted intrusion. While there may be good reasons for positioning rehabilitation in this way, this has also meant that, as a lived experience, it is under-researched and neglected in disabilities literature, as we show by surveying leading disability studies journals. With some notable exceptions, rehabilitation research h…

  • Embedding patient and public involvement: Managing tacit and explicit expectations

    Open Access•Fiona Poland, Georgina Charlesworth et al.•ARTICLE•Health Expectations•2019

    BACKGROUND: Evidencing well-planned and implemented patient and public involvement (PPI) in a research project is increasingly required in funding bids and dissemination activities. There is a tacit expectation that involving people with experience of the condition under study will improve the integrity and quality of the research. This expectation remains largely unproblematized and unchallenged. OBJECTIVE: To critically evaluate the implementat…

  • Facilitators and barriers to co‐research by people with dementia and academic researchers: Findings from a qualitative study

    Open Access•Jacob Waite, Fiona Poland et al.•ARTICLE•Health Expectations•2019

    BACKGROUND: Public and patient involvement (PPI) is now established in dementia research. Barriers and facilitators to engagement from family carers and people in early stages of dementia have been explored. However, specific barriers and facilitators to co-research with people with dementia have not previously been investigated. OBJECTIVE: To discover the facilitators of, and barriers to, involving people with dementia as co-researchers, from th…

  • Structure and agency attributes of residents’ use of dining space during mealtimes in care homes for older people

    Open Access•Adriano Maluf, Francine Cheater et al.•ARTICLE•Health & Social Care in the…•2020•Cited by: 1•References: 6

    Research stresses that mealtimes in care homes for older people are vital social events in residents' lives. Mealtimes have great importance for residents as they provide a sense of normality, reinforce individuals' identities and orientate their routines. This ethnographic study aimed to understand residents' use of dining spaces during mealtimes, specifically examining residents' table assignment processes. Data were collected in summer 2015 in…

  • Everyone needs to understand each other’s systems”: Stakeholder views on the acceptability and viability of a Pharmacist Independent Prescriber role in care homes for older people in the UK

    Open Access•KATHLEEN LANE, Catherine M Bond et al.•ARTICLE•Health & Social Care in the…•2020•Cited by: 1•References: 1

    The role of an innovative Pharmacist Independent Prescriber (PIP) for care homes to optimise medications has not been examined. We explored stakeholders' views on issues and barriers that the PIP might address to inform a service specification for the PIP intervention in older people's care homes. Focus groups (n = 72 participants) and semi-structured interviews (n = 13) undertaken in 2015 across four sites in the United Kingdom captured the view…

  • Maintaining Social Connections in Dementia: A Qualitative Synthesis

    Open Access•Linda Birt, Rebecca Griffiths et al.•ARTICLE•Qualitative Health Research•2020•Cited by: 4•References: 54

    The clinical symptoms of dementia include difficulty with speech, poor short-term memory, and changes in behavior. These symptoms can affect how the person with dementia understands and performs in social interactions. This qualitative review investigated how people with mild to moderate dementia managed social connections. A systematic search of social science databases retrieved 13 articles; data were synthesized using thematic analysis. Result…

  • Making body work sequences visible: An Ethnographic Study of Acute Orthopaedic Hospital Wards

    Open Access•Tamara Backhouse, Simon P Hammond et al.•ARTICLE•Sociology of Health & Illness•2020•Cited by: 4•References: 14

    Within health and social care, academic attention is increasingly paid to understanding the nature and centrality of body work. Relatively little is known about how and where body work specifically fits into the wider work relations that produce it in healthcare settings. We draw on ethnographic observations of staff practice in three National Health Service acute hospital wards in the United Kingdom to make visible the micro-processes of patient…

  • Exploring disconnected discourses about Patient and Public Involvement and Volunteer Involvement in English health and social care

    Open Access•Jurgen Grotz, Linda Birt et al.•ARTICLE•Health Expectations•2021

  • Why the trial researcher matters: Day-to-day work viewed through the lens of normalization process theory

    Open Access•Lindsay Dalgarno, Linda Birt et al.•ARTICLE•SSM - Qualitative Research in…•2023

    Researchers working in the field, the places where research-relevant activity happens, are essential to recruitment and data collection in randomised controlled trials (RCTs). This study aimed to understand the nature of this often invisible work. Data were generated through an RCT of a pharmacist-led medication management service for older people in care homes. The study was conducted over three years and employed seven Research Associates (RA) …

  • Can a disability studies-medical sociology rapprochement help re-value the work disabled people do within their rehabilitation

    Open Access•Harriet Cooper, Fiona Poland et al.•ARTICLE•Sociology of Health & Illness•2023•Cited by: 4•References: 10

    This paper draws attention to the health-related work that disabled people do when engaging with rehabilitation services. Medical sociology has a rich history of looking at the 'illness work' that patients do, while disability studies scholars have explored the cultural value placed upon paid work and the effects on social status of being unable to work. Yet, a longstanding froideur between these two disciplines, which have fundamentally opposed …

Psychology (22 works) · Medicine (19 works) · Sociology (19 works) · Political science (12 works) · Nursing (11 works) · Social Psychology (10 works) · Mental Health and Patient Involvement (9 works) · Computer Science (8 works) · Psychiatry (7 works) · Social science (7 works)

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