Shani Weber
Biographic Data
| ID | 8985102 |
|---|---|
| NAME | Shani Weber |
| GIVEN NAMES | Shani |
| FAMILY NAME | Weber |
| SIGNATURE | WEBER S |
| AFFILIATIONS | The Ehlers‐Danlos Society 1732 New York New York USA |
| VERIFIED | No |
| TOTAL WORKS | 1 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 1 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2023 |
| LATEST PUBLICATION YEAR | 2023 |
| H-INDEX | 0 |
Using social media listening to understand barriers to genomic medicine for those living with Ehlers–Danlos syndromes and hypermobility spectrum disorders
INTRODUCTION: Technological improvements alone have not led to the integration of genomic medicine across a broad range of diseases and populations. For genomic medicine to be successfully implemented across specialties and conditions, the challenges patients and caregivers experience need to be identified using a multi-faceted understanding of the context in which these obstacles occur and how they are experienced. Individuals affected by rare c…
No prominent works on this page.
Using social media listening to understand barriers to genomic medicine for those living with Ehlers–Danlos syndromes and hypermobility spectrum disorders
INTRODUCTION: Technological improvements alone have not led to the integration of genomic medicine across a broad range of diseases and populations. For genomic medicine to be successfully implemented across specialties and conditions, the challenges patients and caregivers experience need to be identified using a multi-faceted understanding of the context in which these obstacles occur and how they are experienced. Individuals affected by rare c…
Active listening (1 work) · Computer Science (1 work) · Connective tissue disorders research (1 work) · Genomics and Rare Diseases (1 work) · Internet privacy (1 work) · Interpersonal communication (1 work) · Medicine (1 work) · Neurogenetic and Muscular Disorders Research (1 work) · Psychology (1 work) · Psychotherapist (1 work)