Niclas Hagen
Dados Biográficos
| ID | 102636 |
|---|---|
| NOME | Niclas Hagen |
| PRENOMES | Niclas |
| SOBRENOME | Hagen |
| ASSINATURA | HAGEN N |
| AFILIAÇÕES | University of Gothenburg |
| ORCID | 0000-0003-2390-9500 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 11 |
| TOTAL DE CITAÇÕES | 9 |
| TOTAL COMO AUTOR | 11 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2012 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2024 |
| ÍNDICE H | 1 |
Inequality persists in a large citizen science programme despite increased participation through ICT innovations
Biological recording is a prominent and widely practised form of citizen science, but few studies explore long-term demographic trends in participation and knowledge production. We studied long-term demographic trends of age and gender of participants reporting to a large online citizen science multi-taxon biodiversity platform ( www.artportalen.se ). Adoption by user communities and continually developing Information and Communications Technolog…
Citizen Observations as Legal Obligations
There is an increasing international trend in environmental activism to use legal institutions and infrastructures for citizen science (CS) to affect policy and regulation. However, knowledge about observations produced in activist CS and their functions at courts is scarce. To address this, we analyze how citizen observations (COs) reported to an established infrastructure for CS assist in producing legal obligations. Sweden provides an exemplar…
Making particularity travel
This paper focuses on how particularities are performed and made to travel through the creation of trust. The Swedish Species Observation System (Artportalen) is one of the largest inscription and calculation centers for citizen data in the world, used extensively by public authorities in Sweden. Observations by members of the public become actionable through environmental governance laws in Sweden. These observations are made through networks of…
Ethical boundary work in citizen science
The concept of boundary work (Gieryn 1983, 1999) has been developed to capture theways in which scientists collectively defend and demarcate their intellectual territories.This article applies the concept of boundary work to the ethical realm and investigates theethical boundary work performed by researchers in the field of citizen science (CS) througha literature review and by analysing accounts of ethics presented in CS literature.Results show …
Scaling up and rolling out through the Web
The purpose of this paper is to investigate online public participation and engagement in science through crowdsourcing platforms. In order to fulfil this purpose, this paper will use the crowdsourcing platform Zooniverse as a case study, as it constitutes the most prominent and established citizen science platform today. The point of departure for the analysis is that Zooniverse can be seen as a “platformization” of citizen science and scientifi…
The lived experience of Huntington's disease
The purpose of this article is to explore the intersections between genes, the body and the lived experience of a genetic disease. This article is based on empirical material from a study on how individuals affected by Huntington's disease experience their everyday life. This study identified two themes that represent and capture the experience of the affected individuals. The themes are (1) noticing symptoms in everyday life and (2) neither heal…
The incorporation of literature into clinical practice
The Cultural Paradox of Predictive Genetic Testing for Huntington's Disease
The aim of this article is to perform a cultural analysis of the effects and implications of predictive genetic testing for individuals who have undergone predictive genetic testing for Huntington’s disease (HD). Moreover, the analysis aims to relate these effects and the implications of these tests to current initiatives that advocate a large-scale incorporation of genetics and genomics into mainstream health care. The abstract and elusive chara…
Genetics and democracy—what is the issue
For Better or for Worse
Modernity has meant a cultural and social differentiation within the western society, which, according to Jürgen Habermas' theory on communication, can be seen as a division between different forms of actions that takes place in different realms of the society. By combining Habermas' notions of lifeworld and system with Arthur Frank's analysis of stories as a way to experience illness, the article performs a cultural analysis of the meeting betwe…
Difficult Questions and Ambivalent Answers on Genetic Testing
A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing - and a quantitative nation wide opinion poll targeting the same issues, was initiated by the Cultural Scientific Research Team of BAGADILICO. The latter is an international biomedical research environment on neurological disease at Lund University. The data of the two studies crystallized through analysis into themes around which the …
Making particularity travel
This paper focuses on how particularities are performed and made to travel through the creation of trust. The Swedish Species Observation System (Artportalen) is one of the largest inscription and calculation centers for citizen data in the world, used extensively by public authorities in Sweden. Observations by members of the public become actionable through environmental governance laws in Sweden. These observations are made through networks of…
Inequality persists in a large citizen science programme despite increased participation through ICT innovations
Biological recording is a prominent and widely practised form of citizen science, but few studies explore long-term demographic trends in participation and knowledge production. We studied long-term demographic trends of age and gender of participants reporting to a large online citizen science multi-taxon biodiversity platform ( www.artportalen.se ). Adoption by user communities and continually developing Information and Communications Technolog…
The lived experience of Huntington's disease
The purpose of this article is to explore the intersections between genes, the body and the lived experience of a genetic disease. This article is based on empirical material from a study on how individuals affected by Huntington's disease experience their everyday life. This study identified two themes that represent and capture the experience of the affected individuals. The themes are (1) noticing symptoms in everyday life and (2) neither heal…
The Cultural Paradox of Predictive Genetic Testing for Huntington's Disease
The aim of this article is to perform a cultural analysis of the effects and implications of predictive genetic testing for individuals who have undergone predictive genetic testing for Huntington’s disease (HD). Moreover, the analysis aims to relate these effects and the implications of these tests to current initiatives that advocate a large-scale incorporation of genetics and genomics into mainstream health care. The abstract and elusive chara…
For Better or for Worse
Modernity has meant a cultural and social differentiation within the western society, which, according to Jürgen Habermas' theory on communication, can be seen as a division between different forms of actions that takes place in different realms of the society. By combining Habermas' notions of lifeworld and system with Arthur Frank's analysis of stories as a way to experience illness, the article performs a cultural analysis of the meeting betwe…
Genetics and democracy—what is the issue
For Better or for Worse
Modernity has meant a cultural and social differentiation within the western society, which, according to Jürgen Habermas' theory on communication, can be seen as a division between different forms of actions that takes place in different realms of the society. By combining Habermas' notions of lifeworld and system with Arthur Frank's analysis of stories as a way to experience illness, the article performs a cultural analysis of the meeting betwe…
Difficult Questions and Ambivalent Answers on Genetic Testing
A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing - and a quantitative nation wide opinion poll targeting the same issues, was initiated by the Cultural Scientific Research Team of BAGADILICO. The latter is an international biomedical research environment on neurological disease at Lund University. The data of the two studies crystallized through analysis into themes around which the …
The Cultural Paradox of Predictive Genetic Testing for Huntington's Disease
The aim of this article is to perform a cultural analysis of the effects and implications of predictive genetic testing for individuals who have undergone predictive genetic testing for Huntington’s disease (HD). Moreover, the analysis aims to relate these effects and the implications of these tests to current initiatives that advocate a large-scale incorporation of genetics and genomics into mainstream health care. The abstract and elusive chara…
The incorporation of literature into clinical practice
The lived experience of Huntington's disease
The purpose of this article is to explore the intersections between genes, the body and the lived experience of a genetic disease. This article is based on empirical material from a study on how individuals affected by Huntington's disease experience their everyday life. This study identified two themes that represent and capture the experience of the affected individuals. The themes are (1) noticing symptoms in everyday life and (2) neither heal…
Scaling up and rolling out through the Web
The purpose of this paper is to investigate online public participation and engagement in science through crowdsourcing platforms. In order to fulfil this purpose, this paper will use the crowdsourcing platform Zooniverse as a case study, as it constitutes the most prominent and established citizen science platform today. The point of departure for the analysis is that Zooniverse can be seen as a “platformization” of citizen science and scientifi…
Ethical boundary work in citizen science
The concept of boundary work (Gieryn 1983, 1999) has been developed to capture theways in which scientists collectively defend and demarcate their intellectual territories.This article applies the concept of boundary work to the ethical realm and investigates theethical boundary work performed by researchers in the field of citizen science (CS) througha literature review and by analysing accounts of ethics presented in CS literature.Results show …
Making particularity travel
This paper focuses on how particularities are performed and made to travel through the creation of trust. The Swedish Species Observation System (Artportalen) is one of the largest inscription and calculation centers for citizen data in the world, used extensively by public authorities in Sweden. Observations by members of the public become actionable through environmental governance laws in Sweden. These observations are made through networks of…
Inequality persists in a large citizen science programme despite increased participation through ICT innovations
Biological recording is a prominent and widely practised form of citizen science, but few studies explore long-term demographic trends in participation and knowledge production. We studied long-term demographic trends of age and gender of participants reporting to a large online citizen science multi-taxon biodiversity platform ( www.artportalen.se ). Adoption by user communities and continually developing Information and Communications Technolog…
Citizen Observations as Legal Obligations
There is an increasing international trend in environmental activism to use legal institutions and infrastructures for citizen science (CS) to affect policy and regulation. However, knowledge about observations produced in activist CS and their functions at courts is scarce. To address this, we analyze how citizen observations (COs) reported to an established infrastructure for CS assist in producing legal obligations. Sweden provides an exemplar…
Political science (9 obras) · Sociology (9 obras) · Law (6 obras) · Social science (5 obras) · Epistemology (4 obras) · Politics (4 obras) · Psychology (4 obras) · Species Distribution and Climate Change (4 obras) · Animal and Plant Science Education (3 obras) · Citizen science (3 obras)