Dick L Willems
Dados Biográficos
| ID | 104016 |
|---|---|
| NOME | Dick L Willems |
| PRENOMES | Dick L |
| SOBRENOME | Willems |
| ASSINATURA | WILLEMS D L |
| AFILIAÇÕES | Amsterdam University Medical Centers |
| ORCID | 0000-0002-5587-2549 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 26 |
| TOTAL DE CITAÇÕES | 117 |
| TOTAL COMO AUTOR | 26 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 1996 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 5 |
How can non-inferiority studies with mortality end points be ethically justified
BACKGROUND: Non-inferiority (NI) studies with mortality end points are increasingly frequently conducted. They aim to show that a new treatment strategy does not entail an unacceptably higher mortality than the comparator. They raise specific ethical issues related to the rationale of the study, the NI margin, certainty and informed consent. There is a need for ethical reflection. METHOD: Analysis of ethical issues informed by a literature search…
Nrima - a particular Javanese value and its impact on healthcare
People in Java traditionally internalise the value of ‘nrima’ . It is a verb, from the noun ‘ trima’ in Javanese language (box 1). The closest word to ‘nrima’ in English is acceptance, although the meaning in local wisdom is deeper. Historically, the concept is known as ‘ nrima ing pandhum’ , which means a wholehearted, sincere and grateful acceptance of life events (usually unfortunate) that are given to us. This nrima attitude will result in re…
Care and decision-making at the end of life for migrants living in the Netherlands
Bondade
Este artigo pretende incentivar que acadêmicos enviem trabalhos para um simpósio e para a próxima edição especial da Medische Antropologie, que tratará de estudos empíricos sobre questões normativas. Descrevemos a "virada empírica" na ética médica. A ética médica e a bioética em geral testemunharam um movimento da ética aplicada (a aplicação de regras e princípios para situações complexas) para um interesse renovado nas questões éticas práticas e…
Towards trust-based governance of health data research
Developments in medical big data analytics may bring societal benefits but are also challenging privacy and other ethical values. At the same time, an overly restrictive data protection regime can form a serious threat to valuable observational studies. Discussions about whether data privacy or data solidarity should be the foundational value of research policies, have remained unresolved. We add to this debate with an empirically informed ethica…
Assessing the Risk of Repeat Victimization Using Structured and Unstructured Police Information
Following the EU Victim Directive, Dutch police officers are obliged to assess a victim’s vulnerability to repeat victimization. This study explored the utility of unstructured police information for the prediction of repeat victimization, as well as its incremental value over and above structured police information. Police records over a period of 6 years were retrieved for a sample of 116,680 victims. Unstructured information was transformed in…
What About Us? Experiences of Relatives Regarding Physician-Assisted Death for Patients Suffering from Mental Illness
Physician-assisted death (PAD) for patients suffering from mental illness is legally permitted in the Netherlands. Although patients’ relatives are not entrusted with a legal role, former research revealed that physicians take into account the patient’s social context and their well-being, in deciding whether or not to grant the request. However, these studies focussed on relatives’ experiences in the context of PAD concerning patients with somat…
Contextual Exceptionalism After Death
In this article, we use the theory of Information Ethics to argue that deceased people have a prima facie moral right to privacy in the context of health data research, and that this should be reflected in regulation and guidelines. After death, people are no longer biological subjects but continue to exist as informational entities which can still be harmed/damaged. We find that while the instrumental value of recognising post-mortem privacy lie…
Feeling Seen, Being Heard
Physician-assisted death (PAD) for patients suffering from a mental illness is allowed in the Netherlands under certain conditions but is a very controversial topic, mainly discussed by ethicists and physicians. The voice of the patient is rarely included in the debate, so we know little about what their views on the topic are. We aim to understand the views of patients with mental illness and wish to die with regard to the possibility of PAD in …
My son has lost his dignity’
The objective of this study is to describe and evaluate understandings of dignity of persons with profound intellectual and multiple disabilities. Intrinsic dignity cannot be lost and is inherent to being a human. Also, dignity is the extent to which these persons have enough positive experiences (individual dignity), have dignity in their relationships with familiar others (relational dignity), or with unknown others (societal dignity). While in…
Do Doctors Differentiate Between Suicide and Physician-Assisted Death? A Qualitative Study into the Views of Psychiatrists and General Practitioners
Physician-assisted death for patients suffering from psychiatric disorders is allowed in the Netherlands under certain circumstances. One of the central problems that arise with regard to this practice is the question of whether it is possible to distinguish between suicidality and a request for physician-assisted death. We set up this study to gain insight into how psychiatrists and general practitioners distinguish between suicidality and physi…
Context-Relative Norms Determine the Appropriate Type of Consent in Clinical Biobanks
Clinical biobanks processing data of participants in the European Union (EU) fall under the scope of the General Data Protection Regulation (GDPR), which among others includes requirements for consent. These requirements are further specified by the Article 29 Working Party (WP29)—an EU advisory body currently known as the European Data Protection Board (EDPB). Unfortunately, their guidance is cause for some confusion. While the GDPR allows parti…
Community Education for a Dignified Last Phase of Life for Migrants
Community engagement and -education are proposed to foster equity in access to care and to ensure dignity of migrant patients in the last phase of life, but evidence is lacking. We evaluated nine community educational interactive meetings about palliative care (136 participants totally)- co-created with educators from our target groups of Moroccan, Surinamese and Turkish migrants-with a mixed methods approach, including 114 questionnaires, nine o…
PalliSupport – The development, feasibility and implementation of a transitional integrated care pathway for older patients with palliative care needs
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Making sense with numbers. Unravelling ethico-psychological subjects in practices of self-quantification
Prevention enthusiasts show great optimism about the potential of health apps to modify peoples' lifestyles through the tracking and quantification of behaviours and bodily signs. Critical sociologists warn for the disciplining effects of self-tracking. In this paper we use an empirical ethics approach to study the characteristics and strivings of the various types of 'ethico-psychological subjects' that emerge in practices of self-quantification…
Pourquoi les attentes suscitées par la télésurveillance sont souvent déçues
La télésurveillance est de plus en plus utilisée dans le suivi des patients, car on attend d'elle qu'elle apporte des améliorations substantielles concernant les relevés de mesures, la collecte de données, l'efficience thérapeutique et les options de communication dont disposent les patients. Cependant, les études en STS ( Science and Technology Studies ) ont montré que, fréquemment, les nouvelles technologies ne sont pas à la hauteur des attente…
Shining trinkets and unkempt gardens
The increasing use of telecare will profoundly change nursing care. How to understand these changes is, however, far from clear. This is because (i) studies on telecare seldom consider the situation it replaces, and (ii) current concepts and methods used to study the impact of telecare may not allow us to fully grasp these changes. We suggest that an analysis of the changing materiality of care practices is a suitable way to articulate and reflec…
How Dementia Affects Personal Dignity
Given the considerable impact the social environment has on the personal dignity of people with mild to moderate dementia, it is important in caregiving not to confine attention to health-related or even any individual aspects alone, but also to take interpersonal aspects into consideration
Where is the citizen? Comparing civic spaces in long-term mental healthcare
Opening the Gift
Ethical review from the inside
Evaluating the practice of ethical review by Research Ethics Committees (REC) could help protect the interests of human participants and promote scientific progress. To facilitate such evaluations, we conducted an ethnographic study of how an REC reviews research proposals during its meetings. We observed 13 meetings of a Dutch REC and studied REC documents. We coded this material inductively and categorised these codes in two repertoires of eval…
Doctor in the lead
The article examines the leadership of department heads in a university hospital in day-to-day practice. These ‘doctors in the lead’ bridge the medical and the management world in the hospital organization.They are better able to influence their colleagues’ clinical activities than a non-medical manager. This is, however not a trouble-free task. The concepts of Pierre Bourdieu—habitus, field and capital—guide the analysis of empirical material. T…
Innovation and evaluation
Telecare is advocated in most European countries with great, if not grandiose, promises: improving healthcare, lowering costs, solving workforce shortage. This paper does not so much question these specific promises, but rather the 'register of promising' as such, by comparing the promises with actual processes of incorporating technologies in healthcare practices. The case we study is the use of webcams in follow-up care from a Dutch rehabilitat…
The last 3 months of life
Many older people die in hospitals, whereas research indicates that they would prefer to die at home. Little is known about the factors associated with place of death. The aim of the present study was to investigate the care received by older people in the last 3 months of their life, the transitions in care and the predictors of place of death. In this population-based study, interviews were held with 270 proxy respondents to obtain data on 342 …
Preferences in end-of-life care of older persons
Innovation and evaluation
Telecare is advocated in most European countries with great, if not grandiose, promises: improving healthcare, lowering costs, solving workforce shortage. This paper does not so much question these specific promises, but rather the 'register of promising' as such, by comparing the promises with actual processes of incorporating technologies in healthcare practices. The case we study is the use of webcams in follow-up care from a Dutch rehabilitat…
Shining trinkets and unkempt gardens
The increasing use of telecare will profoundly change nursing care. How to understand these changes is, however, far from clear. This is because (i) studies on telecare seldom consider the situation it replaces, and (ii) current concepts and methods used to study the impact of telecare may not allow us to fully grasp these changes. We suggest that an analysis of the changing materiality of care practices is a suitable way to articulate and reflec…
Making sense with numbers. Unravelling ethico-psychological subjects in practices of self-quantification
Prevention enthusiasts show great optimism about the potential of health apps to modify peoples' lifestyles through the tracking and quantification of behaviours and bodily signs. Critical sociologists warn for the disciplining effects of self-tracking. In this paper we use an empirical ethics approach to study the characteristics and strivings of the various types of 'ethico-psychological subjects' that emerge in practices of self-quantification…
Ethical review from the inside
Evaluating the practice of ethical review by Research Ethics Committees (REC) could help protect the interests of human participants and promote scientific progress. To facilitate such evaluations, we conducted an ethnographic study of how an REC reviews research proposals during its meetings. We observed 13 meetings of a Dutch REC and studied REC documents. We coded this material inductively and categorised these codes in two repertoires of eval…
The last 3 months of life
Many older people die in hospitals, whereas research indicates that they would prefer to die at home. Little is known about the factors associated with place of death. The aim of the present study was to investigate the care received by older people in the last 3 months of their life, the transitions in care and the predictors of place of death. In this population-based study, interviews were held with 270 proxy respondents to obtain data on 342 …
How Dementia Affects Personal Dignity
Given the considerable impact the social environment has on the personal dignity of people with mild to moderate dementia, it is important in caregiving not to confine attention to health-related or even any individual aspects alone, but also to take interpersonal aspects into consideration
Where is the citizen? Comparing civic spaces in long-term mental healthcare
Preferences in end-of-life care of older persons
Mesurer sa respiration. Reconstituer le corps avec un objet médical
Care and decision-making at the end of life for migrants living in the Netherlands
My son has lost his dignity’
The objective of this study is to describe and evaluate understandings of dignity of persons with profound intellectual and multiple disabilities. Intrinsic dignity cannot be lost and is inherent to being a human. Also, dignity is the extent to which these persons have enough positive experiences (individual dignity), have dignity in their relationships with familiar others (relational dignity), or with unknown others (societal dignity). While in…
Pourquoi les attentes suscitées par la télésurveillance sont souvent déçues
La télésurveillance est de plus en plus utilisée dans le suivi des patients, car on attend d'elle qu'elle apporte des améliorations substantielles concernant les relevés de mesures, la collecte de données, l'efficience thérapeutique et les options de communication dont disposent les patients. Cependant, les études en STS ( Science and Technology Studies ) ont montré que, fréquemment, les nouvelles technologies ne sont pas à la hauteur des attente…
Mesurer sa respiration. Reconstituer le corps avec un objet médical
Preferences in end-of-life care of older persons
The last 3 months of life
Many older people die in hospitals, whereas research indicates that they would prefer to die at home. Little is known about the factors associated with place of death. The aim of the present study was to investigate the care received by older people in the last 3 months of their life, the transitions in care and the predictors of place of death. In this population-based study, interviews were held with 270 proxy respondents to obtain data on 342 …
Doctor in the lead
The article examines the leadership of department heads in a university hospital in day-to-day practice. These ‘doctors in the lead’ bridge the medical and the management world in the hospital organization.They are better able to influence their colleagues’ clinical activities than a non-medical manager. This is, however not a trouble-free task. The concepts of Pierre Bourdieu—habitus, field and capital—guide the analysis of empirical material. T…
Innovation and evaluation
Telecare is advocated in most European countries with great, if not grandiose, promises: improving healthcare, lowering costs, solving workforce shortage. This paper does not so much question these specific promises, but rather the 'register of promising' as such, by comparing the promises with actual processes of incorporating technologies in healthcare practices. The case we study is the use of webcams in follow-up care from a Dutch rehabilitat…
Opening the Gift
Ethical review from the inside
Evaluating the practice of ethical review by Research Ethics Committees (REC) could help protect the interests of human participants and promote scientific progress. To facilitate such evaluations, we conducted an ethnographic study of how an REC reviews research proposals during its meetings. We observed 13 meetings of a Dutch REC and studied REC documents. We coded this material inductively and categorised these codes in two repertoires of eval…
Where is the citizen? Comparing civic spaces in long-term mental healthcare
How Dementia Affects Personal Dignity
Given the considerable impact the social environment has on the personal dignity of people with mild to moderate dementia, it is important in caregiving not to confine attention to health-related or even any individual aspects alone, but also to take interpersonal aspects into consideration
Shining trinkets and unkempt gardens
The increasing use of telecare will profoundly change nursing care. How to understand these changes is, however, far from clear. This is because (i) studies on telecare seldom consider the situation it replaces, and (ii) current concepts and methods used to study the impact of telecare may not allow us to fully grasp these changes. We suggest that an analysis of the changing materiality of care practices is a suitable way to articulate and reflec…
Pourquoi les attentes suscitées par la télésurveillance sont souvent déçues
La télésurveillance est de plus en plus utilisée dans le suivi des patients, car on attend d'elle qu'elle apporte des améliorations substantielles concernant les relevés de mesures, la collecte de données, l'efficience thérapeutique et les options de communication dont disposent les patients. Cependant, les études en STS ( Science and Technology Studies ) ont montré que, fréquemment, les nouvelles technologies ne sont pas à la hauteur des attente…
PalliSupport – The development, feasibility and implementation of a transitional integrated care pathway for older patients with palliative care needs
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Making sense with numbers. Unravelling ethico-psychological subjects in practices of self-quantification
Prevention enthusiasts show great optimism about the potential of health apps to modify peoples' lifestyles through the tracking and quantification of behaviours and bodily signs. Critical sociologists warn for the disciplining effects of self-tracking. In this paper we use an empirical ethics approach to study the characteristics and strivings of the various types of 'ethico-psychological subjects' that emerge in practices of self-quantification…
Context-Relative Norms Determine the Appropriate Type of Consent in Clinical Biobanks
Clinical biobanks processing data of participants in the European Union (EU) fall under the scope of the General Data Protection Regulation (GDPR), which among others includes requirements for consent. These requirements are further specified by the Article 29 Working Party (WP29)—an EU advisory body currently known as the European Data Protection Board (EDPB). Unfortunately, their guidance is cause for some confusion. While the GDPR allows parti…
Community Education for a Dignified Last Phase of Life for Migrants
Community engagement and -education are proposed to foster equity in access to care and to ensure dignity of migrant patients in the last phase of life, but evidence is lacking. We evaluated nine community educational interactive meetings about palliative care (136 participants totally)- co-created with educators from our target groups of Moroccan, Surinamese and Turkish migrants-with a mixed methods approach, including 114 questionnaires, nine o…
Do Doctors Differentiate Between Suicide and Physician-Assisted Death? A Qualitative Study into the Views of Psychiatrists and General Practitioners
Physician-assisted death for patients suffering from psychiatric disorders is allowed in the Netherlands under certain circumstances. One of the central problems that arise with regard to this practice is the question of whether it is possible to distinguish between suicidality and a request for physician-assisted death. We set up this study to gain insight into how psychiatrists and general practitioners distinguish between suicidality and physi…
Contextual Exceptionalism After Death
In this article, we use the theory of Information Ethics to argue that deceased people have a prima facie moral right to privacy in the context of health data research, and that this should be reflected in regulation and guidelines. After death, people are no longer biological subjects but continue to exist as informational entities which can still be harmed/damaged. We find that while the instrumental value of recognising post-mortem privacy lie…
Feeling Seen, Being Heard
Physician-assisted death (PAD) for patients suffering from a mental illness is allowed in the Netherlands under certain conditions but is a very controversial topic, mainly discussed by ethicists and physicians. The voice of the patient is rarely included in the debate, so we know little about what their views on the topic are. We aim to understand the views of patients with mental illness and wish to die with regard to the possibility of PAD in …
My son has lost his dignity’
The objective of this study is to describe and evaluate understandings of dignity of persons with profound intellectual and multiple disabilities. Intrinsic dignity cannot be lost and is inherent to being a human. Also, dignity is the extent to which these persons have enough positive experiences (individual dignity), have dignity in their relationships with familiar others (relational dignity), or with unknown others (societal dignity). While in…
Towards trust-based governance of health data research
Developments in medical big data analytics may bring societal benefits but are also challenging privacy and other ethical values. At the same time, an overly restrictive data protection regime can form a serious threat to valuable observational studies. Discussions about whether data privacy or data solidarity should be the foundational value of research policies, have remained unresolved. We add to this debate with an empirically informed ethica…
Assessing the Risk of Repeat Victimization Using Structured and Unstructured Police Information
Following the EU Victim Directive, Dutch police officers are obliged to assess a victim’s vulnerability to repeat victimization. This study explored the utility of unstructured police information for the prediction of repeat victimization, as well as its incremental value over and above structured police information. Police records over a period of 6 years were retrieved for a sample of 116,680 victims. Unstructured information was transformed in…
What About Us? Experiences of Relatives Regarding Physician-Assisted Death for Patients Suffering from Mental Illness
Physician-assisted death (PAD) for patients suffering from mental illness is legally permitted in the Netherlands. Although patients’ relatives are not entrusted with a legal role, former research revealed that physicians take into account the patient’s social context and their well-being, in deciding whether or not to grant the request. However, these studies focussed on relatives’ experiences in the context of PAD concerning patients with somat…
Care and decision-making at the end of life for migrants living in the Netherlands
Bondade
Este artigo pretende incentivar que acadêmicos enviem trabalhos para um simpósio e para a próxima edição especial da Medische Antropologie, que tratará de estudos empíricos sobre questões normativas. Descrevemos a "virada empírica" na ética médica. A ética médica e a bioética em geral testemunharam um movimento da ética aplicada (a aplicação de regras e princípios para situações complexas) para um interesse renovado nas questões éticas práticas e…
Nrima - a particular Javanese value and its impact on healthcare
People in Java traditionally internalise the value of ‘nrima’ . It is a verb, from the noun ‘ trima’ in Javanese language (box 1). The closest word to ‘nrima’ in English is acceptance, although the meaning in local wisdom is deeper. Historically, the concept is known as ‘ nrima ing pandhum’ , which means a wholehearted, sincere and grateful acceptance of life events (usually unfortunate) that are given to us. This nrima attitude will result in re…
Psychology (15 obras) · Political science (13 obras) · Medicine (12 obras) · Computer Science (10 obras) · Sociology (10 obras) · Law (8 obras) · Palliative Care and End-of-Life Issues (8 obras) · Patient Dignity and Privacy (7 obras) · Nursing (6 obras) · Epistemology (5 obras)