Soo Chan Carusone
Dados Biográficos
| ID | 142293 |
|---|---|
| NOME | Soo Chan Carusone |
| PRENOMES | Soo Chan |
| SOBRENOME | Carusone |
| ASSINATURA | CARUSONE S C |
| AFILIAÇÕES | Casey House |
| ORCID | 0000-0003-3977-0523 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 21 |
| TOTAL DE CITAÇÕES | 17 |
| TOTAL COMO AUTOR | 21 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2012 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2025 |
| ÍNDICE H | 2 |
Community Engagement in Long Covid Research
INTRODUCTION: Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and implementation, through to interpretation and knowledge translation; nevertheless, the process varies across research teams. In this paper, we (1) describe our process undertaking a community-engaged Long Covid research study; (2) evaluate our communit…
Analysis of hospital-based healthcare provision for people living with HIV who use drugs in Ontario, Canada
People living with HIV (PLWH) who use drugs are hospitalized at higher rates than the general population and report receiving poor care during hospitalization. The patient experience of PLWH during hospitalization is influenced by the clinical practice of healthcare providers (HPs). However, there is a gap in the literature that articulates the perspectives of HPs who deliver care to this population. Semi-structured interviews were conducted with…
Public Engagement in Health Policy‐Making for Older Adults
INTRODUCTION: As the world's population ages, there has been increasing attention to developing health policies to support older adults. Engaging older adults in policy-making is one way to ensure that policy decisions align with their needs and priorities. However, ageist stereotypes often underestimate older adults' ability to participate in such initiatives. This scoping review aims to describe the characteristics and impacts of public engagem…
Conceptualising the episodic nature of disability among adults living with Long Covid
INTRODUCTION: Our aim was to describe episodic nature of disability among adults living with Long COVID. METHODS: We conducted a community-engaged qualitative descriptive study involving online semistructured interviews and participant visual illustrations. We recruited participants via collaborator community organisations in Canada, Ireland, UK and USA.We recruited adults who self-identified as living with Long COVID with diversity in age, gende…
And if my goal is never to leave Casey House?”
A structuration theory guided analysis of the hospitalization experience for people living with HIV who use drugs
Adapting Cognitive Remediation Group Therapy as an Online or Hybrid Intervention for People Aging With HIV and Cognitive Concerns
Cognitive impairment is a significant health issue for people aging with HIV/AIDS. Cognitive challenges can include forgetfulness, trouble concentrating, and increasing struggles to learn new skills, all of which contribute to poorer mental health and decreased quality of life. Although there is no specific drug therapy that can reverse the brain impairment, group therapies may help people aging with HIV and cognitive challenges to better cope wi…
Picturing Participation
Community engagement is considered a cornerstone of health promotion practice. Yet engagement is a fuzzy term signifying a range of practices. Health scholarship has focused primarily on individual effects of engagement. To understand the complexities of engagement, organizations must also consider relational, structural, and/or organizational factors that inform stakeholders’ subjective understandings and experiences. Community engagement proces…
Feasibility, acceptability, concerns, and challenges of implementing supervised injection services at a specialty HIV hospital in Toronto, Canada
Our data showed widespread support of, and need for, hospital-based SIS among client stakeholders; however, attempts to reduce negative impacts on non-drug using clients need to be considered in the balance of implementation plans. Given the increased risks of morbidity and mortality for PLHIV who inject drugs as well as the problems in retaining them in care in a hospital setting, SIS is a key component of improving care for this marginalized gr…
With a Picc line, you never miss”
Our analysis has implications for theorizing the role of PICC lines in the care of PWUD and identifies practical guidance for engaging them in productive and non-judgemental discussions about the risks of injecting into a PICC line, how to do it safely, and about medically supported alternatives
Rules and Eligibility Criteria for Supervised Consumption Services Feasibility Studies – A Scoping Review
Training Peers to Ease Hospital Discharge
Peers verified participant feelings and affirmed their experiences, followed-up on participant goals to track progress, disclosed their own relevant experiences to build rapport, and facilitated closure to enable program success. Peers struggled maintaining an emotional connection over the phone and were concerned when participants were nonresponsive. This article discusses how the training was piloted and adapted for practice
Do Mock-Ups, Presentations of Evidence, and Q&as Help Participants Voice Their Opinions during Focus Groups and Interviews About Supervised Injection Services
Controversial facilities (e.g., supervised injection services (SIS), methadone clinics, and social housing) may require feasibility studies that asses their acceptability among community stakeholders before their implementation. However, controversies about these facilities may make stakeholders ambivalent or hesitant to express opinions about them because various sources of information disagree about their harms and benefits. We responded to thi…
Journeying together
A Seat at the Table
Recently, scholars have begun to critically interrogate the way community participation functions discursively within community-based participatory research (CBPR) and raise questions about its function and limits. Community advisory committees (CACs) are often used within CBPR as one way to involve community members in research from design to dissemination. However, CACs may not always be designed in ways that are accessible for communities expe…
Distribution of Harm Reduction Kits in a Specialty HIV Hospital
Casey House, a small Toronto, Ontario, hospital for people living with HIV, implemented a harm-reduction kit distribution program in October 2014 to decrease harms from reuse of injection and smoking equipment among its clients—inpatients and outpatients. Program statistics (November 2014–June 2017) show an increase in the number of kits—injection and smoking—distributed each year. The program is perceived by staff to communicate openness and inc…
I'm Just Forgetting and I Don't Know Why
HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with …
Visualizing harm reduction
Living with addiction
Retracted
This retrospective chart review provides a profile of an emerging population of vulnerable HIV patients with complex comorbidities. Data were abstracted from all 87 patients admitted in 2008 to Casey House, a community-based hospital dedicated to supportive and palliative care for persons with HIV in Toronto, Canada. We describe patient characteristics, including medical and psychiatric conditions, and use a Venn diagram and case study to illustr…
Complex care needs of patients with late-stage HIV disease
This retrospective chart review provides a profile of an emerging population of vulnerable HIV patients with complex comorbidities. Data were abstracted from all 87 patients admitted in 2008 to Casey House, a community-based hospital dedicated to supportive and palliative care for persons with HIV in Toronto, Canada. We describe patient characteristics, including medical and psychiatric conditions, and use a Venn diagram and case study to illustr…
Visualizing harm reduction
Distribution of Harm Reduction Kits in a Specialty HIV Hospital
Casey House, a small Toronto, Ontario, hospital for people living with HIV, implemented a harm-reduction kit distribution program in October 2014 to decrease harms from reuse of injection and smoking equipment among its clients—inpatients and outpatients. Program statistics (November 2014–June 2017) show an increase in the number of kits—injection and smoking—distributed each year. The program is perceived by staff to communicate openness and inc…
I'm Just Forgetting and I Don't Know Why
HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with …
Adapting Cognitive Remediation Group Therapy as an Online or Hybrid Intervention for People Aging With HIV and Cognitive Concerns
Cognitive impairment is a significant health issue for people aging with HIV/AIDS. Cognitive challenges can include forgetfulness, trouble concentrating, and increasing struggles to learn new skills, all of which contribute to poorer mental health and decreased quality of life. Although there is no specific drug therapy that can reverse the brain impairment, group therapies may help people aging with HIV and cognitive challenges to better cope wi…
Do Mock-Ups, Presentations of Evidence, and Q&as Help Participants Voice Their Opinions during Focus Groups and Interviews About Supervised Injection Services
Controversial facilities (e.g., supervised injection services (SIS), methadone clinics, and social housing) may require feasibility studies that asses their acceptability among community stakeholders before their implementation. However, controversies about these facilities may make stakeholders ambivalent or hesitant to express opinions about them because various sources of information disagree about their harms and benefits. We responded to thi…
Complex care needs of patients with late-stage HIV disease
This retrospective chart review provides a profile of an emerging population of vulnerable HIV patients with complex comorbidities. Data were abstracted from all 87 patients admitted in 2008 to Casey House, a community-based hospital dedicated to supportive and palliative care for persons with HIV in Toronto, Canada. We describe patient characteristics, including medical and psychiatric conditions, and use a Venn diagram and case study to illustr…
Retracted
This retrospective chart review provides a profile of an emerging population of vulnerable HIV patients with complex comorbidities. Data were abstracted from all 87 patients admitted in 2008 to Casey House, a community-based hospital dedicated to supportive and palliative care for persons with HIV in Toronto, Canada. We describe patient characteristics, including medical and psychiatric conditions, and use a Venn diagram and case study to illustr…
Living with addiction
Visualizing harm reduction
Distribution of Harm Reduction Kits in a Specialty HIV Hospital
Casey House, a small Toronto, Ontario, hospital for people living with HIV, implemented a harm-reduction kit distribution program in October 2014 to decrease harms from reuse of injection and smoking equipment among its clients—inpatients and outpatients. Program statistics (November 2014–June 2017) show an increase in the number of kits—injection and smoking—distributed each year. The program is perceived by staff to communicate openness and inc…
I'm Just Forgetting and I Don't Know Why
HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with …
A Seat at the Table
Recently, scholars have begun to critically interrogate the way community participation functions discursively within community-based participatory research (CBPR) and raise questions about its function and limits. Community advisory committees (CACs) are often used within CBPR as one way to involve community members in research from design to dissemination. However, CACs may not always be designed in ways that are accessible for communities expe…
Journeying together
Picturing Participation
Community engagement is considered a cornerstone of health promotion practice. Yet engagement is a fuzzy term signifying a range of practices. Health scholarship has focused primarily on individual effects of engagement. To understand the complexities of engagement, organizations must also consider relational, structural, and/or organizational factors that inform stakeholders’ subjective understandings and experiences. Community engagement proces…
Feasibility, acceptability, concerns, and challenges of implementing supervised injection services at a specialty HIV hospital in Toronto, Canada
Our data showed widespread support of, and need for, hospital-based SIS among client stakeholders; however, attempts to reduce negative impacts on non-drug using clients need to be considered in the balance of implementation plans. Given the increased risks of morbidity and mortality for PLHIV who inject drugs as well as the problems in retaining them in care in a hospital setting, SIS is a key component of improving care for this marginalized gr…
With a Picc line, you never miss”
Our analysis has implications for theorizing the role of PICC lines in the care of PWUD and identifies practical guidance for engaging them in productive and non-judgemental discussions about the risks of injecting into a PICC line, how to do it safely, and about medically supported alternatives
Rules and Eligibility Criteria for Supervised Consumption Services Feasibility Studies – A Scoping Review
Training Peers to Ease Hospital Discharge
Peers verified participant feelings and affirmed their experiences, followed-up on participant goals to track progress, disclosed their own relevant experiences to build rapport, and facilitated closure to enable program success. Peers struggled maintaining an emotional connection over the phone and were concerned when participants were nonresponsive. This article discusses how the training was piloted and adapted for practice
Do Mock-Ups, Presentations of Evidence, and Q&as Help Participants Voice Their Opinions during Focus Groups and Interviews About Supervised Injection Services
Controversial facilities (e.g., supervised injection services (SIS), methadone clinics, and social housing) may require feasibility studies that asses their acceptability among community stakeholders before their implementation. However, controversies about these facilities may make stakeholders ambivalent or hesitant to express opinions about them because various sources of information disagree about their harms and benefits. We responded to thi…
A structuration theory guided analysis of the hospitalization experience for people living with HIV who use drugs
Adapting Cognitive Remediation Group Therapy as an Online or Hybrid Intervention for People Aging With HIV and Cognitive Concerns
Cognitive impairment is a significant health issue for people aging with HIV/AIDS. Cognitive challenges can include forgetfulness, trouble concentrating, and increasing struggles to learn new skills, all of which contribute to poorer mental health and decreased quality of life. Although there is no specific drug therapy that can reverse the brain impairment, group therapies may help people aging with HIV and cognitive challenges to better cope wi…
Conceptualising the episodic nature of disability among adults living with Long Covid
INTRODUCTION: Our aim was to describe episodic nature of disability among adults living with Long COVID. METHODS: We conducted a community-engaged qualitative descriptive study involving online semistructured interviews and participant visual illustrations. We recruited participants via collaborator community organisations in Canada, Ireland, UK and USA.We recruited adults who self-identified as living with Long COVID with diversity in age, gende…
And if my goal is never to leave Casey House?”
Analysis of hospital-based healthcare provision for people living with HIV who use drugs in Ontario, Canada
People living with HIV (PLWH) who use drugs are hospitalized at higher rates than the general population and report receiving poor care during hospitalization. The patient experience of PLWH during hospitalization is influenced by the clinical practice of healthcare providers (HPs). However, there is a gap in the literature that articulates the perspectives of HPs who deliver care to this population. Semi-structured interviews were conducted with…
Public Engagement in Health Policy‐Making for Older Adults
INTRODUCTION: As the world's population ages, there has been increasing attention to developing health policies to support older adults. Engaging older adults in policy-making is one way to ensure that policy decisions align with their needs and priorities. However, ageist stereotypes often underestimate older adults' ability to participate in such initiatives. This scoping review aims to describe the characteristics and impacts of public engagem…
Community Engagement in Long Covid Research
INTRODUCTION: Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and implementation, through to interpretation and knowledge translation; nevertheless, the process varies across research teams. In this paper, we (1) describe our process undertaking a community-engaged Long Covid research study; (2) evaluate our communit…
Medicine (20 obras) · Psychology (13 obras) · Nursing (12 obras) · HIV, Drug Use, Sexual Risk (10 obras) · HIV/AIDS Research and Interventions (10 obras) · Political science (9 obras) · Family medicine (8 obras) · Qualitative research (7 obras) · Sociology (7 obras) · Psychiatry (6 obras)