Pamela L Wolters
Dados Biográficos
| ID | 1562563 |
|---|---|
| NOME | Pamela L Wolters |
| PRENOMES | Pamela L |
| SOBRENOME | Wolters |
| ASSINATURA | WOLTERS P L |
| AFILIAÇÕES | National Institutes of Health |
| ORCID | 0000-0001-9319-6281 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 7 |
| TOTAL DE CITAÇÕES | 0 |
| TOTAL COMO AUTOR | 7 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2004 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2025 |
| ÍNDICE H | 0 |
Qualitative aspects of pain in children and adults with neurofibromatosis type 1 and plexiform neurofibromas
Neurofibromatosis type 1 (NF1) often manifests in painful plexiform neurofibroma (pNF). While numerous quantitative studies have documented pNF-related pain, the current qualitative study sought to investigate individual aspects of the pNF-related pain experience. In this multi-site study, 56 individuals with NF1, aged 6-86 years, participated in a focus group or interview regarding their NF1 and pNF-related pain. Thematic analysis of transcripts…
Monitoring change in heart rate variability following acceptance and commitment therapy for chronic pain
The Needs of Adolescents and Young Adults with Chronic Illness
Adolescent and young adults (AYAs) with chronic illnesses cope with complex issues that require unique psychological support and healthcare services to reduce psychosocial difficulties, improve disease management, and facilitate positive transitions to adult care. Engaging patients and caregivers can help providers understand the specific needs of this population and identify the perceived areas of support. The purpose of this quality improvement…
Acceptance and commitment therapy for adolescents and adults with neurofibromatosis type 1, plexiform neurofibromas, and chronic pain
An Internet support group for parents of children with neurofibromatosis type 1
Diagnosis disclosure, medication hiding, and medical functioning among perinatally infected, HIV-positive children and adolescents
Little is known about the immunological and virological impact of diagnosis disclosure among HIV-positive children and adolescents. The current cross-sectional study examined medication hiding as a mediator of the relationship between disclosure to friends and three medical outcomes: CD4+ absolute count, CD4+ percentage, and viral load. Participants included 25 perinatally infected, HIV-positive children and adolescents ages 11-18 years from the …
Coping styles among families of children with HIV infection
The primary aim of this study was to examine coping strategies among families of HIV-infected children and how they relate to medical, central nervous system (CNS) and family environment factors. Caregivers of HIV-positive children (N=52) completed a family coping measure (F-COPES) and provided information regarding family environment. Data regarding medical and CNS status were obtained from patient records. Results indicated that families' passi…
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Coping styles among families of children with HIV infection
The primary aim of this study was to examine coping strategies among families of HIV-infected children and how they relate to medical, central nervous system (CNS) and family environment factors. Caregivers of HIV-positive children (N=52) completed a family coping measure (F-COPES) and provided information regarding family environment. Data regarding medical and CNS status were obtained from patient records. Results indicated that families' passi…
Diagnosis disclosure, medication hiding, and medical functioning among perinatally infected, HIV-positive children and adolescents
Little is known about the immunological and virological impact of diagnosis disclosure among HIV-positive children and adolescents. The current cross-sectional study examined medication hiding as a mediator of the relationship between disclosure to friends and three medical outcomes: CD4+ absolute count, CD4+ percentage, and viral load. Participants included 25 perinatally infected, HIV-positive children and adolescents ages 11-18 years from the …
An Internet support group for parents of children with neurofibromatosis type 1
Acceptance and commitment therapy for adolescents and adults with neurofibromatosis type 1, plexiform neurofibromas, and chronic pain
The Needs of Adolescents and Young Adults with Chronic Illness
Adolescent and young adults (AYAs) with chronic illnesses cope with complex issues that require unique psychological support and healthcare services to reduce psychosocial difficulties, improve disease management, and facilitate positive transitions to adult care. Engaging patients and caregivers can help providers understand the specific needs of this population and identify the perceived areas of support. The purpose of this quality improvement…
Monitoring change in heart rate variability following acceptance and commitment therapy for chronic pain
Qualitative aspects of pain in children and adults with neurofibromatosis type 1 and plexiform neurofibromas
Neurofibromatosis type 1 (NF1) often manifests in painful plexiform neurofibroma (pNF). While numerous quantitative studies have documented pNF-related pain, the current qualitative study sought to investigate individual aspects of the pNF-related pain experience. In this multi-site study, 56 individuals with NF1, aged 6-86 years, participated in a focus group or interview regarding their NF1 and pNF-related pain. Thematic analysis of transcripts…
Medicine (7 obras) · Psychology (6 obras) · Psychiatry (5 obras) · Clinical Psychology (4 obras) · Neurofibromatosis (4 obras) · Chronic pain (3 obras) · Clinical Psychology (3 obras) · Family medicine (3 obras) · Internal Medicine (3 obras) · Neurofibromatosis and Schwannoma Cases (3 obras)