Anne Goossensen
Dados Biográficos
| ID | 1733764 |
|---|---|
| NOME | Anne Goossensen |
| PRENOMES | Anne |
| SOBRENOME | Goossensen |
| ASSINATURA | GOOSSENSEN A |
| AFILIAÇÕES | University of Humanistic Studies |
| ORCID | 0000-0001-5447-2167 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 16 |
| TOTAL DE CITAÇÕES | 49 |
| TOTAL COMO AUTOR | 16 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2014 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2025 |
| ÍNDICE H | 3 |
Learning about the effectiveness of chaplaincy care for residents with more severe dementia
The focus on outcome-oriented chaplaincy research and the evaluation of structured spiritual interventions might be at odds with the complex reality of chaplains working with nursing home residents with more severe dementia. The aim of this article is to explore what knowledge can be gained through thematically analysing a case study regarding the possibilities, success and outcomes of chaplaincy care for this patient group. Results show that a c…
‘New worlds open up’
Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems important. Wonder Lab practices provide a space to explore these differences by focusing together on life phenomena in curious and Socratic ways…
Moral aspects of filial concern for a parent living with dementia
“It is important that we also remain a person ourselves”
Parenting a child with profound intellectual and multiple disabilities has great implications. Parents generally rely heavily on healthcare and social welfare services in caring for the child at home. Previous studies indicated mismatch between what parents need to persevere family and personal wellbeing and what is typically provided by services. This study focused on the role of healthcare and social welfare services in childcare and aims to co…
Caring for children with profound intellectual and multiple disabilities
Parenting a child with profound intellectual and multiple disabilities has expanded practical and existential implications. This study contributes to understanding parents’ lifeworld and their vulnerabilities by examining the deeper layers of what parents express through their use of images and metaphors. In-depth interviews with 25 Dutch parents were analysed by conducting systematic metaphor analysis informed by metaphor theory. We used the con…
Meaning-making following loss among bereaved spouses during the Covid-19 pandemic (the CO-Live study)
This study investigates how individuals construe, understand, and make sense of experiences during the first wave of the COVID-19 pandemic. Seventeen semi-structured interviews were conducted with bereaved spouses focusing on meaning attribution to the death of their partner. The interviewees were lacking adequate information, personalized care, and physical or emotional proximity; these challenges complicated their experience of a meaningful dea…
Relatives’ grief at three moments after death of a loved one during Covid-19 pandemic (the CO-Live study)
COVID-19 has complicated grieving experiences. Rich qualitative description of these experiences is lacking. We interviewed 10 bereaved relatives (mainly daughters) 2-3 times each: shortly after their relative died in the first wave of COVID-19 pandemic, and after 12 and 18 months (29 interviews in total). Analyses took place according to inductive content analysis. Losses were threefold: the loss of the loved one; of the (desired) way to say far…
The struggle for good care
The COVID-19 lockdown of Dutch long-term care facilities between March and May 2020 affected the quality of lives of residents and opposed professional and personal ethics of care. This article, based on 25 in-depth interviews with healthcare chaplains, gives insight into what moral challenges appeared for care professionals. Moral challenges were related to: ‘family ruptures’, ‘residents’ loneliness and despair’, ‘cold-hearted deaths’ and ‘respo…
Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities
The current study analyzed blogs written by four Dutch parents of children with profound intellectual and multiple disabilities, with the aim of deepening the understanding of the parents' concerns. Thematic analysis was conducted and five main themes were identified: Dealing with uncertainties addressed the impact of unpredictability present in the everyday lives of parents, Love and loss described the complexity of concurrently cherishing the c…
Emerging ritual practices in pluralistic society
In Western societies, ritual practices are shifting from traditional, set-piece rites towards a more active, dynamic and individualized form of ritualizing. This raises questions regarding both contemporary spirituality and non-religious celebrancy. In this study, six European non-religious training programmes are analyzed in order to explore this upcoming field. Following a theoretical introduction on ritualizing in contemporary society, a compa…
A Captive, a Wreck, a Piece of Dirt
The aims of this present study were to explore the use and meaning of metaphors and images about aging in older people with a death wish and to elucidate what these metaphors and images tell us about their self-understanding and imagined feared future. Twenty-five in-depth interviews with Dutch older people with a death wish (median 82 years) were analyzed by making use of a phenomenological-hermeneutical metaphor analysis approach. We found 10 c…
Ethical uneasiness and the need for open-ended reflexivity
This article focuses on research ethics in highly intimate research with possible impact on life and death. In order to stimulate an open-ended dialogue about research ethics, we reflect on four ethical challenges that came up during our research into older people with a wish to die. Drawing on our experiences, we discuss (1) the possibly confirming influence of our research on the death wish (moral experience of whether or not to disregard respo…
The social–political challenges behind the wish to die in older people who consider their lives to be completed and no longer worth living
In the Netherlands, physician-assisted dying has been legalized since 2002. Currently, an increasing number of Dutch citizens are in favour of a more relaxed interpretation of the law. Based on an ethos of self-determination and autonomy, there is a strong political lobby for the legal right to assisted dying when life is considered to be completed and no longer worth living. Building on previous empirical research, this article provides a critic…
Ready to give up on life
In the Netherlands, there has been much debate on the question whether elderly people over 70 who are tired of life and who consider their life to be completed, should have legal options to ask for assisted dying. So far there has been little research into the experiences of these elderly people. In order to develop deliberate policy and care that targets this group of elderly people, it is necessary to understand their lifeworld. The aim of this…
Conflicting Conceptions of Autonomy
This paper explores dilemmas of family carers experienced during the care-seeking process for a relative suffering from Korsakoff's syndrome. The main objective of this study was to find clues to improve this delicate process by generating knowledge about the care-seeking process towards a coercive admission. Data were derived from 11 in-depth interviews. The analysis unveiled a core concept that could be labelled ‘imposing care’. It reflects the…
Experiences and Motivations Underlying Wishes to Die in Older People Who Are Tired of Living
The wish to die in older people who are tired of living and the possibilities to organize death are currently being discussed within the debate on self-determination and physician-assisted suicide. Until now insight into the experiences and thoughts of people who are tired of life but not suffering from a severe depression or a life-threatening disease is lacking. Studies focussing specifically on this topic are rare. This review provides an over…
Ready to give up on life
In the Netherlands, there has been much debate on the question whether elderly people over 70 who are tired of life and who consider their life to be completed, should have legal options to ask for assisted dying. So far there has been little research into the experiences of these elderly people. In order to develop deliberate policy and care that targets this group of elderly people, it is necessary to understand their lifeworld. The aim of this…
Experiences and Motivations Underlying Wishes to Die in Older People Who Are Tired of Living
The wish to die in older people who are tired of living and the possibilities to organize death are currently being discussed within the debate on self-determination and physician-assisted suicide. Until now insight into the experiences and thoughts of people who are tired of life but not suffering from a severe depression or a life-threatening disease is lacking. Studies focussing specifically on this topic are rare. This review provides an over…
Ethical uneasiness and the need for open-ended reflexivity
This article focuses on research ethics in highly intimate research with possible impact on life and death. In order to stimulate an open-ended dialogue about research ethics, we reflect on four ethical challenges that came up during our research into older people with a wish to die. Drawing on our experiences, we discuss (1) the possibly confirming influence of our research on the death wish (moral experience of whether or not to disregard respo…
Conflicting Conceptions of Autonomy
This paper explores dilemmas of family carers experienced during the care-seeking process for a relative suffering from Korsakoff's syndrome. The main objective of this study was to find clues to improve this delicate process by generating knowledge about the care-seeking process towards a coercive admission. Data were derived from 11 in-depth interviews. The analysis unveiled a core concept that could be labelled ‘imposing care’. It reflects the…
The social–political challenges behind the wish to die in older people who consider their lives to be completed and no longer worth living
In the Netherlands, physician-assisted dying has been legalized since 2002. Currently, an increasing number of Dutch citizens are in favour of a more relaxed interpretation of the law. Based on an ethos of self-determination and autonomy, there is a strong political lobby for the legal right to assisted dying when life is considered to be completed and no longer worth living. Building on previous empirical research, this article provides a critic…
Caring for children with profound intellectual and multiple disabilities
Parenting a child with profound intellectual and multiple disabilities has expanded practical and existential implications. This study contributes to understanding parents’ lifeworld and their vulnerabilities by examining the deeper layers of what parents express through their use of images and metaphors. In-depth interviews with 25 Dutch parents were analysed by conducting systematic metaphor analysis informed by metaphor theory. We used the con…
Conflicting Conceptions of Autonomy
This paper explores dilemmas of family carers experienced during the care-seeking process for a relative suffering from Korsakoff's syndrome. The main objective of this study was to find clues to improve this delicate process by generating knowledge about the care-seeking process towards a coercive admission. Data were derived from 11 in-depth interviews. The analysis unveiled a core concept that could be labelled ‘imposing care’. It reflects the…
Experiences and Motivations Underlying Wishes to Die in Older People Who Are Tired of Living
The wish to die in older people who are tired of living and the possibilities to organize death are currently being discussed within the debate on self-determination and physician-assisted suicide. Until now insight into the experiences and thoughts of people who are tired of life but not suffering from a severe depression or a life-threatening disease is lacking. Studies focussing specifically on this topic are rare. This review provides an over…
Ready to give up on life
In the Netherlands, there has been much debate on the question whether elderly people over 70 who are tired of life and who consider their life to be completed, should have legal options to ask for assisted dying. So far there has been little research into the experiences of these elderly people. In order to develop deliberate policy and care that targets this group of elderly people, it is necessary to understand their lifeworld. The aim of this…
A Captive, a Wreck, a Piece of Dirt
The aims of this present study were to explore the use and meaning of metaphors and images about aging in older people with a death wish and to elucidate what these metaphors and images tell us about their self-understanding and imagined feared future. Twenty-five in-depth interviews with Dutch older people with a death wish (median 82 years) were analyzed by making use of a phenomenological-hermeneutical metaphor analysis approach. We found 10 c…
Ethical uneasiness and the need for open-ended reflexivity
This article focuses on research ethics in highly intimate research with possible impact on life and death. In order to stimulate an open-ended dialogue about research ethics, we reflect on four ethical challenges that came up during our research into older people with a wish to die. Drawing on our experiences, we discuss (1) the possibly confirming influence of our research on the death wish (moral experience of whether or not to disregard respo…
The social–political challenges behind the wish to die in older people who consider their lives to be completed and no longer worth living
In the Netherlands, physician-assisted dying has been legalized since 2002. Currently, an increasing number of Dutch citizens are in favour of a more relaxed interpretation of the law. Based on an ethos of self-determination and autonomy, there is a strong political lobby for the legal right to assisted dying when life is considered to be completed and no longer worth living. Building on previous empirical research, this article provides a critic…
Emerging ritual practices in pluralistic society
In Western societies, ritual practices are shifting from traditional, set-piece rites towards a more active, dynamic and individualized form of ritualizing. This raises questions regarding both contemporary spirituality and non-religious celebrancy. In this study, six European non-religious training programmes are analyzed in order to explore this upcoming field. Following a theoretical introduction on ritualizing in contemporary society, a compa…
Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities
The current study analyzed blogs written by four Dutch parents of children with profound intellectual and multiple disabilities, with the aim of deepening the understanding of the parents' concerns. Thematic analysis was conducted and five main themes were identified: Dealing with uncertainties addressed the impact of unpredictability present in the everyday lives of parents, Love and loss described the complexity of concurrently cherishing the c…
The struggle for good care
The COVID-19 lockdown of Dutch long-term care facilities between March and May 2020 affected the quality of lives of residents and opposed professional and personal ethics of care. This article, based on 25 in-depth interviews with healthcare chaplains, gives insight into what moral challenges appeared for care professionals. Moral challenges were related to: ‘family ruptures’, ‘residents’ loneliness and despair’, ‘cold-hearted deaths’ and ‘respo…
“It is important that we also remain a person ourselves”
Parenting a child with profound intellectual and multiple disabilities has great implications. Parents generally rely heavily on healthcare and social welfare services in caring for the child at home. Previous studies indicated mismatch between what parents need to persevere family and personal wellbeing and what is typically provided by services. This study focused on the role of healthcare and social welfare services in childcare and aims to co…
Caring for children with profound intellectual and multiple disabilities
Parenting a child with profound intellectual and multiple disabilities has expanded practical and existential implications. This study contributes to understanding parents’ lifeworld and their vulnerabilities by examining the deeper layers of what parents express through their use of images and metaphors. In-depth interviews with 25 Dutch parents were analysed by conducting systematic metaphor analysis informed by metaphor theory. We used the con…
Meaning-making following loss among bereaved spouses during the Covid-19 pandemic (the CO-Live study)
This study investigates how individuals construe, understand, and make sense of experiences during the first wave of the COVID-19 pandemic. Seventeen semi-structured interviews were conducted with bereaved spouses focusing on meaning attribution to the death of their partner. The interviewees were lacking adequate information, personalized care, and physical or emotional proximity; these challenges complicated their experience of a meaningful dea…
Relatives’ grief at three moments after death of a loved one during Covid-19 pandemic (the CO-Live study)
COVID-19 has complicated grieving experiences. Rich qualitative description of these experiences is lacking. We interviewed 10 bereaved relatives (mainly daughters) 2-3 times each: shortly after their relative died in the first wave of COVID-19 pandemic, and after 12 and 18 months (29 interviews in total). Analyses took place according to inductive content analysis. Losses were threefold: the loss of the loved one; of the (desired) way to say far…
‘New worlds open up’
Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems important. Wonder Lab practices provide a space to explore these differences by focusing together on life phenomena in curious and Socratic ways…
Moral aspects of filial concern for a parent living with dementia
Learning about the effectiveness of chaplaincy care for residents with more severe dementia
The focus on outcome-oriented chaplaincy research and the evaluation of structured spiritual interventions might be at odds with the complex reality of chaplains working with nursing home residents with more severe dementia. The aim of this article is to explore what knowledge can be gained through thematically analysing a case study regarding the possibilities, success and outcomes of chaplaincy care for this patient group. Results show that a c…
Psychology (13 obras) · Sociology (12 obras) · Medicine (9 obras) · Social Psychology (9 obras) · Political science (8 obras) · Social Psychology (8 obras) · Grief, Bereavement, and Mental Health (7 obras) · Palliative Care and End-of-Life Issues (7 obras) · Social science (7 obras) · Autonomy (4 obras)