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L Clare

Dados Biográficos

ID19049
NOMEL Clare
PRENOMESL
SOBRENOMEClare
ASSINATURACLARE L
AFILIAÇÕESUniversity of Exeter
ORCID0000-0003-3989-5318
VERIFICADOSim
TOTAL DE OBRAS43
TOTAL DE CITAÇÕES203
TOTAL COMO AUTOR43
TOTAL COMO EDITOR0
PRIMEIRO ANO DE PUBLICAÇÃO1999
ANO MAIS RECENTE DE PUBLICAÇÃO2026
ÍNDICE H6
  • Negotiating the caring role and carer identity over time

    Open Access•Stapley, Claire Pentecost et al.•ARTICLE•Ageing and Society•2026•Referências: 57

    Longitudinal studies can provide insights into how family members negotiate the caring role and carer identity over time. The analyses of the longitudinal, qualitative interviews on ‘living well’ with dementia from the IDEAL cohort study aimed to identify the shifting, embedded narratives of family members of people with dementia as they negotiated the caring role and carer identity over time. Twenty semi-structured, qualitative interviews were c…

  • Operationalizing Transformative Tourism

    Open Access•Stephen J Page, Joanne Connell et al.•ARTICLE•Travel Research Bulletin•2025•Citada por: 2•Referências: 81

    A values-based approach embedded in the transformative tourism research paradigm is used to examine dementia-friendly outdoor and nature-based experiences. Interview and site audits were conducted to explore the visitor economy-nature-well-being nexus. Using thematic analysis, researchers set out to understand how organizational change can improve the visitor journey through values and actions that create an accessible visitor experience for peop…

  • The dementia–nature–inclusivity nexus and the needs of people living with dementia

    Open Access•Stapley, Stephen J Page et al.•ARTICLE•Ageing and Society•2025•Citada por: 1•Referências: 57

    Understanding how to improve the physical and cognitive accessibility of visitor economy businesses and organisations wanting to offer nature-based outdoor pursuits for people with dementia is key to supporting their inclusion and agency. The aim of this qualitative study was to understand the experiences, needs and preferences of people with dementia participating in nature-based outdoor pursuits in their leisure time. Semi-structured interviews…

  • Continuity, change and ‘living well’ for older people with dementia

    Open Access•Stapley, Claire Pentecost et al.•ARTICLE•Ageing and Society•2025•Referências: 52

    Living well’ is an important concept across national dementia strategies. Qualitative research has contributed to understanding of living well for people with dementia. Longitudinal qualitative approaches, though fewer, can explore potential changes in accounts of living well, psychological coping and adapting to dementia, and if/how people with dementia maintain continuity in their lives. This longitudinal qualitative study aims to gauge what is…

  • Felt Age and Its Psychological Correlates in Dementia Spousal Caregiving Dyads

    Open Access•Serena Sabatini, Shelbie G Turner et al.•ARTICLE•The Journals of Gerontology…•2024•Referências: 9

    Felt age in caregivers and people with dementia may be interwoven, and important psychological variables in people with dementia are related to caregivers' felt age. Findings offer empirical evidence on dementia caregiving dynamics and how family relationships are related to views on aging

  • Longitudinal Trajectories of Stress and Positive Aspects of Dementia Caregiving

    Open Access•Charlotte Quinn, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2024•Referências: 4

    The findings highlight the importance of identifying caregivers at risk of increased stress and declining PAC and offering them targeted support

  • Perspectives of Minority Ethnic Caregivers of People with Dementia Interviewed as Part of the Ideal Programme

    Open Access•Cilius Victor, Eleanor van den Heuvel et al.•ARTICLE•Health & Social Care in the…•2024•Referências: 3

    Postwar migrants from the Caribbean and Indian subcontinent (Bangladesh, India, and Pakistan) to the UK are now experiencing the onset of age‐related diseases such as dementia. Our evidence base, both quantitative and qualitative, documenting the experiences of family caregivers of people with dementia is largely drawn from studies undertaken with white European, North American, and Australasian populations. Consequently, there is a need for rese…

  • Living with dementia during the Covid-19 pandemic

    Open Access•Stapley, Claire Pentecost et al.•ARTICLE•Ageing and Society•2024•Referências: 68

    The continuing COVID-19 pandemic and social restrictions have impacted on the cognitive decline and mental health of people with dementia. Social isolation and loss of activities due to social restrictions may also have implications as to sense of identity for people with dementia. As part of the INCLUDE (Identifying and Mitigating the Individual and Dyadic Impact of COVID-19 and Life Under Physical Distancing on People with Dementia and Carers) …

  • Positive experiences in dementia care-giving

    Open Access•Charlotte Quinn, Gill Toms et al.•ARTICLE•Ageing and Society•2024•Citada por: 1•Referências: 52

    There is a growing evidence base that identifying positive experiences in providing care can have a beneficial influence on carer wellbeing. However, there is a need to better understand what carers identify as the positive aspects of care-giving. The aim of this study is to explore the satisfying aspects of providing care to people with dementia. This study utilised Time 1 data from 1,277 carers of people in the mild-to-moderate stages of dement…

  • What does feeling younger or older than one’s chronological age mean to men and women? Qualitative and quantitative findings from the PROTECT study

    Open Access•Serena Sabatini, Obioha C Ukoumunne et al.•ARTICLE•Psychology & Health•2023

    OBJECTIVE: We explored which factors are associated with subjective age (SA), i.e. feeling younger, the same as, or older than one's chronological age, and whether these factors differ between men and women and between two age sub-groups. DESIGN: Cross-sectional study using qualitative and quantitative data for 1457 individuals (mean age= 67.2 years). MAIN OUTCOME MEASURES: Participants reported how old they feel they are and provided comments in…

  • Mechanisms of Forming Architectural Identity

    Open Access•Jumaa Samaa, Al-Aqbi Al-Aqbi et al.•ARTICLE•International Society for the…•2023

    Every place has a special, distinct and unique identity that is formed over time through interactions across tangible and intangible material forms, thus giving a distinction to the place from the rest of the places. The formation takes place through organized relationships across the forms, and the process is subject to certain rules and controls according to the place. The new formations are affected by them, giving a distinction to the place t…

  • Provision of Outdoor Nature-Based Activity for Older People with Cognitive Impairment

    Open Access•Rachel Collins, Steve Owens et al.•ARTICLE•Health & Social Care in the…•2023

    The health and well-being benefits of outdoor nature-based activity are increasingly recognised, but older people with cognitive impairment face significant barriers to access. The ENLIVEN project aims to promote access by gathering evidence and coproducing guidance for activity providers. As part of this project, we conducted a scoping review to characterise the types of outdoor nature-based activity for older people with dementia and other form…

  • Navigating the Covid-19 pandemic two years on

    Rachel Collins, Eleanor Dawson et al.•ARTICLE•International Journal of Care and…•2023•Referências: 9

    We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the…

  • Caring beyond capacity’ during the Covid-19 pandemic

    Stapley, Claire Pentecost et al.•ARTICLE•International Journal of Care and…•2023•Citada por: 1•Referências: 9

    Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…

  • Testing Bidirectionality in Associations of Awareness of Age-Related Gains and Losses With Physical, Mental, and Cognitive Functioning Across 1 Year

    Open Access•Serena Sabatini, Hans-Werner Wahl et al.•ARTICLE•The Journals of Gerontology…•2023•Referências: 14

    In accordance with previous research targeting other indicators of self-perceptions of aging, this study supported a stronger impact of AARC-losses on indicators of physical functioning and mental health than vice versa from midlife to old-old age

  • We're happy as we are’

    Open Access•Josie Henley, A Hillman et al.•ARTICLE•Ageing and Society•2023•Citada por: 1•Referências: 61

    It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…

  • Living with dementia under Covid-19 restrictions

    Open Access•Gareth O'Rourke, Claire Pentecost et al.•ARTICLE•Ageing and Society•2023•Citada por: 1•Referências: 35

    Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…

  • Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme

    Open Access•Serena Sabatini, Anthony Martyr et al.•ARTICLE•Social Science & Medicine•2023•Citada por: 3•Referências: 35

    New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia

  • The precariousness of living with, and caring for people with, dementia

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Social Science & Medicine•2023•Citada por: 4•Referências: 33

    This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…

  • Minimal Impact of Covid-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia

    Open Access•Serena Sabatini, Holly Bennett et al.•ARTICLE•Frontiers in Psychiatry•2022

    Results suggest the pandemic had little effect on the mental health and wellbeing of PwD, with any changes observed likely to be consistent with expected rates of decline due to dementia. Although personal accounts attest to the challenges experienced, PwD appear to have been resilient to the impact of lockdown and social restrictions during the pandemic

  • Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Citada por: 2•Referências: 4

    The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support

  • Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Citada por: 4•Referências: 3

    Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Citada por: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • The role of subjective social status in living well for carers of people with dementia

    Open Access•Cilius Victor, Isla Rippon et al.•ARTICLE•International Journal of Care and…•2021•Referências: 11

    We investigated how carers of people with dementia evaluate their standing in their community and wider society, and if this is related to ‘living well’. We used baseline data from the Improving the experience of Dementia and Enhancing Active Life programme and found that carers rated their standing in society higher than in their local community. Higher evaluations of both were associated with enhanced life satisfaction, well-being and quality o…

  • Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them

    Open Access•J Heaton, Anthony Martyr et al.•ARTICLE•Ageing and Society•2021•Citada por: 3•Referências: 20

    Little is known about the experiences of people living alone with dementia in the community and their non-resident relatives and friends who support them. In this paper, we explore their respective attitudes and approaches to the future, particularly regarding the future care and living arrangements of those living with dementia. The study is based on a qualitative secondary analysis of interviews with 24 people living alone with early-stage deme…

Próximo
  • Managing threats to self

    Open Access•L Clare•ARTICLE•Social Science & Medicine•2003•Citada por: 106•Referências: 32

  • I don't do like I used to do

    Open Access•L Clare, Julia Rowlands et al.•ARTICLE•Social Science & Medicine•2008•Citada por: 19•Referências: 26

  • Dualities of dementia illness narratives and their role in a narrative economy

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Sociology of Health & Illness•2018•Citada por: 16•Referências: 22

    The concept of 'narrative economies' has recently been proposed as a set of exchange relationships that, through biography and story-telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with five people with dementia and four informal carers. Our participants are members of a pre-existing group of dementia advocates, representing the voices of those livin…

  • Illness Representations and Lived Experience in Early-Stage Dementia

    Open Access•Guy Harman, L Clare•ARTICLE•Qualitative Health Research•2006•Citada por: 9•Referências: 33

    The self-regulation model of illness behavior provides a framework for understanding how threats to self from chronic illness can be managed and proposes a significant role for illness representations. This framework can assist in illuminating the experience of developing dementia but has not previously been considered in this context. The authors conducted semistructured interviews with 9 people who had a diagnosis of early-stage dementia to exp…

  • You still feel different

    Open Access•Natasha Alexander, L Clare•ARTICLE•Journal of Community & Applied…•2004•Citada por: 9•Referências: 2

    This article reports an intensive qualitative study of the subjective experience and meaning of self‐injury for 16 women who identified as lesbian or bisexual and who had deliberately self‐injured on repeated occasions. In individual interviews, the women talked about their experiences of self‐injury and the role it played in their lives as lesbian or bisexual women. Interpretative Phenomenological Analysis (IPA) was used to elicit themes arising…

  • Improving service approaches and outcomes for people with complex needs through consultation and involvement

    L Clare, Sylvia Cox et al.•ARTICLE•Disability & Society•2003•Citada por: 6

    Services have not always catered well for people with complex needs. The term ‘complex needs’ is used here to signify people who have cognitive impairments and communication difficulties that present major challenges for getting one's views and preferences heard and understood, and/or who may not fit into traditional categories of service provision. Current developments in policy and practice, such as the single shared assessment process, emphasi…

  • Escape, enlightenment and endurance

    Hermione Thornhill, L Clare et al.•ARTICLE•Anthropology and Medicine•2004•Citada por: 5•Referências: 19

    This paper reports findings from a study which analysed the narratives of individuals who described themselves as recovered or recovering from psychosis, a term referring to experiences such as hearing voices other people do not hear, seeing or sensing things other people do not see or sense, holding unusual beliefs (delusions) or beliefs about the malevolent intention of others which seem unwarranted (paranoia). A narrative approach was taken si…

  • The precariousness of living with, and caring for people with, dementia

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Social Science & Medicine•2023•Citada por: 4•Referências: 33

    This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…

  • Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Citada por: 4•Referências: 3

    Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure

  • Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme

    Open Access•Serena Sabatini, Anthony Martyr et al.•ARTICLE•Social Science & Medicine•2023•Citada por: 3•Referências: 35

    New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Citada por: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them

    Open Access•J Heaton, Anthony Martyr et al.•ARTICLE•Ageing and Society•2021•Citada por: 3•Referências: 20

    Little is known about the experiences of people living alone with dementia in the community and their non-resident relatives and friends who support them. In this paper, we explore their respective attitudes and approaches to the future, particularly regarding the future care and living arrangements of those living with dementia. The study is based on a qualitative secondary analysis of interviews with 24 people living alone with early-stage deme…

  • Operationalizing Transformative Tourism

    Open Access•Stephen J Page, Joanne Connell et al.•ARTICLE•Travel Research Bulletin•2025•Citada por: 2•Referências: 81

    A values-based approach embedded in the transformative tourism research paradigm is used to examine dementia-friendly outdoor and nature-based experiences. Interview and site audits were conducted to explore the visitor economy-nature-well-being nexus. Using thematic analysis, researchers set out to understand how organizational change can improve the visitor journey through values and actions that create an accessible visitor experience for peop…

  • Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Citada por: 2•Referências: 4

    The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support

  • Help Yourself

    Open Access•Gill R Toms, Gill Toms et al.•ARTICLE•Qualitative Health Research•2015•Citada por: 2•Referências: 34

    Self-management interventions are increasingly offered to people with chronic health conditions. However, there has been limited exploration of how applicable such an approach is in early stage dementia. In this study we explored the views of people with dementia and family caregivers on the use of self-management in dementia. We conducted semistructured interviews with 13 people with early stage dementia and 11 caregivers. We analyzed transcript…

  • Relationship Between Control Beliefs, Strategy Use, and Memory Performance in Amnestic Mild Cognitive Impairment and Healthy Aging

    Rachel L Hutchens, Glynda Kinsella et al.•ARTICLE•The Journals of Gerontology…•2013•Citada por: 2•Referências: 5

    Despite the weak relationship between control beliefs and strategy use, and control beliefs and memory performance for the aMCI group, the strong relationship between strategy use and memory performance provides impetus for further research into factors that can be used as a means of enhancing strategy use in interventions for aMCI

  • The helping process in couples during recovery from heart attack

    Open Access•Nancy Pistrang, L Clare et al.•ARTICLE•British Journal of Medical…•1999•Citada por: 2

    This single case study aimed to illustrate help‐intended communication in couples, in particular how a husband and wife attempted to help each other with adjusting to the husband' s recent myocardial infarction. The study employed a semi‐structured communication task to gather samples of the couple's helping interactions: the couple had two conversations in which they alternated helper and discloser roles. Quantitative and qualitative data were o…

  • The dementia–nature–inclusivity nexus and the needs of people living with dementia

    Open Access•Stapley, Stephen J Page et al.•ARTICLE•Ageing and Society•2025•Citada por: 1•Referências: 57

    Understanding how to improve the physical and cognitive accessibility of visitor economy businesses and organisations wanting to offer nature-based outdoor pursuits for people with dementia is key to supporting their inclusion and agency. The aim of this qualitative study was to understand the experiences, needs and preferences of people with dementia participating in nature-based outdoor pursuits in their leisure time. Semi-structured interviews…

  • Positive experiences in dementia care-giving

    Open Access•Charlotte Quinn, Gill Toms et al.•ARTICLE•Ageing and Society•2024•Citada por: 1•Referências: 52

    There is a growing evidence base that identifying positive experiences in providing care can have a beneficial influence on carer wellbeing. However, there is a need to better understand what carers identify as the positive aspects of care-giving. The aim of this study is to explore the satisfying aspects of providing care to people with dementia. This study utilised Time 1 data from 1,277 carers of people in the mild-to-moderate stages of dement…

  • Caring beyond capacity’ during the Covid-19 pandemic

    Stapley, Claire Pentecost et al.•ARTICLE•International Journal of Care and…•2023•Citada por: 1•Referências: 9

    Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…

  • We're happy as we are’

    Open Access•Josie Henley, A Hillman et al.•ARTICLE•Ageing and Society•2023•Citada por: 1•Referências: 61

    It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…

  • Living with dementia under Covid-19 restrictions

    Open Access•Gareth O'Rourke, Claire Pentecost et al.•ARTICLE•Ageing and Society•2023•Citada por: 1•Referências: 35

    Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…

  • All the world's a stage

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Qualitative Research•2020•Citada por: 1•Referências: 48

    Qualitative dementia research emphasises the importance of recognising the voice of the person with dementia. However, research imbued with a politics of selfhood, whereby individuals are called upon to give coherence to experience and emotion, jars with representations of dementia as a gradual decline in capacity. Moreover, it reinforces an assumption that there is an essential experience that can be accessed through different methods. Drawing o…

  • The helping process in couples during recovery from heart attack

    Open Access•Nancy Pistrang, L Clare et al.•ARTICLE•British Journal of Medical…•1999•Citada por: 2

    This single case study aimed to illustrate help‐intended communication in couples, in particular how a husband and wife attempted to help each other with adjusting to the husband' s recent myocardial infarction. The study employed a semi‐structured communication task to gather samples of the couple's helping interactions: the couple had two conversations in which they alternated helper and discloser roles. Quantitative and qualitative data were o…

  • Parents’ Goals for Adolescents Diagnosed with Developmental Delays in Early Childhood

    Open Access•L Clare, Helen Garnier•ARTICLE•The Journal of Early Adolescence•2000•Referências: 1

    Parents’ developmental goals for their children were investigated in a 12-year study of middle-class European American families of children diagnosed with an early developmental delay of unknown etiology. The relation of parents’ developmental goals for children at child age 13 and child characteristics at ages 3, 7, and 11 were examined. Results showed that parents’ developmental goals at adolescence were associated with a range of child charact…

  • Improving service approaches and outcomes for people with complex needs through consultation and involvement

    L Clare, Sylvia Cox et al.•ARTICLE•Disability & Society•2003•Citada por: 6

    Services have not always catered well for people with complex needs. The term ‘complex needs’ is used here to signify people who have cognitive impairments and communication difficulties that present major challenges for getting one's views and preferences heard and understood, and/or who may not fit into traditional categories of service provision. Current developments in policy and practice, such as the single shared assessment process, emphasi…

  • Managing threats to self

    Open Access•L Clare•ARTICLE•Social Science & Medicine•2003•Citada por: 106•Referências: 32

  • You still feel different

    Open Access•Natasha Alexander, L Clare•ARTICLE•Journal of Community & Applied…•2004•Citada por: 9•Referências: 2

    This article reports an intensive qualitative study of the subjective experience and meaning of self‐injury for 16 women who identified as lesbian or bisexual and who had deliberately self‐injured on repeated occasions. In individual interviews, the women talked about their experiences of self‐injury and the role it played in their lives as lesbian or bisexual women. Interpretative Phenomenological Analysis (IPA) was used to elicit themes arising…

  • Escape, enlightenment and endurance

    Hermione Thornhill, L Clare et al.•ARTICLE•Anthropology and Medicine•2004•Citada por: 5•Referências: 19

    This paper reports findings from a study which analysed the narratives of individuals who described themselves as recovered or recovering from psychosis, a term referring to experiences such as hearing voices other people do not hear, seeing or sensing things other people do not see or sense, holding unusual beliefs (delusions) or beliefs about the malevolent intention of others which seem unwarranted (paranoia). A narrative approach was taken si…

  • Focusing on task-oriented talk as a way of exploring the interaction between people with early-onset dementia and their carers

    Pam Shakespeare, L Clare•ARTICLE•Qualitative Research in Psychology•2005•Referências: 9

    This paper explores some talk generated by a five-minute task given to a small number of people with early-stage dementia, and their partners. Using primarily conversation analysis, and attending specifically to occasioned talk the paper discusses a number of extracts of talk, demonstrating the practices used to bring off the given task through that talk. In a discussion of the key methodological features of the paper the authors examine the conv…

  • Illness Representations and Lived Experience in Early-Stage Dementia

    Open Access•Guy Harman, L Clare•ARTICLE•Qualitative Health Research•2006•Citada por: 9•Referências: 33

    The self-regulation model of illness behavior provides a framework for understanding how threats to self from chronic illness can be managed and proposes a significant role for illness representations. This framework can assist in illuminating the experience of developing dementia but has not previously been considered in this context. The authors conducted semistructured interviews with 9 people who had a diagnosis of early-stage dementia to exp…

  • I don't do like I used to do

    Open Access•L Clare, Julia Rowlands et al.•ARTICLE•Social Science & Medicine•2008•Citada por: 19•Referências: 26

  • Relationship Between Control Beliefs, Strategy Use, and Memory Performance in Amnestic Mild Cognitive Impairment and Healthy Aging

    Rachel L Hutchens, Glynda Kinsella et al.•ARTICLE•The Journals of Gerontology…•2013•Citada por: 2•Referências: 5

    Despite the weak relationship between control beliefs and strategy use, and control beliefs and memory performance for the aMCI group, the strong relationship between strategy use and memory performance provides impetus for further research into factors that can be used as a means of enhancing strategy use in interventions for aMCI

  • Phenomena of awareness in dementia

    Open Access•Ivana S Marková, L Clare et al.•ARTICLE•Consciousness and Cognition•2014

  • Help Yourself

    Open Access•Gill R Toms, Gill Toms et al.•ARTICLE•Qualitative Health Research•2015•Citada por: 2•Referências: 34

    Self-management interventions are increasingly offered to people with chronic health conditions. However, there has been limited exploration of how applicable such an approach is in early stage dementia. In this study we explored the views of people with dementia and family caregivers on the use of self-management in dementia. We conducted semistructured interviews with 13 people with early stage dementia and 11 caregivers. We analyzed transcript…

  • Protocol for the Ideal-2 longitudinal study

    Open Access•Barbora Šilarova, Sharon M Neli et al.•ARTICLE•BMC Public Health•2018

    IDEAL-2 will provide evidence about the key indicators of, and factors associated with, living well over the course of dementia and how these differ for particular subgroups. It will tell us which combinations of services and support are most beneficial and cost-effective. Moreover, the IDEAL-2 study will gather evidence from under-researched groups of people with dementia, who are likely to have their own distinct perceptions of living well

  • Dualities of dementia illness narratives and their role in a narrative economy

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Sociology of Health & Illness•2018•Citada por: 16•Referências: 22

    The concept of 'narrative economies' has recently been proposed as a set of exchange relationships that, through biography and story-telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with five people with dementia and four informal carers. Our participants are members of a pre-existing group of dementia advocates, representing the voices of those livin…

  • Social Isolation and Cognitive Function in Later Life

    Open Access•Isobel E M Evans, Anthony Martyr et al.•ARTICLE•Journal of Alzheimer’s Disease•2019

  • How people with dementia use twitter

    Open Access•Catherine V Talbot, Siobhan O’dwyer et al.•ARTICLE•Computers in Human Behavior•2020

    People with dementia are publicly sharing their experiences of living with the condition and acting collectively to produce social change. Social media could support them in doing this, but no previous studies have comprehensively analysed their use of Twitter. The aims of this study were to identify how people with dementia use Twitter and examine the illness identities they create and promote online. Tweetcatcher was used to collect 2774 tweets…

  • Self-management and HeAlth Promotion in Early-stage dementia with e-learning for carers (SHAPE)

    Open Access•Ingelin Testad, L Clare et al.•ARTICLE•BMC Public Health•2020

    ClinicalTrials.gov Identifier: NCT04286139, registered prospectively February 26, 2020, https://clinicaltrials.gov/ct2/show/NCT04286139

  • All the world's a stage

    Open Access•A Hillman, Ian Rees Jones et al.•ARTICLE•Qualitative Research•2020•Citada por: 1•Referências: 48

    Qualitative dementia research emphasises the importance of recognising the voice of the person with dementia. However, research imbued with a politics of selfhood, whereby individuals are called upon to give coherence to experience and emotion, jars with representations of dementia as a gradual decline in capacity. Moreover, it reinforces an assumption that there is an essential experience that can be accessed through different methods. Drawing o…

  • The role of subjective social status in living well for carers of people with dementia

    Open Access•Cilius Victor, Isla Rippon et al.•ARTICLE•International Journal of Care and…•2021•Referências: 11

    We investigated how carers of people with dementia evaluate their standing in their community and wider society, and if this is related to ‘living well’. We used baseline data from the Improving the experience of Dementia and Enhancing Active Life programme and found that carers rated their standing in society higher than in their local community. Higher evaluations of both were associated with enhanced life satisfaction, well-being and quality o…

  • Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them

    Open Access•J Heaton, Anthony Martyr et al.•ARTICLE•Ageing and Society•2021•Citada por: 3•Referências: 20

    Little is known about the experiences of people living alone with dementia in the community and their non-resident relatives and friends who support them. In this paper, we explore their respective attitudes and approaches to the future, particularly regarding the future care and living arrangements of those living with dementia. The study is based on a qualitative secondary analysis of interviews with 24 people living alone with early-stage deme…

  • Minimal Impact of Covid-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia

    Open Access•Serena Sabatini, Holly Bennett et al.•ARTICLE•Frontiers in Psychiatry•2022

    Results suggest the pandemic had little effect on the mental health and wellbeing of PwD, with any changes observed likely to be consistent with expected rates of decline due to dementia. Although personal accounts attest to the challenges experienced, PwD appear to have been resilient to the impact of lockdown and social restrictions during the pandemic

  • Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Citada por: 2•Referências: 4

    The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support

  • Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia

    Open Access•L Clare, Laura D Gamble et al.•ARTICLE•The Journals of Gerontology…•2022•Citada por: 4•Referências: 3

    Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure

  • Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic

    Open Access•Claire Pentecost, Rachel Collins et al.•ARTICLE•Health & Social Care in the…•2022•Citada por: 3

    This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…

  • What does feeling younger or older than one’s chronological age mean to men and women? Qualitative and quantitative findings from the PROTECT study

    Open Access•Serena Sabatini, Obioha C Ukoumunne et al.•ARTICLE•Psychology & Health•2023

    OBJECTIVE: We explored which factors are associated with subjective age (SA), i.e. feeling younger, the same as, or older than one's chronological age, and whether these factors differ between men and women and between two age sub-groups. DESIGN: Cross-sectional study using qualitative and quantitative data for 1457 individuals (mean age= 67.2 years). MAIN OUTCOME MEASURES: Participants reported how old they feel they are and provided comments in…

Psychology (40 obras) · Medicine (32 obras) · Dementia (31 obras) · Disease (27 obras) · Dementia and Cognitive Impairment Research (21 obras) · Gerontology (21 obras) · Social Psychology (20 obras) · Developmental psychology (17 obras) · Sociology (16 obras) · Psychiatry (15 obras)

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