Henriette Langstrup
Dados Biográficos
| ID | 204322 |
|---|---|
| NOME | Henriette Langstrup |
| PRENOMES | Henriette |
| SOBRENOME | Langstrup |
| ASSINATURA | LANGSTRUP H |
| AFILIAÇÕES | University of Copenhagen |
| ORCID | 0000-0002-3346-9396 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 21 |
| TOTAL DE CITAÇÕES | 128 |
| TOTAL COMO AUTOR | 21 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2008 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 5 |
Response-Able Care and Undone Care Spaces
In this article, we explore how people with epilepsy and their caregivers handle everyday life with epilepsy and the constant fear of an unexpected seizure through digital care technologies. These technologies are often used outside clinical settings and without clinicians' involvement or awareness. Their use is dependent on response-able care relations. We explore the precarities that arise when this dependency leads to the creation of "undone c…
“I spend more time on the ecosystem than on the disease”
Automated decision-making (ADM) systems can be worn in and on the body for various purposes, such as for tracking and managing chronic conditions. One case in point is do-it-yourself open-source artificial pancreas systems, through which users engage in what is referred to as “looping”; combining continuous glucose monitors and insulin pumps placed on the body with digital communication technologies to develop an ADM system for personal diabetes …
Online boundary-work
People with chronic conditions such as diabetes use social media to interact with peers. While these online interactions allow them to exchange advice and gain insight into how others cope with their condition, concerns about 'misinformation' being shared are persistently raised, especially among medical professionals. Rather than assessing whether information shared on social media is 'correct' from a clinical perspective, we explore how people …
Device activism and material participation in healthcare
The #WeAreNotWaiting movement is a global digital health phenomenon in which people with diabetes, mainly type 1 diabetes (T1D), engage in the development and usage of open-source closed-loop technology for the improvement of their “chronic living” (Wahlberg et al. 2021). The characteristics of a digitally enabled and technologically engaged global activist patient collective feed into existing narratives of user-led and open-source innovation. T…
Between a logic of disruption and a logic of continuation
In both popular and academic discussions of the use of algorithms in clinical practice, narratives often draw on the decisive potentialities of algorithms and come with the belief that algorithms will substantially transform healthcare. We suggest that this approach is associated with a logic of disruption. However, we argue that in clinical practice alongside this logic, another and less recognised logic exists, namely that of continuation: here…
From 'parallel world' to 'trading zone
In today's digital world, people with type 1 and 2 diabetes turn to peers on social media to access and share information. Some studies have addressed how such information is discussed in clinical consultations, but conceptual nuances are needed to account for the different ways information is discussed. In this article, we draw on semi-structured interviews with 19 clinicians and 25 people with diabetes to examine how diabetes-related informatio…
Infrastructuring experience
Interpretation as luxury
Personal health technologies such as apps and wearables that generate health and behavior data close to the individual patient are envisioned to enable personalized healthcare - and self-care. And yet, they are consumer devices. Proponents of these devices presuppose that measuring will be helpful, and that data will be meaningful. However, a growing body of research suggests that self-tracking data does not necessarily make sense to users. Drawi…
The socio-material self-care practices of children living with hemophilia or juvenile idiopathic arthritis in Denmark
Patient data work
With digital patient-reported outcome (PRO) tools in clinical practice, patients are given new tasks of providing data that aim at supporting and individualising care, simultaneously reducing unnecessary clinical visits. While the innovative potential of mobilising PRO data for care is increasingly explored, little attention is given to the efforts that the provision of PRO data rests on - that of the patients. Based on ethnographic fieldwork car…
What constitutes ‘good care’ and ‘good carers’? The normative implications of introducing reablement in Danish home care
As populations worldwide are ageing, Western welfare states are currently implementing welfare reforms aimed at curbing the rising need for social and healthcare services for ageing populations. A central element in home-care reforms in several welfare countries is reablement: short-term home-based training programmes aimed at re-enabling older people to live in their own homes independently of care. In this paper, we explore how transitioning fr…
Home care as reablement or enabling arrangements? An exploration of the precarious dependencies in living with functional decline
The threat to welfare societies posed by population ageing has urged high-income countries to rethink the provision of social and healthcare services for the ageing population. One widely implemented policy solution is 'reablement': short-term home-based training programmes focusing on re-enabling older people to carry out activities of daily living independently. Drawing on empirical material from multisited ethnographic fieldwork of reablement …
Tactics of material participation
The increasingly popular goal of 'patient participation' comes with a conceptual vagueness, at times rendering it an all-too flexible political trope or platitude and, in practice, resulting in unclear invitations to patients. We seek to open up the alluring yet troubling figure of patient participation, by inquiring into how patients enact participation in different ways. Based on close ethnographic engagement in a user test of the e-health syst…
Generating Local Needs Through Technology
The rhetoric of need is commonplace in discourses of technology and innovation, as well as in global health. Users are said to have a need for innovative technology, and citizens in resource-poor regions to have a need for improved health care. In this article we follow a global health technology—more specifically, a piece of software for monitoring diabetes quality—from Denmark, where it was developed, to Jakarta, Indonesia, where it was introdu…
Telecare Technology and the Transformation of Healthcare / Care at a Distance
The Virtual Clinical Encounter
Telemedical devices such as the Patient Suitcase for treating chronic heart failure patients at home have been suggested to foster new and empowered patients. In this paper we analyse to what extent the ‘virtual clinical encounters’ taking place through the Patient Suitcase can be said to have such effects. We find that new skills are developed for all actors involved and that the work involved in the consultation is largely shared, but the norma…
Chronic care infrastructures and the home
In this article I argue that attention to the spatial and material dimensions of chronic disease management and its place-making effects is necessary if we are to understand the implications of the increased mobilisation - technologically or otherwise - of the home in chronic disease management. Analysing home treatment in asthma and haemophilia care, I argue that in relation to chronic disease management the home is not only always connected to …
Medication as Infrastructure
Drawing on science and technology studies (STS), and specifically the concept of infrastructure as conceptualised by Bowker and Star (2000; Star 1999), this paper argues and empirically demonstrates that self-care may be considered a practice that is thoroughly sociotechnical, material, distributed and de-centred. Comparing the practices related to medication in the treatment of asthma, type 2 diabetes and haemophilia, we show that in practice th…
Interpellating Patients as Users
The author traces the ways in which various patients and collective associations of patients come to regard themselves as the users of future stem cell technologies. The author uses Althusser's notion of interpellation (1971/2006), whereby an identity is the result of the situated encounter of a subject and an authority, to analyze the ways in which patient associations' current involvement with basic research is related to the enactment of scien…
Who Has More Life? Authentic Bodies and the Ethopolitics of Stem Cells
This essay discusses contemporary U.S. debates over human embryonic stem-cell (hESC) research. Central characteristics of these debates, we argue, are the actors and bodies who come to represent "life itself"-a life either to be protected by or protected from hESC research. When biomedical research enters into the hybrid space of media and politics, some actors emerge as having "more life"-and therefore more authenticity and legitimacy-in raising…
The Making of Self-Monitoring Asthma Patients
Those calling for more evidence to support ever-increasing efforts to use information and communication technologies (ICT) in medical work argue that rigorous facts are necessary to make viable in practice substantiated use of these technologies. By contrast, socio-technical studies researchers, who focus on the use of ICT in everyday clinical practices, argue against the need for evidence produced under controlled, thus 'unrealistic' conditions.…
Chronic care infrastructures and the home
In this article I argue that attention to the spatial and material dimensions of chronic disease management and its place-making effects is necessary if we are to understand the implications of the increased mobilisation - technologically or otherwise - of the home in chronic disease management. Analysing home treatment in asthma and haemophilia care, I argue that in relation to chronic disease management the home is not only always connected to …
Medication as Infrastructure
Drawing on science and technology studies (STS), and specifically the concept of infrastructure as conceptualised by Bowker and Star (2000; Star 1999), this paper argues and empirically demonstrates that self-care may be considered a practice that is thoroughly sociotechnical, material, distributed and de-centred. Comparing the practices related to medication in the treatment of asthma, type 2 diabetes and haemophilia, we show that in practice th…
Tactics of material participation
The increasingly popular goal of 'patient participation' comes with a conceptual vagueness, at times rendering it an all-too flexible political trope or platitude and, in practice, resulting in unclear invitations to patients. We seek to open up the alluring yet troubling figure of patient participation, by inquiring into how patients enact participation in different ways. Based on close ethnographic engagement in a user test of the e-health syst…
Interpretation as luxury
Personal health technologies such as apps and wearables that generate health and behavior data close to the individual patient are envisioned to enable personalized healthcare - and self-care. And yet, they are consumer devices. Proponents of these devices presuppose that measuring will be helpful, and that data will be meaningful. However, a growing body of research suggests that self-tracking data does not necessarily make sense to users. Drawi…
From 'parallel world' to 'trading zone
In today's digital world, people with type 1 and 2 diabetes turn to peers on social media to access and share information. Some studies have addressed how such information is discussed in clinical consultations, but conceptual nuances are needed to account for the different ways information is discussed. In this article, we draw on semi-structured interviews with 19 clinicians and 25 people with diabetes to examine how diabetes-related informatio…
The socio-material self-care practices of children living with hemophilia or juvenile idiopathic arthritis in Denmark
Patient data work
With digital patient-reported outcome (PRO) tools in clinical practice, patients are given new tasks of providing data that aim at supporting and individualising care, simultaneously reducing unnecessary clinical visits. While the innovative potential of mobilising PRO data for care is increasingly explored, little attention is given to the efforts that the provision of PRO data rests on - that of the patients. Based on ethnographic fieldwork car…
Home care as reablement or enabling arrangements? An exploration of the precarious dependencies in living with functional decline
The threat to welfare societies posed by population ageing has urged high-income countries to rethink the provision of social and healthcare services for the ageing population. One widely implemented policy solution is 'reablement': short-term home-based training programmes focusing on re-enabling older people to carry out activities of daily living independently. Drawing on empirical material from multisited ethnographic fieldwork of reablement …
What constitutes ‘good care’ and ‘good carers’? The normative implications of introducing reablement in Danish home care
As populations worldwide are ageing, Western welfare states are currently implementing welfare reforms aimed at curbing the rising need for social and healthcare services for ageing populations. A central element in home-care reforms in several welfare countries is reablement: short-term home-based training programmes aimed at re-enabling older people to live in their own homes independently of care. In this paper, we explore how transitioning fr…
Interpellating Patients as Users
The author traces the ways in which various patients and collective associations of patients come to regard themselves as the users of future stem cell technologies. The author uses Althusser's notion of interpellation (1971/2006), whereby an identity is the result of the situated encounter of a subject and an authority, to analyze the ways in which patient associations' current involvement with basic research is related to the enactment of scien…
Who Has More Life? Authentic Bodies and the Ethopolitics of Stem Cells
This essay discusses contemporary U.S. debates over human embryonic stem-cell (hESC) research. Central characteristics of these debates, we argue, are the actors and bodies who come to represent "life itself"-a life either to be protected by or protected from hESC research. When biomedical research enters into the hybrid space of media and politics, some actors emerge as having "more life"-and therefore more authenticity and legitimacy-in raising…
Between a logic of disruption and a logic of continuation
In both popular and academic discussions of the use of algorithms in clinical practice, narratives often draw on the decisive potentialities of algorithms and come with the belief that algorithms will substantially transform healthcare. We suggest that this approach is associated with a logic of disruption. However, we argue that in clinical practice alongside this logic, another and less recognised logic exists, namely that of continuation: here…
The Making of Self-Monitoring Asthma Patients
Those calling for more evidence to support ever-increasing efforts to use information and communication technologies (ICT) in medical work argue that rigorous facts are necessary to make viable in practice substantiated use of these technologies. By contrast, socio-technical studies researchers, who focus on the use of ICT in everyday clinical practices, argue against the need for evidence produced under controlled, thus 'unrealistic' conditions.…
Online boundary-work
People with chronic conditions such as diabetes use social media to interact with peers. While these online interactions allow them to exchange advice and gain insight into how others cope with their condition, concerns about 'misinformation' being shared are persistently raised, especially among medical professionals. Rather than assessing whether information shared on social media is 'correct' from a clinical perspective, we explore how people …
Who Has More Life? Authentic Bodies and the Ethopolitics of Stem Cells
This essay discusses contemporary U.S. debates over human embryonic stem-cell (hESC) research. Central characteristics of these debates, we argue, are the actors and bodies who come to represent "life itself"-a life either to be protected by or protected from hESC research. When biomedical research enters into the hybrid space of media and politics, some actors emerge as having "more life"-and therefore more authenticity and legitimacy-in raising…
The Making of Self-Monitoring Asthma Patients
Those calling for more evidence to support ever-increasing efforts to use information and communication technologies (ICT) in medical work argue that rigorous facts are necessary to make viable in practice substantiated use of these technologies. By contrast, socio-technical studies researchers, who focus on the use of ICT in everyday clinical practices, argue against the need for evidence produced under controlled, thus 'unrealistic' conditions.…
Interpellating Patients as Users
The author traces the ways in which various patients and collective associations of patients come to regard themselves as the users of future stem cell technologies. The author uses Althusser's notion of interpellation (1971/2006), whereby an identity is the result of the situated encounter of a subject and an authority, to analyze the ways in which patient associations' current involvement with basic research is related to the enactment of scien…
Medication as Infrastructure
Drawing on science and technology studies (STS), and specifically the concept of infrastructure as conceptualised by Bowker and Star (2000; Star 1999), this paper argues and empirically demonstrates that self-care may be considered a practice that is thoroughly sociotechnical, material, distributed and de-centred. Comparing the practices related to medication in the treatment of asthma, type 2 diabetes and haemophilia, we show that in practice th…
The Virtual Clinical Encounter
Telemedical devices such as the Patient Suitcase for treating chronic heart failure patients at home have been suggested to foster new and empowered patients. In this paper we analyse to what extent the ‘virtual clinical encounters’ taking place through the Patient Suitcase can be said to have such effects. We find that new skills are developed for all actors involved and that the work involved in the consultation is largely shared, but the norma…
Chronic care infrastructures and the home
In this article I argue that attention to the spatial and material dimensions of chronic disease management and its place-making effects is necessary if we are to understand the implications of the increased mobilisation - technologically or otherwise - of the home in chronic disease management. Analysing home treatment in asthma and haemophilia care, I argue that in relation to chronic disease management the home is not only always connected to …
Telecare Technology and the Transformation of Healthcare / Care at a Distance
Generating Local Needs Through Technology
The rhetoric of need is commonplace in discourses of technology and innovation, as well as in global health. Users are said to have a need for innovative technology, and citizens in resource-poor regions to have a need for improved health care. In this article we follow a global health technology—more specifically, a piece of software for monitoring diabetes quality—from Denmark, where it was developed, to Jakarta, Indonesia, where it was introdu…
Tactics of material participation
The increasingly popular goal of 'patient participation' comes with a conceptual vagueness, at times rendering it an all-too flexible political trope or platitude and, in practice, resulting in unclear invitations to patients. We seek to open up the alluring yet troubling figure of patient participation, by inquiring into how patients enact participation in different ways. Based on close ethnographic engagement in a user test of the e-health syst…
What constitutes ‘good care’ and ‘good carers’? The normative implications of introducing reablement in Danish home care
As populations worldwide are ageing, Western welfare states are currently implementing welfare reforms aimed at curbing the rising need for social and healthcare services for ageing populations. A central element in home-care reforms in several welfare countries is reablement: short-term home-based training programmes aimed at re-enabling older people to live in their own homes independently of care. In this paper, we explore how transitioning fr…
Home care as reablement or enabling arrangements? An exploration of the precarious dependencies in living with functional decline
The threat to welfare societies posed by population ageing has urged high-income countries to rethink the provision of social and healthcare services for the ageing population. One widely implemented policy solution is 'reablement': short-term home-based training programmes focusing on re-enabling older people to carry out activities of daily living independently. Drawing on empirical material from multisited ethnographic fieldwork of reablement …
Interpretation as luxury
Personal health technologies such as apps and wearables that generate health and behavior data close to the individual patient are envisioned to enable personalized healthcare - and self-care. And yet, they are consumer devices. Proponents of these devices presuppose that measuring will be helpful, and that data will be meaningful. However, a growing body of research suggests that self-tracking data does not necessarily make sense to users. Drawi…
The socio-material self-care practices of children living with hemophilia or juvenile idiopathic arthritis in Denmark
Patient data work
With digital patient-reported outcome (PRO) tools in clinical practice, patients are given new tasks of providing data that aim at supporting and individualising care, simultaneously reducing unnecessary clinical visits. While the innovative potential of mobilising PRO data for care is increasingly explored, little attention is given to the efforts that the provision of PRO data rests on - that of the patients. Based on ethnographic fieldwork car…
Infrastructuring experience
Device activism and material participation in healthcare
The #WeAreNotWaiting movement is a global digital health phenomenon in which people with diabetes, mainly type 1 diabetes (T1D), engage in the development and usage of open-source closed-loop technology for the improvement of their “chronic living” (Wahlberg et al. 2021). The characteristics of a digitally enabled and technologically engaged global activist patient collective feed into existing narratives of user-led and open-source innovation. T…
Between a logic of disruption and a logic of continuation
In both popular and academic discussions of the use of algorithms in clinical practice, narratives often draw on the decisive potentialities of algorithms and come with the belief that algorithms will substantially transform healthcare. We suggest that this approach is associated with a logic of disruption. However, we argue that in clinical practice alongside this logic, another and less recognised logic exists, namely that of continuation: here…
From 'parallel world' to 'trading zone
In today's digital world, people with type 1 and 2 diabetes turn to peers on social media to access and share information. Some studies have addressed how such information is discussed in clinical consultations, but conceptual nuances are needed to account for the different ways information is discussed. In this article, we draw on semi-structured interviews with 19 clinicians and 25 people with diabetes to examine how diabetes-related informatio…
Online boundary-work
People with chronic conditions such as diabetes use social media to interact with peers. While these online interactions allow them to exchange advice and gain insight into how others cope with their condition, concerns about 'misinformation' being shared are persistently raised, especially among medical professionals. Rather than assessing whether information shared on social media is 'correct' from a clinical perspective, we explore how people …
“I spend more time on the ecosystem than on the disease”
Automated decision-making (ADM) systems can be worn in and on the body for various purposes, such as for tracking and managing chronic conditions. One case in point is do-it-yourself open-source artificial pancreas systems, through which users engage in what is referred to as “looping”; combining continuous glucose monitors and insulin pumps placed on the body with digital communication technologies to develop an ADM system for personal diabetes …
Response-Able Care and Undone Care Spaces
In this article, we explore how people with epilepsy and their caregivers handle everyday life with epilepsy and the constant fear of an unexpected seizure through digital care technologies. These technologies are often used outside clinical settings and without clinicians' involvement or awareness. Their use is dependent on response-able care relations. We explore the precarities that arise when this dependency leads to the creation of "undone c…
Political science (12 obras) · Computer Science (11 obras) · Medicine (11 obras) · Psychology (11 obras) · Sociology (10 obras) · Health care (9 obras) · Mental Health and Patient Involvement (9 obras) · Public relations (8 obras) · Engineering (6 obras) · Business (5 obras)