Christine Ceci
Dados Biográficos
| ID | 247472 |
|---|---|
| NOME | Christine Ceci |
| PRENOMES | Christine |
| SOBRENOME | Ceci |
| ASSINATURA | CECI C |
| AFILIAÇÕES | University of Alberta |
| ORCID | 0000-0002-8503-5928 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 22 |
| TOTAL DE CITAÇÕES | 57 |
| OBRAS COMO AUTOR | 22 |
| OBRAS COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2001 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2025 |
| ÍNDICE H | 5 |
What is helpful in everyday living with dementia at home? Learning from families’ diverse scenarios
As the population ages and the prevalence of dementia increases, caring for a relative living at home with dementia has become a reality for many families worldwide. Studies have shown that families are confronted with diverse difficulties as they try to address the challenges involved in providing care. By understanding how they manage daily life, formal service providers become better equipped to meet the diverse needs of these families. Learni…
Configuring possibilities
There is a need for new imaginaries of care and social health for people living with dementia at home. Day programmes are one ‘care in the community’ solution that requires further theorisation to ensure that its empirical base can usefully guide policy. In this paper we contribute to theorising day programmes through an ethnographic case study of one woman living with dementia at home using a day programme. We collected data through observations…
Configuring possibilities for people living with dementia at home
There is a need for new imaginaries of care and social health for people living with dementia at home. Day programmes are one solution for care in the community that requires further theorisation to ensure an empirical base that is useful for guiding policy. In this article we contribute to the theorising of day programmes by using an ethnographic case study of one woman living with dementia at home using a day programme. Data were collected thro…
The day program multiple
Globally, day programs are increasingly proposed in policy as one way to address the support needs of people living at home with dementia and their families. Day programs represent a kind of space that can meet multiple interests and ideologies concerned with sustaining care at home for people living with dementia. In this paper, we draw on findings from an ethnographic study of how day programs work as care in the community for people living wit…
The Problems with Care
Seeking to support qualitative researchers in the artful development of feminist care scholarship, our goal here is to ‘look back’ on how we have conceptualized the problems of care and developed research that illuminates the social organization of care in distinct ways. As part of a ‘feminist care scholar retrospective’, we present five condensed ‘reverse research proposals’, which are retrospective accounts of past research or scholarly activit…
Sand in the works?' Infrastructural affordances and life with dementia in the community
The social health of people living with dementia is a more recent addition to the dementia research agenda; to date conceptions of the problem and solutions have relied on underdeveloped theorisations of sociality and social inclusion. In this article, using a material-semiotic approach to care practices and infrastructure, we use an ethnographic case study of one family of a person living with dementia using a day programme and home care support…
The Shifting Arrangements We Call Home
Community‐based dementia care re‐defined
Studies of families caring for persons with dementia living at home often reflect feelings of being forgotten and abandoned by the authorities to shoulder the responsibility for care-giving. This has increased interest in how formal services can better support these families. This article analyses how health and social care professionals envision the needs of families of persons with dementia living in the community. It also describes the contrib…
Seeing the collective
With the predicted growth in the number of people with dementia living at home across the globe, the need for home-based care is expected to increase. As such, it will be primarily family carers who will provide this crucial support to family members. Designing appropriate support for family carers is thus essential to minimise risks to their health, to prevent premature institutionalisation or poor care for persons with dementia, as well as to s…
Chapter Two
Problematising care burden research
In this paper we use Alvesson and Sandberg's strategy of problematisation to analyse the assumptions embedded in the development and use of the concept of ‘care-giver burden’. We do this in order to develop an explanation as to why decades of research into the experience of providing home-based care to a family member with dementia has had little effect in relieving or reducing the ‘burden’ of that care. Though some part of this is undoubtedly po…
Information sharing with rural family caregivers during care transitions of hip fracture patients
As with knowledge translation, effective strategies to improve information sharing and care continuity for older patients with chronic illness may be those that involve active facilitation of an on-going partnership that respects the knowledge of all those involved
Theorizing accommodation in supportive home care for older people
Means without ends
The challenges associated with ageing populations are very much on the policy and research agenda of many nations, with significant discussions focused on establishing appropriate, acceptable parameters of home care for those who are older and frail. This paper develops an analysis of changing justifications of home care in Canada (1990-2010) through examination of governmental and non-governmental home care policy documents and position papers, …
Bridging gaps in risk discourse
This paper examines, and problematises, a well-entrenched conceptualisation of how home care case management practice works - that is, that case managers offer alternatives, and clients make choices. This understanding of practice is reinforced by organisational policy that states that clients have the right to live at risk if that is their choice. Analysis of data from a field study of home care practice in a western Canadian city, drawing predo…
Patching Up the Holes
‘What she says she needs doesn’t make a lot of sense’
Foucault's preoccupation with the visual, specifically his positing of a sort of ‘positive unconscious of vision’, offers an entry point for examining data generated through a field study of home‐care case management practice. In Foucault's work, our attention is directed not so much to what is seen but to what can be seen and to the effects of practices of knowledge and power in constituting these particular realities. Knowledge emerges as a mat…
Gender, power, nursing
This paper is concerned with events that were the subject of an inquest into the deaths of 12 children who died while undergoing or shortly after having undergone cardiac surgery at the Winnipeg Health Sciences Centre, Manitoba, Canada, during 1994. A notable finding of the Sinclair Inquest was that nurses involved with the pediatric cardiac surgery program were concerned about the competence of the surgeon and made sustained efforts throughout 1…
Nursing, knowledge and power
Midnight reckonings
The paper contrasts understandings of knowledge grounded in Enlightenment norms with the departures from those norms taken by some strands of feminism and hermeneutics, as well as the contributions made by the writing of Michel Foucault. A reading of Foucault's writings on knowledge, power and the discursive constitution of self and world is offered as a potentially useful frame within which to raise questions about nursing, nurses and knowledge.
Language and Power
More than merely describing what constitutes a good or truthful interpretation, all judgments about the legitimacy of knowledge claims can be understood as enacting relations of power. That is, our understanding of what it means to make a reasonable claim to knowledge is already caught up in relations of power that privilege some perspectives and marginalize others. Language, understood as productive rather than reflective of meaning, both enable…
A ‘quiet’ crisis in health care
In this paper we suggest that it is a mistake to understand the current situation in nursing as primarily a problem of ‘shortage’, a problem which may be solved through supplying ‘more nurses, faster’. This way of thinking is understood as reflecting an invalidation of nurses and nursing and, by fostering false beliefs about nursing, as functioning to exacerbate rather than resolve the current situation. Unlike many mainstream conceptualizations …
Nursing, knowledge and power
Bridging gaps in risk discourse
This paper examines, and problematises, a well-entrenched conceptualisation of how home care case management practice works - that is, that case managers offer alternatives, and clients make choices. This understanding of practice is reinforced by organisational policy that states that clients have the right to live at risk if that is their choice. Analysis of data from a field study of home care practice in a western Canadian city, drawing predo…
Problematising care burden research
In this paper we use Alvesson and Sandberg's strategy of problematisation to analyse the assumptions embedded in the development and use of the concept of ‘care-giver burden’. We do this in order to develop an explanation as to why decades of research into the experience of providing home-based care to a family member with dementia has had little effect in relieving or reducing the ‘burden’ of that care. Though some part of this is undoubtedly po…
The Problems with Care
Seeking to support qualitative researchers in the artful development of feminist care scholarship, our goal here is to ‘look back’ on how we have conceptualized the problems of care and developed research that illuminates the social organization of care in distinct ways. As part of a ‘feminist care scholar retrospective’, we present five condensed ‘reverse research proposals’, which are retrospective accounts of past research or scholarly activit…
Patching Up the Holes
Information sharing with rural family caregivers during care transitions of hip fracture patients
As with knowledge translation, effective strategies to improve information sharing and care continuity for older patients with chronic illness may be those that involve active facilitation of an on-going partnership that respects the knowledge of all those involved
Means without ends
The challenges associated with ageing populations are very much on the policy and research agenda of many nations, with significant discussions focused on establishing appropriate, acceptable parameters of home care for those who are older and frail. This paper develops an analysis of changing justifications of home care in Canada (1990-2010) through examination of governmental and non-governmental home care policy documents and position papers, …
Seeing the collective
With the predicted growth in the number of people with dementia living at home across the globe, the need for home-based care is expected to increase. As such, it will be primarily family carers who will provide this crucial support to family members. Designing appropriate support for family carers is thus essential to minimise risks to their health, to prevent premature institutionalisation or poor care for persons with dementia, as well as to s…
The day program multiple
Globally, day programs are increasingly proposed in policy as one way to address the support needs of people living at home with dementia and their families. Day programs represent a kind of space that can meet multiple interests and ideologies concerned with sustaining care at home for people living with dementia. In this paper, we draw on findings from an ethnographic study of how day programs work as care in the community for people living wit…
Sand in the works?' Infrastructural affordances and life with dementia in the community
The social health of people living with dementia is a more recent addition to the dementia research agenda; to date conceptions of the problem and solutions have relied on underdeveloped theorisations of sociality and social inclusion. In this article, using a material-semiotic approach to care practices and infrastructure, we use an ethnographic case study of one family of a person living with dementia using a day programme and home care support…
Community‐based dementia care re‐defined
Studies of families caring for persons with dementia living at home often reflect feelings of being forgotten and abandoned by the authorities to shoulder the responsibility for care-giving. This has increased interest in how formal services can better support these families. This article analyses how health and social care professionals envision the needs of families of persons with dementia living in the community. It also describes the contrib…
Language and Power
More than merely describing what constitutes a good or truthful interpretation, all judgments about the legitimacy of knowledge claims can be understood as enacting relations of power. That is, our understanding of what it means to make a reasonable claim to knowledge is already caught up in relations of power that privilege some perspectives and marginalize others. Language, understood as productive rather than reflective of meaning, both enable…
A ‘quiet’ crisis in health care
In this paper we suggest that it is a mistake to understand the current situation in nursing as primarily a problem of ‘shortage’, a problem which may be solved through supplying ‘more nurses, faster’. This way of thinking is understood as reflecting an invalidation of nurses and nursing and, by fostering false beliefs about nursing, as functioning to exacerbate rather than resolve the current situation. Unlike many mainstream conceptualizations …
Language and Power
More than merely describing what constitutes a good or truthful interpretation, all judgments about the legitimacy of knowledge claims can be understood as enacting relations of power. That is, our understanding of what it means to make a reasonable claim to knowledge is already caught up in relations of power that privilege some perspectives and marginalize others. Language, understood as productive rather than reflective of meaning, both enable…
Midnight reckonings
The paper contrasts understandings of knowledge grounded in Enlightenment norms with the departures from those norms taken by some strands of feminism and hermeneutics, as well as the contributions made by the writing of Michel Foucault. A reading of Foucault's writings on knowledge, power and the discursive constitution of self and world is offered as a potentially useful frame within which to raise questions about nursing, nurses and knowledge.
Gender, power, nursing
This paper is concerned with events that were the subject of an inquest into the deaths of 12 children who died while undergoing or shortly after having undergone cardiac surgery at the Winnipeg Health Sciences Centre, Manitoba, Canada, during 1994. A notable finding of the Sinclair Inquest was that nurses involved with the pediatric cardiac surgery program were concerned about the competence of the surgeon and made sustained efforts throughout 1…
Nursing, knowledge and power
‘What she says she needs doesn’t make a lot of sense’
Foucault's preoccupation with the visual, specifically his positing of a sort of ‘positive unconscious of vision’, offers an entry point for examining data generated through a field study of home‐care case management practice. In Foucault's work, our attention is directed not so much to what is seen but to what can be seen and to the effects of practices of knowledge and power in constituting these particular realities. Knowledge emerges as a mat…
Patching Up the Holes
Bridging gaps in risk discourse
This paper examines, and problematises, a well-entrenched conceptualisation of how home care case management practice works - that is, that case managers offer alternatives, and clients make choices. This understanding of practice is reinforced by organisational policy that states that clients have the right to live at risk if that is their choice. Analysis of data from a field study of home care practice in a western Canadian city, drawing predo…
Means without ends
The challenges associated with ageing populations are very much on the policy and research agenda of many nations, with significant discussions focused on establishing appropriate, acceptable parameters of home care for those who are older and frail. This paper develops an analysis of changing justifications of home care in Canada (1990-2010) through examination of governmental and non-governmental home care policy documents and position papers, …
Theorizing accommodation in supportive home care for older people
Information sharing with rural family caregivers during care transitions of hip fracture patients
As with knowledge translation, effective strategies to improve information sharing and care continuity for older patients with chronic illness may be those that involve active facilitation of an on-going partnership that respects the knowledge of all those involved
Problematising care burden research
In this paper we use Alvesson and Sandberg's strategy of problematisation to analyse the assumptions embedded in the development and use of the concept of ‘care-giver burden’. We do this in order to develop an explanation as to why decades of research into the experience of providing home-based care to a family member with dementia has had little effect in relieving or reducing the ‘burden’ of that care. Though some part of this is undoubtedly po…
Chapter Two
Seeing the collective
With the predicted growth in the number of people with dementia living at home across the globe, the need for home-based care is expected to increase. As such, it will be primarily family carers who will provide this crucial support to family members. Designing appropriate support for family carers is thus essential to minimise risks to their health, to prevent premature institutionalisation or poor care for persons with dementia, as well as to s…
The Shifting Arrangements We Call Home
Community‐based dementia care re‐defined
Studies of families caring for persons with dementia living at home often reflect feelings of being forgotten and abandoned by the authorities to shoulder the responsibility for care-giving. This has increased interest in how formal services can better support these families. This article analyses how health and social care professionals envision the needs of families of persons with dementia living in the community. It also describes the contrib…
The Problems with Care
Seeking to support qualitative researchers in the artful development of feminist care scholarship, our goal here is to ‘look back’ on how we have conceptualized the problems of care and developed research that illuminates the social organization of care in distinct ways. As part of a ‘feminist care scholar retrospective’, we present five condensed ‘reverse research proposals’, which are retrospective accounts of past research or scholarly activit…
Sand in the works?' Infrastructural affordances and life with dementia in the community
The social health of people living with dementia is a more recent addition to the dementia research agenda; to date conceptions of the problem and solutions have relied on underdeveloped theorisations of sociality and social inclusion. In this article, using a material-semiotic approach to care practices and infrastructure, we use an ethnographic case study of one family of a person living with dementia using a day programme and home care support…
The day program multiple
Globally, day programs are increasingly proposed in policy as one way to address the support needs of people living at home with dementia and their families. Day programs represent a kind of space that can meet multiple interests and ideologies concerned with sustaining care at home for people living with dementia. In this paper, we draw on findings from an ethnographic study of how day programs work as care in the community for people living wit…
What is helpful in everyday living with dementia at home? Learning from families’ diverse scenarios
As the population ages and the prevalence of dementia increases, caring for a relative living at home with dementia has become a reality for many families worldwide. Studies have shown that families are confronted with diverse difficulties as they try to address the challenges involved in providing care. By understanding how they manage daily life, formal service providers become better equipped to meet the diverse needs of these families. Learni…
Configuring possibilities
There is a need for new imaginaries of care and social health for people living with dementia at home. Day programmes are one ‘care in the community’ solution that requires further theorisation to ensure that its empirical base can usefully guide policy. In this paper we contribute to theorising day programmes through an ethnographic case study of one woman living with dementia at home using a day programme. We collected data through observations…
Configuring possibilities for people living with dementia at home
There is a need for new imaginaries of care and social health for people living with dementia at home. Day programmes are one solution for care in the community that requires further theorisation to ensure an empirical base that is useful for guiding policy. In this article we contribute to the theorising of day programmes by using an ethnographic case study of one woman living with dementia at home using a day programme. Data were collected thro…
Medicine (19 obras) · Sociology (18 obras) · Political science (17 obras) · Nursing (15 obras) · Psychology (12 obras) · Mental Health and Patient Involvement (9 obras) · Dementia (7 obras) · Geriatric Care and Nursing Homes (7 obras) · Gerontology (7 obras) · Law (7 obras)