Ana Patrícia Hilário
Dados Biográficos
| ID | 256918 |
|---|---|
| NOME | Ana Patrícia Hilário |
| PRENOMES | Ana Patrícia |
| SOBRENOME | Hilário |
| ASSINATURA | HILÁRIO A P |
| AFILIAÇÕES | University of Lisbon |
| ORCID | 0000-0001-7396-5127 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 28 |
| TOTAL DE CITAÇÕES | 26 |
| TOTAL COMO AUTOR | 28 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2015 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 3 |
Reflexões sobre os campos de ação da Sociologia
Tendo como pano de fundo o projeto VAX-TRUST, que visou compreender o fenómeno da hesitação vacinal infantil em sete países europeus, pretende-se demonstrar como o saber sociológico pode ser mobilizado em diferentes vertentes com o duplo propósito de gerar conhecimento e produzir mudança social. Ao ter como ponto de partida os contributos teóricos de Burawoy em torno de uma sociologia que produz conhecimento quer reflexivo quer instrumental, este…
Antibiotic misuse and vaccine hesitancy
The relationship between vaccine hesitancy and antibiotic misuse remains complex and insufficiently understood, raising questions about whether these phenomena are directly connected or shaped by shared underlying factors. As vaccine hesitancy and antimicrobial resistance constitute intertwined public health challenges with serious implications for population well-being, it is crucial to explore how attitudes toward vaccination correspond with pa…
Do Health Care Professionals Trust Parents? A Team Ethnography of Childhood Vaccine Hesitancy from Seven European Countries
Social-scientific scholarship on vaccination has often stressed the importance of trust. Vaccine hesitancy has commonly been viewed as determined by the degree of trust that parents have in expert knowledge, health care authorities, and health care professionals (HCPs). Focusing primarily on parents as trustors, the bilateral nature of trust and HCPs’ trust in parents have seldom been considered. This article systematically explores these commonl…
Policy recommendations for healthcare authorities, organizations and professionals on vaccine hesitancy in Europe
Vaccine hesitancy presents significant challenges to public health, exacerbated by a lack of cohesive policies in Europe. Recognized as a complex social phenomenon influenced by various factors, vaccine hesitancy threatens health systems and public trust. This paper analyses the political background and current gaps in policies addressing vaccine hesitancy, with a specific focus on the role of healthcare authorities, organizations and professiona…
Notes on the Intersection Between Sociology and Public Health
This article aims to provide a reflection triggered by a ‘round table’ discussion at the VAX-TRUST project final conference regarding the interconnection between health sociology and public health. This interconnection is characterized by complexity, as it involves navigating the various ways in which sociological perspectives can inform and contribute to our understanding of health issues and the development of health interventions. Within these…
Pain by proxy
More than meets the eye
Caring practices during vaccination encounters are deeply interwoven with materiality, encompassing everyday objects and elements that play a crucial role for all actors involved. However, the significance of these materialities in shaping caring relationships within vaccination practices has been largely overlooked. This research seeks to fill that gap by exploring how mundane elements, such as the objects present during vaccination, contribute …
Re-Defining the Family Biography When a Child Suffers from a Life-Limiting Illness
This study intends to move beyond the parent-child dichotomy to study the experience of chronic illness within the family setting by also focusing on young siblings. The study will mobilize the accounts of both mothers and siblings of children with a life-limiting illness to understand the biographical impact of a critical situation. Seven siblings and five mothers participated in the research. In-depth interviews and interviews using the 'draw-w…
Agency in urgency and uncertainty. Vaccines and vaccination in European media discourses
Healthism vis-à-vis Vaccine Hesitancy
Although healthism appears to be at the heart of the decision-making process of vaccine hesitancy, this matter has been understudied. We believe that the concept of healthism may be key to lessen the polarization of discourses around vaccination, offering a broad understanding of parents’ decision to not vaccinate their children. This article aims to deepen the knowledge on the relation between healthism and vaccine hesitancy, using Portugal as a…
The use of diaries for understanding the experience of health and illness
While diaries as a method have a long tradition in sociological research, few studies to date have demonstrated its value for studying health and illness. This article intends to illustrate the importance of this method for health research. The implications of the use of solicited diaries to conduct research within the field of health and illness are discussed. The contributions that the method can make to sociological research on health and illn…
Recruiting a Hard-to-Reach, Hidden and Vulnerable Population
While recruitment is an essential aspect of any research project, its challenges are rarely acknowledged. We intend to address this gap by discussing the challenges to the participation of vaccine-hesitant parents defined here as a hard-to-reach, hidden and vulnerable population drawing on extensive empirical qualitative evidence from seven European countries. The difficulties in reaching vaccine-hesitant parents were very much related to issues …
When pain never goes away
This study intends to provide insights into the lives of children who suffer from chronic pain and of their parents. A qualitative, multi‐modal approach was employed, using the draw, write and tell technique with seven children, and semi‐structured interviews with parents. By illustrating that children are active social agents in the management of chronic pain (even when they are understood by parents as vulnerable), the findings support recent s…
Teaching & Learning Guide for
Chronic illness in childhood affects the family dynamics, namely the life and well-being of siblings. Children may exercise caregiving roles and assume a series of responsibilities when their brother or sister is chronically ill. Nevertheless, there is a paucity of sociological studies on the roles undertaken by children on behalf of their ill sibling. The type of care provided by siblings has been under researched. It is fundamental to gain know…
Pathways for a 'Good Death
Drawing upon ethnographic research developed in two Portuguese palliative care units, this article seeks to analyse end-of-life practices, namely how they are perceived and negotiated among the various actors involved. Over a period of 10 months in these units participant observation and in-depth interviews were conducted with 20 family members of patients with a life-threatening illness and 20 health care professionals. Against this backdrop, as…
Desafios éticos, metodológicos e práticos na pesquisa qualitativa em saúde
Partindo de uma experiência de investigação em torno do processo de morrer, este artigo procura discutir alguns dos desafios que emergiram no âmbito de uma pesquisa qualitativa de natureza etnográfica no campo da saúde. A sensibilidade do tema e a vulnerabilidade dos participantes conduziu à necessidade de criar estratégias que mitigassem potenciais efeitos indesejados para os atores envolvidos. Desta forma, discutem-se questões ético-metodológic…
Sibling caring roles and responsibilities when a child suffers from a chronic illness
Siblings' lives and well‐being are potentially affected in profound ways when their brother or sister suffers from a chronic illness in childhood. The shift in the care of chronically ill children from the hospital to the home in recent years has had an impact on family relationships and interactions. Whilst studies on caregiving have focused on the parental care of children who are chronically ill; siblings may nevertheless take on some caring r…
Feeding the family at the end‐of‐life
Little has been said about the disruptive impact that the inability to eat and to participate in mealtimes has for patients with a life-threatening illness and their families. The aim of the current study is to overcome this gap and shed light on how food and eating practices are experienced by families at the end-of-life. An ethnographic research was developed in two Portuguese palliative care units: participant observation was conducted during …
Practical and Ethical Dilemmas in Researching Sensitive Topics with Populations Considered Vulnerable
This book seeks to support social science researchers who interact with vulnerability and/or sensitivity in the context of their research. Whilst there has been some important debate about the theoretical, methodological and ethical issues of conducting research on sensitive topics, and/or with vulnerable populations, the number of scholarly publications focused solely on these topics is limited and not up to date. The book intends to fill this g…
Trans youth in Portugal
The lived gendered experience of trans youth constitutes a relatively overlooked aspect of current research. Addressing this gap, this study reveals how young trans people in Portugal define their identities and legitimate their bodies in daily life. Drawing on in-depth interviews with 12 Portuguese trans young people, this study focuses on how trans youth situate themselves within dominant paradigms for understanding (trans)gender identities and…
Rethinking trans identities within the medical and psychological community
This study intends to shed light on the ways in which medical practices surrounding Gender Dysphoria (GD) might enforce or challenge the pathologization of trans identities. Drawing upon a qualitative research approach, in-depth interviews with 12 practitioner specialists in the field of GD in Portugal were carried out by the T team. Our findings suggest that trans identities continue to be pathologized by a group of practitioners who appear to f…
An Exploration of the Practical and Ethical Issues of Research Using Multi-Visual Methods with Children Affected by Chronic Pain
This paper intends to encourage further reflection on the research methods and approaches used to enhance the voices of children with chronic conditions. Visual methods (e.g., ‘draw, write, and tell’ and photo elicitation interviews) have been described as the most appropriate ways to develop research with children as they allow room for children to share their lived experiences in their own terms and to actively participate in the research proce…
(Re) Making gender in the clinical context
The act of diagnosing gender dysphoria (GD), as in the act of diagnosing any other condition, is structured by socio-cultural, political and economic factors and is conducted by social actors. Drawing upon in-depth interviews with practitioners who work with trans people in Portugal, the study reveals the nuances and complexities surrounding the diagnostic attribution of GD and the ways in which the ideologies regarding gender shape this attribut…
Through the Looking Glass”
This paper extends further research on being both a volunteer and ethnographic researcher and intends to offer some insights on the emotional challenges of adopting this dual role when conducting research on sensitive topics and with vulnerable populations. The discussion presented here draws upon an ethnographic participant observation study of a food redistribution organization (Re-food) held in Lisbon, the capital of Portugal. The paper builds…
Contestation, instrumental resistance and strategic conformation within the diagnostic process of gender dysphoria in Portugal
This article aims to provide insights into the ways in which trans people (i.e. those whose gender identity or expression do not align with their assigned sex at birth) in Portugal make sense of the diagnosis of gender dysphoria. Drawing upon in-depth interviews with 10 trans men and 9 trans women carried out by the TRANSRIGHTS team, we identified three major themes: (a) contestation of gender dysphoria as a (mental) illness, (b) instrumental res…
(Re) Making gender in the clinical context
The act of diagnosing gender dysphoria (GD), as in the act of diagnosing any other condition, is structured by socio-cultural, political and economic factors and is conducted by social actors. Drawing upon in-depth interviews with practitioners who work with trans people in Portugal, the study reveals the nuances and complexities surrounding the diagnostic attribution of GD and the ways in which the ideologies regarding gender shape this attribut…
Recruiting a Hard-to-Reach, Hidden and Vulnerable Population
While recruitment is an essential aspect of any research project, its challenges are rarely acknowledged. We intend to address this gap by discussing the challenges to the participation of vaccine-hesitant parents defined here as a hard-to-reach, hidden and vulnerable population drawing on extensive empirical qualitative evidence from seven European countries. The difficulties in reaching vaccine-hesitant parents were very much related to issues …
Contestation, instrumental resistance and strategic conformation within the diagnostic process of gender dysphoria in Portugal
This article aims to provide insights into the ways in which trans people (i.e. those whose gender identity or expression do not align with their assigned sex at birth) in Portugal make sense of the diagnosis of gender dysphoria. Drawing upon in-depth interviews with 10 trans men and 9 trans women carried out by the TRANSRIGHTS team, we identified three major themes: (a) contestation of gender dysphoria as a (mental) illness, (b) instrumental res…
Feeding the family at the end‐of‐life
Little has been said about the disruptive impact that the inability to eat and to participate in mealtimes has for patients with a life-threatening illness and their families. The aim of the current study is to overcome this gap and shed light on how food and eating practices are experienced by families at the end-of-life. An ethnographic research was developed in two Portuguese palliative care units: participant observation was conducted during …
Making sense of a changed physical body
Agency in urgency and uncertainty. Vaccines and vaccination in European media discourses
Healthism vis-à-vis Vaccine Hesitancy
Although healthism appears to be at the heart of the decision-making process of vaccine hesitancy, this matter has been understudied. We believe that the concept of healthism may be key to lessen the polarization of discourses around vaccination, offering a broad understanding of parents’ decision to not vaccinate their children. This article aims to deepen the knowledge on the relation between healthism and vaccine hesitancy, using Portugal as a…
Rethinking trans identities within the medical and psychological community
This study intends to shed light on the ways in which medical practices surrounding Gender Dysphoria (GD) might enforce or challenge the pathologization of trans identities. Drawing upon a qualitative research approach, in-depth interviews with 12 practitioner specialists in the field of GD in Portugal were carried out by the T team. Our findings suggest that trans identities continue to be pathologized by a group of practitioners who appear to f…
Through the Looking Glass”
This paper extends further research on being both a volunteer and ethnographic researcher and intends to offer some insights on the emotional challenges of adopting this dual role when conducting research on sensitive topics and with vulnerable populations. The discussion presented here draws upon an ethnographic participant observation study of a food redistribution organization (Re-food) held in Lisbon, the capital of Portugal. The paper builds…
In-patient hospice
The present study aims to provide insights on the role of in-patient hospices, which are sometimes described as disconnecting spaces. Researchers complement participant observation with in-depth interviews with 10 hospice patients, 20 family members, and 20 members of hospice staff. The findings suggest that the hospice provides a space where patients could enjoy the company of their loved ones without concerns regarding the dying process. The st…
Making sense of a changed physical body
Witnessing a body in decline
There has been a tendency within the literature to ignore how men and women who are very ill and at the end of life perceive and experience their visibly altered bodies. This article aims to provide new insights about this matter. A qualitative research approach was adopted. In-depth interviews were conducted with 10 hospice patients, 20 family members, and 20 members of hospice staff. Findings reveal that because of masculine and feminine norms,…
In-patient hospice
The present study aims to provide insights on the role of in-patient hospices, which are sometimes described as disconnecting spaces. Researchers complement participant observation with in-depth interviews with 10 hospice patients, 20 family members, and 20 members of hospice staff. The findings suggest that the hospice provides a space where patients could enjoy the company of their loved ones without concerns regarding the dying process. The st…
Contestation, instrumental resistance and strategic conformation within the diagnostic process of gender dysphoria in Portugal
This article aims to provide insights into the ways in which trans people (i.e. those whose gender identity or expression do not align with their assigned sex at birth) in Portugal make sense of the diagnosis of gender dysphoria. Drawing upon in-depth interviews with 10 trans men and 9 trans women carried out by the TRANSRIGHTS team, we identified three major themes: (a) contestation of gender dysphoria as a (mental) illness, (b) instrumental res…
An Exploration of the Practical and Ethical Issues of Research Using Multi-Visual Methods with Children Affected by Chronic Pain
This paper intends to encourage further reflection on the research methods and approaches used to enhance the voices of children with chronic conditions. Visual methods (e.g., ‘draw, write, and tell’ and photo elicitation interviews) have been described as the most appropriate ways to develop research with children as they allow room for children to share their lived experiences in their own terms and to actively participate in the research proce…
(Re) Making gender in the clinical context
The act of diagnosing gender dysphoria (GD), as in the act of diagnosing any other condition, is structured by socio-cultural, political and economic factors and is conducted by social actors. Drawing upon in-depth interviews with practitioners who work with trans people in Portugal, the study reveals the nuances and complexities surrounding the diagnostic attribution of GD and the ways in which the ideologies regarding gender shape this attribut…
Through the Looking Glass”
This paper extends further research on being both a volunteer and ethnographic researcher and intends to offer some insights on the emotional challenges of adopting this dual role when conducting research on sensitive topics and with vulnerable populations. The discussion presented here draws upon an ethnographic participant observation study of a food redistribution organization (Re-food) held in Lisbon, the capital of Portugal. The paper builds…
Practical and Ethical Dilemmas in Researching Sensitive Topics with Populations Considered Vulnerable
This book seeks to support social science researchers who interact with vulnerability and/or sensitivity in the context of their research. Whilst there has been some important debate about the theoretical, methodological and ethical issues of conducting research on sensitive topics, and/or with vulnerable populations, the number of scholarly publications focused solely on these topics is limited and not up to date. The book intends to fill this g…
Trans youth in Portugal
The lived gendered experience of trans youth constitutes a relatively overlooked aspect of current research. Addressing this gap, this study reveals how young trans people in Portugal define their identities and legitimate their bodies in daily life. Drawing on in-depth interviews with 12 Portuguese trans young people, this study focuses on how trans youth situate themselves within dominant paradigms for understanding (trans)gender identities and…
Rethinking trans identities within the medical and psychological community
This study intends to shed light on the ways in which medical practices surrounding Gender Dysphoria (GD) might enforce or challenge the pathologization of trans identities. Drawing upon a qualitative research approach, in-depth interviews with 12 practitioner specialists in the field of GD in Portugal were carried out by the T team. Our findings suggest that trans identities continue to be pathologized by a group of practitioners who appear to f…
Desafios éticos, metodológicos e práticos na pesquisa qualitativa em saúde
Partindo de uma experiência de investigação em torno do processo de morrer, este artigo procura discutir alguns dos desafios que emergiram no âmbito de uma pesquisa qualitativa de natureza etnográfica no campo da saúde. A sensibilidade do tema e a vulnerabilidade dos participantes conduziu à necessidade de criar estratégias que mitigassem potenciais efeitos indesejados para os atores envolvidos. Desta forma, discutem-se questões ético-metodológic…
Sibling caring roles and responsibilities when a child suffers from a chronic illness
Siblings' lives and well‐being are potentially affected in profound ways when their brother or sister suffers from a chronic illness in childhood. The shift in the care of chronically ill children from the hospital to the home in recent years has had an impact on family relationships and interactions. Whilst studies on caregiving have focused on the parental care of children who are chronically ill; siblings may nevertheless take on some caring r…
Feeding the family at the end‐of‐life
Little has been said about the disruptive impact that the inability to eat and to participate in mealtimes has for patients with a life-threatening illness and their families. The aim of the current study is to overcome this gap and shed light on how food and eating practices are experienced by families at the end-of-life. An ethnographic research was developed in two Portuguese palliative care units: participant observation was conducted during …
When pain never goes away
This study intends to provide insights into the lives of children who suffer from chronic pain and of their parents. A qualitative, multi‐modal approach was employed, using the draw, write and tell technique with seven children, and semi‐structured interviews with parents. By illustrating that children are active social agents in the management of chronic pain (even when they are understood by parents as vulnerable), the findings support recent s…
Teaching & Learning Guide for
Chronic illness in childhood affects the family dynamics, namely the life and well-being of siblings. Children may exercise caregiving roles and assume a series of responsibilities when their brother or sister is chronically ill. Nevertheless, there is a paucity of sociological studies on the roles undertaken by children on behalf of their ill sibling. The type of care provided by siblings has been under researched. It is fundamental to gain know…
Pathways for a 'Good Death
Drawing upon ethnographic research developed in two Portuguese palliative care units, this article seeks to analyse end-of-life practices, namely how they are perceived and negotiated among the various actors involved. Over a period of 10 months in these units participant observation and in-depth interviews were conducted with 20 family members of patients with a life-threatening illness and 20 health care professionals. Against this backdrop, as…
Healthism vis-à-vis Vaccine Hesitancy
Although healthism appears to be at the heart of the decision-making process of vaccine hesitancy, this matter has been understudied. We believe that the concept of healthism may be key to lessen the polarization of discourses around vaccination, offering a broad understanding of parents’ decision to not vaccinate their children. This article aims to deepen the knowledge on the relation between healthism and vaccine hesitancy, using Portugal as a…
The use of diaries for understanding the experience of health and illness
While diaries as a method have a long tradition in sociological research, few studies to date have demonstrated its value for studying health and illness. This article intends to illustrate the importance of this method for health research. The implications of the use of solicited diaries to conduct research within the field of health and illness are discussed. The contributions that the method can make to sociological research on health and illn…
Recruiting a Hard-to-Reach, Hidden and Vulnerable Population
While recruitment is an essential aspect of any research project, its challenges are rarely acknowledged. We intend to address this gap by discussing the challenges to the participation of vaccine-hesitant parents defined here as a hard-to-reach, hidden and vulnerable population drawing on extensive empirical qualitative evidence from seven European countries. The difficulties in reaching vaccine-hesitant parents were very much related to issues …
Agency in urgency and uncertainty. Vaccines and vaccination in European media discourses
Policy recommendations for healthcare authorities, organizations and professionals on vaccine hesitancy in Europe
Vaccine hesitancy presents significant challenges to public health, exacerbated by a lack of cohesive policies in Europe. Recognized as a complex social phenomenon influenced by various factors, vaccine hesitancy threatens health systems and public trust. This paper analyses the political background and current gaps in policies addressing vaccine hesitancy, with a specific focus on the role of healthcare authorities, organizations and professiona…
Notes on the Intersection Between Sociology and Public Health
This article aims to provide a reflection triggered by a ‘round table’ discussion at the VAX-TRUST project final conference regarding the interconnection between health sociology and public health. This interconnection is characterized by complexity, as it involves navigating the various ways in which sociological perspectives can inform and contribute to our understanding of health issues and the development of health interventions. Within these…
Pain by proxy
More than meets the eye
Caring practices during vaccination encounters are deeply interwoven with materiality, encompassing everyday objects and elements that play a crucial role for all actors involved. However, the significance of these materialities in shaping caring relationships within vaccination practices has been largely overlooked. This research seeks to fill that gap by exploring how mundane elements, such as the objects present during vaccination, contribute …
Re-Defining the Family Biography When a Child Suffers from a Life-Limiting Illness
This study intends to move beyond the parent-child dichotomy to study the experience of chronic illness within the family setting by also focusing on young siblings. The study will mobilize the accounts of both mothers and siblings of children with a life-limiting illness to understand the biographical impact of a critical situation. Seven siblings and five mothers participated in the research. In-depth interviews and interviews using the 'draw-w…
Sociology (22 obras) · Psychology (18 obras) · Medicine (13 obras) · Political science (13 obras) · Social science (12 obras) · Vaccine Coverage and Hesitancy (8 obras) · Computer Science (7 obras) · Health care (7 obras) · Qualitative research (7 obras) · Ethnography (6 obras)