James M Dubois
Dados Biográficos
| ID | 259956 |
|---|---|
| NOME | James M Dubois |
| PRENOMES | James M |
| SOBRENOME | Dubois |
| ASSINATURA | DUBOIS J M |
| AFILIAÇÕES | Washington University in St. Louis |
| ORCID | 0000-0002-3712-7051 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 25 |
| TOTAL DE CITAÇÕES | 7 |
| TOTAL COMO AUTOR | 25 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 1991 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 2 |
Religious beliefs and practices, political orientation, and distrust in healthcare predict attitudes toward mRNA vaccines in the United States
Religion has contributed to societal divides regarding COVID-19 mRNA vaccines. In this study, we conducted a secondary analysis of a survey of U.S. adults ( N = 4939) focused on how religious affiliations, beliefs, and practices impact attitudes toward genetic and genomic activities, one of which was mRNA vaccines. The dataset included large samples of participants from six religious groups in the U.S. (Black Protestant, Catholic, Evangelical Pro…
Attitudes toward genomic health care among Christian dones in the United States
Objective: Recent research has explored the phenomenon of religious residue, which describes the tendency for religious cognitions, emotions, and behaviors to linger after deidentification from religion. We sought to test the religious residue effect in health-related attitudes. Methods: = 459) in the United States. Results: Overall, results revealed that religious dones' health-related attitudes largely mirror the never religious participants'. …
Responsible Sharing of Qualitative Research Data
Qualitative research data, such as data from focus groups and in-depth interviews, are increasingly made publicly available and used by secondary researchers, which promotes open science and improves research transparency. This has prompted concerns about the sensitivity of these data, participant confidentiality, data ownership, and the time burden and cost of de-identifying data. As more qualitative researchers (QRs) share sensitive data, they …
The Bioethicist as Healer
Combativeness is a social illness. We are surrounded by culture wars over abortion, vaccine mandates, transgender care, how we die, and even how we define death. The problem is not that we disagree, but how we disagree: too often, with anger, aggression, and a sense of urgency to win against the other. Bioethicists have the knowledge and skills needed to model constructive disagreement and respectful calls for change. Bioethicists may have increa…
The Microethics of Communication in Health Care
In almost every clinical interaction, clinicians must navigate interpersonal challenges with near‐instantaneous responses to patients. Yet medical ethics has largely overlooked these small, interpersonal exchanges, instead focusing on “big” ethical problems, such as euthanasia, brain death, or genetic modification. In 1995, Paul Komesaroff proposed the concept of microethics as a nonprinciplist approach to ethics that focuses on “what happens in …
Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer
Effective communication is integral to patient and family-centered care in pediatric and adolescent and young adult (AYA) oncology and improving healthcare delivery and outcomes. There is limited knowledge about whether AYAs and parents have similar communication preferences and needs. By eliciting and comparing communication advice from AYAs and parents, we can identify salient guidance for how clinicians can better communicate. We performed sec…
A Content Analysis of 100 Qualitative Health Research Articles to Examine Researcher-Participant Relationships and Implications for Data Sharing
We conducted a qualitative content analysis of health science literature ( N = 100) involving qualitative interviews or focus groups. Given recent data sharing mandates, our goal was to characterize the nature of relationships between the researchers and participants to inform ethical deliberations regarding qualitative data sharing and secondary analyses. Specifically, some researchers worry that data sharing might harm relationships, while othe…
Understanding the Use of Optimal Formatting and Plain Language When Presenting Key Information in Clinical Trials
Recent revisions to the Common Rule require that consent documents begin with a focused presentation of the study's key information that is organized to facilitate understanding. We surveyed 1,284 researchers working with older adults or individuals with Alzheimer's disease, supplemented with 60 qualitative interviews, to understand current use and barriers to using evidence-based formatting and plain language in key information. Researchers repo…
Parental Attitudes toward Artificial Intelligence-Driven Precision Medicine Technologies in Pediatric Healthcare
Precision medicine relies upon artificial intelligence (AI)-driven technologies that raise ethical and practical concerns. In this study, we developed and validated a measure of parental openness and concerns with AI-driven technologies in their child's healthcare. In this cross-sectional survey, we enrolled parents of children n = 418) and confirmatory ( n = 386) factor analysis. We developed a 12-item measure of parental openness to AI-driven t…
Navigating Complex, Ethical Problems in Professional Life
Is it time to share qualitative research data
Policies by the National Institutes of Health and the National Science Foundation, as well as scandals surrounding failures to reproduce the findings of key studies in psychology, have generated increased calls for sharing research data. Most of these discussions have focused on quantitative, rather than qualitative, research data. This paper examines scientific, ethical, and policy issues surrounding sharing qualitative research data. We conside…
It is time to share (some) qualitative data
Examining Data Repository Guidelines for Qualitative Data Sharing
Qualitative data provide rich information on research questions in diverse fields. Recent calls for increased transparency and openness in research emphasize data sharing. However, qualitative data sharing has yet to become the norm internationally and is particularly uncommon in the United States. Guidance for archiving and secondary use of qualitative data is required for progress in this regard. In this study, we review the benefits and concer…
Are Leadership and Management Essential for Good Research? An Interview Study of Genetic Researchers
Principal investigators are responsible for a myriad of leadership and management activities in their work. The practices they use to navigate these responsibilities ultimately influence the quality and integrity of research. However, leadership and management roles in research have received scant empirical examination. Semi-structured interviews with 32 National Institutes of Health (NIH)-funded genetic researchers revealed that they considered …
Differences in preferences for models of consent for biobanks between Black and White women
Research Ethics Education for Community-Engaged Research
Community engagement is increasingly becoming an integral part of research. “Community-engaged research” (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We—a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR—have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2)…
Restoring Balance
A diverse panel convened in June 2011 to explore a dilemma in human research: some traits may make individuals or communities particularly vulnerable to a variety of harms in research; however, well-intended efforts to protect these vulnerable individuals and communities from harm may actually generate a series of new harms. We have presented a consensus statement forged by the panel through discussion during a 2-day meeting and the article-writi…
Medical Business Ethics Education
The Bander Center for Medical Business Ethics’ goals and programs. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
The Biomedical Ethics Ontology Proposal
KOEPSELL ET AL. (2009) DESCRIBE AN IDEAL biomedical ethics committee environment with efficiencies such as electronic and universal application forms and consent templates, automated decision-trees, and broad sharing of data. However, it is unclear that a biomedical ethics ontology (BMEO) is necessary or even helpful in establishing such environment. Two features of any applied ontology are particularly problematic in establishing a useful BMEO: …
Hidden Empirical Research Ethics
We hypothesized that a significant amount of empirical data pertinent to research ethics is currently inaccessible to research ethics committee or Institutuional Review Board (IRB) members for at least three reasons: It is published in non-ethics journals; articles are not adequately indexed using ethics-related keywords; and articles do not discuss the ethical significance of their data. We reviewed all articles from three health journals from J…
Hidden Data for Research Ethicists
THIS SPECIAL SECTION OF THE Journal of Empirical Research on Human Research Ethics (JERHRE) is based upon the assumption that much of the best empirical data relevant to research ethics is hidden from the view of Research Ethics Committee (REC) members and others who are interested in research ethics. There are at least three different senses in which ethics-relevant empirical research may be hidden: (1) it may be published in a journal that ethi…
When Is Informed Consent Appropriate in Educational Research
Beyond the naturalistic fallacy
Beyond the naturalistic fallacy
Modernity, Aesthetics, and the Bounds of Art
Journal Article Book Reviews Get access Modernity, Aesthetics, and the Bounds of Art. By Peter J. Mccormick (Ithaca, New York: Cornell University Press, 1990. Pp. xiii + 349. Price $14.95.) James M. DuBois James M. DuBois Internationale Akademiefur Philosophie, Liechtenstein Search for other works by this author on: Oxford Academic Google Scholar The Philosophical Quarterly, Volume 41, Issue 165, October 1991, Pages 506–507, https://doi.org/10.23…
Examining Data Repository Guidelines for Qualitative Data Sharing
Qualitative data provide rich information on research questions in diverse fields. Recent calls for increased transparency and openness in research emphasize data sharing. However, qualitative data sharing has yet to become the norm internationally and is particularly uncommon in the United States. Guidance for archiving and secondary use of qualitative data is required for progress in this regard. In this study, we review the benefits and concer…
A Content Analysis of 100 Qualitative Health Research Articles to Examine Researcher-Participant Relationships and Implications for Data Sharing
We conducted a qualitative content analysis of health science literature ( N = 100) involving qualitative interviews or focus groups. Given recent data sharing mandates, our goal was to characterize the nature of relationships between the researchers and participants to inform ethical deliberations regarding qualitative data sharing and secondary analyses. Specifically, some researchers worry that data sharing might harm relationships, while othe…
Are Leadership and Management Essential for Good Research? An Interview Study of Genetic Researchers
Principal investigators are responsible for a myriad of leadership and management activities in their work. The practices they use to navigate these responsibilities ultimately influence the quality and integrity of research. However, leadership and management roles in research have received scant empirical examination. Semi-structured interviews with 32 National Institutes of Health (NIH)-funded genetic researchers revealed that they considered …
Modernity, Aesthetics, and the Bounds of Art
Journal Article Book Reviews Get access Modernity, Aesthetics, and the Bounds of Art. By Peter J. Mccormick (Ithaca, New York: Cornell University Press, 1990. Pp. xiii + 349. Price $14.95.) James M. DuBois James M. DuBois Internationale Akademiefur Philosophie, Liechtenstein Search for other works by this author on: Oxford Academic Google Scholar The Philosophical Quarterly, Volume 41, Issue 165, October 1991, Pages 506–507, https://doi.org/10.23…
Beyond the naturalistic fallacy
Beyond the naturalistic fallacy
When Is Informed Consent Appropriate in Educational Research
Hidden Empirical Research Ethics
We hypothesized that a significant amount of empirical data pertinent to research ethics is currently inaccessible to research ethics committee or Institutuional Review Board (IRB) members for at least three reasons: It is published in non-ethics journals; articles are not adequately indexed using ethics-related keywords; and articles do not discuss the ethical significance of their data. We reviewed all articles from three health journals from J…
Hidden Data for Research Ethicists
THIS SPECIAL SECTION OF THE Journal of Empirical Research on Human Research Ethics (JERHRE) is based upon the assumption that much of the best empirical data relevant to research ethics is hidden from the view of Research Ethics Committee (REC) members and others who are interested in research ethics. There are at least three different senses in which ethics-relevant empirical research may be hidden: (1) it may be published in a journal that ethi…
Medical Business Ethics Education
The Bander Center for Medical Business Ethics’ goals and programs. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
The Biomedical Ethics Ontology Proposal
KOEPSELL ET AL. (2009) DESCRIBE AN IDEAL biomedical ethics committee environment with efficiencies such as electronic and universal application forms and consent templates, automated decision-trees, and broad sharing of data. However, it is unclear that a biomedical ethics ontology (BMEO) is necessary or even helpful in establishing such environment. Two features of any applied ontology are particularly problematic in establishing a useful BMEO: …
Research Ethics Education for Community-Engaged Research
Community engagement is increasingly becoming an integral part of research. “Community-engaged research” (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We—a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR—have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2)…
Restoring Balance
A diverse panel convened in June 2011 to explore a dilemma in human research: some traits may make individuals or communities particularly vulnerable to a variety of harms in research; however, well-intended efforts to protect these vulnerable individuals and communities from harm may actually generate a series of new harms. We have presented a consensus statement forged by the panel through discussion during a 2-day meeting and the article-writi…
Differences in preferences for models of consent for biobanks between Black and White women
Are Leadership and Management Essential for Good Research? An Interview Study of Genetic Researchers
Principal investigators are responsible for a myriad of leadership and management activities in their work. The practices they use to navigate these responsibilities ultimately influence the quality and integrity of research. However, leadership and management roles in research have received scant empirical examination. Semi-structured interviews with 32 National Institutes of Health (NIH)-funded genetic researchers revealed that they considered …
Examining Data Repository Guidelines for Qualitative Data Sharing
Qualitative data provide rich information on research questions in diverse fields. Recent calls for increased transparency and openness in research emphasize data sharing. However, qualitative data sharing has yet to become the norm internationally and is particularly uncommon in the United States. Guidance for archiving and secondary use of qualitative data is required for progress in this regard. In this study, we review the benefits and concer…
Is it time to share qualitative research data
Policies by the National Institutes of Health and the National Science Foundation, as well as scandals surrounding failures to reproduce the findings of key studies in psychology, have generated increased calls for sharing research data. Most of these discussions have focused on quantitative, rather than qualitative, research data. This paper examines scientific, ethical, and policy issues surrounding sharing qualitative research data. We conside…
It is time to share (some) qualitative data
Parental Attitudes toward Artificial Intelligence-Driven Precision Medicine Technologies in Pediatric Healthcare
Precision medicine relies upon artificial intelligence (AI)-driven technologies that raise ethical and practical concerns. In this study, we developed and validated a measure of parental openness and concerns with AI-driven technologies in their child's healthcare. In this cross-sectional survey, we enrolled parents of children n = 418) and confirmatory ( n = 386) factor analysis. We developed a 12-item measure of parental openness to AI-driven t…
Navigating Complex, Ethical Problems in Professional Life
Understanding the Use of Optimal Formatting and Plain Language When Presenting Key Information in Clinical Trials
Recent revisions to the Common Rule require that consent documents begin with a focused presentation of the study's key information that is organized to facilitate understanding. We surveyed 1,284 researchers working with older adults or individuals with Alzheimer's disease, supplemented with 60 qualitative interviews, to understand current use and barriers to using evidence-based formatting and plain language in key information. Researchers repo…
The Microethics of Communication in Health Care
In almost every clinical interaction, clinicians must navigate interpersonal challenges with near‐instantaneous responses to patients. Yet medical ethics has largely overlooked these small, interpersonal exchanges, instead focusing on “big” ethical problems, such as euthanasia, brain death, or genetic modification. In 1995, Paul Komesaroff proposed the concept of microethics as a nonprinciplist approach to ethics that focuses on “what happens in …
Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer
Effective communication is integral to patient and family-centered care in pediatric and adolescent and young adult (AYA) oncology and improving healthcare delivery and outcomes. There is limited knowledge about whether AYAs and parents have similar communication preferences and needs. By eliciting and comparing communication advice from AYAs and parents, we can identify salient guidance for how clinicians can better communicate. We performed sec…
A Content Analysis of 100 Qualitative Health Research Articles to Examine Researcher-Participant Relationships and Implications for Data Sharing
We conducted a qualitative content analysis of health science literature ( N = 100) involving qualitative interviews or focus groups. Given recent data sharing mandates, our goal was to characterize the nature of relationships between the researchers and participants to inform ethical deliberations regarding qualitative data sharing and secondary analyses. Specifically, some researchers worry that data sharing might harm relationships, while othe…
The Bioethicist as Healer
Combativeness is a social illness. We are surrounded by culture wars over abortion, vaccine mandates, transgender care, how we die, and even how we define death. The problem is not that we disagree, but how we disagree: too often, with anger, aggression, and a sense of urgency to win against the other. Bioethicists have the knowledge and skills needed to model constructive disagreement and respectful calls for change. Bioethicists may have increa…
Attitudes toward genomic health care among Christian dones in the United States
Objective: Recent research has explored the phenomenon of religious residue, which describes the tendency for religious cognitions, emotions, and behaviors to linger after deidentification from religion. We sought to test the religious residue effect in health-related attitudes. Methods: = 459) in the United States. Results: Overall, results revealed that religious dones' health-related attitudes largely mirror the never religious participants'. …
Responsible Sharing of Qualitative Research Data
Qualitative research data, such as data from focus groups and in-depth interviews, are increasingly made publicly available and used by secondary researchers, which promotes open science and improves research transparency. This has prompted concerns about the sensitivity of these data, participant confidentiality, data ownership, and the time burden and cost of de-identifying data. As more qualitative researchers (QRs) share sensitive data, they …
Religious beliefs and practices, political orientation, and distrust in healthcare predict attitudes toward mRNA vaccines in the United States
Religion has contributed to societal divides regarding COVID-19 mRNA vaccines. In this study, we conducted a secondary analysis of a survey of U.S. adults ( N = 4939) focused on how religious affiliations, beliefs, and practices impact attitudes toward genetic and genomic activities, one of which was mRNA vaccines. The dataset included large samples of participants from six religious groups in the U.S. (Black Protestant, Catholic, Evangelical Pro…
Psychology (19 obras) · Medicine (13 obras) · Political science (12 obras) · Engineering ethics (10 obras) · Ethics in Clinical Research (10 obras) · Computer Science (9 obras) · Ethics in medical practice (9 obras) · Epistemology (7 obras) · Law (7 obras) · Social Psychology (7 obras)