Hester Van De Bovenkamp
Dados Biográficos
| ID | 296513 |
|---|---|
| NOME | Hester Van De Bovenkamp |
| PRENOMES | Hester |
| SOBRENOME | Van De Bovenkamp |
| ASSINATURA | VAN DE BOVENKAMP H |
| AFILIAÇÕES | Erasmus University Rotterdam |
| ORCID | 0000-0002-6412-2707 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 39 |
| TOTAL DE CITAÇÕES | 81 |
| TOTAL COMO AUTOR | 39 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2009 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 6 |
The Camera Rolls, Everyone, Shhh
This study contributes to the call for more reflexive accounts of arts-based participatory research by offering an in-depth account of the backstage processes of participatory video (PV) research projects with older adults. Drawing on two projects involving older adults in the context of research on age-friendly cities, we investigate how different film roles influence power dynamics within participatory video research. Using a responsive evaluat…
Art of conveying an experience
Studying patient experience has become increasingly important for providing alternative perspectives on healthcare and quality improvement. Understanding these experiences contributes to improving quality of care and aligning healthcare delivery with patients' preferences and values. One method for exploring such experiences is the use of film. Examples such as Experience Based Co-Design (EBCD) and Database of Individual Patient Experiences exemp…
Frontline professionals' experiences of navigating boundaries in a layered care and support system for individuals with complex care needs in the Netherlands
Fragmented care systems, characterized by horizontal and vertical boundaries, hinder interprofessional collaboration for individuals with complex care needs. This study explores how frontline professionals navigate these boundaries to foster collaboration within a national program promoting integrated care for individuals with 'misunderstood behaviour' in the Netherlands. Using a boundary work lens, we analysed 44 semi-structured interviews with …
Beyond the Queue
BACKGROUND: Waiting is an important topic in healthcare debates, mostly discussed in the form of waiting lists and waiting times. In this discourse, the experiential element of waiting stays hidden. Understanding the waiting experiences of patients can help to better understand healthcare waiting practices, which have a large impact on patients. METHODS: We performed a thematic analysis on 12 patients' books of women with breast cancer. We focuse…
The patient representation struggle during the Covid‐19 pandemic
BACKGROUND: The role of patient participation and representation during crises, such as the COVID-19 pandemic, has been under-researched. Existing studies paint a pessimistic picture of patient representation during the pandemic. However, there are indications that patient representatives have adapted to the new situation and can contribute to the resilience of healthcare systems. This paper aims to further explore the potential contribution of p…
Different views on collaboration between older persons, informal caregivers and care professionals
BACKGROUND: Informal care features high on the policy agenda of many countries to deal with workforce shortages. As a consequence, care provision increasingly takes place in the care triad of care recipients, informal caregivers and care professionals. How collaboration between care partners takes shape depends on how the different partners perceive this collaboration. This paper aims to investigate the relative importance of the different aspect…
Engaging citizens in experiments with computational analysis of patient stories
In recent years, citizen engagement in policy and research has gained considerable momentum. In the healthcare domain, patient narratives, through various mediums, have emerged as a valuable source of insight into the experiences of patients and the healthcare system. Recognizing the value of such textual data, diverse analytical methods have been developed, spanning from text mining to narrative analysis. This article presents experiments that c…
The role of objects in negotiations in convoys of care
Due to an increased policy focus on informal care in many Western countries, professionals and informal caregivers increasingly grow more interdependent. Increased involvement of informal caregivers in professional care has consequences for the work of professionals, the care that is received by care recipients, and the role of informal caregivers. Care needs to be negotiated between them within the dynamic networks of care recipients and caregiv…
Involving citizens in regulation
The literature on responsive regulation argues that citizens should be involved in regulatory practices to avoid capture between regulator and regulatee. It also argues that including citizens can add an important perspective to regulatory practices. However, we know little about how citizens' perspectives are brought into regulatory practices. This paper draws on existing qualitative research to compare and analyze four cases of experimental par…
Caring peripheries
The centralisation of acute health care is a key policy concern in many countries. Less attention has been given to the side effects of centralisation: peripheralisation, occurring mainly in rural areas and post-industrial towns. In this research, we start filling this gap by exploring how this trend of concentration of health care can contribute to a phenomenon referred to as 'discursive peripheralisation'. This article contributes to the litera…
Value-based health care in translation
In this article we examine the fragmented interpretation and implementation of a remarkably popular concept, value-based health care (VBHC). By building on a case study of a project team working on the development of value-based primary care services for elderly patients, we shed new light on the way in which VBHC transitions from theory to practice. The concept of 'translation' is used to theoretically frame our analysis. Between June 2021 and M…
Creativity at the margins
BACKGROUND: Peripheral areas are often overlooked in health-care research but they in fact deserve specific attention. Such areas struggle to maintain access to good quality health-care services due to their geographical context. At the same time, new interventions or promising innovations often emerge in places where creativity is urgently needed. In this paper, we explore this creativity at the margins in older persons care organizations in per…
The clocks run at slightly different speeds. Clashing timeframes in Covid-19 health risk governance
Decision-making processes in times of crisis are rarely scrutinised. In this study we open up the ‘black box’ of regional COVID-19 decision-making. From March 2020 to June 2021, we had the unique opportunity to do (mostly) on-site ethnographic research and watch the unfolding of COVID-19 decision-making, as this took place in meetings. This enabled us to examine how timeframes played a key role within an important decision-making forum in the Net…
Does structural form matter? A comparative analysis of pooled procurement mechanisms for health commodities
INTRODUCTION: Pooled procurement can be seen as a collaboration initiative of buyers. Such mechanisms have received increased attention during the Covid-19 pandemic to improve access to affordable and quality-assured health commodities. The structural form of pooled procurement mechanisms ranges from a third-party organization that procures on behalf of its buyers to a buyer's owned mechanism in which buyers operate more collaboratively. However,…
Governing the resilient city
Resilience is increasingly used as a new discourse for dealing with future shocks, crises and transition in urban governance. Although embraced in policy and academia, resilience is also severely critiqued as a continuation of neo-liberal thinking. To avoid the trap of imposing a meta-narrative on resilience, we argue that resilience should be treated as a ‘matter of empirics’. Using a governmentality lens, we empirically investigate how the resi…
Framing the pandemic
In this paper we explore the impact of the emerging COVID-19 pandemic on the governance of healthcare in the Netherlands. In doing so, we re-examine the idea that a crisis necessarily leads to processes of transition and change by focusing on crisis as a specific language of organizing collective action instead. Framing a situation as a crisis of a particular kind allows for specific problem definitions, concurrent solutions and the inclusion and…
Ask us! Adjusting experience‐based codesign to be responsive to people with intellectual disabilities, serious mental illness or older persons receiving support with independent living
INTRODUCTION: Experience-based codesign (EBCD) is a valuable tool for participatory quality improvement. However, the EBCD process needs to be adjusted to make it suitable for long-term care. The focus of the improvement process needs to shift to the care relationship, as this is an important part of the quality of care in these settings. Furthermore, the EBCD process needs to be made more accessible to vulnerable populations. METHODS: Through a …
Burden of support
Community housing services adopt care models such as rehabilitation, recovery-oriented care and person-centered planning to improve the quality of life of service users with an intellectual or psychiatric disability. However, the way these care models are implemented and practiced can negatively impact service users' experience with the service as their complex needs go unmet. In this paper, we conceptualize these experiences through developing t…
Who contextualises clinical epidemiological evidence? A political analysis of the problem of evidence-based medicine in the layered Dutch healthcare system
We critically examine the discussion on the role of evidence-based medicine (EBM) in healthcare governance. We take the institutionally layered Dutch healthcare system as our case study. Here, different actors are involved in the regulation, provision and financing of healthcare services. Over the last decades, these actors have related to EBM to inform their actor specific roles. At the same time, EBM has increasingly been problematised. To bett…
In the works
In the September 2019 Special Issue of Health Expectations on Patient and Public Involvement and Engagement (PPIE) initiatives, Hickey and Chambers1 highlighted ‘the importance of [...] promoting PPIE across all areas of health and social care both nationally and internationally’ (p. 607). This resonates with the widespread recognition of PPIE's potential to improve the quality of decision-making and increase fairness, responsiveness and legitima…
Tinkering as Collective Practice
The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional–client relationship as they involve family members, other professionals and community organisations. Good care should acknowledge this relational complexity, which requires a collective handling of the tens…
Tackling the problem of regulatory pressure in Dutch elderly care
Practicing Corona – Towards a research agenda of health policies
As Corona virus is putting a huge stress on healthcare systems around the world, analysts of health policy will have to respond with starting up research on the consequences of current policies. In this paper, we propose an agenda for research of health policy from a governance perspective, focussing on the consequences of decision-making structures and practices, the mediatisation of the pandemic, the organisation of healthcare systems and the r…
Understanding patient experiences
Telling stories of illness is the attempt, instigated by the body's disease, to give a voice to an experience that medicine cannot describe. (Frank, 2013, p. 18) The value and benefits of patient stories are increasingly recognized. A recent editorial in this journal emphasized the importance of these stories for improving the quality of health-care services.1 Similarly, using patient stories for self-help and research are propagated.2, 3 Placing…
Strengthening the local representative system
Local democracy has increasingly faced problems such as declining voter turnout and decreasing trust in political parties. Certain forms of participatory democracy have been introduced to address political disengagement. Often these efforts do not deliver the envisaged results, as they exacerbate existing inequalities by attracting only certain groups of citizens. This paper takes a close look at representation to find out if and how it can stren…
The making of a European healthcare union
European Union (EU) involvement in healthcare policies is growing, despite the fact that national governments prefer to keep an almost exclusive say in these policies. This article explains how this shift of authority could happen and explores whether it will lead to a European healthcare union. It argues that federalism offers the most fruitful way to do so because of its sensitivity to the EU's institutional settings and to the territorial dime…
Co-production in healthcare
Co-production in healthcare is receiving increasing attention; however, insight into the process of co-production is scarce. This article explores why hospitals involve patients and staff in co-production activities and hospitals’ experiences with co-production in practice. A qualitative study with semi-structured interviews ( N = 27), observations (70 hours) and document analysis was conducted in five Dutch hospitals, which involved patients and…
Institutional Layering in Governing Healthcare Quality
Since the 1980s, regulated markets and New Public Management have been introduced in the public sector across the world. How they have affected existing governance mechanisms such as self‐regulation and state regulation has remained largely unexplored, however. This article examines the origins and consequences of institutional layering in governing healthcare quality. Dutch health care, where a market‐based system has been introduced, is used as…
Working with layers
Institutional arrangements used to steer public policies have increasingly become layered. Inspired by the literature on institutional layering and institutional work, this paper aims to make a contribution to our understanding of institutional layering. We do so by studying an interesting case of layering: the Dutch hospital sector. We focus on the actors responsible for the internal governance (Board of Directors and Supervisory Boards) and the…
Framing the pandemic
In this paper we explore the impact of the emerging COVID-19 pandemic on the governance of healthcare in the Netherlands. In doing so, we re-examine the idea that a crisis necessarily leads to processes of transition and change by focusing on crisis as a specific language of organizing collective action instead. Framing a situation as a crisis of a particular kind allows for specific problem definitions, concurrent solutions and the inclusion and…
Representative claims in practice
Tinkering as Collective Practice
The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional–client relationship as they involve family members, other professionals and community organisations. Good care should acknowledge this relational complexity, which requires a collective handling of the tens…
Involving citizens in regulation
The literature on responsive regulation argues that citizens should be involved in regulatory practices to avoid capture between regulator and regulatee. It also argues that including citizens can add an important perspective to regulatory practices. However, we know little about how citizens' perspectives are brought into regulatory practices. This paper draws on existing qualitative research to compare and analyze four cases of experimental par…
Governing the resilient city
Resilience is increasingly used as a new discourse for dealing with future shocks, crises and transition in urban governance. Although embraced in policy and academia, resilience is also severely critiqued as a continuation of neo-liberal thinking. To avoid the trap of imposing a meta-narrative on resilience, we argue that resilience should be treated as a ‘matter of empirics’. Using a governmentality lens, we empirically investigate how the resi…
Forging a fit between technology and morality
Frontline professionals' experiences of navigating boundaries in a layered care and support system for individuals with complex care needs in the Netherlands
Fragmented care systems, characterized by horizontal and vertical boundaries, hinder interprofessional collaboration for individuals with complex care needs. This study explores how frontline professionals navigate these boundaries to foster collaboration within a national program promoting integrated care for individuals with 'misunderstood behaviour' in the Netherlands. Using a boundary work lens, we analysed 44 semi-structured interviews with …
Burden of support
Community housing services adopt care models such as rehabilitation, recovery-oriented care and person-centered planning to improve the quality of life of service users with an intellectual or psychiatric disability. However, the way these care models are implemented and practiced can negatively impact service users' experience with the service as their complex needs go unmet. In this paper, we conceptualize these experiences through developing t…
Strengthening the local representative system
Local democracy has increasingly faced problems such as declining voter turnout and decreasing trust in political parties. Certain forms of participatory democracy have been introduced to address political disengagement. Often these efforts do not deliver the envisaged results, as they exacerbate existing inequalities by attracting only certain groups of citizens. This paper takes a close look at representation to find out if and how it can stren…
Politics of policy learning
In Dutch healthcare, new market mechanisms have been introduced on an experimental basis in an attempt to contain costs and improve quality. Informed by a constructivist approach, we demonstrate that such experiments are not neutral testing grounds. Drawing from semi-structured interviews and policy texts, we reconstruct an experiment on free pricing in dental care that turned into a critical example of market failure, influencing developments in…
The role of objects in negotiations in convoys of care
Due to an increased policy focus on informal care in many Western countries, professionals and informal caregivers increasingly grow more interdependent. Increased involvement of informal caregivers in professional care has consequences for the work of professionals, the care that is received by care recipients, and the role of informal caregivers. Care needs to be negotiated between them within the dynamic networks of care recipients and caregiv…
Caring peripheries
The centralisation of acute health care is a key policy concern in many countries. Less attention has been given to the side effects of centralisation: peripheralisation, occurring mainly in rural areas and post-industrial towns. In this research, we start filling this gap by exploring how this trend of concentration of health care can contribute to a phenomenon referred to as 'discursive peripheralisation'. This article contributes to the litera…
Creating citizen-consumers
Patient participation in collective healthcare decision making
Objective To study whether the Dutch participation model is a good model of participation. Background Patient participation is on the agenda, both on the individual and the collective level. In this study, we focus on the latter by looking at the Dutch model in which patient organizations are involved in many formal decision‐making processes. This model can be described as neo‐corporatist. Design We did 52 interviews with actors in the healthcare…
Forging a fit between technology and morality
Institutional Layering in Governing Healthcare Quality
Since the 1980s, regulated markets and New Public Management have been introduced in the public sector across the world. How they have affected existing governance mechanisms such as self‐regulation and state regulation has remained largely unexplored, however. This article examines the origins and consequences of institutional layering in governing healthcare quality. Dutch health care, where a market‐based system has been introduced, is used as…
Including citizens in institutional reviews
BACKGROUND: Recent changes in the structure and policy context of Dutch health care have placed the issue of citizen participation high on the agenda of the Dutch Healthcare Inspectorate (IGZ), which conducts quality and safety reviews in medical practices and health-care institutions. With a few exceptions, the potential role that citizens can play in the regulation of health-care institutions is overlooked in research on patient/citizen partici…
An empirical study of patient participation in guideline development
BACKGROUND: Patient participation on both the individual and the collective level attracts broad attention from policy makers and researchers. Participation is expected to make decision making more democratic and increase the quality of decisions, but empirical evidence for this remains wanting. OBJECTIVE: To study why problems arise in participation practice and to think critically about the consequence for future participation practices. We con…
Co-production in healthcare
Co-production in healthcare is receiving increasing attention; however, insight into the process of co-production is scarce. This article explores why hospitals involve patients and staff in co-production activities and hospitals’ experiences with co-production in practice. A qualitative study with semi-structured interviews ( N = 27), observations (70 hours) and document analysis was conducted in five Dutch hospitals, which involved patients and…
The making of a European healthcare union
European Union (EU) involvement in healthcare policies is growing, despite the fact that national governments prefer to keep an almost exclusive say in these policies. This article explains how this shift of authority could happen and explores whether it will lead to a European healthcare union. It argues that federalism offers the most fruitful way to do so because of its sensitivity to the EU's institutional settings and to the territorial dime…
The complexity of shaping self‐management in daily practice
The discussion on self-management should account for the fact that how we define self-management is very much a normative issue. It depends on the norms and values of patients, professionals and underlying health-care policies. Differing ideas present professionals with ethical dilemmas which they should reflect on. However, professional reflection alone is not enough to deal with these dilemmas. The participation agenda needs far wider ranging r…
Working with layers
Institutional arrangements used to steer public policies have increasingly become layered. Inspired by the literature on institutional layering and institutional work, this paper aims to make a contribution to our understanding of institutional layering. We do so by studying an interesting case of layering: the Dutch hospital sector. We focus on the actors responsible for the internal governance (Board of Directors and Supervisory Boards) and the…
The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study
BACKGROUND: Patient involvement in the decision-making process, especially for chronically ill elderly patients, has become an important element of patient-centred primary care in many countries, including the Netherlands. This study openly explores different perspectives of patients, informal caregivers and primary care professionals on patient involvement in primary care team interactions. METHODS: Sixty-four qualitative semi-structured intervi…
Involving Patients and Families in the Analysis of Suicides, Suicide Attempts, and Other Sentinel Events in Mental Healthcare
Involving patients and families in mental healthcare is becoming more commonplace, but little is known about how they are involved in the aftermath of serious adverse events related to quality of care (sentinel events, including suicides). This study explores the role patients and families have in formal processes after sentinel events in Dutch mental healthcare. We analyzed the existing policies of 15 healthcare organizations and spoke with 35 s…
Politics of policy learning
In Dutch healthcare, new market mechanisms have been introduced on an experimental basis in an attempt to contain costs and improve quality. Informed by a constructivist approach, we demonstrate that such experiments are not neutral testing grounds. Drawing from semi-structured interviews and policy texts, we reconstruct an experiment on free pricing in dental care that turned into a critical example of market failure, influencing developments in…
Representative claims in practice
Strengthening the local representative system
Local democracy has increasingly faced problems such as declining voter turnout and decreasing trust in political parties. Certain forms of participatory democracy have been introduced to address political disengagement. Often these efforts do not deliver the envisaged results, as they exacerbate existing inequalities by attracting only certain groups of citizens. This paper takes a close look at representation to find out if and how it can stren…
Tackling the problem of regulatory pressure in Dutch elderly care
Practicing Corona – Towards a research agenda of health policies
As Corona virus is putting a huge stress on healthcare systems around the world, analysts of health policy will have to respond with starting up research on the consequences of current policies. In this paper, we propose an agenda for research of health policy from a governance perspective, focussing on the consequences of decision-making structures and practices, the mediatisation of the pandemic, the organisation of healthcare systems and the r…
Understanding patient experiences
Telling stories of illness is the attempt, instigated by the body's disease, to give a voice to an experience that medicine cannot describe. (Frank, 2013, p. 18) The value and benefits of patient stories are increasingly recognized. A recent editorial in this journal emphasized the importance of these stories for improving the quality of health-care services.1 Similarly, using patient stories for self-help and research are propagated.2, 3 Placing…
Who contextualises clinical epidemiological evidence? A political analysis of the problem of evidence-based medicine in the layered Dutch healthcare system
We critically examine the discussion on the role of evidence-based medicine (EBM) in healthcare governance. We take the institutionally layered Dutch healthcare system as our case study. Here, different actors are involved in the regulation, provision and financing of healthcare services. Over the last decades, these actors have related to EBM to inform their actor specific roles. At the same time, EBM has increasingly been problematised. To bett…
In the works
In the September 2019 Special Issue of Health Expectations on Patient and Public Involvement and Engagement (PPIE) initiatives, Hickey and Chambers1 highlighted ‘the importance of [...] promoting PPIE across all areas of health and social care both nationally and internationally’ (p. 607). This resonates with the widespread recognition of PPIE's potential to improve the quality of decision-making and increase fairness, responsiveness and legitima…
Tinkering as Collective Practice
The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional–client relationship as they involve family members, other professionals and community organisations. Good care should acknowledge this relational complexity, which requires a collective handling of the tens…
Ask us! Adjusting experience‐based codesign to be responsive to people with intellectual disabilities, serious mental illness or older persons receiving support with independent living
INTRODUCTION: Experience-based codesign (EBCD) is a valuable tool for participatory quality improvement. However, the EBCD process needs to be adjusted to make it suitable for long-term care. The focus of the improvement process needs to shift to the care relationship, as this is an important part of the quality of care in these settings. Furthermore, the EBCD process needs to be made more accessible to vulnerable populations. METHODS: Through a …
Burden of support
Community housing services adopt care models such as rehabilitation, recovery-oriented care and person-centered planning to improve the quality of life of service users with an intellectual or psychiatric disability. However, the way these care models are implemented and practiced can negatively impact service users' experience with the service as their complex needs go unmet. In this paper, we conceptualize these experiences through developing t…
Creativity at the margins
BACKGROUND: Peripheral areas are often overlooked in health-care research but they in fact deserve specific attention. Such areas struggle to maintain access to good quality health-care services due to their geographical context. At the same time, new interventions or promising innovations often emerge in places where creativity is urgently needed. In this paper, we explore this creativity at the margins in older persons care organizations in per…
The clocks run at slightly different speeds. Clashing timeframes in Covid-19 health risk governance
Decision-making processes in times of crisis are rarely scrutinised. In this study we open up the ‘black box’ of regional COVID-19 decision-making. From March 2020 to June 2021, we had the unique opportunity to do (mostly) on-site ethnographic research and watch the unfolding of COVID-19 decision-making, as this took place in meetings. This enabled us to examine how timeframes played a key role within an important decision-making forum in the Net…
Political science (31 obras) · Sociology (25 obras) · Health care (22 obras) · Medicine (20 obras) · Psychology (19 obras) · Public relations (17 obras) · Law (16 obras) · Mental Health and Patient Involvement (15 obras) · Computer Science (14 obras) · Business (13 obras)