Allyson C Bontempo
Dados Biográficos
| ID | 312806 |
|---|---|
| NOME | Allyson C Bontempo |
| PRENOMES | Allyson C |
| SOBRENOME | Bontempo |
| ASSINATURA | BONTEMPO A C |
| AFILIAÇÕES | Rutgers, the State University of New Jersey |
| ORCID | 0000-0002-5668-0223 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 8 |
| TOTAL DE CITAÇÕES | 5 |
| TOTAL COMO AUTOR | 8 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2022 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2025 |
| ÍNDICE H | 1 |
Ignored, dismissed, and minimized
The upsurge in the prevalence of contested, ambiguous, and difficult-to-diagnose illnesses presents challenges for clinicians who too often respond by invalidating patients' symptoms. Although numerous qualitative studies have reported the effects of invalidation on patients' psychological and behavioral outcomes, this body of research has not been systematically reviewed. Informed by Linehan's (1993) conceptualization of invalidation, this syste…
Conceptualizing Symptom Invalidation as Experienced by Patients With Endometriosis
The aim of this paper is to provide foundational work to standardize the conceptual definition of what I refer to as symptom invalidation by using invalidating environments and illness representations as guiding conceptual frameworks. Mixed deductive-inductive thematic analysis was used to analyze survey responses to an open-ended question gauging an invalidating interaction patients experienced with a clinician among 1038 patients with endometri…
Dilemmas and Strategy When Companion Participation During Appointments Differs from Patient and Companion Expectations
Cancer patients often attend medical interactions with at least one companion. The degree to which companions participate varies, ranging from passive observer to active advocate. However, the structure of the medical interaction often promotes dyadic rather than triadic communication, creating ambiguity about to the degree to which companions can and should participate. Participants (N = 34, 16 dyads) included gynecologic cancer patients who wer…
Healthcare Providers’ Impact on the Care Experiences of Patients with Endometriosis
Endometriosis is a chronic and often painful inflammatory disease affecting one in ten biological females. It has been characterized as enigmatic and the average diagnostic delay is nearly seven years, time which patients experience as tumultuous and uncertain. This paper presents responses to a final open comment question of a large-scale survey documenting patients’ experiences with (mis)diagnosis and highlights how patients perceived healthcar…
Patient attitudes toward clinicians’ communication of diagnostic uncertainty and its impact on patient trust
Some evidence suggests that clinicians' discomfort with diagnostic uncertainty can lead to communication by clinicians that can be perceived by patients as dismissive of their symptoms. The latter has been documented extensively in prior work. A remedy may be a leveling of clinicians with patients via the transparent communication of their diagnostic uncertainty in the medical interaction. Thus, this paper sought to explore 1) patients' attitude …
Aligned and Divergent Perceptions of Support Persons' Role in Triadic Gynecologic Cancer Communication
Health care providers routinely advise cancer patients to involve support persons in oncology care to fulfill critical support roles. This qualitative descriptive study explored alignment of triadic perceptions of support person involvement in oncology treatment visits and cancer-related care from the perspectives of patients with gynecologic cancer ( n = 18), regular visit-attending support people ( n = 16), and health care providers ( n = 10), …
We Cannot Have any Negativity
This study aimed to elucidate whether gynecologic cancer patients and their support persons have certain expectancies for emotion and whether these expectancies, if they exist, affect cancer-related communication. Semi-structured interviews ( N = 34) were conducted separately with 18 patients and one of their support persons ( n = 16). Thematic analysis revealed a subset of patients and support persons expected patients to not have any negative e…
The need for a standardized conceptual term to describe invalidation of patient symptoms
In this paper, I comment on a growing literature documenting that many patients perceive their symptoms have been dismissed, ignored, not taken seriously, not believed, etc. (i.e. invalidated) by healthcare providers. I provide a narrative review of research reporting on this patient-provider phenomenon, invalidation of patient symptoms, in various illness contexts in order to highlight the variability concerning how scholars have been referring …
The need for a standardized conceptual term to describe invalidation of patient symptoms
In this paper, I comment on a growing literature documenting that many patients perceive their symptoms have been dismissed, ignored, not taken seriously, not believed, etc. (i.e. invalidated) by healthcare providers. I provide a narrative review of research reporting on this patient-provider phenomenon, invalidation of patient symptoms, in various illness contexts in order to highlight the variability concerning how scholars have been referring …
We Cannot Have any Negativity
This study aimed to elucidate whether gynecologic cancer patients and their support persons have certain expectancies for emotion and whether these expectancies, if they exist, affect cancer-related communication. Semi-structured interviews ( N = 34) were conducted separately with 18 patients and one of their support persons ( n = 16). Thematic analysis revealed a subset of patients and support persons expected patients to not have any negative e…
Aligned and Divergent Perceptions of Support Persons' Role in Triadic Gynecologic Cancer Communication
Health care providers routinely advise cancer patients to involve support persons in oncology care to fulfill critical support roles. This qualitative descriptive study explored alignment of triadic perceptions of support person involvement in oncology treatment visits and cancer-related care from the perspectives of patients with gynecologic cancer ( n = 18), regular visit-attending support people ( n = 16), and health care providers ( n = 10), …
We Cannot Have any Negativity
This study aimed to elucidate whether gynecologic cancer patients and their support persons have certain expectancies for emotion and whether these expectancies, if they exist, affect cancer-related communication. Semi-structured interviews ( N = 34) were conducted separately with 18 patients and one of their support persons ( n = 16). Thematic analysis revealed a subset of patients and support persons expected patients to not have any negative e…
The need for a standardized conceptual term to describe invalidation of patient symptoms
In this paper, I comment on a growing literature documenting that many patients perceive their symptoms have been dismissed, ignored, not taken seriously, not believed, etc. (i.e. invalidated) by healthcare providers. I provide a narrative review of research reporting on this patient-provider phenomenon, invalidation of patient symptoms, in various illness contexts in order to highlight the variability concerning how scholars have been referring …
Healthcare Providers’ Impact on the Care Experiences of Patients with Endometriosis
Endometriosis is a chronic and often painful inflammatory disease affecting one in ten biological females. It has been characterized as enigmatic and the average diagnostic delay is nearly seven years, time which patients experience as tumultuous and uncertain. This paper presents responses to a final open comment question of a large-scale survey documenting patients’ experiences with (mis)diagnosis and highlights how patients perceived healthcar…
Patient attitudes toward clinicians’ communication of diagnostic uncertainty and its impact on patient trust
Some evidence suggests that clinicians' discomfort with diagnostic uncertainty can lead to communication by clinicians that can be perceived by patients as dismissive of their symptoms. The latter has been documented extensively in prior work. A remedy may be a leveling of clinicians with patients via the transparent communication of their diagnostic uncertainty in the medical interaction. Thus, this paper sought to explore 1) patients' attitude …
Dilemmas and Strategy When Companion Participation During Appointments Differs from Patient and Companion Expectations
Cancer patients often attend medical interactions with at least one companion. The degree to which companions participate varies, ranging from passive observer to active advocate. However, the structure of the medical interaction often promotes dyadic rather than triadic communication, creating ambiguity about to the degree to which companions can and should participate. Participants (N = 34, 16 dyads) included gynecologic cancer patients who wer…
Ignored, dismissed, and minimized
The upsurge in the prevalence of contested, ambiguous, and difficult-to-diagnose illnesses presents challenges for clinicians who too often respond by invalidating patients' symptoms. Although numerous qualitative studies have reported the effects of invalidation on patients' psychological and behavioral outcomes, this body of research has not been systematically reviewed. Informed by Linehan's (1993) conceptualization of invalidation, this syste…
Conceptualizing Symptom Invalidation as Experienced by Patients With Endometriosis
The aim of this paper is to provide foundational work to standardize the conceptual definition of what I refer to as symptom invalidation by using invalidating environments and illness representations as guiding conceptual frameworks. Mixed deductive-inductive thematic analysis was used to analyze survey responses to an open-ended question gauging an invalidating interaction patients experienced with a clinician among 1038 patients with endometri…
Medicine (8 obras) · Psychology (8 obras) · Health care (5 obras) · Patient-Provider Communication in Healthcare (5 obras) · Social Psychology (5 obras) · Political science (4 obras) · Psychotherapist (4 obras) · Qualitative research (4 obras) · Family medicine (3 obras) · Thematic analysis (3 obras)