Rebecca C Knibb
Dados Biográficos
| ID | 326204 |
|---|---|
| NOME | Rebecca C Knibb |
| PRENOMES | Rebecca C |
| SOBRENOME | Knibb |
| ASSINATURA | KNIBB R C |
| AFILIAÇÕES | University of Derby |
| ORCID | 0000-0001-5561-0904 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 8 |
| TOTAL DE CITAÇÕES | 3 |
| TOTAL COMO AUTOR | 8 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2001 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2025 |
| ÍNDICE H | 1 |
Refinement and Validation of a New Patient‐Reported Experience Measure for Hearing Loss (My Hearing PREM)
CONTEXT: Patient-reported experience measures (PREMs) generate insights into daily challenges experienced when living with a chronic condition and experiences of care. There are no validated PREMs to measure the experience of hearing loss. OBJECTIVE: The aim of this study was to evaluate the psychometric properties of a newly developed tool, 'My Hearing PREM', designed to assess the experience of living with hearing loss and receiving audiology c…
It's a Permanent Struggle to Manage It Really
Food allergy (FA) is a potentially life-threatening condition which is associated with poor quality of life and psychological distress in patients and caregivers. Although FA is often seen as a condition that affects children, increasing numbers of adults have FA, either as a condition they have grown up with or they were diagnosed as an adult. No recent research has explored the lived experiences of adults with FA and how they manage this condit…
Development of the First Patient‐Reported Experience Measure (PREM) for Hearing Loss in Audiology Care—My Hearing PREM
CONTEXT: Patient-reported experience measures (PREMs) provide important insights into the challenges experienced when living with a chronic condition. Although patient-reported outcome measures (PROMs) exist in audiology, there are no validated PREMs to help clinicians understand patient perspectives and identify areas where patients may need additional support or interventions. OBJECTIVE: The aim of this study was to develop and evaluate content…
Preliminary development of proxy-rated quality-of-life scales for children and adults with Niemann-Pick type C
The NPCQLQ-C and NPCQLQ-A are the first disease-specific QoL scales to be developed for people living with NPC. This novel approach to scale development values the experiential, real life impact of living with NPC and focused on the lived-experiences and impact on QoL. The scales will enable healthcare professionals and researchers to have a better understanding and quantifiable measurement of the impact of living with NPC on a patient's daily li…
Validation of the Food Allergy Quality of Life—Parental Burden Questionnaire in the UK
Exploring quality of life in families of children living with and without a severe food allergy
Situation-specific cognitive behavioural self-therapy for erroneously suspected allergy or intolerance to a food. A short self-assessment tool
No unique role for nausea attributed to eating a food in the recalled acquisition of sensory aversion for that food
Exploring quality of life in families of children living with and without a severe food allergy
Situation-specific cognitive behavioural self-therapy for erroneously suspected allergy or intolerance to a food. A short self-assessment tool
No unique role for nausea attributed to eating a food in the recalled acquisition of sensory aversion for that food
No unique role for nausea attributed to eating a food in the recalled acquisition of sensory aversion for that food
Exploring quality of life in families of children living with and without a severe food allergy
Situation-specific cognitive behavioural self-therapy for erroneously suspected allergy or intolerance to a food. A short self-assessment tool
Validation of the Food Allergy Quality of Life—Parental Burden Questionnaire in the UK
Preliminary development of proxy-rated quality-of-life scales for children and adults with Niemann-Pick type C
The NPCQLQ-C and NPCQLQ-A are the first disease-specific QoL scales to be developed for people living with NPC. This novel approach to scale development values the experiential, real life impact of living with NPC and focused on the lived-experiences and impact on QoL. The scales will enable healthcare professionals and researchers to have a better understanding and quantifiable measurement of the impact of living with NPC on a patient's daily li…
Development of the First Patient‐Reported Experience Measure (PREM) for Hearing Loss in Audiology Care—My Hearing PREM
CONTEXT: Patient-reported experience measures (PREMs) provide important insights into the challenges experienced when living with a chronic condition. Although patient-reported outcome measures (PROMs) exist in audiology, there are no validated PREMs to help clinicians understand patient perspectives and identify areas where patients may need additional support or interventions. OBJECTIVE: The aim of this study was to develop and evaluate content…
Refinement and Validation of a New Patient‐Reported Experience Measure for Hearing Loss (My Hearing PREM)
CONTEXT: Patient-reported experience measures (PREMs) generate insights into daily challenges experienced when living with a chronic condition and experiences of care. There are no validated PREMs to measure the experience of hearing loss. OBJECTIVE: The aim of this study was to evaluate the psychometric properties of a newly developed tool, 'My Hearing PREM', designed to assess the experience of living with hearing loss and receiving audiology c…
It's a Permanent Struggle to Manage It Really
Food allergy (FA) is a potentially life-threatening condition which is associated with poor quality of life and psychological distress in patients and caregivers. Although FA is often seen as a condition that affects children, increasing numbers of adults have FA, either as a condition they have grown up with or they were diagnosed as an adult. No recent research has explored the lived experiences of adults with FA and how they manage this condit…
Medicine (8 obras) · Psychology (7 obras) · Clinical Psychology (5 obras) · Allergy (4 obras) · Food allergy (4 obras) · Food Allergy and Anaphylaxis Research (4 obras) · Audiology (2 obras) · Body Image and Dysmorphia Studies (2 obras) · Child Nutrition and Feeding Issues (2 obras) · Cognitive psychology (2 obras)