L Skyrme
Dados Biográficos
| ID | 33387 |
|---|---|
| NOME | L Skyrme |
| PRENOMES | L |
| SOBRENOME | Skyrme |
| ASSINATURA | SKYRME L |
| AFILIAÇÕES | Newcastle University |
| ORCID | 0000-0002-6173-0117 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 5 |
| TOTAL DE CITAÇÕES | 1 |
| OBRAS COMO AUTOR | 5 |
| OBRAS COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2016 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2023 |
| ÍNDICE H | 1 |
Digital arts – refugee engagement
Digital Arts – Refugee Engagement (DA-RE) is an exploratory research partnership between refugee youth, academics, practitioners and community activists. Arts-based activities were combined with digital literacy to develop the capabilities of refugee youth in Turkey and Bangladesh. DA-RE’s participants co-created digital arts and connected with one another across the two settings in a digital third space to share narratives from their situated pe…
The Lived Experience of Inequalities in the Provision of Treatment for Hepatitis C
The issues of health, illness, stigma and inequalities in healthcare provision, areas that in my role as a social researcher were already of interest and concern, shifted to a different perspective when I was diagnosed with hepatitis C. From this altered position, my body and lifeworld were a nexus point for a range of ongoing challenges around staying as well as possible, and the struggle to get my healthcare needs met. There is a gap between th…
Researching disabled children and young people's views on decision-making
Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children's vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. W…
Living with Duchenne Muscular Dystrophy
Interviews were conducted with boys and young men who have Duchenne muscular dystrophy, exploring their thoughts on making a decision to participate in medical research. This article focuses on one of the key findings, discussing how the participants identified their parents as carers, spokespersons and advisors. The term ‘relational autonomy’ encapsulates these co‐operative relationships, illustrating how they can help young people living with a…
I just try to be independent as much as possible’
Duchenne muscular dystrophy is a progressive muscle-wasting condition that only affects boys, most use a wheelchair by the age of 12 and increasing levels of support and medical intervention are needed as they mature into young adulthood. Medical research is working to find treatments and an eventual cure for Duchenne muscular dystrophy, and this research can require the participation of those with the condition. Therefore, boys and young men who…
Researching disabled children and young people's views on decision-making
Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children's vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. W…
Living with Duchenne Muscular Dystrophy
Interviews were conducted with boys and young men who have Duchenne muscular dystrophy, exploring their thoughts on making a decision to participate in medical research. This article focuses on one of the key findings, discussing how the participants identified their parents as carers, spokespersons and advisors. The term ‘relational autonomy’ encapsulates these co‐operative relationships, illustrating how they can help young people living with a…
I just try to be independent as much as possible’
Duchenne muscular dystrophy is a progressive muscle-wasting condition that only affects boys, most use a wheelchair by the age of 12 and increasing levels of support and medical intervention are needed as they mature into young adulthood. Medical research is working to find treatments and an eventual cure for Duchenne muscular dystrophy, and this research can require the participation of those with the condition. Therefore, boys and young men who…
Researching disabled children and young people's views on decision-making
Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children's vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. W…
The Lived Experience of Inequalities in the Provision of Treatment for Hepatitis C
The issues of health, illness, stigma and inequalities in healthcare provision, areas that in my role as a social researcher were already of interest and concern, shifted to a different perspective when I was diagnosed with hepatitis C. From this altered position, my body and lifeworld were a nexus point for a range of ongoing challenges around staying as well as possible, and the struggle to get my healthcare needs met. There is a gap between th…
Digital arts – refugee engagement
Digital Arts – Refugee Engagement (DA-RE) is an exploratory research partnership between refugee youth, academics, practitioners and community activists. Arts-based activities were combined with digital literacy to develop the capabilities of refugee youth in Turkey and Bangladesh. DA-RE’s participants co-created digital arts and connected with one another across the two settings in a digital third space to share narratives from their situated pe…
Political science (5 obras) · Sociology (5 obras) · Psychology (4 obras) · Developmental psychology (3 obras) · Disability Rights and Representation (3 obras) · Medicine (3 obras) · Social Psychology (3 obras) · Social science (3 obras) · Agency (philosophy (2 obras) · Children's Rights and Participation (2 obras)