Lisa Hinton
Dados Biográficos
| ID | 3582879 |
|---|---|
| NOME | Lisa Hinton |
| PRENOMES | Lisa |
| SOBRENOME | Hinton |
| ASSINATURA | HINTON L |
| AFILIAÇÕES | University of Oxford |
| ORCID | 0000-0002-6082-3151 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 23 |
| TOTAL DE CITAÇÕES | 8 |
| TOTAL COMO AUTOR | 23 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2015 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 2 |
Can It Happen Again? Using Co‐Produced Theatre to Explore the Challenges Faced by Couples Considering Pregnancy After a De Novo Genetic Diagnosis in a Child
Mapping the benefits and harms of antenatal and newborn screening programmes
Health screening is undergoing seismic change that includes the potential forpersonalized medicine, big data, whole genome sequencing, artificial intelligence and the development of novel and experimental therapies. Acceptability research typically gathers cross-sectional data that identifies and characterizes the harms and benefits of screening programmes, as well as the ways they are experienced, weighed and valued by different groups. Efforts …
“It's really easy to fall under the radar and get lost” – being unseen in postpartum care pathways after hypertensive pregnancy
Hypertensive disorders of pregnancy, experienced by around 10% of women, are among the most severe health problems affecting people during and following pregnancy. Symptoms can persist in the weeks and months following birth, with potential to impact longer-term health. Postnatal care has long been recognised as a critical period for mother and baby, and emerging evidence suggests it is a window of opportunity for cardiac remodelling after a hype…
Care without co‐presence
In this article we analyze how family involvement in intensive care in the United Kingdom (UK) was reconfigured through the reordering of proximity and distance during the first year of the COVID-19 pandemic, and the effects thereof. The introduction of visiting restrictions disrupted established modes of involvement in intensive care, prompting family members, hospital staff and, when able, patients, to craft alternative modes of involvement. Dr…
Family Caregivers' Experiences of Services for Children With Medical Complexity
BACKGROUND: Many high-income countries are seeking to adapt services to meet the needs of the growing population of children with medical complexity and their families but concerns have been raised about the quality of this care. To understand family caregivers' experiences of services and identify priorities for improvement we need to synthesise research about families' experiences of services for children with medical complexity. OBJECTIVES: To…
Rethinking ‘Recovery’
INTRODUCTION: Interpretations of 'recovery' from illness are complex and influenced by many factors, not least patient expectations and experiences. This paper examines meanings of 'recovery', and how it is strived towards, drawing on the example of COVID-19 infection. METHODS: Drawing on qualitative interviews (n = 93) conducted in the UK between February 2021 and July 2022, we compare adults' accounts of being admitted to an Intensive Care Unit…
After neonatal care, what next? A qualitative study of mothers’ post-discharge experiences after premature birth in Kenya
To support transitions home, strengthening the timing and adequacy of information provided to mothers at discharge from the neonatal unit in low-income settings in SSA and Asia - such as Kenya-is essential. Introducing strategies to build and assess mothers' competencies with skills such as breastfeeding and identifying signs of deterioration before discharge could support their smooth transition home. Targeted engagement interventions at the com…
Participatory Surveillance and Candidacy
Actively involving people in self-monitoring and management during their pregnancy is an emerging clinical and social practice. Self-monitoring of blood pressure and self-testing for proteinuria, key diagnostic tests for pre-eclampsia, are becoming commonplace in hypertensive pregnancies. While evidence exists on the acceptability and feasibility of self-monitoring blood pressure, evidence for self-testing for proteinuria in pregnancy is thin, wi…
Navigating uncertainties in critical care with Covid-19
Uncertainty is inherent in medicine and has been an enduring focus of enquiry in medical sociology. It is a particularly salient analytic concept in the context of a new emerging disease. Whilst a substantial body of work explores how clinicians manage uncertainty, scholarship that explores patients’ experiences and ways of managing uncertainty is less well developed. In this cross country research, we draw on two narrative interview studies with…
How women living with HIV in the UK manage infant-feeding decisions and vertical transmission risk – a qualitative study
The evolution of UK HIV and infant-feeding guidelines are not reflected in the experiences of women living with HIV. Clinicians' emphasis on reducing the risk of vertical transmission, without adequately considering personal, social and financial concerns, prevents women from making fully informed infant-feeding decisions. For some, seeking advice beyond their immediate clinical team was key to feeling empowered in their decision. The significant…
Infant feeding as a transgressive practice in the context of HIV in the UK
HIV transmission risk via breastfeeding is greatly reduced by antiretroviral therapy but is not zero. Current UK guidelines recommend exclusive formula feeding; however, women can breastfeed if they meet certain criteria. We examine the narrative accounts of mothers with HIV (pregnant or recently given birth) who navigated divergent cultural and national policy norms regarding infant feeding. Mothers with HIV, the majority of whom in the UK are o…
Benefits and harms adopted by health economic assessments evaluating antenatal and newborn screening programmes in OECD countries
What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study
The lack of ethnic diversity in health research participation is a multi-dimensional problem. Racism and intersectional disadvantage compel us to use racial and ethnic categories to explore health, but race theorists warn that these can be essentialising and pathologising. Yet, the alternative, the pursuit of colour-blindness, can render the impact of race and ethnicity on health invisible. This paper describes the attempt to recruit an ethnicall…
Public involvement in the governance of population-level biomedical research
Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 exper…
Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample
BACKGROUND: Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home-based BP management can be effective at maintaining optimal BP. OBJECTIVE: To describe the optimization of a digital intervention for stroke patients and the value of participant diversity, using the person-based approach (PBA) and integral patient and public involvement (PPI). SETTING AND PARTICIPANTS: …
You Probably Won't Notice Any Symptoms
Pregnancy is not a disease or illness, but requires clinical surveillance as life-threatening complications can develop. Preeclampsia, one such potentially serious complication, puts both mother and baby at risk. Self-monitoring blood pressure in the general population is well established, and its potential in pregnancy is currently being explored. In the context of self-monitoring, the information and guidance given to women regarding hypertensi…
Absorbing it all
In a context of increasing international dialogue around the appropriate means and ends of newborn screening programmes, it is critical to explore the perspectives of those directly impacted by such screening. This meta-ethnography uses a systematic review process to identify qualitative studies that focus on parents' experiences of newborn screening published in English-language academic journals from 2000 to 2019 (n = 36). The included studies …
Key issues for participatory research in the design and implementation of humanitarian assistance
BACKGROUND: Participatory approaches that engage affected populations are increasingly applied in humanitarian health programs in concert with emerging accountability frameworks and the rapid growth of research in these settings. Participatory initiatives within this domain appear to be largely adopted at an operational level and are infrequently reported as a component of research efforts. Yet the evidence of the benefits of research involving c…
The challenges of caring for children who require complex medical care at home
BACKGROUND: Increasing numbers of children with complex health-care needs are cared for at home by their family. The aim of this qualitative study was to explore the challenges experienced by families caring for children who need complex medical care at home. METHODS: We conducted a thematic analysis of eleven in-depth interviews with parents who carry out specialist medical procedures (eg, enteral feeding, bowel washouts and tracheostomy care) f…
Face-to-Face Compared With Online Collected Accounts of Health and Illness Experiences
Advocates of online alternatives to face-to-face interviewing suggest online approaches save money and time, whereas others have raised concerns about the quality and content of the resulting data. These issues affect researchers designing and costing their studies and application reviewers and research funders. We conducted a scoping review of English language articles describing the range of online alternative approaches. Furthermore, we system…
They don't know themselves, so how can they tell us
When a baby is diagnosed with a condition needing surgery they, and their family, start down an uncertain and unknown path. Living with uncertainty underpins every stage of the journey from hospital to home. These journeys span the highly technical to the mundane. They are likely to involve, at crucial points, medicalised and specialised neonatal and surgical care in paediatric centres of excellence where parents are mere spectators. Yet ultimate…
Frameworks for supporting patient and public involvement in research
Are We Missing the Mark? The Implementation of Community Based Participatory Education in Cancer Disparities Curriculum Development
They don't know themselves, so how can they tell us
When a baby is diagnosed with a condition needing surgery they, and their family, start down an uncertain and unknown path. Living with uncertainty underpins every stage of the journey from hospital to home. These journeys span the highly technical to the mundane. They are likely to involve, at crucial points, medicalised and specialised neonatal and surgical care in paediatric centres of excellence where parents are mere spectators. Yet ultimate…
What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study
The lack of ethnic diversity in health research participation is a multi-dimensional problem. Racism and intersectional disadvantage compel us to use racial and ethnic categories to explore health, but race theorists warn that these can be essentialising and pathologising. Yet, the alternative, the pursuit of colour-blindness, can render the impact of race and ethnicity on health invisible. This paper describes the attempt to recruit an ethnicall…
Absorbing it all
In a context of increasing international dialogue around the appropriate means and ends of newborn screening programmes, it is critical to explore the perspectives of those directly impacted by such screening. This meta-ethnography uses a systematic review process to identify qualitative studies that focus on parents' experiences of newborn screening published in English-language academic journals from 2000 to 2019 (n = 36). The included studies …
You Probably Won't Notice Any Symptoms
Pregnancy is not a disease or illness, but requires clinical surveillance as life-threatening complications can develop. Preeclampsia, one such potentially serious complication, puts both mother and baby at risk. Self-monitoring blood pressure in the general population is well established, and its potential in pregnancy is currently being explored. In the context of self-monitoring, the information and guidance given to women regarding hypertensi…
Are We Missing the Mark? The Implementation of Community Based Participatory Education in Cancer Disparities Curriculum Development
Frameworks for supporting patient and public involvement in research
Key issues for participatory research in the design and implementation of humanitarian assistance
BACKGROUND: Participatory approaches that engage affected populations are increasingly applied in humanitarian health programs in concert with emerging accountability frameworks and the rapid growth of research in these settings. Participatory initiatives within this domain appear to be largely adopted at an operational level and are infrequently reported as a component of research efforts. Yet the evidence of the benefits of research involving c…
The challenges of caring for children who require complex medical care at home
BACKGROUND: Increasing numbers of children with complex health-care needs are cared for at home by their family. The aim of this qualitative study was to explore the challenges experienced by families caring for children who need complex medical care at home. METHODS: We conducted a thematic analysis of eleven in-depth interviews with parents who carry out specialist medical procedures (eg, enteral feeding, bowel washouts and tracheostomy care) f…
Face-to-Face Compared With Online Collected Accounts of Health and Illness Experiences
Advocates of online alternatives to face-to-face interviewing suggest online approaches save money and time, whereas others have raised concerns about the quality and content of the resulting data. These issues affect researchers designing and costing their studies and application reviewers and research funders. We conducted a scoping review of English language articles describing the range of online alternative approaches. Furthermore, we system…
They don't know themselves, so how can they tell us
When a baby is diagnosed with a condition needing surgery they, and their family, start down an uncertain and unknown path. Living with uncertainty underpins every stage of the journey from hospital to home. These journeys span the highly technical to the mundane. They are likely to involve, at crucial points, medicalised and specialised neonatal and surgical care in paediatric centres of excellence where parents are mere spectators. Yet ultimate…
Public involvement in the governance of population-level biomedical research
Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 exper…
Optimizing a digital intervention for managing blood pressure in stroke patients using a diverse sample
BACKGROUND: Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home-based BP management can be effective at maintaining optimal BP. OBJECTIVE: To describe the optimization of a digital intervention for stroke patients and the value of participant diversity, using the person-based approach (PBA) and integral patient and public involvement (PPI). SETTING AND PARTICIPANTS: …
You Probably Won't Notice Any Symptoms
Pregnancy is not a disease or illness, but requires clinical surveillance as life-threatening complications can develop. Preeclampsia, one such potentially serious complication, puts both mother and baby at risk. Self-monitoring blood pressure in the general population is well established, and its potential in pregnancy is currently being explored. In the context of self-monitoring, the information and guidance given to women regarding hypertensi…
Absorbing it all
In a context of increasing international dialogue around the appropriate means and ends of newborn screening programmes, it is critical to explore the perspectives of those directly impacted by such screening. This meta-ethnography uses a systematic review process to identify qualitative studies that focus on parents' experiences of newborn screening published in English-language academic journals from 2000 to 2019 (n = 36). The included studies …
Benefits and harms adopted by health economic assessments evaluating antenatal and newborn screening programmes in OECD countries
What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study
The lack of ethnic diversity in health research participation is a multi-dimensional problem. Racism and intersectional disadvantage compel us to use racial and ethnic categories to explore health, but race theorists warn that these can be essentialising and pathologising. Yet, the alternative, the pursuit of colour-blindness, can render the impact of race and ethnicity on health invisible. This paper describes the attempt to recruit an ethnicall…
Infant feeding as a transgressive practice in the context of HIV in the UK
HIV transmission risk via breastfeeding is greatly reduced by antiretroviral therapy but is not zero. Current UK guidelines recommend exclusive formula feeding; however, women can breastfeed if they meet certain criteria. We examine the narrative accounts of mothers with HIV (pregnant or recently given birth) who navigated divergent cultural and national policy norms regarding infant feeding. Mothers with HIV, the majority of whom in the UK are o…
Navigating uncertainties in critical care with Covid-19
Uncertainty is inherent in medicine and has been an enduring focus of enquiry in medical sociology. It is a particularly salient analytic concept in the context of a new emerging disease. Whilst a substantial body of work explores how clinicians manage uncertainty, scholarship that explores patients’ experiences and ways of managing uncertainty is less well developed. In this cross country research, we draw on two narrative interview studies with…
How women living with HIV in the UK manage infant-feeding decisions and vertical transmission risk – a qualitative study
The evolution of UK HIV and infant-feeding guidelines are not reflected in the experiences of women living with HIV. Clinicians' emphasis on reducing the risk of vertical transmission, without adequately considering personal, social and financial concerns, prevents women from making fully informed infant-feeding decisions. For some, seeking advice beyond their immediate clinical team was key to feeling empowered in their decision. The significant…
Family Caregivers' Experiences of Services for Children With Medical Complexity
BACKGROUND: Many high-income countries are seeking to adapt services to meet the needs of the growing population of children with medical complexity and their families but concerns have been raised about the quality of this care. To understand family caregivers' experiences of services and identify priorities for improvement we need to synthesise research about families' experiences of services for children with medical complexity. OBJECTIVES: To…
Rethinking ‘Recovery’
INTRODUCTION: Interpretations of 'recovery' from illness are complex and influenced by many factors, not least patient expectations and experiences. This paper examines meanings of 'recovery', and how it is strived towards, drawing on the example of COVID-19 infection. METHODS: Drawing on qualitative interviews (n = 93) conducted in the UK between February 2021 and July 2022, we compare adults' accounts of being admitted to an Intensive Care Unit…
After neonatal care, what next? A qualitative study of mothers’ post-discharge experiences after premature birth in Kenya
To support transitions home, strengthening the timing and adequacy of information provided to mothers at discharge from the neonatal unit in low-income settings in SSA and Asia - such as Kenya-is essential. Introducing strategies to build and assess mothers' competencies with skills such as breastfeeding and identifying signs of deterioration before discharge could support their smooth transition home. Targeted engagement interventions at the com…
Participatory Surveillance and Candidacy
Actively involving people in self-monitoring and management during their pregnancy is an emerging clinical and social practice. Self-monitoring of blood pressure and self-testing for proteinuria, key diagnostic tests for pre-eclampsia, are becoming commonplace in hypertensive pregnancies. While evidence exists on the acceptability and feasibility of self-monitoring blood pressure, evidence for self-testing for proteinuria in pregnancy is thin, wi…
Can It Happen Again? Using Co‐Produced Theatre to Explore the Challenges Faced by Couples Considering Pregnancy After a De Novo Genetic Diagnosis in a Child
Mapping the benefits and harms of antenatal and newborn screening programmes
Health screening is undergoing seismic change that includes the potential forpersonalized medicine, big data, whole genome sequencing, artificial intelligence and the development of novel and experimental therapies. Acceptability research typically gathers cross-sectional data that identifies and characterizes the harms and benefits of screening programmes, as well as the ways they are experienced, weighed and valued by different groups. Efforts …
“It's really easy to fall under the radar and get lost” – being unseen in postpartum care pathways after hypertensive pregnancy
Hypertensive disorders of pregnancy, experienced by around 10% of women, are among the most severe health problems affecting people during and following pregnancy. Symptoms can persist in the weeks and months following birth, with potential to impact longer-term health. Postnatal care has long been recognised as a critical period for mother and baby, and emerging evidence suggests it is a window of opportunity for cardiac remodelling after a hype…
Care without co‐presence
In this article we analyze how family involvement in intensive care in the United Kingdom (UK) was reconfigured through the reordering of proximity and distance during the first year of the COVID-19 pandemic, and the effects thereof. The introduction of visiting restrictions disrupted established modes of involvement in intensive care, prompting family members, hospital staff and, when able, patients, to craft alternative modes of involvement. Dr…
Medicine (15 obras) · Sociology (10 obras) · Nursing (9 obras) · Political science (9 obras) · Psychology (9 obras) · Qualitative research (9 obras) · Public health (7 obras) · Family medicine (6 obras) · Health care (6 obras) · Computer Science (4 obras)