Anne Macfarlane
Dados Biográficos
| ID | 3583588 |
|---|---|
| NOME | Anne Macfarlane |
| PRENOMES | Anne |
| SOBRENOME | Macfarlane |
| ASSINATURA | MACFARLANE A |
| AFILIAÇÕES | University of Limerick |
| ORCID | 0000-0002-9708-5025 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 33 |
| TOTAL DE CITAÇÕES | 48 |
| TOTAL COMO AUTOR | 33 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2002 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 3 |
Interpreters as Epistemic Brokers in Cross-Cultural Primary Care Consultations in Ireland
BACKGROUND: The Russian invasion of Ukraine in February 2022 resulted in the displacement of millions of people of varying ages and diverse health needs, with almost 120,000 granted Temporary Protection in Ireland. In Ireland, there were a number of healthcare adaptations, including the employment of multilingual Ukrainian Beneficiaries of Temporary Protection (BoTP) as interpreters in general practitioner (GP) clinics. There is a lack of researc…
Play On
This article documents the project Play On , a series of online curated conversations held between community arts practitioners and researchers based in Ireland and Australia. The Play On series featured contributions from community musicians and artists, researchers, activists and Elders. Together, we considered the challenges and opportunities we encountered in our work and discussed how we might respond to urgent issues impacting our field, ou…
The collection and integration of data on migrants in health information systems
Addressing disparities and promoting health for migrants requires policies and practices that are grounded in comprehensive and accurate health data. Health Information Systems (HIS) play a crucial role in this process. However, data on migrants is often incomplete and of poor quality in European HIS. A recent scoping review identified a gap in research on strengthening HIS for data on the health of migrants in Ireland, a country where one in fiv…
Music and singing as arts-based methods to facilitate participatory spaces for co-production in migration health research
Opportunities for refugees and migrants to be involved in health research in re-settlement countries is not optimal. This creates a structural bias in evidence to transform health systems into diversity sensitive inclusive systems. Arts-based methods using music and singing are underexplored in migration health research even though they may have specific characteristics to facilitate participatory spaces for co-production. We report a mixed-metho…
Understanding the evolution of trust in a participatory health research partnership
INTRODUCTION: Advancements in evaluating the impact of participatory health research (PHR) have been made through comprehensive models like the community-based participatory research (CBPR) conceptual model, which provides a useful framework for exploring how context and partnership processes can influence health research design and interventions. However, challenges in operationalising aspects of the model limit our understanding and evaluation …
An updated scoping review of migrant health research in Ireland
The increase in the volume of research on migrant health in Ireland is notable. The analysis over time illuminates changes in the focus of research studies. Gaps in research about screening, assessment and health information warrant particular attention. It is also necessary to continue paying attention to areas of recent growth and stagnation for a balanced and comprehensive evidence base. Mobilising resources to continue this increase is needed…
Refugee and migrants' involvement in participatory spaces in a US practice‐based research network study
BACKGROUND: Refugees and migrants face suboptimal involvement in spaces for primary healthcare decision-making. Given the rising numbers of resettled refugees and migrants in primary care settings in the United States, there is an urgent need for patient-centred outcome research in practice-based research networks (PBRNs) with diverse ethnolinguistic communities. This study explored whether researchers, clinicians and patients would achieve conse…
The public and patient involvement imperative in Ireland
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary. In this paper, we draw on global traditions to explore dominant themes and key considerations and critiques pertaining to PPI in order to inform a PPI culture shift in Ireland. We then describe the heritage of PPI in Ireland…
Exploring the Multidimensionality of Trust in Participatory Health Partnerships - A Network Approach
Introduction: Previous studies have identified "trust" as a key mechanism to achieve sustainable partnerships in participatory health research, which themselves can represent social networks. A recent review discussed the potential for social network analysis to investigate the development and maintenance of trust and its effects on partnership functioning in participatory health research partnerships. This review also recommended considering a c…
Disrupting patterns of exclusion in participatory spaces
The impact of economic recession on the health of migrant fathers over time
Understanding the relationship between economic conditions and health is complex and may be related to multiple dimensions of socio-economic advantage and disadvantage. African families were already more likely to be disadvantaged prior to the recession and that pattern persisted during the recession. Further research on attrition rates of migrants in population cohort studies is needed and the development of effective strategies for recruitment,…
Life-Course Marginalities of Positive Health and Aging
There is increased emphasis on adopting positive health and aging policy goals for heterogeneous older populations, and recognition of the role that participatory research approaches can play in supporting their implementation. However, questions remain about how to represent the marginalized experiences of some older populations within such processes. With a focus on older Irish ethnic Travelers and older homeless adults as two vulnerable popula…
Migrant health and language barriers
There is a knowledge translation gap between policies promoting equitable access to healthcare and person-centred care, and the use of untrained interpreters in cross-cultural consultations leading to disparities in health outcomes. An 11 member inter-sectoral working group met at four workshops to discuss and agree on levers and barriers to the provision of trained interpreters in healthcare settings in Ireland. The process was informed by Parti…
Participatory health research with migrants
‘I hated being ghosted’ – The relevance of social participation for living well with post‐stroke aphasia
BACKGROUND: In the context of increasing incidence of stroke in working aged adults, there is a specific need to explore the views of working aged adults with post-stroke aphasia, whose communication difficulties may result in restricted social participation, loss of employment and changed relationship and parenting roles. This study aimed to explore the perspectives of working aged adults with post-stroke aphasia in relation to social participat…
Involving migrants in the adaptation of primary care services in a ‘newly’ diverse urban area in Ireland
Participatory implementation research in the field of migrant health
OBJECTIVE: This study aimed to explore whether positive impacts were sustained and unanticipated ripple effects had occurred four years after the implementation of interventions to improve cross-cultural communication in primary care. BACKGROUND: Sustaining the implementation of change using complex interventions is challenging. The EU-funded "RESTORE" study implemented guidelines and training on cross-cultural communication in five Primary Care …
Positive health among older Traveller and older homeless adults
Concepts related to positive health in later life are increasingly prevalent within community-based health and social care policy. With a greater emphasis on inclusion health for older populations, there is a critical need to understand the determinants of such states for those most at risk of societal disadvantage. Focusing on two such groups, the aim of this article is to synthesise international research on the life-course and structural deter…
Ethnicity recording in health and social care data collections in Ireland
Despite strong policy and legal imperatives, there is limited data collection of ethnicity in health and social care data collections in Ireland. While there are some examples of where differences by ethnicity have been identified and acted upon, a more coordinated and comprehensive approach to the collection, quality and utilization of ethnicity data is needed to promote health equity
Implementing community participation via interdisciplinary teams in primary care
BACKGROUND: Community participation in primary care is enshrined in international and Irish health policy. However, there is a lack of evidence about how stakeholders work collectively to implement community participation within interdisciplinary teams; community perspectives are rarely captured, and a theoretical underpinning for implementation of community participation in primary care is absent. OBJECTIVE: To conduct a theoretically informed, …
Material practices for meaningful engagement
BACKGROUND: The material practices which researchers use in research partnerships may enable or constrain the nature of engagement with stakeholder groups. Participatory learning and action (PLA) research approaches show promise, but there has been no detailed analysis of stakeholders' and researchers' experiences of PLA techniques for data generation and co-analysis. OBJECTIVES: To explore stakeholders' and researchers' experiences of PLA techni…
Perspectives of people with aphasia post-stroke towards recovery & living successfully. A systematic review and qualitative evidence synthesis
Implementing guidelines and training initiatives to improve cross-cultural communication in primary care consultations
Migrants, primary care providers and other key stakeholders can work effectively together to adapt and implement G/TIs to improve communication in cross-cultural consultations, and enhance understanding and trust between GPs and migrant patients
A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory
Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision
Members of marginalised groups have shared priorities for action to improve their access to primary care. If steps are taken to address these, there is scope to impact on more than one marginalised group and to address the existing health inequities
Using a Theory-Driven Conceptual Framework in Qualitative Health Research
The role and merits of highly inductive research designs in qualitative health research are well established, and there has been a powerful proliferation of grounded theory method in the field. However, tight qualitative research designs informed by social theory can be useful to sensitize researchers to concepts and processes that they might not necessarily identify through inductive processes. In this article, we provide a reflexive account of …
Arranging and negotiating the use of informal interpreters in general practice consultations
Concepts of illness causation and attitudes to health care among older people in the Republic of Ireland
Life-Course Marginalities of Positive Health and Aging
There is increased emphasis on adopting positive health and aging policy goals for heterogeneous older populations, and recognition of the role that participatory research approaches can play in supporting their implementation. However, questions remain about how to represent the marginalized experiences of some older populations within such processes. With a focus on older Irish ethnic Travelers and older homeless adults as two vulnerable popula…
Service Users' and Caregivers' Perspectives on Continuity of Care in Out-of-Hours Primary Care
Modernization policies in primary care, such as the introduction of out-of-hours general practice cooperatives, signify a marked departure from many service users' traditional experiences of continuity of care. We report on a case study of accounts of service users with chronic conditions and their caregivers of continuity of care in an out-of-hours general practice cooperative in Ireland. Using Strauss and colleagues' Chronic Illness Trajectory …
Involving migrants in the adaptation of primary care services in a ‘newly’ diverse urban area in Ireland
An exploration of evidence-based policy in Ireland
Ireland is a small country with a history of a social partnership approach to policy making. This paper considers how the ambition of government to utilise an evidence-based approach to policy making plays out against this partnership agenda. Drawing on the authors’ experiences and personal reflections, the paper considers how these issues operate within a number of health and social inclusion policy areas, and it explores the role of stakeholder…
Concepts of illness causation and attitudes to health care among older people in the Republic of Ireland
Patients’ perceptions of joint teleconsultations
Objective To determine patient perceptions of joint teleconsultations (JTC), with particular reference to reasons underlying, and factors contributing to, patient satisfaction and dissatisfaction with this mode of health delivery. Background Telemedicine has been welcomed as one way of improving health‐care delivery, by improving patient access to secondary care and specialist services hence widening patient choice, particularly for patients outs…
Development of a theory of implementation and integration
BACKGROUND: Theories are important tools in the social and natural sciences. The methods by which they are derived are rarely described and discussed. Normalization Process Theory explains how new technologies, ways of acting, and ways of working become routinely embedded in everyday practice, and has applications in the study of implementation processes. This paper describes the process by which it was built. METHODS: Between 1998 and 2008, we d…
Arranging and negotiating the use of informal interpreters in general practice consultations
Normalisation process theory
BACKGROUND: The past decade has seen considerable interest in the development and evaluation of complex interventions to improve health. Such interventions can only have a significant impact on health and health care if they are shown to be effective when tested, are capable of being widely implemented and can be normalised into routine practice. To date, there is still a problematic gap between research and implementation. The Normalisation Proc…
An exploration of evidence-based policy in Ireland
Ireland is a small country with a history of a social partnership approach to policy making. This paper considers how the ambition of government to utilise an evidence-based approach to policy making plays out against this partnership agenda. Drawing on the authors’ experiences and personal reflections, the paper considers how these issues operate within a number of health and social inclusion policy areas, and it explores the role of stakeholder…
Using a Theory-Driven Conceptual Framework in Qualitative Health Research
The role and merits of highly inductive research designs in qualitative health research are well established, and there has been a powerful proliferation of grounded theory method in the field. However, tight qualitative research designs informed by social theory can be useful to sensitize researchers to concepts and processes that they might not necessarily identify through inductive processes. In this article, we provide a reflexive account of …
Service Users' and Caregivers' Perspectives on Continuity of Care in Out-of-Hours Primary Care
Modernization policies in primary care, such as the introduction of out-of-hours general practice cooperatives, signify a marked departure from many service users' traditional experiences of continuity of care. We report on a case study of accounts of service users with chronic conditions and their caregivers of continuity of care in an out-of-hours general practice cooperative in Ireland. Using Strauss and colleagues' Chronic Illness Trajectory …
A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory
Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision
Members of marginalised groups have shared priorities for action to improve their access to primary care. If steps are taken to address these, there is scope to impact on more than one marginalised group and to address the existing health inequities
Perspectives of people with aphasia post-stroke towards recovery & living successfully. A systematic review and qualitative evidence synthesis
Implementing guidelines and training initiatives to improve cross-cultural communication in primary care consultations
Migrants, primary care providers and other key stakeholders can work effectively together to adapt and implement G/TIs to improve communication in cross-cultural consultations, and enhance understanding and trust between GPs and migrant patients
Implementing community participation via interdisciplinary teams in primary care
BACKGROUND: Community participation in primary care is enshrined in international and Irish health policy. However, there is a lack of evidence about how stakeholders work collectively to implement community participation within interdisciplinary teams; community perspectives are rarely captured, and a theoretical underpinning for implementation of community participation in primary care is absent. OBJECTIVE: To conduct a theoretically informed, …
Material practices for meaningful engagement
BACKGROUND: The material practices which researchers use in research partnerships may enable or constrain the nature of engagement with stakeholder groups. Participatory learning and action (PLA) research approaches show promise, but there has been no detailed analysis of stakeholders' and researchers' experiences of PLA techniques for data generation and co-analysis. OBJECTIVES: To explore stakeholders' and researchers' experiences of PLA techni…
Ethnicity recording in health and social care data collections in Ireland
Despite strong policy and legal imperatives, there is limited data collection of ethnicity in health and social care data collections in Ireland. While there are some examples of where differences by ethnicity have been identified and acted upon, a more coordinated and comprehensive approach to the collection, quality and utilization of ethnicity data is needed to promote health equity
Participatory implementation research in the field of migrant health
OBJECTIVE: This study aimed to explore whether positive impacts were sustained and unanticipated ripple effects had occurred four years after the implementation of interventions to improve cross-cultural communication in primary care. BACKGROUND: Sustaining the implementation of change using complex interventions is challenging. The EU-funded "RESTORE" study implemented guidelines and training on cross-cultural communication in five Primary Care …
Positive health among older Traveller and older homeless adults
Concepts related to positive health in later life are increasingly prevalent within community-based health and social care policy. With a greater emphasis on inclusion health for older populations, there is a critical need to understand the determinants of such states for those most at risk of societal disadvantage. Focusing on two such groups, the aim of this article is to synthesise international research on the life-course and structural deter…
Migrant health and language barriers
There is a knowledge translation gap between policies promoting equitable access to healthcare and person-centred care, and the use of untrained interpreters in cross-cultural consultations leading to disparities in health outcomes. An 11 member inter-sectoral working group met at four workshops to discuss and agree on levers and barriers to the provision of trained interpreters in healthcare settings in Ireland. The process was informed by Parti…
Participatory health research with migrants
‘I hated being ghosted’ – The relevance of social participation for living well with post‐stroke aphasia
BACKGROUND: In the context of increasing incidence of stroke in working aged adults, there is a specific need to explore the views of working aged adults with post-stroke aphasia, whose communication difficulties may result in restricted social participation, loss of employment and changed relationship and parenting roles. This study aimed to explore the perspectives of working aged adults with post-stroke aphasia in relation to social participat…
Involving migrants in the adaptation of primary care services in a ‘newly’ diverse urban area in Ireland
The public and patient involvement imperative in Ireland
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary. In this paper, we draw on global traditions to explore dominant themes and key considerations and critiques pertaining to PPI in order to inform a PPI culture shift in Ireland. We then describe the heritage of PPI in Ireland…
Exploring the Multidimensionality of Trust in Participatory Health Partnerships - A Network Approach
Introduction: Previous studies have identified "trust" as a key mechanism to achieve sustainable partnerships in participatory health research, which themselves can represent social networks. A recent review discussed the potential for social network analysis to investigate the development and maintenance of trust and its effects on partnership functioning in participatory health research partnerships. This review also recommended considering a c…
Disrupting patterns of exclusion in participatory spaces
The impact of economic recession on the health of migrant fathers over time
Understanding the relationship between economic conditions and health is complex and may be related to multiple dimensions of socio-economic advantage and disadvantage. African families were already more likely to be disadvantaged prior to the recession and that pattern persisted during the recession. Further research on attrition rates of migrants in population cohort studies is needed and the development of effective strategies for recruitment,…
Medicine (22 obras) · Sociology (19 obras) · Political science (18 obras) · Psychology (15 obras) · Nursing (14 obras) · Citizen journalism (13 obras) · Public relations (13 obras) · Participatory action research (12 obras) · Health care (11 obras) · Migration, Health and Trauma (11 obras)