Carolyn A Chew-Graham
Dados Biográficos
| ID | 379257 |
|---|---|
| NOME | Carolyn A Chew-Graham |
| PRENOMES | Carolyn A |
| SOBRENOME | Chew-Graham |
| ASSINATURA | CHEW-GRAHAM C A |
| AFILIAÇÕES | Keele University |
| ORCID | 0000-0002-9722-9981 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 78 |
| TOTAL DE CITAÇÕES | 147 |
| TOTAL COMO AUTOR | 78 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 1999 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 6 |
A Snowball’s Chance… Methodological Considerations and Possibilities of Recruiting General Practitioners to Qualitative Research Through Large-Scale Group Chat Networks
In many qualitative studies, recruiting general practitioners (GPs), also known as family doctors or primary care physicians, has become increasingly challenging. This is due, in part, to the strain on GP capacity driven by greater service demand. In the United Kingdom, this demand coupled with increased general practice involvement in research has led to GPs experiencing research fatigue. This may be particularly apparent in qualitative studies,…
Co‐Creating Publicly Available Resources to Increase Awareness of and Support for Long Covid Among Ethnic Minority Communities
INTRODUCTION: Stigma and discrimination make healthcare challenging for people living with Long Covid, especially those from ethnic minority groups. Since their experiences are under-researched and may differ from other groups, it is crucial that healthcare guidance is informed by the lived experiences of diverse groups. METHODS: Findings from underpinning research (hearing from the unheard: Impact of Long Covid in Black and minority ethnic group…
Associations between burnout and career disengagement factors among general practitioners
Background: Burnout is associated with career disengagement among general practitioners (GPs), but the underlying mechanisms of this association remain poorly understood. Objective: This study examined the pathways linking burnout to career disengagement factors among GPs. Methods: An 11-item online questionnaire, including validated abbreviated measures of burnout outcomes (single items on emotional exhaustion (EE) and depersonalisation), career…
Socio‐demographic variation in diagnosis of and prescribing for common mental illnesses among children and young people during the Covid ‐19 pandemic
BACKGROUND: The impact of the COVID-19 pandemic on the mental health of children and young people (CYP) has been widely reported. Primary care electronic health records were utilised to examine trends in the diagnosing, recording and treating of these common mental disorders by ethnicity and social deprivation in Greater Manchester, England. METHODS: Time-series analyses conducted using Greater Manchester Care Record (GMCR) data examined all diag…
Experiences and Perceptions of Self‐Harm in Rural‐Dwelling Adults
Experiencing Socioeconomic Deprivation as a Carer in the United Kingdom
BACKGROUND: Informal carers compose approximately 7% of the UK population and, through their unpaid care, they make important contributions to society and the health care industry. Being an informal carer is higher in people experiencing socioeconomic deprivation; however, no qualitative research has explored the impact of this on the ability to provide care for those with long-term conditions. AIM: To explore the experiences and challenges of be…
Under‐Served Groups and Myalgic Encephalomyelitis Research Workshop; Multiple Barriers to Effective Healthcare, Research and Public Participation
Public involvement in research and other initiatives for myalgic encephalomyelitis (ME) (also known as chronic fatigue syndrome) has been crucial in raising awareness of the disease and exposing inadequate healthcare and research funding. An online workshop on ME research and under-served groups took place in July 2024, organised by the first author, a person with ME. The workshop illustrated very low prevalence and thus barriers to healthcare as…
Reducing the Delay in the Diagnosis of Bipolar Disorder
INTRODUCTION: Patients living with bipolar disorder in the UK face, on average, a delay of 9.5 years from initial presentation of symptoms to confirmation of diagnosis. The aim of this qualitative study was to understand the challenges and facilitators involved in diagnosing individuals with BD from the perspectives of GPs and psychiatrists and how the delay in diagnosis of BD from the first presentation might be reduced. METHODS: Semi-structured…
Navigating Discharge From Early Intervention in Psychosis Services
INTRODUCTION: Early Intervention in Psychosis (EIP) services in England offer up to 3 years' time-limited support to people experiencing early psychosis. Service users (SUs) are discharged to primary care, a community mental health team (CMHT), or other specialist mental health service. The aim of this study is to explore the SU and carer journey through discharge from EIP and into the early post-discharge period. METHODS: Qualitative longitudina…
Establishing a Public Involvement Network for Chronic Pain Research in the United Kingdom
INTRODUCTION: The Consortium to Research Individual, Interpersonal and Social Influences in Pain (CRIISP) is a 4-year UK university collaboration investigating how thoughts and feelings, personal relationships and lifestyle can affect chronic pain. Patient and public involvement in research recognises that researchers' conceptions of health and illness can be enriched and sense-checked by those of people experiencing a health condition. Published…
Intersectionality and Long Covid
INTRODUCTION: Long Covid is the patient-preferred term to describe persistent symptoms experienced following an acute Covid-19 infection. The severity and unpredictable nature of long Covid symptoms can affect every aspect of an individual's life. Under-represented groups such as ethnic minorities and lower socio-economic groups are disproportionately affected by long Covid and often face challenges in accessing healthcare and additional support.…
Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals
INTRODUCTION: Long Covid, the patient-preferred term, describes symptoms persisting after an acute Covid-19 infection. Understanding the importance and meaning of a Long Covid diagnosis to children and young people (CYP), their families and professionals associated with their care can give insight into the way that these diagnoses are used across these groups to support care and needs of the patient. This study explores the meaning and importance…
Medical ambivalence and Long Covid
Structural violence - related to 'isms' like racism, sexism, and ableism - pertains to the ways in which social institutions harm certain groups. Such violence is critical to institutional indifference to the plight of ethnic minority people living with long-term health conditions. With only emergent literature on the lived experiences of ethnic minorities with Long Covid, we sought to investigate experiences around the interplay of illness and s…
Involving People With Lived Experience in Electronic Health Record Database Studies Reflections and Learning From the CHOOSE Study
Background Patient and public involvement and engagement (PPIE) is integral to health research. Reporting of PPIE methods and impact is becoming increasingly common in health research. However, reporting on PPIE in studies using large, routinely collected electronic health record data sets is less common. Anecdotal evidence suggests that involvement in this research context is more challenging and offers fewer opportunities for meaningful influen…
The Value of Clinical Prediction Models in General Practice
INTRODUCTION: Prediction models are increasingly being used to guide clinical decision making in primary care. There is a lack of evidence exploring the views of patients and general practitioners (GPs) in primary care around their use and implementation. We aimed to better understand the perspectives of GPs and people with lived experience of depression around the use of prediction models and communication of risk in primary care. METHODS: Quali…
Exploring General Practitioners' Management of Self‐Harm in Young People
BACKGROUND: General practitioners (GPs) are key to the frontline assessment and treatment of young people after self-harm. Young people value GP-led self-harm care, but little is known about how GPs manage young people after self-harm. AIM: This study aimed to understand the approaches of GPs to self-harm in young people and explore their perspectives on ways they might help young people avoid repeat self-harm. METHODS: We conducted semi-structur…
Barriers and facilitators of self‐management of diabetes amongst people experiencing socioeconomic deprivation
Defining the Role of the Fire and Rescue Service in Mental Health Support for Older Adults
INTRODUCTION: Anxiety and depression in older adults (60+ years of age) are under-diagnosed and under-treated. Older adults are less likely to seek help for these problems due to a lack of awareness, difficulty accessing health care due to availability or disability and fear of loss of independence. Existing points of contact between older adults and non-traditional services, for example, the Fire and Rescue Service (FRS), could provide opportuni…
Developing a Consensus Statement to Target Oral Health Inequalities in People With Severe Mental Illness
INTRODUCTION: Oral diseases are more prevalent in people with severe mental illness (SMI) compared to those without mental illnees. A greater focus on oral health is needed to reverse unacceptable but often neglected oral health inequality in people with SMI. This provided the impetus for developing 'The Right to Smile' consensus statement. We aimed to develop and disseminate a consensus statement to address oral health inequality, highlighting t…
A qualitative exploration of the barriers and facilitators to self‐managing multiple long‐term conditions amongst people experiencing socioeconomic deprivation
BACKGROUND: Globally, it is estimated that one in three adults live with two or more long-term conditions (multiple long-term conditions, MLTCs), that require self-management. People who experience socioeconomic deprivation face significant health inequalities due to a range of interrelated characteristics that lead to a lack of resources and opportunities. Previous research with underserved populations indicate low levels of trust towards primar…
Young people's priorities for the self‐management of distress after stoma surgery due to inflammatory bowel disease
INTRODUCTION: The aim of this study was to gain consensus among young people with a stoma due to inflammatory bowel disease (IBD) on the priorities for the content of an intervention for the self-management of stoma-related distress. The current identification and management of distress in young people with a stoma is often suboptimal in clinical settings and there is a need for improved support resources. METHODS: Two consensus group meetings we…
Coproducing Health Information Materials With Young People
BACKGROUND: This paper describes and critically reflects on how children and young people (CYP) acted as public advisors to coproduce health information materials about Long Covid for younger audiences. This work was underpinned by the Lundy model, a framework which provides guidance on facilitating CYP to actively contribute to matters which affect them. METHODS: Coproduction activity sessions took place with CYP in schools as well as video conf…
Physical Health Checks and Follow‐Up Care in Deprived and Ethnically Diverse People With Severe Mental Illness
BACKGROUND: There is wide variation in premature mortality rates in adults with severe mental illness (SMI) across London, with Tower Hamlets (a highly deprived and ethnically diverse area) scoring the highest. OBJECTIVE: To identify examples of best practice and co-design recommendations for improving physical health checks and follow-up care amongst people with SMI in Tower Hamlets. METHODS: Data were collected through online questionnaires (us…
Understanding How, Why and for Whom Link Work Interventions Promote Access in Community Healthcare Settings in the United Kingdom
Aripiprazole/Sertraline Combination
INTRODUCTION: Bipolar disorder is a recurrent mental health disorder with a prevalence rate of 1.4%. On average, there can be a delay of 9.5 years from the initial presentation of symptoms to a confirmed diagnosis. Individuals living with bipolar disorder have a reduced life expectancy. There is limited evidence regarding the effectiveness of antidepressants in treating bipolar disorder. The ASCEnD clinical trial will test the clinical and cost-e…
Framing the doctor-patient relationship in chronic illness
How family doctors conceptualise chronic illness in the consultation has important implications for both the delivery of medical care, and its experience by patients. In this paper, we present the results of a re-analysis of qualitative data collected in a series of studies of British family doctors between 1995 and 2001, to explore the ways in which the legitimacy and authority of medical knowledge and practice are organised and worked out in re…
Access to primary mental health care for hard-to-reach groups
Medical knowledge and the intractable patient
South Asian women, psychological distress and self-harm
The present paper reports an investigation of the self-reported needs of South Asian women suffering distress and mental health problems which may lead to self-harm and suicide, and uses the data to define indicators of good practice for primary care. The design was a qualitative study using focus group discussion. Four focus groups of South Asian women (using existing women's groups in Manchester, UK) formed the setting for this study. Each focu…
Permission to participate?' A qualitative study of participation in patients from differing socio-economic backgrounds
Participation in health care is an important element of self-management in chronic illness, and policy emphasises patient's choice. Evidence suggests that this may be inequitable and inadequate, since active participation is strongly associated with socio-demographic variables. This qualitative study explores the perceptions of participation in people with differing socio-economic status with themes related to health literacy and relationship wit…
A relational analysis of an invisible illness
Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is indicated by prolonged, medically unexplained fatigue (amongst other symptoms), not alleviated by rest, and causing substantial disability. There are limited treatments on offer, which may not be effective and/or acceptable for all people, and treatment views are polarised. We, thus, aimed to take a step back from this debate, to explore more broadly preferences for formal and infor…
Embracing a 'new normal
Stoma surgery can be a life-changing procedure due to bodily changes and related psychological responses. Despite previous literature identifying unique challenges for young adults living with a long-term condition, no studies have explored the biographical implications of stoma formation. Drawing on interviews with 13 young adults, aged 18-29 years, with a stoma resulting from inflammatory bowel disease, this article aims to generate new theoret…
Why may older people with depression not present to primary care? Messages from secondary analysis of qualitative data
Depression in older people is common, under-recognised and often undertreated. This study aimed to explore the reasons why older people with depression may not present to primary care. Secondary analysis was carried out, of qualitative data collected in two previous studies in North-West England. Older people are reluctant to recognise and name 'depression' as a set of symptoms that legitimises attending their general practitioner (GP). They do n…
Access to Psychological Support for Young People Following Stoma Surgery
Psychological problems are common among people with inflammatory bowel disease (IBD) following stoma surgery. However, the ways in which stoma-related psychological needs are identified and addressed in health care settings remain unexplored. In this study, we investigated the perspectives of young people with a stoma and health care professionals about access to psychological support. Semi-structured interviews were conducted with young people w…
What do older people experiencing loneliness think about primary care or community based interventions to reduce loneliness? A qualitative study in England
Loneliness in later life is a common problem with poor health outcomes. However, interventions to prevent or ameliorate loneliness have a weak evidence base. The views of older people experiencing or at risk of loneliness in the community are important in identifying features of potential support, but have been little studied. Twenty-eight community dwelling people, aged 65 and over who reported being 'lonely much of the time' or identified as lo…
What influences referrals within community palliative care services? A qualitative case study
The experiences of general practitioner partners living with distress
Doctors, including general practitioners, experience higher levels of mental illness than the general population. General practitioners who are partners in their practices may face heightened stress. In total, 10 general practitioner partners living with work-related distress were interviewed, and transcripts were analysed using interpretative phenomenological analysis. Three major themes arose: (1) extreme distress, (2) conflicted doctor identit…
Non-disclosure of chronic kidney disease in primary care and the limits of instrumental rationality in chronic illness self-management
Early detection of long term conditions is predicated on assumptions that lifestyle changes and medications can be used to reduce or manage the risk of condition progression. However, ambiguity remains about the nature and place of diagnostic disclosure to people in newly recognised or asymptomatic 'pre' conditions such as early stage chronic kidney disease (CKD). The disclosure of a diagnosis is relevant to instigating strategies which rely on a…
Prescribing benzodiazepines in general practice
General practitioner (GP) prescribing has been identified as an arena that has broad social and political implications, which stretch beyond individual outcomes for patients. This article revisits aspects of the controversy about prescribing benzodiazepines (or 'minor tranquillizers') through an exploration of contemporary views of GPs. In the 1980s the prescribing of these drugs was considered to be both a clinical and social problem, which brou…
Negotiating the postvention situation
Suicide is a leading cause of death. NHS workers, especially female nurses, have heightened vulnerability. Being impacted by a colleague's suicide can lead to increased suicidality. Postvention refers to support following a suicide. We investigated current, available postvention for NHS workers following a colleague's suicide and the experiences of staff who deliver it ("supporters"). Twenty-two supporters were interviewed, and data were analyzed…
Filling in the gaps
Health-workers are more likely to die by suicide than their counterparts in other occupational groups. The suicide of a staff member can be widely felt by colleagues, leading to complex emotional and cognitive responses. Exposure to suicide heightens the risk of dying by suicide. We investigated the impact of a colleague suicide on National Health Service (NHS) staff. Twenty-nine staff were interviewed; all participants were white British, and so…
From detection to preparing for the end‐of‐life
People of South Asian (SA) origin have a higher prevalence of dementia compared with the United Kingdom (UK) population as a whole. Little is known about how family carers of SA origin perceive dementia, manage access to dementia services, and how plans and preparations are made for end-of-life for loved ones with dementia. This qualitative study aimed to explore the experiences of carers of people with dementia of SA origin, living in the UK. Th…
Aging well with chronic pain in rural areas
Over half of people in the UK aged 75 years and above experience chronic pain – defined as pain lasting three or more months. Chronic pain can impact activities of daily living, quality of life, and independence. Rural perspectives on aging with chronic pain are rare despite demographic trends indicating that rural populations are aging faster than urban populations and with an increasing prevalence of long-term painful conditions. Through interv…
Medical knowledge and the intractable patient
South Asian women, psychological distress and self-harm
The present paper reports an investigation of the self-reported needs of South Asian women suffering distress and mental health problems which may lead to self-harm and suicide, and uses the data to define indicators of good practice for primary care. The design was a qualitative study using focus group discussion. Four focus groups of South Asian women (using existing women's groups in Manchester, UK) formed the setting for this study. Each focu…
Framing the doctor-patient relationship in chronic illness
How family doctors conceptualise chronic illness in the consultation has important implications for both the delivery of medical care, and its experience by patients. In this paper, we present the results of a re-analysis of qualitative data collected in a series of studies of British family doctors between 1995 and 2001, to explore the ways in which the legitimacy and authority of medical knowledge and practice are organised and worked out in re…
Prescribing benzodiazepines in general practice
General practitioner (GP) prescribing has been identified as an arena that has broad social and political implications, which stretch beyond individual outcomes for patients. This article revisits aspects of the controversy about prescribing benzodiazepines (or 'minor tranquillizers') through an exploration of contemporary views of GPs. In the 1980s the prescribing of these drugs was considered to be both a clinical and social problem, which brou…
What influences referrals within community palliative care services? A qualitative case study
The role of information in supporting self-care in vascular conditions
Self-care has the potential to make a significant contribution to vascular conditions, but engagement with self-care support has been limited. Lack of relevant information is highlighted by patients and policy-makers as an important barrier to effective self-care, and information provides a potentially efficient platform for changing behaviour. However, work within the social sciences has generally seen information as a necessary but insufficient…
Why may older people with depression not present to primary care? Messages from secondary analysis of qualitative data
Depression in older people is common, under-recognised and often undertreated. This study aimed to explore the reasons why older people with depression may not present to primary care. Secondary analysis was carried out, of qualitative data collected in two previous studies in North-West England. Older people are reluctant to recognise and name 'depression' as a set of symptoms that legitimises attending their general practitioner (GP). They do n…
Access to primary mental health care for hard-to-reach groups
Somatization and Health Anxiety as Predictors of Health Care Use
OBJECTIVE: To assess whether the number of somatic symptoms and health anxiety are independent predictors of future health care use after adjusting for confounders. METHODS: In a random sample of the adult UK population, questionnaires assessed the number of somatic symptoms (Somatic Symptom Inventory), health anxiety (Whiteley Index), anxiety/depression (Hospital Anxiety and Depression Scale), the number of physical illnesses and demographic var…
Why do patients with long-term conditions use unscheduled care? A qualitative literature review
Unscheduled care (UC) refers to non-routine face-to-face care, such as accident and emergency care, out-of-hours care, or walk-in centres. Current health service policy aims to reduce its use. Unscheduled care is common in people with long-term conditions such as diabetes, asthma, chronic obstructive pulmonary disease and coronary heart disease. By reviewing qualitative research literature, we aimed to understand the breadth of psychosocial and o…
Permission to participate?' A qualitative study of participation in patients from differing socio-economic backgrounds
Participation in health care is an important element of self-management in chronic illness, and policy emphasises patient's choice. Evidence suggests that this may be inequitable and inadequate, since active participation is strongly associated with socio-demographic variables. This qualitative study explores the perceptions of participation in people with differing socio-economic status with themes related to health literacy and relationship wit…
Encouraging patient and public involvement in HEX
Welcome to this edition of Health Expectations. The Editors have been discussing what we mean by our strapline and that HEX is ‘an International Journal of Public Participation in Health Care and Health Policy’. We are certainly international, attracting papers from around the world (in this issue, Canada, Israel, Spain, Taiwan as well as USA and UK) and have an international readership. However, there continues to be debate about what we really …
Having diabetes and having to fast
BACKGROUND: There are approximately 2.7 million Muslims in the UK, constituting 4.8% of the population. It is estimated that 325,000 UK Muslims have diabetes. Whilst dietary practices of Muslims with diabetes have been explored, little work has described the beliefs and decisions to fast during Ramadan, whereby Muslims with diabetes refrain from eating, drinking and taking medication between sunrise and sunset. OBJECTIVE: To explore beliefs and e…
‘I wouldn't push that further because I don't want to lose her’
BACKGROUND: Health outcomes for long-term conditions (LTCs) can be improved by lifestyle, dietary and condition management-related behaviour change. Primary care is an important setting for behaviour change work. Practitioners have identified barriers to this work, but there is little evidence examining practices of behaviour change in primary care consultations and how patients and practitioners perceive these practices. OBJECTIVE: To examine ho…
Self‐management in long‐term conditions – where does the health service sit
Welcome to this edition of HEX. We still have quite much catching up to do, and a large number of the manuscripts published in this edition were submitted and accepted two years ago. I intend to focus this briefing on long-term conditions (LTCs), highlighting the manuscripts in this edition which link to this theme, and with a particular focus on self-management and the role of the health service in supporting patients with LTCs. As Lhussier et a…
HEX goes Open Access
Welcome to this edition of HEX. Our main news is that, as you might have seen on our website, we have taken the decision to convert Health Expectations to a fully open access journal from 2016. In doing so, HEX will join the Wiley Open Access portfolio (http://www.wileyopenaccess.com) and will benefit from a number of advantages that confers. We made this decision because we all want HEX to continue to publish the very best papers in the field, a…
Non-disclosure of chronic kidney disease in primary care and the limits of instrumental rationality in chronic illness self-management
Early detection of long term conditions is predicated on assumptions that lifestyle changes and medications can be used to reduce or manage the risk of condition progression. However, ambiguity remains about the nature and place of diagnostic disclosure to people in newly recognised or asymptomatic 'pre' conditions such as early stage chronic kidney disease (CKD). The disclosure of a diagnosis is relevant to instigating strategies which rely on a…
Reaching vulnerable groups
Welcome to the first edition of HEX for 2016. We have included some excellent papers, reporting on a range of clinical topics and research methodologies. The review article by Phillipson and colleagues on current practices to increase Chlamydia screening in the community evaluated the included interventions against social marketing national benchmark criteria. Despite the quality of evidence being low, the authors do make sensible suggestions abo…
‘I should have taken that further’ – missed opportunities during cardiovascular risk assessment in patients with psoriasis in UK primary care settings
BACKGROUND: Unhealthy lifestyle is common in psoriasis, contributing to worsening disease and increased cardiovascular disease (CVD) risk. CVD risk communication should improve patients' understanding of risk and risk-reducing behaviours; however, the effectiveness of risk screening is debated and evaluation currently limited. OBJECTIVE: To examine the process of assessing for and communicating about CVD risk in the context of psoriasis. DESIGN: …
Positive reporting? Is there a bias is reporting of patient and public involvement and engagement
Welcome to this edition of Health Expectations. As we have stated in earlier editorial briefings (e.g. 18.6), we are paying much more attention to the role played by patients and the public in selecting and agreeing the research question, study design and methods, interpretation and discussion of study findings, and in dissemination of results. So this edition of HEX particularly reflects this. In the UK, the National Institute for Health Researc…
A qualitative study of patient and professional perspectives of healthcare services for multiple sclerosis
Multiple sclerosis (MS) is a chronic degenerative condition, with heterogeneous symptoms, and an unpredictable prognosis. Previous literature suggests patients' experiences of healthcare are unsatisfactory. Primary care may play a key role in the management of people with MS (PwMS); however, provision of services for PwMS has received little focus in the primary care literature. This study aimed to explore perspectives and experiences of PwMS and…
Controlled Interventions to Reduce Burnout in Physicians
Importance Burnout is prevalent in physicians and can have a negative influence on performance, career continuation, and patient care. Existing evidence does not allow clear recommendations for the management of burnout in physicians. Objective To evaluate the effectiveness of interventions to reduce burnout in physicians and whether different types of interventions (physician-directed or organization-directed interventions), physician characteri…
Process and impact of patient involvement in a systematic review of shared decision making in primary care consultations
Broadening the reach of Health Expectations
Patient involvement in research – participants or collaborators
There is a consensus that the public should be involved in health research, and Patient and Public Involvement and Engagement (PPIE) can be at many different stages of research.1 In this edition of HEX, Blackburn's letter outlines the difference between patients as participants in research (referring to a manuscript outlining the role of patients establishing the content of a patient-reported outcome measure2) versus a role as an active participa…
Medicine (67 obras) · Psychology (64 obras) · Nursing (47 obras) · Qualitative research (37 obras) · Political science (36 obras) · Sociology (36 obras) · Psychiatry (35 obras) · Health care (28 obras) · Mental health (24 obras) · Psychological intervention (19 obras)