Kelly
Dados Biográficos
| ID | 3862 |
|---|---|
| NOME | Kelly |
| SOBRENOME | Kelly |
| ASSINATURA | KELLY |
| AFILIAÇÕES | University of Exeter |
| ORCID | 0000-0003-1045-4615 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 36 |
| TOTAL DE CITAÇÕES | 171 |
| TOTAL COMO AUTOR | 36 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 1981 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2020 |
| ÍNDICE H | 9 |
It’s My Secret Space’
Social workers are at high risk of job-related stress that can impair their well-being and professional practice. Although organisational support is a fundamental requirement, it has been argued that social workers need to develop emotional resilience to help them manage the demands of the job. This mixed method study examines the effects of an eight-week mindfulness training course on several resources previously found to underpin resilience in …
Ceh'eȝteekuu!-Listen-This is Arapaho Land
We know about the rapid loss of our world's plants, animals and wilderness but few of us are aware of the parallel, perhaps more rapid and equally devastating, extinction of our planet's human cultural diversity and ongoing cultural genocide. The Vision Quest-University of Wyoming (VQ-UWYO) project addresses the physical occupation of Arapaho lands and the concomitant erasure of Arapaho culture as evidenced by the critically endangered status of …
As condições genéticas e as Ciências Sociais e Humanas em saúde
as condies genticas em uma perspectiva dos estudos da deficincia e/ou a pesquisa qualitativa. Os/as autores/as provm de diferentes regies e instituies internacionais e nacionais contribuindo com
How to conduct good quality research on violence against children with disabilities
With careful planning, challenges in collecting data on disability and violence can be overcome to generate evidence in this neglected area
Dimensions of responsibility in medical genetics
Discussion of a “duty to recontact” emerged as technological advances left professionals considering getting back in touch with patients they had seen in the past. While there has been much discussion of the duty to recontact as a matter of theory and ethics, there has been rather little empirically based analysis of what this “duty” consists of. Drawing on interviews with 34 professionals working in, or closely with, genetics services, this pape…
Discipline and Craft
1033 African American Review 50.4 (Winter 2017): 1033-1041© 2018 Johns Hopkins University Press and Saint Louis University Kelly_Kelly 2/14/2018 5:45 PM Page 1033 1034 AFRICAN AMERICAN REVIEW Kelly_Kelly 2/14/2018 5:45 PM Page 1034 SUSAN KELLY WITH SONIA SANCHEZ 1035 Kelly_Kelly 2/14/2018 5:45 PM Page 1035 1036 AFRICAN AMERICAN REVIEW Kelly_Kelly 2/14/2018 5:45 PM Page 1036 SUSAN KELLY WITH SONIA SANCHEZ 1037 Kelly_Kelly 2/14/2018 5:45 PM Page 10…
Controversy goes online
Scientific controversy is increasingly played out via the internet, a technology that is simultaneously content, medium and research infrastructure. Here we analyse material from Wikipedia, focusing on schizophrenia genetics. We find that citation and curation of scientific resources follow a negotiated, ad hoc adherence to Wikipedia rules, are based on limited access to scientific literature, and thus lead to a partially constructed ‘review’ of …
Families dealing with the uncertainty of genetic disorders
Some scholars contend that genetic medicine is transforming the experience of illness and the social category of the family - bringing future risks into the present, and potentially strengthening familial biological bonds in light of these shared genetic risks. However, research has shown that genetic information is interpreted and acted upon through a rich repertoire of adaptable social, cultural and familial factors which pre-exist and interact…
The Multisite Accelerated Permanency Project
The Multisite Accelerated Permanency Project (MSAPP) implemented permanency roundtables (PRTs) to increase legal permanency rates for older youth in foster care. PRTs are structured meetings intended to expedite legal permanency (defined as adoption, guardianship, or reunification) for youth by involving experts from both inside and outside child welfare agencies in creative and concrete case planning. The target population of this study included…
Autobiologies on YouTube
Despite a growing personal genomics market, little is known about how people engage with the possibilities offered by direct-to-consumer (DTC) genetic testing. In order to help address this gap, this study deploys narrative analysis of YouTube videos posted by individuals who have purchased DTC genetic testing for disease. Genetic testing is said to be contributing to new states of illness, where individuals may become "patients-in-waiting." In t…
Public viewpoints on new non-invasive prenatal genetic tests
Prenatal screening programmes have been critiqued for their routine implementation according to clinical rationale without public debate. A new approach, non-invasive prenatal diagnosis (NIPD), promises diagnosis of fetal genetic disorders from a sample of maternal blood without the miscarriage risk of current invasive prenatal tests (e.g. amniocentesis). Little research has investigated the attitudes of wider publics to NIPD. This study used Q-m…
But that was my idea!’ Problems of Authorship and Validation in Contemporary Practices of Creative Dissent
Illness Online
Self-reported data are regarded by medical researchers as invalid and less reliable than data produced by experts in clinical settings, yet individuals can increasingly contribute personal information to medical research through a variety of online platforms. In this article we examine this 'participatory turn' in healthcare research, which claims to challenge conventional delineations of what is valid and reliable for medical practice, by using …
The Maternal–Foetal Interface and Gestational Chimerism
The science of gestational cell transfer—research into the transfer of cells between a pregnant woman and foetus during gestation—and subsequent mingling of transferred cells, or microchimerism, is bringing new attention to the maternal/foetal interface. These findings challenge previous biological understandings of a barrier between the body of a pregnant woman and developing foetus, a barrier maintaining the identity integrity as it were, of tw…
The Gift of Spit (And the Obligation to Return It)
People can now send a sample of their saliva to an internet-based company in order to discover genetic information about themselves. Entering this 'direct-to-consumer' genetic testing (DTC GT) marketplace can result in enticement to engage in various forms of 'participatory' practices, such as taking part in genetic research. In this article, we analyse the research activities of one of the largest and best-known DTC GT companies, 23andMe. 23andM…
Diagnosis as a social determinant
Looking beyond risk
Davison, Frankel, and Davey Smith (1989 Davison, C., Frankel, S. and Davey Smith, G. 1989. Inheriting heart trouble: The relevance of common-sense ideas to preventive measures. Health Education Research, 4(3): 329–340. [Crossref] , [Google Scholar]) conceptualised lay epidemiology as the process of interpreting health risks through considering non-traditional sources of information drawn from personal networks and from the public arena. We analys…
Assisting Reproduction, Testing Genes
Birenbaum-Carmeli, D. and Inhorn, M.C. ( eds ) Assisting Reproduction, Testing Genes: Global Encounters with New Biotechnologies . New York : Berghahn Books , 2009 , 304 pp £55 (hbk ) ISBN 978-1-84545-625-2 . Assisted reproductive technologies (ARTs) have proliferated as new biotechnologies and spread widely across the globe. ARTs now include a host of technologies beyond in vitro fertilisation and directed toward different contexts of infertilit…
Qualitative Interviewing Techniques and Styles
Choosing not to choose
Parents of children with genetic conditions or impairments stand in a unique position with regard to choices and dilemmas posed by prenatal screening and testing options offered to at‐risk parents as a means to a ‘healthy’ baby. This article reports the results of a qualitative study of parents whose children are clients of a state‐wide rural genetic outreach programme in the US. The analysis seeks to connect the lived experience of parents of ch…
Toward an Epistemological Luddism of Bioethics
In the decades since its emergence, bioethics has become successfully integrated, institutionally and culturally, into contemporary processes of biotechnological production. Its success is in large part the result of the development within American bioethics of a strong principlist form that has had considerable influence on bioethics developments regarding biotechnology governance internationally. This article presents a critique of bioethics, d…
Barriers to Care-Seeking for Children’s Oral Health Among Low-Income Caregivers
Objectives. We identified psychosocial, structural, and cultural barriers to seeking dental care among nonutilizing caregivers of Medicaid-enrolled children. Methods. We used Medicaid utilization records to identify utilizing and nonutilizing African American and White caregivers of Medicaid-enrolled children in Jefferson County, Kentucky. We conducted 8 focus groups (N=76) with a stratified random sample of responding caregivers; transcripts wer…
A Different Light
This article explores narratives of parenting a child with impairments for insight into impairment as both a materially and socially meaningful phenomenon. Drawing from in-depth interviews with parents, a narrative approach is employed to explore the ambiguities of human impairment and embodiment as experienced by an intimate other. Parents'stories illustrate impairment as an intersubjective and intercorporeal accomplishment and illustrate multip…
Annie Moore and the archives of displacement
Annie Moore, the first immigrant to enter the USA through the Ellis Island immigrant processing station, stands as an originary figure of the so-called golden age of European immigration to the USA in the late nineteenth century. The contemporary archivization of the Irish immigrant Annie Moore in the Ellis Island Museum, New York and the Cobh Harbour Heritage Centre in County Cork, Ireland repeats the democratic rhetoric of immigration which und…
Calling Up Annie Moore
Susan Kelly lived in New York City from 1998 to 2001 and participated in the Whitney Museum of American Art Independent Study Program,the World Trade Center's studio residency, and the 16 Beaver Group. Currently she is working toward a Ph.D. at Goldsmith's College, London. Stephen Morton is a lecturer in Anglophone literature and culture at the University of Southampton, U.K. He is the author of Gayatri Chakravorty Spivak (2002
The Gift of Spit (And the Obligation to Return It)
People can now send a sample of their saliva to an internet-based company in order to discover genetic information about themselves. Entering this 'direct-to-consumer' genetic testing (DTC GT) marketplace can result in enticement to engage in various forms of 'participatory' practices, such as taking part in genetic research. In this article, we analyse the research activities of one of the largest and best-known DTC GT companies, 23andMe. 23andM…
Choosing not to choose
Parents of children with genetic conditions or impairments stand in a unique position with regard to choices and dilemmas posed by prenatal screening and testing options offered to at‐risk parents as a means to a ‘healthy’ baby. This article reports the results of a qualitative study of parents whose children are clients of a state‐wide rural genetic outreach programme in the US. The analysis seeks to connect the lived experience of parents of ch…
Public Bioethics and Publics
Public bioethics bodies are used internationally as institutions with the declared aims of facilitating societal debate and providing policy advice in certain areas of scientific inquiry raising questions of values and legitimate science. In the United States, bioethical experts in these institutions use the language of consensus building to justify and define the outcome of the enterprise. However, the implications of public bioethics at science…
Autobiologies on YouTube
Despite a growing personal genomics market, little is known about how people engage with the possibilities offered by direct-to-consumer (DTC) genetic testing. In order to help address this gap, this study deploys narrative analysis of YouTube videos posted by individuals who have purchased DTC genetic testing for disease. Genetic testing is said to be contributing to new states of illness, where individuals may become "patients-in-waiting." In t…
Bioethics and rural health
Illness Online
Self-reported data are regarded by medical researchers as invalid and less reliable than data produced by experts in clinical settings, yet individuals can increasingly contribute personal information to medical research through a variety of online platforms. In this article we examine this 'participatory turn' in healthcare research, which claims to challenge conventional delineations of what is valid and reliable for medical practice, by using …
It’s My Secret Space’
Social workers are at high risk of job-related stress that can impair their well-being and professional practice. Although organisational support is a fundamental requirement, it has been argued that social workers need to develop emotional resilience to help them manage the demands of the job. This mixed method study examines the effects of an eight-week mindfulness training course on several resources previously found to underpin resilience in …
The Maternal–Foetal Interface and Gestational Chimerism
The science of gestational cell transfer—research into the transfer of cells between a pregnant woman and foetus during gestation—and subsequent mingling of transferred cells, or microchimerism, is bringing new attention to the maternal/foetal interface. These findings challenge previous biological understandings of a barrier between the body of a pregnant woman and developing foetus, a barrier maintaining the identity integrity as it were, of tw…
A Different Light
This article explores narratives of parenting a child with impairments for insight into impairment as both a materially and socially meaningful phenomenon. Drawing from in-depth interviews with parents, a narrative approach is employed to explore the ambiguities of human impairment and embodiment as experienced by an intimate other. Parents'stories illustrate impairment as an intersubjective and intercorporeal accomplishment and illustrate multip…
Annie Moore and the archives of displacement
Annie Moore, the first immigrant to enter the USA through the Ellis Island immigrant processing station, stands as an originary figure of the so-called golden age of European immigration to the USA in the late nineteenth century. The contemporary archivization of the Irish immigrant Annie Moore in the Ellis Island Museum, New York and the Cobh Harbour Heritage Centre in County Cork, Ireland repeats the democratic rhetoric of immigration which und…
Trading privileges from eighth‐century England
Diagnosis as a social determinant
Barriers to Care-Seeking for Children’s Oral Health Among Low-Income Caregivers
Objectives. We identified psychosocial, structural, and cultural barriers to seeking dental care among nonutilizing caregivers of Medicaid-enrolled children. Methods. We used Medicaid utilization records to identify utilizing and nonutilizing African American and White caregivers of Medicaid-enrolled children in Jefferson County, Kentucky. We conducted 8 focus groups (N=76) with a stratified random sample of responding caregivers; transcripts wer…
Families dealing with the uncertainty of genetic disorders
Some scholars contend that genetic medicine is transforming the experience of illness and the social category of the family - bringing future risks into the present, and potentially strengthening familial biological bonds in light of these shared genetic risks. However, research has shown that genetic information is interpreted and acted upon through a rich repertoire of adaptable social, cultural and familial factors which pre-exist and interact…
The Multisite Accelerated Permanency Project
The Multisite Accelerated Permanency Project (MSAPP) implemented permanency roundtables (PRTs) to increase legal permanency rates for older youth in foster care. PRTs are structured meetings intended to expedite legal permanency (defined as adoption, guardianship, or reunification) for youth by involving experts from both inside and outside child welfare agencies in creative and concrete case planning. The target population of this study included…
Calling Up Annie Moore
Susan Kelly lived in New York City from 1998 to 2001 and participated in the Whitney Museum of American Art Independent Study Program,the World Trade Center's studio residency, and the 16 Beaver Group. Currently she is working toward a Ph.D. at Goldsmith's College, London. Stephen Morton is a lecturer in Anglophone literature and culture at the University of Southampton, U.K. He is the author of Gayatri Chakravorty Spivak (2002
A Search for Relevance in Transition from Post-Primary to Secondary
At St Therese's Girls School, we have initiated what we believe to be a more meaningful and more relevant utilization of our resources in producing a secondary program that is more appropriate to the needs of our students.During 1980, the program was organized in a similar manner to previous years. Each grade - eight, nine and ten - was in the charge of grade teachers. We were fortunate in having a specialist art teacher, but basically the Post P…
The Uses of Literacy in Early Mediaeval Europe
This book investigates the ways in which literacy was important in early mediaeval Europe, and examines the context of literacy, its uses, levels, and distribution, in a number of different early mediaeval societies between c. 400 and c. 1000. The studies, by leading scholars in the field, set out to provide the factual basis from which assessments of the significance of literacy in the early mediaeval world can be made, as well as analysing the …
Trading privileges from eighth‐century England
How can the aps be of more value to its members
The challenges that modern and responsive organisations face include becoming more customer focused, raising the quality of the product and services they market, and improving productivity. This address considers those challenges as they relate to the Australian Psychological Society
Inequities in Health Care and Survival After Injury Among Pedestrians
This study investigated whether rural/urban differences in injury mortality and morbidity are primarily due to medical care maldistribution or to other factors such as sociodemographic or environmental characteristics that are highly correlated with location. To separate incidence from case‐fatality rates, the study analyzed the determinants of survival rather than cause‐specific mortality rates. Using information from Florida traffic crash repor…
Discipline and Craft
Genetic Maps and Human Imaginations
Scientists are racing to unravel the code of life in our DNA sequences. But once we know the code, will we know what life means? Will we know what to do with the powerful information we will have? Barbara Katz Rothman examines the current trends and applications of genetics research on race, illness and procreation. She explores new genetics in the light of her work as a sociologist who has studied motherhood and women's experiences with prenatal…
New' genetics meets the old underclass
Ethical and practical issues around genetic research are of major international concern, both in academia and in the public domain. Questions concerning what interventions are possible and appropriate with the increasing amount of genetic information available; challenge our understandings of ourselves, our health and wellbeing, and the role of medical ethics, public health, surveillance and risk. However there has been little reflection on the s…
Redesigning Life
Public Bioethics and Publics
Public bioethics bodies are used internationally as institutions with the declared aims of facilitating societal debate and providing policy advice in certain areas of scientific inquiry raising questions of values and legitimate science. In the United States, bioethical experts in these institutions use the language of consensus building to justify and define the outcome of the enterprise. However, the implications of public bioethics at science…
Bioethics and rural health
Annie Moore and the archives of displacement
Annie Moore, the first immigrant to enter the USA through the Ellis Island immigrant processing station, stands as an originary figure of the so-called golden age of European immigration to the USA in the late nineteenth century. The contemporary archivization of the Irish immigrant Annie Moore in the Ellis Island Museum, New York and the Cobh Harbour Heritage Centre in County Cork, Ireland repeats the democratic rhetoric of immigration which und…
Calling Up Annie Moore
Susan Kelly lived in New York City from 1998 to 2001 and participated in the Whitney Museum of American Art Independent Study Program,the World Trade Center's studio residency, and the 16 Beaver Group. Currently she is working toward a Ph.D. at Goldsmith's College, London. Stephen Morton is a lecturer in Anglophone literature and culture at the University of Southampton, U.K. He is the author of Gayatri Chakravorty Spivak (2002
Barriers to Care-Seeking for Children’s Oral Health Among Low-Income Caregivers
Objectives. We identified psychosocial, structural, and cultural barriers to seeking dental care among nonutilizing caregivers of Medicaid-enrolled children. Methods. We used Medicaid utilization records to identify utilizing and nonutilizing African American and White caregivers of Medicaid-enrolled children in Jefferson County, Kentucky. We conducted 8 focus groups (N=76) with a stratified random sample of responding caregivers; transcripts wer…
A Different Light
This article explores narratives of parenting a child with impairments for insight into impairment as both a materially and socially meaningful phenomenon. Drawing from in-depth interviews with parents, a narrative approach is employed to explore the ambiguities of human impairment and embodiment as experienced by an intimate other. Parents'stories illustrate impairment as an intersubjective and intercorporeal accomplishment and illustrate multip…
Toward an Epistemological Luddism of Bioethics
In the decades since its emergence, bioethics has become successfully integrated, institutionally and culturally, into contemporary processes of biotechnological production. Its success is in large part the result of the development within American bioethics of a strong principlist form that has had considerable influence on bioethics developments regarding biotechnology governance internationally. This article presents a critique of bioethics, d…
Choosing not to choose
Parents of children with genetic conditions or impairments stand in a unique position with regard to choices and dilemmas posed by prenatal screening and testing options offered to at‐risk parents as a means to a ‘healthy’ baby. This article reports the results of a qualitative study of parents whose children are clients of a state‐wide rural genetic outreach programme in the US. The analysis seeks to connect the lived experience of parents of ch…
Qualitative Interviewing Techniques and Styles
Looking beyond risk
Davison, Frankel, and Davey Smith (1989 Davison, C., Frankel, S. and Davey Smith, G. 1989. Inheriting heart trouble: The relevance of common-sense ideas to preventive measures. Health Education Research, 4(3): 329–340. [Crossref] , [Google Scholar]) conceptualised lay epidemiology as the process of interpreting health risks through considering non-traditional sources of information drawn from personal networks and from the public arena. We analys…
Assisting Reproduction, Testing Genes
Birenbaum-Carmeli, D. and Inhorn, M.C. ( eds ) Assisting Reproduction, Testing Genes: Global Encounters with New Biotechnologies . New York : Berghahn Books , 2009 , 304 pp £55 (hbk ) ISBN 978-1-84545-625-2 . Assisted reproductive technologies (ARTs) have proliferated as new biotechnologies and spread widely across the globe. ARTs now include a host of technologies beyond in vitro fertilisation and directed toward different contexts of infertilit…
The Maternal–Foetal Interface and Gestational Chimerism
The science of gestational cell transfer—research into the transfer of cells between a pregnant woman and foetus during gestation—and subsequent mingling of transferred cells, or microchimerism, is bringing new attention to the maternal/foetal interface. These findings challenge previous biological understandings of a barrier between the body of a pregnant woman and developing foetus, a barrier maintaining the identity integrity as it were, of tw…
The Gift of Spit (And the Obligation to Return It)
People can now send a sample of their saliva to an internet-based company in order to discover genetic information about themselves. Entering this 'direct-to-consumer' genetic testing (DTC GT) marketplace can result in enticement to engage in various forms of 'participatory' practices, such as taking part in genetic research. In this article, we analyse the research activities of one of the largest and best-known DTC GT companies, 23andMe. 23andM…
Diagnosis as a social determinant
Public viewpoints on new non-invasive prenatal genetic tests
Prenatal screening programmes have been critiqued for their routine implementation according to clinical rationale without public debate. A new approach, non-invasive prenatal diagnosis (NIPD), promises diagnosis of fetal genetic disorders from a sample of maternal blood without the miscarriage risk of current invasive prenatal tests (e.g. amniocentesis). Little research has investigated the attitudes of wider publics to NIPD. This study used Q-m…
But that was my idea!’ Problems of Authorship and Validation in Contemporary Practices of Creative Dissent
Sociology (19 obras) · Political science (16 obras) · Law (13 obras) · Psychology (11 obras) · Law (9 obras) · Medicine (9 obras) · History (8 obras) · Philosophy (8 obras) · Epistemology (7 obras) · Philosophy (6 obras)