Hilary Pinnock
Dados Biográficos
| ID | 4273552 |
|---|---|
| NOME | Hilary Pinnock |
| PRENOMES | Hilary |
| SOBRENOME | Pinnock |
| ASSINATURA | PINNOCK H |
| AFILIAÇÕES | University of Edinburgh |
| ORCID | 0000-0002-5976-8386 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 35 |
| TOTAL DE CITAÇÕES | 4 |
| TOTAL COMO AUTOR | 35 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2011 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 1 |
Time series analysis of environmental factors and their association with emergency visits for asthma exacerbations in Petaling Jaya, Malaysia
Background: The burden of respiratory conditions, especially asthma, is likely to increase with urbanisation and pollution unless effectively managed. Petaling Jaya, a metropolitan area, faced heightened risk due to worsening outdoor air pollution, which can trigger asthma exacerbations. We aimed to examine the relationships between environmental factors and emergency visits for asthma exacerbations. Methods: ) exposure on these visits. Results: …
Delivering remote pulmonary rehabilitation in Bangladesh
Background: Pulmonary rehabilitation (PR) is an effective and essential component of care for the increasing number of individuals with chronic respiratory diseases (CRDs). Despite the benefits, it remains underutilised and poorly accessible in low- and middle-income countries (LMICs). We aimed to determine the feasibility of delivering PR in Bangladesh at home because of pandemic travel restrictions. Methods: Aligned with the Medical Research Co…
Systematic review of barriers to and enablers of tuberculosis diagnosis, notification, and intervention for designing customised intervention package to minimise ‘missing millions’ in tribal communiti…
Background: Tribal communities in India experience a very high burden of tuberculosis (TB), estimated at 7030 per million. The diagnosis and notification gaps are substantial, partly due to the geographical remoteness of these populations. Within an overarching study to design an intervention for finding the 'missing millions' among tribal communities, we conducted a systematic review to identify the barriers and enablers of tuberculosis diagnosi…
Optimising participation in a pulmonary rehabilitation programme for people living with chronic respiratory diseases in rural India
Background: Pulmonary rehabilitation (PR) plays a vital role in managing chronic obstructive pulmonary disease and other chronic respiratory diseases (CRDs). However, implementation of this multidisciplinary approach in resource-poor settings may not be sufficient because of referrers' uncertainty regarding the effectiveness of PR, inconvenient timing, travel issues, patients' lack of motivation, and poor family support. The aim was to test the f…
Exploring the disease experience and supportive care for people with very severe chronic obstructive pulmonary disease in Malaysia
Background: In Malaysia, palliative services are almost non-existent for those with severe organ failure such as chronic obstructive pulmonary disease (COPD). Access to palliative care services and awareness among the public and healthcare professionals remain low. While recognised as important in high income settings, the literature on palliative care for non-malignant disease is relatively uncommon in low- and middle-income countries, and none …
Barriers and enablers to centre-based pulmonary rehabilitation for patients with chronic obstructive pulmonary disease in low- and middle-income countries
Background: Chronic obstructive pulmonary disease (COPD) is a leading cause of mortality and morbidity in low- and middle-income countries (LMICs). Despite the proven benefits of pulmonary rehabilitation (PR) for patients with COPD, its referral, uptake, and completion rates remain low. This systematic review aimed to identify the barriers and enablers to centre-based PR among patients with COPD in LMICs. Methods: We searched PubMed, Web of Scien…
Psychological impact of the Covid-19 pandemic on people with asthma
Objective When COVID-19 was declared a pandemic there was concern that people living with asthma were at high-risk of poor outcomes. We aimed to explore the psychological impact of living with asthma in the United Kingdom during the pandemic.Methods and measures Our mixed methods study, co-designed with patient and public involvement colleagues, included an online survey to detect anxiety/depression/post-traumatic stress disorder (PTSD) and healt…
Qualitative research influencing guideline and policy
Clinical and health guidelines are important documents that support health care providers, patients, and organisations by recommending models of care for daily practice. They are developed based on scientific evidence, yet their implementation (especially for guidelines on complex interventions) needs to take local context into consideration [1]. Specifically, these guidelines are typically based on evidence [...]
Exploring the perceptions of patients with chronic respiratory diseases and their insights into pulmonary rehabilitation in Bangladesh
Background: Chronic respiratory diseases (CRDs) require holistic management which considers patients' preferences, appropriate pharmacotherapy, pulmonary rehabilitation, and integrated care. We aimed to understand the perceptions of people with CRDs about their condition and pulmonary rehabilitation in Bangladesh. Methods: We conducted semi-structured interviews with a maximum variation sample of people with CRDs who had participated in a feasibi…
Delivery of Supported Self‐Management in Primary Care Asthma Reviews
Background Supported self‐management (SSM) for asthma reduces the risk of asthma attacks and improves asthma control and quality of life. SSM optimally includes patient‐centred communication and behaviour change support, however, the extent to which this occurs in routine primary care is unclear. This project was nested within the IMPlementing IMProved Asthma self‐management as RouTine (IMP 2 ART) programme; a UK‐wide trial evaluating an implemen…
Developing a home-based pulmonary rehabilitation programme for patients with chronic respiratory diseases in Malaysia
Background: The COVID-19 pandemic has underscored the importance of remote healthcare and home-based interventions, including pulmonary rehabilitation, for patients with chronic respiratory diseases (CRDs). It has also heightened the vulnerability of individuals with underlying respiratory conditions to severe illness from COVID-19, necessitating exploration and assessment of the feasibility of delivering home - pulmonary rehabilitation (home-PR)…
Pulmonary rehabilitation capacity building through a teach-the-teacher programme
CHRONIC RESPIRATORY DISEASES AND PULMONARY REHABILITATION Chronic respiratory diseases (CRDs) are a leading cause of death and hospitalisation in low- and middle-income countries (LMICs) [1], with chronic obstructive pulmonary disease (COPD) being a major contributor to work productivity loss [2]. Pulmonary rehabilitation (PR) is a low-cost therapy that improves symptoms, quality of life, and exercise [...]
Patient views on asthma diagnosis and how a clinical decision support system could help
INTRODUCTION: Making a diagnosis of asthma can be challenging for clinicians and patients. A clinical decision support system (CDSS) for use in primary care including a patient-facing mode, could change how information is shared between patients and healthcare professionals and improve the diagnostic process. METHODS: Participants diagnosed with asthma within the last 5 years were recruited from general practices across four UK regions. In-depth …
Hajj health examination for pilgrims with asthma in Malaysia
Background: Asthma was one of the top causes of hospitalization and unscheduled medical attendances due to acute exacerbations and its complications. In Malaysia, all pilgrims must undergo a mandatory health examination and certified fit to perform pilgrimage. We studied the current organisational and clinical routines of Hajj health examination in Malaysia with a focus on the delivery of care for pilgrims with asthma. Methods: We conducted non-p…
Mapping national information and communication technology (ICT) infrastructure to the requirements of potential digital health interventions in low- and middle-income countries
Background: Digital health can support health care in low- and middle-income countries (LMICs) by overcoming problems of distance, poor infrastructure and the need to provide community practitioners with specialist support. We used five RESPIRE countries as exemplars (Bangladesh, India, Indonesia, Malaysia, Pakistan) to identify the digital health solutions that are valuable in their local setting, worked together with local clinicians and resear…
Working as frontline health facilitators, service providers, program supporters, and social health activists in Indian hilly terrain areas
Background: Community health workers (CHW) contribute to achieving health targets of the Sustainable Development Goals (SDG) and Universal Health Care (UHC) in low- and middle-income countries (LMICs). In India, accredited social health activists (ASHAs) function as health facilitators, service providers, and programme supporters for rural and tribal communities and are at the frontline during the COVID-19 pandemic. We aimed to describe the ASHAs…
Generational perspective on asthma self‐management in the Bangladeshi and Pakistani community in the United Kingdom
BACKGROUND: Self-management strategies improve asthma outcomes, although interventions for South Asian populations have been less effective than in White populations. Both self-management and culture are dynamic, and factors such as acculturation and generation have not always been adequately reflected in existing cultural interventions. We aimed to explore the perspectives of Bangladeshi and Pakistani people in the United Kingdom, across multipl…
Delivery of supported self‐management in remote asthma reviews
Insights into how Malaysian adults with limited health literacy self‐manage and live with asthma
BACKGROUND: Adjusting to life with a chronic condition is challenging, especially for people with limited health literacy, which is associated with low compliance with self-management activities and poor clinical outcomes. OBJECTIVE: We explored how people with limited health literacy understand asthma and undertake self-management practices. DESIGN: We adapted the arts-based qualitative methodology Photovoice. SETTING AND PARTICIPANTS: We sample…
Predictors for detecting chronic respiratory diseases in community surveys
BACKGROUND: Our previous scoping review revealed limitations and inconsistencies in population surveys of chronic respiratory disease. Informed by this review, we piloted a cross-sectional survey of adults in four South/South-East Asian low-and middle-income countries (LMICs) to assess survey feasibility and identify variables that predicted asthma or chronic obstructive pulmonary disease (COPD). METHODS: We administered relevant translations of …
Chronic respiratory disease surveys in adults in low- and middle-income countries
BACKGROUND: Chronic respiratory diseases (CRDs) contribute significantly towards the global burden of disease, but the true prevalence and burden of these conditions in adults is unknown in the majority of low- and middle-income countries (LMICs). We aimed to identify strategies - in particular the definitions, study designs, sampling frames, instruments, and outcomes - used to conduct prevalence surveys for CRDs in LMICs. The findings will infor…
Research priorities to address the global burden of chronic obstructive pulmonary disease (COPD) in the next decade
BACKGROUND: The global prevalence of chronic obstructive pulmonary disease (COPD) has increased markedly in recent decades. Given the scarcity of resources available to address global health challenges and respiratory medicine being relatively under-invested in, it is important to define research priorities for COPD globally. In this paper, we aim to identify a ranked set of COPD research priorities that need to be addressed in the next 10 years …
Barriers and challenges of implementing pulmonary rehabilitation in Malaysia
lobally, chronic respiratory diseases (CRDs) are one of the most common non-communicable diseases. Of these, asthma and Chronic Obstructive Pulmonary Disease (COPD) are the most prevalent, and post-tuberculosis lung disorders, bronchiectasis and interstitial lung disease are growing problems especially in developing countries By 2030, CRD mortality rate is expected to rise to 8.6%, making it the world's third leading cause of death [2]. Between 1…
Sociocultural influences on asthma self‐management in a multicultural society
BACKGROUND: Supported self-management improves asthma outcomes, but implementation requires adaptation to the local context. Barriers reported in Western cultures may not resonate in other cultural contexts. We explored the views, experiences and beliefs that influenced self-management among adults with asthma in multicultural Malaysia. METHODS: Adults with asthma were purposively recruited from an urban primary healthcare clinic for in-depth int…
Health literacy levels and its determinants among people with asthma in Malaysian primary healthcare settings
In this study population, more than half of the people living with asthma were found to have limited health literacy, which was associated with not having received self-management education supported by an asthma action plan. Future interventions should include strategies that ensure they meet the needs of people with limited health literacy
Beyond professional boundaries
This article draws on theories of social capital to understand ways in which the negotiation of professional boundaries among healthcare professionals relates to health services change. We compared reconfiguration of respiratory services in four primary care organisations (PCOs) in England and Wales. Service development was observed over 18 months during a period of market-based reforms. Serial interviews with key clinicians and managers from hos…
From awareness to involvement? A qualitative study of respiratory patients’ awareness of health service change
BACKGROUND Despite the policy rhetoric, patient involvement in health service decisions remains limited. Highlighted barriers include a concern that most patients are unable to see beyond personal aspects of their care in order to contribute meaningfully to health service development, and a perception that professionals do not welcome patient involvement. OBJECTIVES We aimed to explore respiratory patients' awareness of changes in local health se…
Perspectives of patients and healthcare professionals on the impact of telemetrically supported patient self-management for chronic obstructive pulmonary disease (COPD)
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)The IJIC 20th Anniversary Issue was published in 2021
Clinical effectiveness and service implications of telemonitoring for chronic obstructive pulmonary disease
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 2.913 (2021 JCR, received in June 2022)The IJIC 20th Anniversary Issue was published in 2021
Beyond professional boundaries
This article draws on theories of social capital to understand ways in which the negotiation of professional boundaries among healthcare professionals relates to health services change. We compared reconfiguration of respiratory services in four primary care organisations (PCOs) in England and Wales. Service development was observed over 18 months during a period of market-based reforms. Serial interviews with key clinicians and managers from hos…
Does sharing the electronic health record in the consultation enhance patient involvement? A mixed‐methods study using multichannel video recording and in‐depth interviews in primary care
BACKGROUND: Sharing the electronic health-care record (EHR) during consultations has the potential to facilitate patient involvement in their health care, but research about this practice is limited. METHODS: We used multichannel video recordings to identify examples and examine the practice of screen-sharing within 114 primary care consultations. A subset of 16 consultations was viewed by the general practitioner and/or patient in 26 reflexive i…
Standards for Reporting Implementation Studies (StaRI) Statement
Implementation studies are often poorly reported and indexed, reducing their potential to inform initiatives to improve healthcare services. The Standards for Reporting Implementation Studies (StaRI) initiative aimed to develop guidelines for transparent and accurate reporting of implementation studies. Informed by the findings of a systematic review and a consensus-building e-Delphi exercise, an international working group of implementation scie…
Respire
Setting research priorities for global respiratory medicine within the National Institute for Health Research (Nihr) Global Health Research Unit in Respiratory Health (Respire)
The NIHR Global Health Research Unit in Respiratory Health (henceforth ‘RESPIRE’) is a research and academic capacity development initiative funded by the UK Government through its National Institute of Health Research (NIHR). RESPIRE’s focus is to undertake applied respiratory health in both communicable and non-communicable disorders, which has the potential to improve the respiratory health of children and adults in Bangladesh, India, Malaysia…
A systematic review of interventions addressing limited health literacy to improve asthma self-management
Engaging with stakeholders in a research programme to promote implementation of pulmonary rehabilitation in Bangladesh
The engagement of stakeholders can improve research prioritisation, implementation, and outcomes [1]. Stakeholders may be defined as the individuals and organisations having an interest or ‘stake’ in the outcome of a programme or project [2]. Stakeholder engagement is a process of building relationships through communication and shared decision-making at all stages of the research cycle [3]. Although the concept has been well established in high …
Predictors for detecting chronic respiratory diseases in community surveys
BACKGROUND: Our previous scoping review revealed limitations and inconsistencies in population surveys of chronic respiratory disease. Informed by this review, we piloted a cross-sectional survey of adults in four South/South-East Asian low-and middle-income countries (LMICs) to assess survey feasibility and identify variables that predicted asthma or chronic obstructive pulmonary disease (COPD). METHODS: We administered relevant translations of …
Chronic respiratory disease surveys in adults in low- and middle-income countries
BACKGROUND: Chronic respiratory diseases (CRDs) contribute significantly towards the global burden of disease, but the true prevalence and burden of these conditions in adults is unknown in the majority of low- and middle-income countries (LMICs). We aimed to identify strategies - in particular the definitions, study designs, sampling frames, instruments, and outcomes - used to conduct prevalence surveys for CRDs in LMICs. The findings will infor…
Research priorities to address the global burden of chronic obstructive pulmonary disease (COPD) in the next decade
BACKGROUND: The global prevalence of chronic obstructive pulmonary disease (COPD) has increased markedly in recent decades. Given the scarcity of resources available to address global health challenges and respiratory medicine being relatively under-invested in, it is important to define research priorities for COPD globally. In this paper, we aim to identify a ranked set of COPD research priorities that need to be addressed in the next 10 years …
Barriers and challenges of implementing pulmonary rehabilitation in Malaysia
lobally, chronic respiratory diseases (CRDs) are one of the most common non-communicable diseases. Of these, asthma and Chronic Obstructive Pulmonary Disease (COPD) are the most prevalent, and post-tuberculosis lung disorders, bronchiectasis and interstitial lung disease are growing problems especially in developing countries By 2030, CRD mortality rate is expected to rise to 8.6%, making it the world's third leading cause of death [2]. Between 1…
Sociocultural influences on asthma self‐management in a multicultural society
BACKGROUND: Supported self-management improves asthma outcomes, but implementation requires adaptation to the local context. Barriers reported in Western cultures may not resonate in other cultural contexts. We explored the views, experiences and beliefs that influenced self-management among adults with asthma in multicultural Malaysia. METHODS: Adults with asthma were purposively recruited from an urban primary healthcare clinic for in-depth int…
Health literacy levels and its determinants among people with asthma in Malaysian primary healthcare settings
In this study population, more than half of the people living with asthma were found to have limited health literacy, which was associated with not having received self-management education supported by an asthma action plan. Future interventions should include strategies that ensure they meet the needs of people with limited health literacy
Hajj health examination for pilgrims with asthma in Malaysia
Background: Asthma was one of the top causes of hospitalization and unscheduled medical attendances due to acute exacerbations and its complications. In Malaysia, all pilgrims must undergo a mandatory health examination and certified fit to perform pilgrimage. We studied the current organisational and clinical routines of Hajj health examination in Malaysia with a focus on the delivery of care for pilgrims with asthma. Methods: We conducted non-p…
Mapping national information and communication technology (ICT) infrastructure to the requirements of potential digital health interventions in low- and middle-income countries
Background: Digital health can support health care in low- and middle-income countries (LMICs) by overcoming problems of distance, poor infrastructure and the need to provide community practitioners with specialist support. We used five RESPIRE countries as exemplars (Bangladesh, India, Indonesia, Malaysia, Pakistan) to identify the digital health solutions that are valuable in their local setting, worked together with local clinicians and resear…
Working as frontline health facilitators, service providers, program supporters, and social health activists in Indian hilly terrain areas
Background: Community health workers (CHW) contribute to achieving health targets of the Sustainable Development Goals (SDG) and Universal Health Care (UHC) in low- and middle-income countries (LMICs). In India, accredited social health activists (ASHAs) function as health facilitators, service providers, and programme supporters for rural and tribal communities and are at the frontline during the COVID-19 pandemic. We aimed to describe the ASHAs…
Generational perspective on asthma self‐management in the Bangladeshi and Pakistani community in the United Kingdom
BACKGROUND: Self-management strategies improve asthma outcomes, although interventions for South Asian populations have been less effective than in White populations. Both self-management and culture are dynamic, and factors such as acculturation and generation have not always been adequately reflected in existing cultural interventions. We aimed to explore the perspectives of Bangladeshi and Pakistani people in the United Kingdom, across multipl…
Delivery of supported self‐management in remote asthma reviews
Insights into how Malaysian adults with limited health literacy self‐manage and live with asthma
BACKGROUND: Adjusting to life with a chronic condition is challenging, especially for people with limited health literacy, which is associated with low compliance with self-management activities and poor clinical outcomes. OBJECTIVE: We explored how people with limited health literacy understand asthma and undertake self-management practices. DESIGN: We adapted the arts-based qualitative methodology Photovoice. SETTING AND PARTICIPANTS: We sample…
Developing a home-based pulmonary rehabilitation programme for patients with chronic respiratory diseases in Malaysia
Background: The COVID-19 pandemic has underscored the importance of remote healthcare and home-based interventions, including pulmonary rehabilitation, for patients with chronic respiratory diseases (CRDs). It has also heightened the vulnerability of individuals with underlying respiratory conditions to severe illness from COVID-19, necessitating exploration and assessment of the feasibility of delivering home - pulmonary rehabilitation (home-PR)…
Pulmonary rehabilitation capacity building through a teach-the-teacher programme
CHRONIC RESPIRATORY DISEASES AND PULMONARY REHABILITATION Chronic respiratory diseases (CRDs) are a leading cause of death and hospitalisation in low- and middle-income countries (LMICs) [1], with chronic obstructive pulmonary disease (COPD) being a major contributor to work productivity loss [2]. Pulmonary rehabilitation (PR) is a low-cost therapy that improves symptoms, quality of life, and exercise [...]
Patient views on asthma diagnosis and how a clinical decision support system could help
INTRODUCTION: Making a diagnosis of asthma can be challenging for clinicians and patients. A clinical decision support system (CDSS) for use in primary care including a patient-facing mode, could change how information is shared between patients and healthcare professionals and improve the diagnostic process. METHODS: Participants diagnosed with asthma within the last 5 years were recruited from general practices across four UK regions. In-depth …
Medicine (29 obras) · Chronic Obstructive Pulmonary Disease (COPD) Research (16 obras) · Family medicine (16 obras) · Health care (14 obras) · Nursing (14 obras) · Psychology (13 obras) · Asthma (11 obras) · Political science (10 obras) · Qualitative research (10 obras) · Delphi Technique in Research (9 obras)