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Martie Carnie

Dados Biográficos

ID4452589
NOMEMartie Carnie
PRENOMESMartie
SOBRENOMECarnie
ASSINATURACARNIE M
AFILIAÇÕESBrigham and Women's Hospital
VERIFICADONão
TOTAL DE OBRAS2
TOTAL DE CITAÇÕES1
TOTAL COMO AUTOR2
TOTAL COMO EDITOR0
PRIMEIRO ANO DE PUBLICAÇÃO2018
ANO MAIS RECENTE DE PUBLICAÇÃO2025
ÍNDICE H1
  • Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers

    Open Access•Megan Dini, Karlin Schroeder et al.•ARTICLE•Progress in community health…•2025

    Background: There is minimal comparative effectiveness research (CER) in Parkinson's disease (PD). Engaging people with PD in the research process through patient advisory boards (PAB) is one way to address this gap. Objectives: To describe the project model and lessons learned from a PAB pilot project in five Parkinson's Foundation Centers of Excellence in CER. Methods: A virtual training and toolkit on patient engagement, PABs and CER was creat…

  • IRB Oversight of Patient-Centered Outcomes Research

    Open Access•Joel S Weissman, Eric G Campbell et al.•ARTICLE•Journal of Empirical Research on…•2018•Citada por: 1•Referências: 2

    Patient-centered outcomes research (PCOR) is becoming increasingly common. However, there is little evidence regarding what novel ethical challenges, if any, are posed by PCOR with relevance to institutional review board (IRB) oversight and human subjects protections. This article reports the results of a national survey of all IRB chairpersons from research-intensive institutions in the United States. Findings address the responsibilities of IRB…

  • IRB Oversight of Patient-Centered Outcomes Research

    Open Access•Joel S Weissman, Eric G Campbell et al.•ARTICLE•Journal of Empirical Research on…•2018•Citada por: 1•Referências: 2

    Patient-centered outcomes research (PCOR) is becoming increasingly common. However, there is little evidence regarding what novel ethical challenges, if any, are posed by PCOR with relevance to institutional review board (IRB) oversight and human subjects protections. This article reports the results of a national survey of all IRB chairpersons from research-intensive institutions in the United States. Findings address the responsibilities of IRB…

  • IRB Oversight of Patient-Centered Outcomes Research

    Open Access•Joel S Weissman, Eric G Campbell et al.•ARTICLE•Journal of Empirical Research on…•2018•Citada por: 1•Referências: 2

    Patient-centered outcomes research (PCOR) is becoming increasingly common. However, there is little evidence regarding what novel ethical challenges, if any, are posed by PCOR with relevance to institutional review board (IRB) oversight and human subjects protections. This article reports the results of a national survey of all IRB chairpersons from research-intensive institutions in the United States. Findings address the responsibilities of IRB…

  • Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers

    Open Access•Megan Dini, Karlin Schroeder et al.•ARTICLE•Progress in community health…•2025

    Background: There is minimal comparative effectiveness research (CER) in Parkinson's disease (PD). Engaging people with PD in the research process through patient advisory boards (PAB) is one way to address this gap. Objectives: To describe the project model and lessons learned from a PAB pilot project in five Parkinson's Foundation Centers of Excellence in CER. Methods: A virtual training and toolkit on patient engagement, PABs and CER was creat…

Ethics in Clinical Research (2 obras) · Medical education (2 obras) · Medicine (2 obras) · Mental Health and Patient Involvement (2 obras) · Political science (2 obras) · Psychology (2 obras) · Biomedical Ethics and Regulation (1 obras) · Ethics committee (1 obras) · Excellence (1 obras) · Family medicine (1 obras)

Ethnos_APP • Projeto Open Source • Licença MIT • Frontend v2.0.0 • Privacidade e Cookies • Documentação da API: api.ethnos.app/docs • Código da API: GitHub • DOI: 10.5281/zenodo.17049435 • Código do Frontend: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae