J Heaton
Dados Biográficos
| ID | 47822 |
|---|---|
| NOME | J Heaton |
| PRENOMES | J |
| SOBRENOME | Heaton |
| ASSINATURA | HEATON J |
| AFILIAÇÕES | University of Exeter |
| ORCID | 0000-0002-0707-194X |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 17 |
| TOTAL DE CITAÇÕES | 68 |
| TOTAL COMO AUTOR | 17 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 1999 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2023 |
| ÍNDICE H | 4 |
Experiences of connectedness and mental wellbeing in the Scottish islands
Having a sense of connection with people and belonging to place are important for mental wellbeing. These dimensions of connectedness are often studied separately, using different theoretical frameworks, such as social capital and topophilia. Based on a mapping review of the literature, this paper aims to examine the available evidence on how mental health and wellbeing has been influenced by people's experiences of different dimensions of connec…
“*Pseudonyms Are Used Throughout”
Pseudonyms are often used to de-identify participants and other people, organizations and places mentioned in interviews and other textual data collected for research purposes. While this is commonplace, the rationale for, and limits of, using pseudonyms or other methods to disguise identifying information are seldom explained in empirical works. Following an illustrated outline of pseudonyms, epithets, codenames and other obscurant techniques us…
Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them
Little is known about the experiences of people living alone with dementia in the community and their non-resident relatives and friends who support them. In this paper, we explore their respective attitudes and approaches to the future, particularly regarding the future care and living arrangements of those living with dementia. The study is based on a qualitative secondary analysis of interviews with 24 people living alone with early-stage deme…
How people with dementia use twitter
People with dementia are publicly sharing their experiences of living with the condition and acting collectively to produce social change. Social media could support them in doing this, but no previous studies have comprehensively analysed their use of Twitter. The aims of this study were to identify how people with dementia use Twitter and examine the illness identities they create and promote online. Tweetcatcher was used to collect 2774 tweets…
What is the nature and value of a risk management tool in a large-scale complex programme of collaborative applied health research
In this article we examine a risk management tool that was used in a pilot programme of applied health research in the south-west of England funded by the National Institute for Health Research (NIHR). During a wider internal evaluation of the NIHR Collaboration for Leadership in Applied Health Research and Care for the South West Peninsula, we became interested in how risk was being defined and managed in the programme. Our search of the empiric…
Rule your condition, don't let it rule you
Poor control of chronic illness is often attributed to patients' non-adherence to medical advice and treatment. Policy and practice has traditionally focused on improving adherence, assuming that the more patients comply, the better their control and outcomes will be. Drawing on complexity theory, we question this logic in a secondary analysis of qualitative data from studies of young adults' experiences of growing up with a chronic illness. Exam…
Use of Social Comparisons in Interviews About Young Adults' Experiences of Chronic Illness
In this article I examine how young adults used social comparisons in research interviews about their experiences of chronic illness. The interviews were originally conducted not only to provide data for academic analysis but also to generate experiential accounts for publication online as part of an Internet-based health information resource for patients, professionals, and the public wanting to learn about people's real-life experiences of illn…
Inside the "Black Box" of a Knowledge Translation Program in Applied Health Research
In this article, we present the findings of a participatory realistic evaluation of a 5-year program of health care research intended to promote the translation of knowledge into routine clinical practice. The program was one of the nine pilot Collaborations for Leadership in Applied Health Research and Care funded by the English National Institute for Health Research between 2008 and 2013. Our aim was to delineate the mechanisms by which, and ci…
Continuity of care’
The projects in the Programme have advanced understanding of patients' perspectives on continuity of care and on the complex nature of this concept. At the same time, they have raised issues and reported findings which may be indicative of an emergent paradigm shift in this area of research, towards a more dynamic partnership model
Experiences of and influences on continuity of care for service users and carers
Health and social care systems experience difficulty in delivering the continuity of care that service users want. Lack of clarity about what continuity means hinders service organisation and delivery. The NIHR Service Delivery and Organisation programme funded a series of research projects to tackle this conceptual confusion, and subsequently commissioned a review of the projects' outputs. The aim was to assess how the projects had progressed co…
The challenges of evaluating large-scale, multi-partner programmes
The limited extent to which research evidence is utilised in healthcare and other public services is widely acknowledged. The United Kingdom government has attempted to address this gap by funding nine Collaborations for Leadership in Applied Health Research and Care (CLAHRCs). CLAHRCs aim to carry out health research, implement research findings in local healthcare organisations and build capacity across organisations for generating and using ev…
The Experiences of Sleep Disruption in Families of Technology‐dependent Children Living at Home
This paper examines the sleep disruption experienced by 36 families of technology‐dependent children living at home in the United Kingdom. The paper begins with an overview of the qualitative study in which parents' experiences of sleep disruption emerged as a major theme. We then describe the nature of and reasons for the sleep disruption, the help families received with care overnight, and the effects of sleep disruption on parents in particula…
Families' experiences of caring for technology-dependent children
In the present study, families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological', 'social' and 'natural' rhythms and routines around which the families' lives were variously structured. A purposive sample of 36 families with technology-dependent children who used one or more medical devices on a daily basis was recruited. Devices included feeding…
Reworking Qualitative Data
What Is Secondary Analysis? From Quantitative to Qualitative Secondary Analysis Types of Qualitative Secondary Analysis Epistemological Issues Ethical and Legal Issues Modi Operandi The Future of Qualitative Secondary Analysis
Hospital Discharge and the Temporal Regulation of Bodies
This article explores the temporal interface between hospital and home-based regimes of care, focusing on patients' discharge home from specialist care units. Following an outline of the temporal imperatives that distinguish hospital discharge policy in the UK, secondary analysis of qualitative data is used to examine the temporal organization of discharge procedures and patients' and informal carers' experiences of the transfer of care from hosp…
Carers’ experiences of hospital discharge and continuing care in the community
This paper presents the findings of a study of carers' perspectives on discharge procedures and continuing care arrangements for adults aged 18-65 with physical and complex disabilities. Interviews were conducted with carers of people discharged from younger disabled units (YDUs) and hospital settings. The emphasis carers place on the need to be informed and involved in the discharge planning process is described, and the adequacy of continuing c…
The gaze and visibility of the carer
Working from a Foucauldian perspective, this paper examines the discourse of informal care and addresses three questions. When was it first possible to speak of 'the informal carer'? What are the characteristics of the discourse of informal care? And, what are the conditions of the possibility of the informal carer's recognition? Following an analysis of the appearance and conceptualisation of the informal carer in policy and related discourse si…
The gaze and visibility of the carer
Working from a Foucauldian perspective, this paper examines the discourse of informal care and addresses three questions. When was it first possible to speak of 'the informal carer'? What are the characteristics of the discourse of informal care? And, what are the conditions of the possibility of the informal carer's recognition? Following an analysis of the appearance and conceptualisation of the informal carer in policy and related discourse si…
Rule your condition, don't let it rule you
Poor control of chronic illness is often attributed to patients' non-adherence to medical advice and treatment. Policy and practice has traditionally focused on improving adherence, assuming that the more patients comply, the better their control and outcomes will be. Drawing on complexity theory, we question this logic in a secondary analysis of qualitative data from studies of young adults' experiences of growing up with a chronic illness. Exam…
Families' experiences of caring for technology-dependent children
In the present study, families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological', 'social' and 'natural' rhythms and routines around which the families' lives were variously structured. A purposive sample of 36 families with technology-dependent children who used one or more medical devices on a daily basis was recruited. Devices included feeding…
Continuity of care’
The projects in the Programme have advanced understanding of patients' perspectives on continuity of care and on the complex nature of this concept. At the same time, they have raised issues and reported findings which may be indicative of an emergent paradigm shift in this area of research, towards a more dynamic partnership model
The challenges of evaluating large-scale, multi-partner programmes
The limited extent to which research evidence is utilised in healthcare and other public services is widely acknowledged. The United Kingdom government has attempted to address this gap by funding nine Collaborations for Leadership in Applied Health Research and Care (CLAHRCs). CLAHRCs aim to carry out health research, implement research findings in local healthcare organisations and build capacity across organisations for generating and using ev…
Carers’ experiences of hospital discharge and continuing care in the community
This paper presents the findings of a study of carers' perspectives on discharge procedures and continuing care arrangements for adults aged 18-65 with physical and complex disabilities. Interviews were conducted with carers of people discharged from younger disabled units (YDUs) and hospital settings. The emphasis carers place on the need to be informed and involved in the discharge planning process is described, and the adequacy of continuing c…
Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them
Little is known about the experiences of people living alone with dementia in the community and their non-resident relatives and friends who support them. In this paper, we explore their respective attitudes and approaches to the future, particularly regarding the future care and living arrangements of those living with dementia. The study is based on a qualitative secondary analysis of interviews with 24 people living alone with early-stage deme…
Use of Social Comparisons in Interviews About Young Adults' Experiences of Chronic Illness
In this article I examine how young adults used social comparisons in research interviews about their experiences of chronic illness. The interviews were originally conducted not only to provide data for academic analysis but also to generate experiential accounts for publication online as part of an Internet-based health information resource for patients, professionals, and the public wanting to learn about people's real-life experiences of illn…
Hospital Discharge and the Temporal Regulation of Bodies
This article explores the temporal interface between hospital and home-based regimes of care, focusing on patients' discharge home from specialist care units. Following an outline of the temporal imperatives that distinguish hospital discharge policy in the UK, secondary analysis of qualitative data is used to examine the temporal organization of discharge procedures and patients' and informal carers' experiences of the transfer of care from hosp…
Carers’ experiences of hospital discharge and continuing care in the community
This paper presents the findings of a study of carers' perspectives on discharge procedures and continuing care arrangements for adults aged 18-65 with physical and complex disabilities. Interviews were conducted with carers of people discharged from younger disabled units (YDUs) and hospital settings. The emphasis carers place on the need to be informed and involved in the discharge planning process is described, and the adequacy of continuing c…
The gaze and visibility of the carer
Working from a Foucauldian perspective, this paper examines the discourse of informal care and addresses three questions. When was it first possible to speak of 'the informal carer'? What are the characteristics of the discourse of informal care? And, what are the conditions of the possibility of the informal carer's recognition? Following an analysis of the appearance and conceptualisation of the informal carer in policy and related discourse si…
Hospital Discharge and the Temporal Regulation of Bodies
This article explores the temporal interface between hospital and home-based regimes of care, focusing on patients' discharge home from specialist care units. Following an outline of the temporal imperatives that distinguish hospital discharge policy in the UK, secondary analysis of qualitative data is used to examine the temporal organization of discharge procedures and patients' and informal carers' experiences of the transfer of care from hosp…
Reworking Qualitative Data
What Is Secondary Analysis? From Quantitative to Qualitative Secondary Analysis Types of Qualitative Secondary Analysis Epistemological Issues Ethical and Legal Issues Modi Operandi The Future of Qualitative Secondary Analysis
Families' experiences of caring for technology-dependent children
In the present study, families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological', 'social' and 'natural' rhythms and routines around which the families' lives were variously structured. A purposive sample of 36 families with technology-dependent children who used one or more medical devices on a daily basis was recruited. Devices included feeding…
The Experiences of Sleep Disruption in Families of Technology‐dependent Children Living at Home
This paper examines the sleep disruption experienced by 36 families of technology‐dependent children living at home in the United Kingdom. The paper begins with an overview of the qualitative study in which parents' experiences of sleep disruption emerged as a major theme. We then describe the nature of and reasons for the sleep disruption, the help families received with care overnight, and the effects of sleep disruption on parents in particula…
Experiences of and influences on continuity of care for service users and carers
Health and social care systems experience difficulty in delivering the continuity of care that service users want. Lack of clarity about what continuity means hinders service organisation and delivery. The NIHR Service Delivery and Organisation programme funded a series of research projects to tackle this conceptual confusion, and subsequently commissioned a review of the projects' outputs. The aim was to assess how the projects had progressed co…
The challenges of evaluating large-scale, multi-partner programmes
The limited extent to which research evidence is utilised in healthcare and other public services is widely acknowledged. The United Kingdom government has attempted to address this gap by funding nine Collaborations for Leadership in Applied Health Research and Care (CLAHRCs). CLAHRCs aim to carry out health research, implement research findings in local healthcare organisations and build capacity across organisations for generating and using ev…
Continuity of care’
The projects in the Programme have advanced understanding of patients' perspectives on continuity of care and on the complex nature of this concept. At the same time, they have raised issues and reported findings which may be indicative of an emergent paradigm shift in this area of research, towards a more dynamic partnership model
Use of Social Comparisons in Interviews About Young Adults' Experiences of Chronic Illness
In this article I examine how young adults used social comparisons in research interviews about their experiences of chronic illness. The interviews were originally conducted not only to provide data for academic analysis but also to generate experiential accounts for publication online as part of an Internet-based health information resource for patients, professionals, and the public wanting to learn about people's real-life experiences of illn…
Inside the "Black Box" of a Knowledge Translation Program in Applied Health Research
In this article, we present the findings of a participatory realistic evaluation of a 5-year program of health care research intended to promote the translation of knowledge into routine clinical practice. The program was one of the nine pilot Collaborations for Leadership in Applied Health Research and Care funded by the English National Institute for Health Research between 2008 and 2013. Our aim was to delineate the mechanisms by which, and ci…
What is the nature and value of a risk management tool in a large-scale complex programme of collaborative applied health research
In this article we examine a risk management tool that was used in a pilot programme of applied health research in the south-west of England funded by the National Institute for Health Research (NIHR). During a wider internal evaluation of the NIHR Collaboration for Leadership in Applied Health Research and Care for the South West Peninsula, we became interested in how risk was being defined and managed in the programme. Our search of the empiric…
Rule your condition, don't let it rule you
Poor control of chronic illness is often attributed to patients' non-adherence to medical advice and treatment. Policy and practice has traditionally focused on improving adherence, assuming that the more patients comply, the better their control and outcomes will be. Drawing on complexity theory, we question this logic in a secondary analysis of qualitative data from studies of young adults' experiences of growing up with a chronic illness. Exam…
How people with dementia use twitter
People with dementia are publicly sharing their experiences of living with the condition and acting collectively to produce social change. Social media could support them in doing this, but no previous studies have comprehensively analysed their use of Twitter. The aims of this study were to identify how people with dementia use Twitter and examine the illness identities they create and promote online. Tweetcatcher was used to collect 2774 tweets…
Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them
Little is known about the experiences of people living alone with dementia in the community and their non-resident relatives and friends who support them. In this paper, we explore their respective attitudes and approaches to the future, particularly regarding the future care and living arrangements of those living with dementia. The study is based on a qualitative secondary analysis of interviews with 24 people living alone with early-stage deme…
“*Pseudonyms Are Used Throughout”
Pseudonyms are often used to de-identify participants and other people, organizations and places mentioned in interviews and other textual data collected for research purposes. While this is commonplace, the rationale for, and limits of, using pseudonyms or other methods to disguise identifying information are seldom explained in empirical works. Following an illustrated outline of pseudonyms, epithets, codenames and other obscurant techniques us…
Experiences of connectedness and mental wellbeing in the Scottish islands
Having a sense of connection with people and belonging to place are important for mental wellbeing. These dimensions of connectedness are often studied separately, using different theoretical frameworks, such as social capital and topophilia. Based on a mapping review of the literature, this paper aims to examine the available evidence on how mental health and wellbeing has been influenced by people's experiences of different dimensions of connec…
Psychology (14 obras) · Sociology (11 obras) · Medicine (10 obras) · Computer Science (8 obras) · Health care (8 obras) · Political science (8 obras) · Qualitative research (7 obras) · Social science (6 obras) · Nursing (5 obras) · Primary Care and Health Outcomes (5 obras)