Hedy A van Oers
Dados Biográficos
| ID | 5541534 |
|---|---|
| NOME | Hedy A van Oers |
| PRENOMES | Hedy A |
| SOBRENOME | van Oers |
| ASSINATURA | VAN OERS H A |
| AFILIAÇÕES | Emma Kinderziekenhuis |
| ORCID | 0000-0001-7342-4953 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 13 |
| TOTAL DE CITAÇÕES | 0 |
| TOTAL COMO AUTOR | 13 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2014 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 0 |
Making sense of PROM outcomes
Graphs are often used to increase patient understanding of Patient Reported Outcome Measure (PROM) scores. We aimed to investigate which graph visualization options are best interpreted by children. We conducted a quantitative study to assess children’s interpretation accuracy and perceived clarity of different PROM visualizations graphs through a test, and a qualitative study using ‘think aloud’ interviews about the same visualizations to explor…
The Use of Patient-Reported Outcome Measures in Daily Clinical Practice of a Pediatric Nephrology Department
(1) Background: Health-related quality of life (HRQoL) is lower in patients with chronic kidney disease (CKD) compared to the general population. In 2011, the KLIK PROM portal was implemented in the Emma Children's Hospital to monitor and discuss HRQoL in daily care. This study describes and assesses the implementation and use of the KLIK PROM portal in the pediatric nephrology department. (2) Methods: CKD patients (self-report, if 8-18 years of …
Mental and Social Health of Children and Adolescents With Pre-existing Mental or Somatic Problems During the Covid-19 Pandemic Lockdown
Background: The COVID-19 lockdown increases psychological problems in children and adolescents from the general population. Here we investigate the mental and social health during the COVID-19 lockdown in children and adolescents with pre-existing mental or somatic problems. Methods: We included participants (8-18 years) from a psychiatric ( N = 249) and pediatric ( N = 90) sample, and compared them to a general population sample ( N = 844). Meas…
The impact of lockdown during the Covid-19 pandemic on mental and social health of children and adolescents
This study showed that governmental regulations regarding lockdown pose a serious mental/social health threat on children/adolescents that should be brought to the forefront of political decision-making and mental healthcare policy, intervention, and prevention
Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
Patients and parents are generally satisfied with KLIK, however, points of improvement were mentioned. These are currently being addressed by e.g., upgrading the KLIK website, implementing PROMIS item banks in KLIK to reduce irrelevancy and repetitiveness of PROMs, and implementation strategies to improve the discussion-rate. In this way, implementation of the KLIK PROM portal can be further optimized, with the ultimate goal to improve quality of…
Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention
Parents have a need for psychosocial support focusing on different themes. Professionals should explain and demonstrate an online intervention to parents. Based on these results, Op Koers Online for parents was developed. An RCT to assess feasibility and effectiveness of the intervention is currently running
A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR)
Using an implementation science framework, e.g., CFIR, is recommended for groups starting to use PROMs in clinical care as it offers a structured approach and provides insight into possible enablers and barriers
Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice
Participating clinicians are generally satisfied with KLIK. Improvements to the KLIK PROM portal are now realized based on the mentioned disadvantages (e.g., shorten PROM completion by use of PROMIS and integrating KLIK with Electronic Health Records)
Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings
Multilevel IS frameworks are necessary for PROM/PREM implementation given the complexity. In cross-study comparisons, barriers to PROM/PREM implementation were consistent across patient populations and care settings, but enablers were context specific, suggesting the need for tailored implementation strategies based on clinic resources. Theoretically guided studies are needed to clarify how, why, and in what circumstances IS principles lead to su…
Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIK
INTRODUCTION: This paper describes the different ways in which information is being fed back to health care providers (HCPs) using the Dutch evidence-based KLIK Patient-Reported Outcome Measures (PROMs) portal (www.hetklikt.nu). KLIK was initially developed for children with a chronic illness and their parents, and recently expanded for use in adult health care. Patients complete online PROMs at home about their health-related quality of life (HR…
Dutch normative data and psychometric properties for the Distress Thermometer for Parents
The DT-P distinguishes well between parents of a child with and without a chronic condition. With the current norms available, distress can be evaluated in parents of a child with a chronic condition compared to parents of healthy children in pediatric clinical practice
Anxiety and Depression in Mothers and Fathers of a Chronically Ill Child
Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults
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Anxiety and Depression in Mothers and Fathers of a Chronically Ill Child
Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults
Dutch normative data and psychometric properties for the Distress Thermometer for Parents
The DT-P distinguishes well between parents of a child with and without a chronic condition. With the current norms available, distress can be evaluated in parents of a child with a chronic condition compared to parents of healthy children in pediatric clinical practice
Options for the Interpretation of and Recommendations for Acting on Different PROMs in Daily Clinical Practice Using KLIK
INTRODUCTION: This paper describes the different ways in which information is being fed back to health care providers (HCPs) using the Dutch evidence-based KLIK Patient-Reported Outcome Measures (PROMs) portal (www.hetklikt.nu). KLIK was initially developed for children with a chronic illness and their parents, and recently expanded for use in adult health care. Patients complete online PROMs at home about their health-related quality of life (HR…
Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention
Parents have a need for psychosocial support focusing on different themes. Professionals should explain and demonstrate an online intervention to parents. Based on these results, Op Koers Online for parents was developed. An RCT to assess feasibility and effectiveness of the intervention is currently running
A retrospective assessment of the KLIK PROM portal implementation using the Consolidated Framework for Implementation Research (CFIR)
Using an implementation science framework, e.g., CFIR, is recommended for groups starting to use PROMs in clinical care as it offers a structured approach and provides insight into possible enablers and barriers
Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice
Participating clinicians are generally satisfied with KLIK. Improvements to the KLIK PROM portal are now realized based on the mentioned disadvantages (e.g., shorten PROM completion by use of PROMIS and integrating KLIK with Electronic Health Records)
Using an implementation science approach to implement and evaluate patient-reported outcome measures (PROM) initiatives in routine care settings
Multilevel IS frameworks are necessary for PROM/PREM implementation given the complexity. In cross-study comparisons, barriers to PROM/PREM implementation were consistent across patient populations and care settings, but enablers were context specific, suggesting the need for tailored implementation strategies based on clinic resources. Theoretically guided studies are needed to clarify how, why, and in what circumstances IS principles lead to su…
Mental and Social Health of Children and Adolescents With Pre-existing Mental or Somatic Problems During the Covid-19 Pandemic Lockdown
Background: The COVID-19 lockdown increases psychological problems in children and adolescents from the general population. Here we investigate the mental and social health during the COVID-19 lockdown in children and adolescents with pre-existing mental or somatic problems. Methods: We included participants (8-18 years) from a psychiatric ( N = 249) and pediatric ( N = 90) sample, and compared them to a general population sample ( N = 844). Meas…
The impact of lockdown during the Covid-19 pandemic on mental and social health of children and adolescents
This study showed that governmental regulations regarding lockdown pose a serious mental/social health threat on children/adolescents that should be brought to the forefront of political decision-making and mental healthcare policy, intervention, and prevention
Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
Patients and parents are generally satisfied with KLIK, however, points of improvement were mentioned. These are currently being addressed by e.g., upgrading the KLIK website, implementing PROMIS item banks in KLIK to reduce irrelevancy and repetitiveness of PROMs, and implementation strategies to improve the discussion-rate. In this way, implementation of the KLIK PROM portal can be further optimized, with the ultimate goal to improve quality of…
The Use of Patient-Reported Outcome Measures in Daily Clinical Practice of a Pediatric Nephrology Department
(1) Background: Health-related quality of life (HRQoL) is lower in patients with chronic kidney disease (CKD) compared to the general population. In 2011, the KLIK PROM portal was implemented in the Emma Children's Hospital to monitor and discuss HRQoL in daily care. This study describes and assesses the implementation and use of the KLIK PROM portal in the pediatric nephrology department. (2) Methods: CKD patients (self-report, if 8-18 years of …
Making sense of PROM outcomes
Graphs are often used to increase patient understanding of Patient Reported Outcome Measure (PROM) scores. We aimed to investigate which graph visualization options are best interpreted by children. We conducted a quantitative study to assess children’s interpretation accuracy and perceived clarity of different PROM visualizations graphs through a test, and a qualitative study using ‘think aloud’ interviews about the same visualizations to explor…
Medicine (12 obras) · Nursing (7 obras) · Psychiatry (7 obras) · Childhood Cancer Survivors' Quality of Life (6 obras) · Clinical Psychology (6 obras) · Clinical Psychology (6 obras) · Prom (6 obras) · Psychology (6 obras) · Family medicine (5 obras) · Family Support in Illness (4 obras)