Nancy Marlett
Dados Biográficos
| ID | 5863056 |
|---|---|
| NOME | Nancy Marlett |
| PRENOMES | Nancy |
| SOBRENOME | Marlett |
| ASSINATURA | MARLETT N |
| AFILIAÇÕES | University of Calgary |
| ORCID | 0000-0001-6417-1894 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 12 |
| TOTAL DE CITAÇÕES | 2 |
| TOTAL COMO AUTOR | 12 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 1968 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2022 |
| ÍNDICE H | 1 |
A patient‐led, peer‐to‐peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food
BACKGROUND: Inflammatory bowel diseases (IBDs) are chronic gastrointestinal diseases that negatively affect the enjoyment of food and engagement in social and cultural gatherings. Such experiences may promote psychosocial challenges, an aspect of IBD often overlooked and under-supported in clinical settings and research. OBJECTIVES: This study explored the psychosocial experiences that young adults with IBD have with food via a qualitative patien…
The standardised cancer booklet and beyond
Objective: This qualitative study engaged with breast cancer patients to create a standardised cancer education booklet. This paper identifies lessons from that engagement process, showing how patients experienced their cancer education and how they were able to ensure their concerns and priorities were included in the standardised patient education booklet. Method: In semi-structured focus groups and interviews, patients reviewed the print mater…
Stillbirth, still life
Our objective was to explore parents’ experiences of stillbirth using a patient-led qualitative approach, in the Canadian context. Parents who had experienced stillbirth in the previous five years were recruited through posters and snowball sampling. We conducted a co-design focus group to set the direction of our research, narrative interviews, and a reflect focus group to engage parents in finalizing the analysis and findings. Data was analysed…
A co‐designed framework to support and sustain patient and family engagement in health‐care decision making
BACKGROUND: Patient and family engagement in health care has emerged as a critical priority. Understanding engagement, from the perspective of the patient and family member, coupled with an awareness of how patient and family members are motivated to be involved, is an important component in increasing the effectiveness of patient engagement initiatives. The purpose of this research was to co-design a patient and family engagement framework. METH…
Understanding the motivations of patients
BACKGROUND: Large-scale transformation depends on effective engagement of diverse stakeholders. With the evolution of the role of the 'patient partner' in health-care decision making, understanding the motivations of these individuals is essential to the success of engagement initiatives. This study reports on motivational factors associated with patient engagement in health care. METHODS: Patient co-investigators and a researcher co-designed and…
The voice of patients in system redesign
BACKGROUND: The published literature demands examples of health-care systems designed with the active engagement of patients to explore the application of this complex phenomenon in practice. METHODS: This case study explored how the voice of patients was incorporated into the process of redesigning an element of the health-care system, a centralized system for intake of referrals from primary care to rheumatologists for patients with suspected r…
Understanding advance care planning within the South Asian community
BACKGROUND: Advance care planning (ACP) is a process of reflection on and communication of a person's future health-care preferences. Evidence suggests visible minorities engage less in ACP. The South Asian ethnic group is the largest visible minority group in Canada, and information is needed to understand how ACP is perceived and how best to approach ACP within this diverse community. OBJECTIVE: To explore perspectives of South Asian community …
“Part of the Team”
BACKGROUND: to find new ways to engage patients in a new interdisciplinary organization to support evidence-informed improvements in clinical outcomes across the health system. OBJECTIVE: Implement and test a new research method and training curriculum to build patient capacity for engagement in health through peer-to-peer research. DESIGN: Programme evaluation using Outcome Mapping and the grounded theory method. SETTING AND PARTICIPANTS: Twenty…
Building new roles and relationships in research
Patient and public engagement in health-related quality of life and patient-reported outcomes research
Grey Matters
This study marks a major step in making collaboration between seniors, academic researchers, and community researchers a reality. Many aging adults are motivated to undertake research projects in later life or even return to university after retirement. Grey Matters is the result of a pilot project developed to study the effectiveness of collaborative research involving seniors. Because the project was such a success, the authors were encouraged …
Test anxiety and immediate or delayed feedback in a test-like avoidance task
Test anxiety and immediate or delayed feedback in a test-like avoidance task
Grey Matters
This study marks a major step in making collaboration between seniors, academic researchers, and community researchers a reality. Many aging adults are motivated to undertake research projects in later life or even return to university after retirement. Grey Matters is the result of a pilot project developed to study the effectiveness of collaborative research involving seniors. Because the project was such a success, the authors were encouraged …
Building new roles and relationships in research
Patient and public engagement in health-related quality of life and patient-reported outcomes research
Understanding advance care planning within the South Asian community
BACKGROUND: Advance care planning (ACP) is a process of reflection on and communication of a person's future health-care preferences. Evidence suggests visible minorities engage less in ACP. The South Asian ethnic group is the largest visible minority group in Canada, and information is needed to understand how ACP is perceived and how best to approach ACP within this diverse community. OBJECTIVE: To explore perspectives of South Asian community …
“Part of the Team”
BACKGROUND: to find new ways to engage patients in a new interdisciplinary organization to support evidence-informed improvements in clinical outcomes across the health system. OBJECTIVE: Implement and test a new research method and training curriculum to build patient capacity for engagement in health through peer-to-peer research. DESIGN: Programme evaluation using Outcome Mapping and the grounded theory method. SETTING AND PARTICIPANTS: Twenty…
Understanding the motivations of patients
BACKGROUND: Large-scale transformation depends on effective engagement of diverse stakeholders. With the evolution of the role of the 'patient partner' in health-care decision making, understanding the motivations of these individuals is essential to the success of engagement initiatives. This study reports on motivational factors associated with patient engagement in health care. METHODS: Patient co-investigators and a researcher co-designed and…
The voice of patients in system redesign
BACKGROUND: The published literature demands examples of health-care systems designed with the active engagement of patients to explore the application of this complex phenomenon in practice. METHODS: This case study explored how the voice of patients was incorporated into the process of redesigning an element of the health-care system, a centralized system for intake of referrals from primary care to rheumatologists for patients with suspected r…
The standardised cancer booklet and beyond
Objective: This qualitative study engaged with breast cancer patients to create a standardised cancer education booklet. This paper identifies lessons from that engagement process, showing how patients experienced their cancer education and how they were able to ensure their concerns and priorities were included in the standardised patient education booklet. Method: In semi-structured focus groups and interviews, patients reviewed the print mater…
Stillbirth, still life
Our objective was to explore parents’ experiences of stillbirth using a patient-led qualitative approach, in the Canadian context. Parents who had experienced stillbirth in the previous five years were recruited through posters and snowball sampling. We conducted a co-design focus group to set the direction of our research, narrative interviews, and a reflect focus group to engage parents in finalizing the analysis and findings. Data was analysed…
A co‐designed framework to support and sustain patient and family engagement in health‐care decision making
BACKGROUND: Patient and family engagement in health care has emerged as a critical priority. Understanding engagement, from the perspective of the patient and family member, coupled with an awareness of how patient and family members are motivated to be involved, is an important component in increasing the effectiveness of patient engagement initiatives. The purpose of this research was to co-design a patient and family engagement framework. METH…
A patient‐led, peer‐to‐peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food
BACKGROUND: Inflammatory bowel diseases (IBDs) are chronic gastrointestinal diseases that negatively affect the enjoyment of food and engagement in social and cultural gatherings. Such experiences may promote psychosocial challenges, an aspect of IBD often overlooked and under-supported in clinical settings and research. OBJECTIVES: This study explored the psychosocial experiences that young adults with IBD have with food via a qualitative patien…
Psychology (10 obras) · Medicine (9 obras) · Medical education (7 obras) · Nursing (7 obras) · Mental Health and Patient Involvement (6 obras) · Patient-Provider Communication in Healthcare (6 obras) · Qualitative research (6 obras) · Sociology (6 obras) · Focus group (5 obras) · Health care (5 obras)