Jane Wilbur
Dados Biográficos
| ID | 6324029 |
|---|---|
| NOME | Jane Wilbur |
| PRENOMES | Jane |
| SOBRENOME | Wilbur |
| ASSINATURA | WILBUR J |
| AFILIAÇÕES | London School of Hygiene & Tropical Medicine |
| ORCID | 0000-0002-5329-1337 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 14 |
| TOTAL DE CITAÇÕES | 0 |
| TOTAL COMO AUTOR | 14 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2018 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 0 |
Navigating menstruation in adolescents with Down Syndrome
Adolescents with Down syndrome face unique menstrual health challenges, yet their experiences remain under-researched. This study aimed to investigate the menstrual health and wellbeing of adolescents with Down syndrome in the UK, examined primarily through the reflective lens of primary caregivers alongside direct accounts from adolescents, to inform the development of tailored, evidence-based interventions for this population. Guided by an advi…
Climate change, disability, and water, sanitation and hygiene
Climate hazards, including extreme weather events, undermine essential water, sanitation and hygiene (WASH) services, exacerbating health disparities in people with disabilities. Despite this, WASH policies and adaptation strategies often overlook the need for disability inclusive measures. The scoping review objectives are to 1) map the evidence on how climate risks affect WASH services and coping strategies in low-and middle-income countries, w…
Access to eye health services among older people with disabilities in Karamoja, Uganda
Older people with disabilities in Karamoja face a range of disability-specific challenges in their abilities to perceive, seek, reach and engage with health care. This study adds useful context to the population-based survey conducted in Karamoja in 2023 and demonstrates how the positive deviance approach can be helpful in identifying strategies to improve access where little or no evidence currently exists
Feasibility study of a menstrual health behaviour change intervention for women and girls with intellectual disabilities and their caregivers for Vanuatu’s humanitarian responses
The Veivanua campaign is a menstrual health intervention for people with intellectual disabilities and their caregivers in Vanuatu’s humanitarian setting. The campaign was adapted from the Bishesta campaign delivered in Nepal’s development setting. This feasibility study is designed to assess the feasibility and acceptability of the Veivanua campaign to understand if efficacy testing is warranted. The Veivanua campaign was delivered to a preselec…
Inclusion of persons living with disabilities in a district-wide sanitation programme
Community-led total sanitation (CLTS) is embraced as a key strategy to achieve universal sanitation coverage (Sustainable Development Goal 6.2). Although inclusion is identified as a predictor of CLTS success, people living with disabilities are often excluded from community sanitation programmes and there is limited research exploring CLTS participation amongst people living with disabilities. This study aims to explore the extent to which peopl…
Inclusion of people with disabilities in Chilean health policy
Improvements are needed in both the development and implementation of disability-inclusive health policies in Chile, to support the achievement of the right to healthcare for people with disabilities and ensuring that the health system truly "leaves no one behind
The inclusion of disability and aging in Covid-19 hygiene behavior change interventions across low-and middle-income countries
Introduction: People with disabilities and older adults face a high risk of dying from COVID-19. Handwashing with soap and sanitizing surfaces were recommended to disrupt COVID-19 transmission. Yet, in many low-and middle-income countries (LMICs), these populations have inadequate access to water, sanitation and hygiene (WASH) and are not reached by public health campaigns. The Hygiene Behavior Change Coalition (HBCC) was set up to limit the spre…
Menstrual Health Experiences of People with Intellectual Disabilities and Their Caregivers during Vanuatu’s Humanitarian Responses
Attention to menstrual health in humanitarian responses is increasing, but evidence related to people with intellectual disabilities and their caregivers is absent. This study begins to address that. We applied purposive sampling to select 17 women and girls (aged 15-31) with intellectual disabilities, their 17 caregivers in SANMA province, Vanuatu, and seven key informants. We used in-depth interviews, PhotoVoice and ranking, and observation and…
Adapting Disability Research Methods and Practices During the Covid-19 Pandemic
People with disabilities are often excluded from research, which may be exacerbated during the ongoing Covid-19 pandemic. This article provides an overview of key challenges, opportunities, and strategies for conducting disability-inclusive research during the pandemic, drawing on the experience of research teams working across ten countries on disability-focused studies. It covers adaptations that are relevant across the project lifecycle, inclu…
The Inclusion of Rights of People with Disabilities and Women and Girls in Water, Sanitation, and Hygiene Policy Documents and Programs of Bangladesh and Cambodia
People with disabilities and as women and girls face barriers to accessing water, sanitation, and hygiene (WASH) services and facilities that fully meet their needs, especially in low- and middle-income countries. Women and girls with disabilities experience double discrimination. WASH policies should support and uphold the concepts of disability and gender inclusion, and they should also act as a guide to inform WASH programs and service deliver…
Are Nepal’s water, sanitation and hygiene and menstrual hygiene policies and supporting documents inclusive of disability? A policy analysis
Though the Constitution of Nepal enshrines gender equality and disability inclusion, there are consistent gaps in attention to disability and MHM in policies and practice. These omit and exclude people with disabilities from MHM interventions. Investment is required to generate evidence on the MHM barriers faced by people with disabilities, which would then be drawn on to develop training on these issues for professionals to improve understanding…
Qualitative study exploring the barriers to menstrual hygiene management faced by adolescents and young people with a disability, and their carers in the Kavrepalanchok district, Nepal
Issues related to MHM for people with disabilities is more complex than for others in the population due to the additional disability discrimination and impairment experienced. Research exploring these issues must be conducted in different settings, and MHM interventions, tailored for impairment type and carers requirements,should be developed. Attention to, and resourcing for disability inclusive MHM must be prioritised to ensure 'no one is left…
Feasibility Study of a Menstrual Hygiene Management Intervention for People with Intellectual Impairments and Their Carers in Nepal
Background: The Bishesta campaign is a menstrual hygiene management (MHM) intervention developed to meet the specific needs of people with intellectual impairments and their carers. It was designed and delivered in the Kavre district, Nepal. This paper explores the campaign's feasibility and acceptability. Methods: The Bishesta campaign was delivered to ten people with an intellectual impairment and their eight carers. Data on the feasibility and…
Developing Behaviour Change Interventions for Improving Access to Health and Hygiene for People with Disabilities
Limited evidence exists about how to design interventions to improve access to health care for people with disabilities in low and middle-income countries (LMICs). This paper documents the development of two behaviour change interventions. Case study one outlines the design of an intervention to improve uptake of referral for ear and hearing services for children in Malawi. Case study two describes the design of an intervention to improve menstru…
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Developing Behaviour Change Interventions for Improving Access to Health and Hygiene for People with Disabilities
Limited evidence exists about how to design interventions to improve access to health care for people with disabilities in low and middle-income countries (LMICs). This paper documents the development of two behaviour change interventions. Case study one outlines the design of an intervention to improve uptake of referral for ear and hearing services for children in Malawi. Case study two describes the design of an intervention to improve menstru…
Feasibility Study of a Menstrual Hygiene Management Intervention for People with Intellectual Impairments and Their Carers in Nepal
Background: The Bishesta campaign is a menstrual hygiene management (MHM) intervention developed to meet the specific needs of people with intellectual impairments and their carers. It was designed and delivered in the Kavre district, Nepal. This paper explores the campaign's feasibility and acceptability. Methods: The Bishesta campaign was delivered to ten people with an intellectual impairment and their eight carers. Data on the feasibility and…
The Inclusion of Rights of People with Disabilities and Women and Girls in Water, Sanitation, and Hygiene Policy Documents and Programs of Bangladesh and Cambodia
People with disabilities and as women and girls face barriers to accessing water, sanitation, and hygiene (WASH) services and facilities that fully meet their needs, especially in low- and middle-income countries. Women and girls with disabilities experience double discrimination. WASH policies should support and uphold the concepts of disability and gender inclusion, and they should also act as a guide to inform WASH programs and service deliver…
Are Nepal’s water, sanitation and hygiene and menstrual hygiene policies and supporting documents inclusive of disability? A policy analysis
Though the Constitution of Nepal enshrines gender equality and disability inclusion, there are consistent gaps in attention to disability and MHM in policies and practice. These omit and exclude people with disabilities from MHM interventions. Investment is required to generate evidence on the MHM barriers faced by people with disabilities, which would then be drawn on to develop training on these issues for professionals to improve understanding…
Qualitative study exploring the barriers to menstrual hygiene management faced by adolescents and young people with a disability, and their carers in the Kavrepalanchok district, Nepal
Issues related to MHM for people with disabilities is more complex than for others in the population due to the additional disability discrimination and impairment experienced. Research exploring these issues must be conducted in different settings, and MHM interventions, tailored for impairment type and carers requirements,should be developed. Attention to, and resourcing for disability inclusive MHM must be prioritised to ensure 'no one is left…
The inclusion of disability and aging in Covid-19 hygiene behavior change interventions across low-and middle-income countries
Introduction: People with disabilities and older adults face a high risk of dying from COVID-19. Handwashing with soap and sanitizing surfaces were recommended to disrupt COVID-19 transmission. Yet, in many low-and middle-income countries (LMICs), these populations have inadequate access to water, sanitation and hygiene (WASH) and are not reached by public health campaigns. The Hygiene Behavior Change Coalition (HBCC) was set up to limit the spre…
Menstrual Health Experiences of People with Intellectual Disabilities and Their Caregivers during Vanuatu’s Humanitarian Responses
Attention to menstrual health in humanitarian responses is increasing, but evidence related to people with intellectual disabilities and their caregivers is absent. This study begins to address that. We applied purposive sampling to select 17 women and girls (aged 15-31) with intellectual disabilities, their 17 caregivers in SANMA province, Vanuatu, and seven key informants. We used in-depth interviews, PhotoVoice and ranking, and observation and…
Adapting Disability Research Methods and Practices During the Covid-19 Pandemic
People with disabilities are often excluded from research, which may be exacerbated during the ongoing Covid-19 pandemic. This article provides an overview of key challenges, opportunities, and strategies for conducting disability-inclusive research during the pandemic, drawing on the experience of research teams working across ten countries on disability-focused studies. It covers adaptations that are relevant across the project lifecycle, inclu…
Feasibility study of a menstrual health behaviour change intervention for women and girls with intellectual disabilities and their caregivers for Vanuatu’s humanitarian responses
The Veivanua campaign is a menstrual health intervention for people with intellectual disabilities and their caregivers in Vanuatu’s humanitarian setting. The campaign was adapted from the Bishesta campaign delivered in Nepal’s development setting. This feasibility study is designed to assess the feasibility and acceptability of the Veivanua campaign to understand if efficacy testing is warranted. The Veivanua campaign was delivered to a preselec…
Inclusion of persons living with disabilities in a district-wide sanitation programme
Community-led total sanitation (CLTS) is embraced as a key strategy to achieve universal sanitation coverage (Sustainable Development Goal 6.2). Although inclusion is identified as a predictor of CLTS success, people living with disabilities are often excluded from community sanitation programmes and there is limited research exploring CLTS participation amongst people living with disabilities. This study aims to explore the extent to which peopl…
Inclusion of people with disabilities in Chilean health policy
Improvements are needed in both the development and implementation of disability-inclusive health policies in Chile, to support the achievement of the right to healthcare for people with disabilities and ensuring that the health system truly "leaves no one behind
Climate change, disability, and water, sanitation and hygiene
Climate hazards, including extreme weather events, undermine essential water, sanitation and hygiene (WASH) services, exacerbating health disparities in people with disabilities. Despite this, WASH policies and adaptation strategies often overlook the need for disability inclusive measures. The scoping review objectives are to 1) map the evidence on how climate risks affect WASH services and coping strategies in low-and middle-income countries, w…
Access to eye health services among older people with disabilities in Karamoja, Uganda
Older people with disabilities in Karamoja face a range of disability-specific challenges in their abilities to perceive, seek, reach and engage with health care. This study adds useful context to the population-based survey conducted in Karamoja in 2023 and demonstrates how the positive deviance approach can be helpful in identifying strategies to improve access where little or no evidence currently exists
Navigating menstruation in adolescents with Down Syndrome
Adolescents with Down syndrome face unique menstrual health challenges, yet their experiences remain under-researched. This study aimed to investigate the menstrual health and wellbeing of adolescents with Down syndrome in the UK, examined primarily through the reflective lens of primary caregivers alongside direct accounts from adolescents, to inform the development of tailored, evidence-based interventions for this population. Guided by an advi…
Medicine (10 obras) · Nursing (9 obras) · Psychology (8 obras) · Child Nutrition and Water Access (6 obras) · Environmental health (6 obras) · Psychological intervention (6 obras) · Sociology (6 obras) · Hygiene (5 obras) · Political science (5 obras) · Public health (5 obras)