Elizabeth Tilley
Dados Biográficos
| ID | 658632 |
|---|---|
| NOME | Elizabeth Tilley |
| PRENOMES | Elizabeth |
| SOBRENOME | Tilley |
| ASSINATURA | TILLEY E |
| AFILIAÇÕES | The Open University |
| ORCID | 0000-0002-2095-9724 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 32 |
| TOTAL DE CITAÇÕES | 98 |
| TOTAL COMO AUTOR | 32 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2011 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 4 |
Adam cried bitterly
This article explores how urban Malawians construct moral and theological meaning of waste and how these constructions shape environmental practices, in densely populated areas of Blantyre. Challenging the assumption that environmental behaviour can be improved primarily through education, the study argues that moral action is grounded in contextual ‘immanent logics’ shaped by lived experience, social realities and religious belief. Drawing on in…
Getting It Out There
INTRODUCTION: Many tools and interventions developed from research projects are not properly implemented in health and social care practice. Engaging with stakeholders is an important part of the implementation process when developing, sharing and embedding new tools. The Victoria & Stuart Project was a 2-year project that co-designed a toolkit of resources and approaches to support end-of-life care planning for people with intellectual disabilit…
Rethinking socio-cultural resistance
Toilet-linked anaerobic digesters (TLADs) are promoted as technologies that can simultaneously address household energy, sanitation, and agricultural needs, yet diffusion remains uneven, and project failures are frequently attributed to “socio-cultural resistance.” This paper challenges that narrative by examining why Nepal's domestic biogas programme achieved greater success in implementing TLADs than India's, despite broadly similar policies an…
Emotionally entwined narratives
This paper offers a critical analysis of the concept of “emotional community” in the context of our research into histories of learning disability. Emotional communities are places where people feel, express and make sense of emotions. They help us to understand that emotions are something we experience socially and not just individually. The paper is presented in the form of a conversation between many researchers. This is what we mean by “polyp…
Not just a donor learning experience
In Africa, investments in domestic biogas projects have yielded mixed results, with numerous poor outcomes reported. While many commonly cited barriers contribute to these failures, the role of structural issues rooted in development and aid remains underexplored and poorly understood. This investigation examined 72 tarpaulin-based biogas digesters funded by UNDP across seven districts in Malawi, which experienced rapid failure shortly after impl…
Reflections on an Evidence Review Process to Inform the Co‐Design of a Toolkit for Supporting End‐of‐Life Care Planning With People With Intellectual Disabilities
Psychosocial factors associated with intention to pursue tertiary education among Malawian students
Our research findings are an important contribution to the long-term strategy of achieving the Sustainable Development Goals (SDGs) and contribute to the inclusion of vulnerable students with impaired mental health in higher education in Malawi and beyond
From failure to fairness
The purpose of this perspective piece is to advocate for a paradigm shift in biogas research, and argues for the need to centre accountability and justice in household biogas development research and discussion Drawing from biogas literature and the authors' own experiences in South Asia and Southern Africa, the perspective illustrates how a lack of accountability in biogas programmes has led to negative outcomes and harm to beneficiaries of top-…
“It is unbearable to breathe here”
Blantyre, Malawi’s Queen Elizabeth Central Hospital (QECH), or Queen’s, as it’s known locally, is the country’s largest public hospital. However, Queen’s is not served by regular municipal waste collection. Rather, most hospital waste (infectious and non-infectious) is gathered by grounds staff and openly burned, in several constantly smouldering piles, sending up clouds of smoke. Speaking directly to an identified knowledge gap on air quality im…
The rich will always be able to dispose of their waste”
A significant proportion of South African municipalities, who hold the mandate for providing solid waste management (SWM) services for millions of South Africans, appear to be on the brink of collapse. On the frontlines of municipal failure, the city of Makhanda, following two decades of poor governance and mismanagement, has found itself unable to fulfil its mandate, with the state retreating on SWM service provision, and disruptions to waste ma…
From potential to practice
The purpose of this comment is to call for more critical engagement with the potential and practice for biogas investment on the African continent. Over the past two decades, immense amounts of money have been spent by African governments, private individuals, and most conspicuously, international aid agencies and donors, on countless biogas projects in every country on the continent. Yet, despite the investments, biogas in African countries has …
“We are from there, that’s our land”
Mzedi dumpsite is the only city-run waste facility in the city of Blantyre, Malawi. Although the entire site is city-owned, the periphery of the dumping site has been used for agricultural purposes for generations, but has become a space of contestation between growers, the city, and dump managers, as unregulated dumping has swelled the boundaries of the site, spilling waste into the surrounding fields, accentuating growing pressure for land. Dra…
Process Evaluation of “The Hygienic Family” Intervention
Process evaluations of environmental health interventions are often under-reported and under-utilized in the development of future programs. The "Hygienic Family" intervention targeted improvements in hygiene behaviors of caregivers with under five-year-old children in rural Malawi. Delivered through a combination of open days, cluster meetings, household visits, and prompts, data were collected from two intervention areas for ten months. A proce…
Conceptualising Reuse in African Households
African households are often models of sustainability, practicing daily behaviours, which, if even not directly associated by the individual with Western conceptualisations of ‘recycling’ or ‘reuse’, have dramatically positive impacts on the amounts of household waste generated. However, rarely has the African household been given the same consideration, and there is a poor understanding within the discipline how poor individuals, and Africans in…
Madhouse
Until the very end of the twentieth century the history of learning difficulties was subsumed into other histories, of psychiatry, of special education and, indeed, of disability. Initiatives to enable people with learning difficulties and their families to record their own histories and contribute to the historical record are both recent and powerful. Much of this work has been led or supported by The Open University’s Social History of Learning…
Working together is like a partnership of entangled knowledge’
While there have been significant developments in the field of inclusive research with people with learning disabilities, there is limited knowledge about the ways inclusive research teams have conducted participatory data analysis. The authors argue this is inherently tied to the sensitivities involved in the inclusive research process. In this article, we present the experiences of two inclusive research teams (from the UK and Australia) who de…
My Flight Arrives at 5 am, Can You Pick Me Up
Over the past decade, there has been increased awareness and discourse around the inequalities which structure North-South academic collaboration. The purpose of this discussion is to look at the other side of this dynamic: the gatekeeping burden of African scholars in facilitating Northern fieldwork within the African continent. We argue that this burden further exacerbates inherent inequalities within North-South relationships. By way of conclu…
The Periodical Press in Nineteenth-Century Ireland
‘Bad’ Trash
‘Waste’ is everywhere, a common aspect of daily life in both the West and the Global South. However, the ways in which we as individuals understand it as a problem is far from universal. It does not exist independently from the people it affects, rather, waste, as a problem, is continually made and remade through human practice. The purpose of this article is to explore how and why certain ‘waste’ items are and become understood as problems. We a…
Self-Reported Versus Observed Measures
Few studies have attempted to measure the differences between self-reported and observed food hygiene practices in a household setting. We conducted a study to measure the level of agreement between self-reported and observed food hygiene practices among child caregivers with children under the age of five years in rural Malawi. Fifty-eight child caregivers from an intervention and 29 from a control group were recruited into the study. At the end…
Health Outcomes of an Integrated Behaviour-Centred Water, Sanitation, Hygiene and Food Safety Intervention–A Randomised before and after Trial
Diarrhoeal disease in children under five in low income settings has been associated with multiple environmental exposure pathways, including complementary foods. Conducted from February to December 2018 in rural Malawi, this before and after trial with a control used diarrhoeal disease as a primary outcome, to measure the impact of a food hygiene intervention (food hygiene + handwashing) relative to a food hygiene and water, sanitation and hygie…
We Are Already Sick”
The efficient and sanitary management of infectious waste is an essential part of the humanitarian response to any disaster, including the ongoing Covid-19 pandemic. Unfortunately, in many contexts within the Global South, waste management systems are poorly equipped to handle these waste streams during periods of normalcy, let alone during times of crisis. The purpose of this article is draw attention to a number of existing inequalities that de…
Risk Factors Associated with Feeding Children under 2 Years in Rural Malawi—A Formative Study
Diarrhoeal disease remains one of the leading causes of morbidity and mortality in the under-five population, particularly in low income settings such as sub-Saharan Africa. Despite significant progress in sanitation and water access, faecal-oral infections persist in these populations. Therefore, a better understanding of these transmission pathways, and how potential risk factors can be reduced within low income contexts is needed. This study, …
Between speaking out in public and being person-centred
The Living Archive of Learning Disability History is being developed by an inclusive team of researchers both with and without learning disabilities. We argue the archive is important in making publicly visible the lives of people with learning disabilities. Yet – drawing on thinking that came out of our collaborative workshops – we also identify alternative imperatives, that you might want to have control over how you share your personal memorie…
Periodical Famines
Is it the end for anonymity as we know it? A critical examination of the ethical principle of anonymity in the context of 21st century demands on the qualitative researcher
Told from the perspective of two UK-based early career researchers, this article is an examination of contemporary challenges posed when dealing with the ethical principle of anonymity in qualitative research, specifically at the point of dissemination. Drawing on their respective doctoral experience and literature exploring the difficulties that can arise from the application of anonymity with regard to historical and geographical contexts, the …
The silence is roaring’
This paper reviews the history of sterilization of women with intellectual disabilities, and considers its relevance to current practice regarding reproductive choice and futures. The paper provides an overview of published research on historical practices, focusing on the UK, the US, Canada and the Nordic countries. Most of this research draws upon written records, centering on eugenics debates. However, emerging oral history testimonies gathere…
My Flight Arrives at 5 am, Can You Pick Me Up
Over the past decade, there has been increased awareness and discourse around the inequalities which structure North-South academic collaboration. The purpose of this discussion is to look at the other side of this dynamic: the gatekeeping burden of African scholars in facilitating Northern fieldwork within the African continent. We argue that this burden further exacerbates inherent inequalities within North-South relationships. By way of conclu…
Negotiating a third space for participatory research with people with learning disabilities
The focus of this article is participatory research with and by people with learning disabilities. Drawing on discussions that took place across a series of seminars, we use the concepts of space and boundaries to examine the development of a shared new spatial practice through creative responses to a number of challenges. We examine the boundaries that exist between participatory and non-participatory research; the boundaries that exist between …
The changing face of parent advocacy
This paper reviews the history of parent advocacy in the UK on behalf of and with people with learning disabilities since the mid-twentieth century and reflects on the role of the academy in illuminating and documenting its story. It argues that parent advocacy has flourished at times of change and challenge, and has seen a revival since austerity began to bite. In the twenty-first century parent advocacy has mutated into working with, rather tha…
Working together is like a partnership of entangled knowledge’
While there have been significant developments in the field of inclusive research with people with learning disabilities, there is limited knowledge about the ways inclusive research teams have conducted participatory data analysis. The authors argue this is inherently tied to the sensitivities involved in the inclusive research process. In this article, we present the experiences of two inclusive research teams (from the UK and Australia) who de…
Exploring the Ethical Underpinnings of Self-advocacy Support for Intellectually Disabled Adults
Self-advocacy organisations support people in a wide range of political activities, alongside providing key social networks. The emergence of formalised self-advocacy for intellectually disabled people marked an important cultural shift. These groups soon became associated with the pursuit of social change and the attainment of rights. The role of the self-advocacy support worker, working together with self-advocates, has been pivotal. However, s…
From failure to fairness
The purpose of this perspective piece is to advocate for a paradigm shift in biogas research, and argues for the need to centre accountability and justice in household biogas development research and discussion Drawing from biogas literature and the authors' own experiences in South Asia and Southern Africa, the perspective illustrates how a lack of accountability in biogas programmes has led to negative outcomes and harm to beneficiaries of top-…
Between speaking out in public and being person-centred
The Living Archive of Learning Disability History is being developed by an inclusive team of researchers both with and without learning disabilities. We argue the archive is important in making publicly visible the lives of people with learning disabilities. Yet – drawing on thinking that came out of our collaborative workshops – we also identify alternative imperatives, that you might want to have control over how you share your personal memorie…
Life Stories, Intellectual Disability, Cultural Heritage and Ethics
This article reflects on the ethical dilemmas involved in undertaking research on the history of institutional and community intellectual disability services between 1966 and 2009 in a tight-knit community in Scotland, through the In Our Own Voices: Leaving New Craigs hospitals’ story project. The accounts collected include painful memories of oppressive practice as well as fond recollections of community spirit, kindness and ‘good’ staff. Howeve…
Is it the end for anonymity as we know it? A critical examination of the ethical principle of anonymity in the context of 21st century demands on the qualitative researcher
Told from the perspective of two UK-based early career researchers, this article is an examination of contemporary challenges posed when dealing with the ethical principle of anonymity in qualitative research, specifically at the point of dissemination. Drawing on their respective doctoral experience and literature exploring the difficulties that can arise from the application of anonymity with regard to historical and geographical contexts, the …
The silence is roaring’
This paper reviews the history of sterilization of women with intellectual disabilities, and considers its relevance to current practice regarding reproductive choice and futures. The paper provides an overview of published research on historical practices, focusing on the UK, the US, Canada and the Nordic countries. Most of this research draws upon written records, centering on eugenics debates. However, emerging oral history testimonies gathere…
Exploring the Ethical Underpinnings of Self-advocacy Support for Intellectually Disabled Adults
Self-advocacy organisations support people in a wide range of political activities, alongside providing key social networks. The emergence of formalised self-advocacy for intellectually disabled people marked an important cultural shift. These groups soon became associated with the pursuit of social change and the attainment of rights. The role of the self-advocacy support worker, working together with self-advocates, has been pivotal. However, s…
Life Stories, Intellectual Disability, Cultural Heritage and Ethics
This article reflects on the ethical dilemmas involved in undertaking research on the history of institutional and community intellectual disability services between 1966 and 2009 in a tight-knit community in Scotland, through the In Our Own Voices: Leaving New Craigs hospitals’ story project. The accounts collected include painful memories of oppressive practice as well as fond recollections of community spirit, kindness and ‘good’ staff. Howeve…
Negotiating a third space for participatory research with people with learning disabilities
The focus of this article is participatory research with and by people with learning disabilities. Drawing on discussions that took place across a series of seminars, we use the concepts of space and boundaries to examine the development of a shared new spatial practice through creative responses to a number of challenges. We examine the boundaries that exist between participatory and non-participatory research; the boundaries that exist between …
Contraceptive decision-making and women with learning disabilities
This article explores contraceptive decision-making for women with learning disabilities. It sets the historical context of reproductive control by highlighting former practices which overtly aimed to prevent women with learning disabilities from conceiving. This is contrasted with a current legislative framework that strongly endorses the human and reproductive rights of women with learning disabilities. The article presents findings from a smal…
The changing face of parent advocacy
This paper reviews the history of parent advocacy in the UK on behalf of and with people with learning disabilities since the mid-twentieth century and reflects on the role of the academy in illuminating and documenting its story. It argues that parent advocacy has flourished at times of change and challenge, and has seen a revival since austerity began to bite. In the twenty-first century parent advocacy has mutated into working with, rather tha…
Between speaking out in public and being person-centred
The Living Archive of Learning Disability History is being developed by an inclusive team of researchers both with and without learning disabilities. We argue the archive is important in making publicly visible the lives of people with learning disabilities. Yet – drawing on thinking that came out of our collaborative workshops – we also identify alternative imperatives, that you might want to have control over how you share your personal memorie…
Risk Factors Associated with Feeding Children under 2 Years in Rural Malawi—A Formative Study
Diarrhoeal disease remains one of the leading causes of morbidity and mortality in the under-five population, particularly in low income settings such as sub-Saharan Africa. Despite significant progress in sanitation and water access, faecal-oral infections persist in these populations. Therefore, a better understanding of these transmission pathways, and how potential risk factors can be reduced within low income contexts is needed. This study, …
The Periodical Press in Nineteenth-Century Ireland
‘Bad’ Trash
‘Waste’ is everywhere, a common aspect of daily life in both the West and the Global South. However, the ways in which we as individuals understand it as a problem is far from universal. It does not exist independently from the people it affects, rather, waste, as a problem, is continually made and remade through human practice. The purpose of this article is to explore how and why certain ‘waste’ items are and become understood as problems. We a…
Self-Reported Versus Observed Measures
Few studies have attempted to measure the differences between self-reported and observed food hygiene practices in a household setting. We conducted a study to measure the level of agreement between self-reported and observed food hygiene practices among child caregivers with children under the age of five years in rural Malawi. Fifty-eight child caregivers from an intervention and 29 from a control group were recruited into the study. At the end…
Health Outcomes of an Integrated Behaviour-Centred Water, Sanitation, Hygiene and Food Safety Intervention–A Randomised before and after Trial
Diarrhoeal disease in children under five in low income settings has been associated with multiple environmental exposure pathways, including complementary foods. Conducted from February to December 2018 in rural Malawi, this before and after trial with a control used diarrhoeal disease as a primary outcome, to measure the impact of a food hygiene intervention (food hygiene + handwashing) relative to a food hygiene and water, sanitation and hygie…
We Are Already Sick”
The efficient and sanitary management of infectious waste is an essential part of the humanitarian response to any disaster, including the ongoing Covid-19 pandemic. Unfortunately, in many contexts within the Global South, waste management systems are poorly equipped to handle these waste streams during periods of normalcy, let alone during times of crisis. The purpose of this article is draw attention to a number of existing inequalities that de…
Madhouse
Until the very end of the twentieth century the history of learning difficulties was subsumed into other histories, of psychiatry, of special education and, indeed, of disability. Initiatives to enable people with learning difficulties and their families to record their own histories and contribute to the historical record are both recent and powerful. Much of this work has been led or supported by The Open University’s Social History of Learning…
Working together is like a partnership of entangled knowledge’
While there have been significant developments in the field of inclusive research with people with learning disabilities, there is limited knowledge about the ways inclusive research teams have conducted participatory data analysis. The authors argue this is inherently tied to the sensitivities involved in the inclusive research process. In this article, we present the experiences of two inclusive research teams (from the UK and Australia) who de…
My Flight Arrives at 5 am, Can You Pick Me Up
Over the past decade, there has been increased awareness and discourse around the inequalities which structure North-South academic collaboration. The purpose of this discussion is to look at the other side of this dynamic: the gatekeeping burden of African scholars in facilitating Northern fieldwork within the African continent. We argue that this burden further exacerbates inherent inequalities within North-South relationships. By way of conclu…
From potential to practice
The purpose of this comment is to call for more critical engagement with the potential and practice for biogas investment on the African continent. Over the past two decades, immense amounts of money have been spent by African governments, private individuals, and most conspicuously, international aid agencies and donors, on countless biogas projects in every country on the continent. Yet, despite the investments, biogas in African countries has …
“We are from there, that’s our land”
Mzedi dumpsite is the only city-run waste facility in the city of Blantyre, Malawi. Although the entire site is city-owned, the periphery of the dumping site has been used for agricultural purposes for generations, but has become a space of contestation between growers, the city, and dump managers, as unregulated dumping has swelled the boundaries of the site, spilling waste into the surrounding fields, accentuating growing pressure for land. Dra…
Process Evaluation of “The Hygienic Family” Intervention
Process evaluations of environmental health interventions are often under-reported and under-utilized in the development of future programs. The "Hygienic Family" intervention targeted improvements in hygiene behaviors of caregivers with under five-year-old children in rural Malawi. Delivered through a combination of open days, cluster meetings, household visits, and prompts, data were collected from two intervention areas for ten months. A proce…
Conceptualising Reuse in African Households
African households are often models of sustainability, practicing daily behaviours, which, if even not directly associated by the individual with Western conceptualisations of ‘recycling’ or ‘reuse’, have dramatically positive impacts on the amounts of household waste generated. However, rarely has the African household been given the same consideration, and there is a poor understanding within the discipline how poor individuals, and Africans in…
“It is unbearable to breathe here”
Blantyre, Malawi’s Queen Elizabeth Central Hospital (QECH), or Queen’s, as it’s known locally, is the country’s largest public hospital. However, Queen’s is not served by regular municipal waste collection. Rather, most hospital waste (infectious and non-infectious) is gathered by grounds staff and openly burned, in several constantly smouldering piles, sending up clouds of smoke. Speaking directly to an identified knowledge gap on air quality im…
The rich will always be able to dispose of their waste”
A significant proportion of South African municipalities, who hold the mandate for providing solid waste management (SWM) services for millions of South Africans, appear to be on the brink of collapse. On the frontlines of municipal failure, the city of Makhanda, following two decades of poor governance and mismanagement, has found itself unable to fulfil its mandate, with the state retreating on SWM service provision, and disruptions to waste ma…
Reflections on an Evidence Review Process to Inform the Co‐Design of a Toolkit for Supporting End‐of‐Life Care Planning With People With Intellectual Disabilities
Psychosocial factors associated with intention to pursue tertiary education among Malawian students
Our research findings are an important contribution to the long-term strategy of achieving the Sustainable Development Goals (SDGs) and contribute to the inclusion of vulnerable students with impaired mental health in higher education in Malawi and beyond
Sociology (17 obras) · Political science (15 obras) · Engineering (10 obras) · Medicine (10 obras) · Law (9 obras) · Psychology (9 obras) · Business (8 obras) · Public relations (8 obras) · Computer Science (7 obras) · Disability Rights and Representation (7 obras)