Marsha Treadwell
Dados Biográficos
| ID | 7104520 |
|---|---|
| NOME | Marsha Treadwell |
| PRENOMES | Marsha |
| SOBRENOME | Treadwell |
| ASSINATURA | TREADWELL M |
| AFILIAÇÕES | University of California, San Francisco |
| ORCID | 0000-0003-0521-1846 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 5 |
| TOTAL DE CITAÇÕES | 0 |
| TOTAL COMO AUTOR | 5 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2016 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2024 |
| ÍNDICE H | 0 |
Genomics and Health Data Governance in Africa
Effectively addressing ethical issues in precision medicine research in Africa requires a holistic social contract that integrates biomedical knowledge with local cultural values and Indigenous knowledge systems. Drawing on African epistemologies such as ubuntu and ujamaa and on our collective experiences in genomics and big data research for sickle cell disease, hearing impairment, and fragile X syndrome and the project Public Understanding of B…
Caught between pity, explicit bias, and discrimination
The results highlight the importance of challenging stigmatizing narratives on SCD and recognizing that stigmatization represents a social injustice that significantly diminishes the QoL of individuals living with SCD
An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model
Study results highlight the importance of the biopsychosocial model to enhance understanding of the needs of this complex population, and to design multi-dimensional approaches for providing more effective interventions to improve outcomes
Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease
Introduction: Due to advances in disease management, mortality rates in children with sickle cell disease (SCD) have decreased. However, mortality rates for young adults (YA) increased, and understanding of social and psychological factors is critical. The aim of this study was to explore factors associated with health care transition experiences for YA with SCD. Method: This was a qualitative descriptive study. A 45-minute semistructured intervi…
Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana
Sem obras proeminentes nesta página.
Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana
Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease
Introduction: Due to advances in disease management, mortality rates in children with sickle cell disease (SCD) have decreased. However, mortality rates for young adults (YA) increased, and understanding of social and psychological factors is critical. The aim of this study was to explore factors associated with health care transition experiences for YA with SCD. Method: This was a qualitative descriptive study. A 45-minute semistructured intervi…
An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model
Study results highlight the importance of the biopsychosocial model to enhance understanding of the needs of this complex population, and to design multi-dimensional approaches for providing more effective interventions to improve outcomes
Caught between pity, explicit bias, and discrimination
The results highlight the importance of challenging stigmatizing narratives on SCD and recognizing that stigmatization represents a social injustice that significantly diminishes the QoL of individuals living with SCD
Genomics and Health Data Governance in Africa
Effectively addressing ethical issues in precision medicine research in Africa requires a holistic social contract that integrates biomedical knowledge with local cultural values and Indigenous knowledge systems. Drawing on African epistemologies such as ubuntu and ujamaa and on our collective experiences in genomics and big data research for sickle cell disease, hearing impairment, and fragile X syndrome and the project Public Understanding of B…
Medicine (5 obras) · Hemoglobinopathies and Related Disorders (4 obras) · Psychiatry (4 obras) · Disease (3 obras) · Family medicine (3 obras) · Gerontology (3 obras) · Iron Metabolism and Disorders (3 obras) · Nursing (3 obras) · Psychology (3 obras) · Public health (3 obras)