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ETHNOS_APP

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Ramona Moldovan

Dados Biográficos

ID7661090
NOMERamona Moldovan
PRENOMESRamona
SOBRENOMEMoldovan
ASSINATURAMOLDOVAN R
AFILIAÇÕESBabeș-Bolyai University
ORCID0000-0002-6013-5076
VERIFICADOSim
TOTAL DE OBRAS4
TOTAL DE CITAÇÕES0
OBRAS COMO AUTOR4
OBRAS COMO EDITOR0
PRIMEIRO ANO DE PUBLICAÇÃO2015
ANO MAIS RECENTE DE PUBLICAÇÃO2022
ÍNDICE H0
  • Families with complex needs

    Open Access•Mădălina Radu, Ramona Moldovan et al.•ARTICLE•Journal of Community Genetics•2022

    Complex health needs are demanding and often require additional medical, psychological and social support. All those involved (e.g., patients, carers, professionals) face a unique set of challenges and needs, especially in families where the patient is a child or a young person with a lifelong condition. The aim of the study was to explore carers' and young people's needs when living with long term conditions, as well as the views of the healthca…

  • Developing genetic counselling services in an underdeveloped healthcare setting

    Open Access•Andrada Ciucă, Ramona Moldovan et al.•ARTICLE•Journal of Community Genetics•2021

    Genetic counselling services are well established in North America, Western Europe and Australia. In other regions, genetic counselling services are still emerging. Where this is the case, an in-depth understanding of the main stakeholders' needs, challenges and opportunities will inform the changes and innovations required to bring genetic counselling closer to the community. The present study explored the needs and challenges of patients, famil…

  • Improving follow up after predictive testing in Huntington’s disease

    Open Access•Cheryl Stopford, Mariangels Ferrer‐Duch et al.•ARTICLE•Journal of Community Genetics•2019

    Recently updated Huntington's disease (HD) predictive testing guidelines emphasise clinicians' responsibility to facilitate emotional support following testing, regardless of the result. Yet models of post-test counselling support are poorly defined. Moreover, it is unclear how these might be best delivered. In this project, a genetic counsellor and clinical psychologist developed standalone group sessions using collective narrative practices for…

  • Genetic professionals’ views on genetic counsellors

    Open Access•Christophe Cordier, Nicolas Taris et al.•ARTICLE•Journal of Community Genetics•2015

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  • Genetic professionals’ views on genetic counsellors

    Open Access•Christophe Cordier, Nicolas Taris et al.•ARTICLE•Journal of Community Genetics•2015

  • Improving follow up after predictive testing in Huntington’s disease

    Open Access•Cheryl Stopford, Mariangels Ferrer‐Duch et al.•ARTICLE•Journal of Community Genetics•2019

    Recently updated Huntington's disease (HD) predictive testing guidelines emphasise clinicians' responsibility to facilitate emotional support following testing, regardless of the result. Yet models of post-test counselling support are poorly defined. Moreover, it is unclear how these might be best delivered. In this project, a genetic counsellor and clinical psychologist developed standalone group sessions using collective narrative practices for…

  • Developing genetic counselling services in an underdeveloped healthcare setting

    Open Access•Andrada Ciucă, Ramona Moldovan et al.•ARTICLE•Journal of Community Genetics•2021

    Genetic counselling services are well established in North America, Western Europe and Australia. In other regions, genetic counselling services are still emerging. Where this is the case, an in-depth understanding of the main stakeholders' needs, challenges and opportunities will inform the changes and innovations required to bring genetic counselling closer to the community. The present study explored the needs and challenges of patients, famil…

  • Families with complex needs

    Open Access•Mădălina Radu, Ramona Moldovan et al.•ARTICLE•Journal of Community Genetics•2022

    Complex health needs are demanding and often require additional medical, psychological and social support. All those involved (e.g., patients, carers, professionals) face a unique set of challenges and needs, especially in families where the patient is a child or a young person with a lifelong condition. The aim of the study was to explore carers' and young people's needs when living with long term conditions, as well as the views of the healthca…

Medicine (4 obras) · Pathology (4 obras) · BRCA gene mutations in cancer (3 obras) · Epidemiology (3 obras) · Family medicine (3 obras) · Genetic counseling (3 obras) · Genetics (3 obras) · Nursing (3 obras) · Public health (3 obras) · Biology (2 obras)

Ethnos_APP • Projeto Open Source • Licença MIT • Frontend v2.0.0 • Privacidade e Cookies • Documentação da API: api.ethnos.app/docs • Código da API: GitHub • DOI: 10.5281/zenodo.17049435 • Código do Frontend: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae