Narelle Warren
Dados Biográficos
| ID | 79559 |
|---|---|
| NOME | Narelle Warren |
| PRENOMES | Narelle |
| SOBRENOME | Warren |
| ASSINATURA | WARREN N |
| AFILIAÇÕES | Monash University |
| ORCID | 0000-0003-2623-4078 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 36 |
| TOTAL DE CITAÇÕES | 113 |
| TOTAL COMO AUTOR | 36 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2004 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 5 |
Relative Hope, Relative Care
Parkinson’s disease (PD) profoundly impacts the everyday lives and relationships of those affected. This is especially the case when the caregiver is a family member of the person with PD. With disease progression, caregiving needs increase, prompting its description as a family disease. While caregiving is frequently viewed as burdensome, the role of hope remains underexplored. Hope is vital in serious illness; understanding carers’ hope across …
Beyond coping strategies
Climate change significantly threatens vulnerable populations in the Global South, particularly older people. This study explores the climate resilience strategies employed by older people in Eastern Indonesia, examining their transformative potential in responding to unequal community needs. This descriptive qualitative study employed focus groups, interviews, and observations over three months in Eastern Indonesia, and involving 46 older partic…
Building and sustaining equitable and inclusive transdisciplinary research teams
This article raises a critical question: Can transnational research teams justify in-person collaboration, particularly when tackling climate resilience in the world's most vulnerable regions? We argue that they can. Addressing complex global challenges demands diverse, international and transdisciplinary teams whose members build deeper connections than virtual interactions alone allow. While teams spanning religious, ethnic and disciplinary bac…
Antibiotic Economies
This paper examines how economic rationalities shape antibiotic usage with the aim of expanding options for the reduction of antimicrobial resistance (AMR). Antibiotic usage is typically attributed to the individual behaviours of patients, pet owners and prescribers, an emphasis that has neglected sociological explanations, particularly the economic rationalities that are transforming healthcare. We used sociological theory of pharmaceutical capi…
Loneliness in Later Life as Existential Inequality
This article engages Göran Therborn's conceptualisation of existential inequality to explore lived experiences of loneliness in later life. Existential inequality refers to unequal social distribution of personhood, from dignity to autonomy. We argue sociological approaches, like inequality frameworks, are critical to grasp the social nature of loneliness - often missing in related literature. Investigating how people perceive and respond to thei…
Staying with the silence
As the name 'talk therapy' suggests, a key aim of alcohol and other drug counselling, psychotherapy and other talk therapies is to discuss issues, concerns and feelings with a health professional. Implicit here is the therapeutic value of talking through issues with a trained professional. But as with all interactions, therapeutic encounters involve silences and pauses as key aspects of the communicative process. Despite their ubiquity in the the…
Evaluating the Extent of Participation of People Living With Dementia in Research
Most research about dementia consults with carers, community workers, nurses or other health professionals, but rarely with people living with dementia (PLWD). This paper investigates why this is the case and documents the extent to which dementia research includes those with lived experience. We searched for studies reported in academic articles focussing on dementia that described using participatory methods. Approximately half of the studies w…
Stroke recovery in rural Malaysia
Disabled people in the time of Covid-19
T he COVID-19 pandemic has brought to stark relief, and further exacerbated, social disparities, including those experienced by disabled people, a global population of over 1 billion people, according to 2010 global population estimates [1]. Disabled people experience entrenched structural disadvantage, including barriers to accessing health care, increased poverty, lower employment, and lower education levels, in comparison to the general popula…
Examining the role of government in shaping disability inclusiveness around Covid-19
The findings indicate a large number of documents addressing the needs of disabled people. However, disability-inclusiveness appeared to be inconsistent and not fully considered, leaving disabled people exposed to greater risk of COVID-19. Neoliberal policies in the health and welfare sector in Australia have led to an individualisation of the responsibility to remain healthy and a reliance on people as independent consumers. Governments need to …
Enacting ‘more-than-human’ care
The Lived Temporalities of Prognosis
In this article, we explore the ways in which a man with motor neurone disease, Gareth, and his wife and carer, Maggie, enact different temporal orientations, when the expected future, an early death, does not arrive. We attend to the tensions between everyday priorities and uncertain futures to discuss the ways Gareth and Maggie negotiate action to deal with problems that are yet to come, but, despite this, already matter. We argue that prognosi…
“He’s Back so I’m Not Alone”
Deep brain stimulation (DBS) for Parkinson’s disease successfully alleviates motor symptoms, but unanticipated changes in personality, self, and relationships can occur. Little is known about how these nonmotor outcomes affect patients and families. We prospectively examined the experience and meaning of DBS-related changes in personality and self for patients and caregivers. In-depth, semi-structured interviews were conducted with 22 participant…
Understanding Cognitive Impairment after Stroke
Post-cure
The curative imaginary is a powerful driver of hope and investment in medicine, often displacing attention and resources given to other illness-related fields of practice. Whereas cure implies an end to the sick role and the possibility of an absolute state of health, in practice those fields that are touted as having high curative potential grapple with the ongoing nature and incompleteness of post-cure care. By capturing the public imagination …
Neurodegeneration and the Intersubjectivities of Care
Caring for a family member or friend with a serious health condition is a common feature of social life. Often, such care is framed as a burden, an unwelcome rupture in the fabric of everyday life. We draw on research conducted in Australia and the UK to examine care in the everyday lives of people living with and caring for neurodegenerative diseases and to trouble care as a burden. Participants in our studies mobilized practices of care to coll…
Translating the Body
Pathways of disability-based discrimination in cancer care
Disabled people often report poorer health outcomes and increased barriers to accessing healthcare, compared to the general population. Our aim was to foreground lived experiences of disability-based discrimination, often indirect, and identify pathways through which this operates. We used a case study approach to explore the experiences of people with physical impairment accessing cancer services in England and Wales, from screening to therapy a…
Persuasive bodies
‘I don’t get a climax any more at all’
Women typically report reduced participation in sex and satisfaction with their sexuality following Spinal Cord injuries (SCI) due to changes in sensation and physical functioning. Psychosocial factors are also important but, despite significant differences in the patterning and impact of SCIs by aetiology, these have not been explored in the context of Spinal Cord Damage (SCD, non-traumatic SCI). This article seeks to gain insight into the exper…
How development happens
This article describes how seed funding from one major Australian University, designed to encourage interdisciplinary collaborations among academics, led to the implementation of a safe and sustainable energy supply at a community development project in remote Timor‐Leste. This article reflects on the process, the results, and insights developed during the project primarily from the point of view of the academics. A participatory process of co‐de…
Psychosocial distress in women diagnosed with gynecological cancer
Many women with gynecological cancer report psychosocial distress, and clarification of the risks, vulnerabilities, and protective factors is required. The aim of this study was to investigate the lived experience of gynecological cancer patients and to understand the factors that underlie psychosocial distress. Semi-structured interviews with seven women diagnosed with gynecological cancer revealed the role of social support, or its absence, sel…
Neurosocialities
Neurosocialities: anthropological engagements with the neurosciences
Having Impact
Particularities in Common
Just One Thing after Another
Chronic conditions and their resultant difficulties in daily living frequently occur with other health problems, sometimes due to interactions or complications at a biological level, or as a result of common pathogens or risk factors. On other occasions, they develop independently. Drawing on research conducted with Australian women that began in the mid-2000s and is still ongoing, we highlight how chronic structural factors shape the risk factor…
Constructing Hope
Hope and recovery are focal narratives within rehabilitation discourse, which is characterized by its goal of returning physical functioning to individuals in a way reminiscent of their pre-impairment ways of life. Rehabilitation is concerned with coming to terms with often devastating bodily disruption and learning strategies to minimize it. Rehabilitation provides individuals with skills and tools designed to enable them to return to their form…
Circuit Breaking
Pain resulting from endometriosis is experienced as both a chronic, ongoing condition and an acute episode at time of menstruation, often occurring in association with diarrhea, vomiting, nausea, heavy bleeding, and other reactions. Women expect pain with menstruation, however, and even if they experience major disruptions as a result, they find it difficult to distinguish normal from pathological discomfort. Drawing on qualitative research condu…
Endurance and contest
Endometriosis is an often painful medical condition in which, in response to hormones associated with the menstrual cycle, the uterine lining grows in the peritoneum and other organs, bleeding into the surrounding organs and tissues. Diagnosis is not always straightforward, and women and health professionals alike may have difficulties recognizing period pain as a sign of anomaly, considering it instead as an inevitable part of menstruation. This…
Neurodegeneration and the Intersubjectivities of Care
Caring for a family member or friend with a serious health condition is a common feature of social life. Often, such care is framed as a burden, an unwelcome rupture in the fabric of everyday life. We draw on research conducted in Australia and the UK to examine care in the everyday lives of people living with and caring for neurodegenerative diseases and to trouble care as a burden. Participants in our studies mobilized practices of care to coll…
Persuasive bodies
Taking control
The chronicity of chronic disease, and its associated uncertainties and fluctuations in health status, pain and/or discomfort, often leaves those so diagnosed feeling that they have lost control. Treatment can exacerbate this sense of loss of control, as people surrender to the expertise of their biomedical providers and interventions. In principle, self-management aims to return control to the individual, but its promotion is as much motivated b…
The Art of (Re)Learning to Walk
Although trust has significant implications for health outcomes, the mechanisms by which its presence or absence influences these outcomes require elucidation. Drawing on ethnographic research conducted in southeast Australia, we explore the tasks of rehabilitation for people who lost a limb because of vascular disease, and the importance of trust in the relationships of patients with their health professionals. Trust underpins procedures and pra…
Loneliness in Later Life as Existential Inequality
This article engages Göran Therborn's conceptualisation of existential inequality to explore lived experiences of loneliness in later life. Existential inequality refers to unequal social distribution of personhood, from dignity to autonomy. We argue sociological approaches, like inequality frameworks, are critical to grasp the social nature of loneliness - often missing in related literature. Investigating how people perceive and respond to thei…
Evaluating the Extent of Participation of People Living With Dementia in Research
Most research about dementia consults with carers, community workers, nurses or other health professionals, but rarely with people living with dementia (PLWD). This paper investigates why this is the case and documents the extent to which dementia research includes those with lived experience. We searched for studies reported in academic articles focussing on dementia that described using participatory methods. Approximately half of the studies w…
Particularities in Common
Orchestrating home
The private space of the home is an important site of health care in most industrialised countries, and rehabilitation following intensive in-hospital treatment largely takes place in domestic settings. Home in this context is implicitly understood by individuals affected by illness (people with illness, family members, friends, carers), health care providers, and policy makers as an a priori entity that naturally provides continuity and stabilit…
It Gives Me My Freedom
People living with motor neuron disease (MND) experience profound and rapidly progressing impairment. In order to maintain their physical and social functioning, people so affected employ a range of technologies and technological aids (body auxiliaries) to enhance their life and maintain well-being. Using a phenomenological study design, we explored the experiences of 42 men and women who had been diagnosed with MND. Although many participants in…
Post-cure
The curative imaginary is a powerful driver of hope and investment in medicine, often displacing attention and resources given to other illness-related fields of practice. Whereas cure implies an end to the sick role and the possibility of an absolute state of health, in practice those fields that are touted as having high curative potential grapple with the ongoing nature and incompleteness of post-cure care. By capturing the public imagination …
Psychosocial distress in women diagnosed with gynecological cancer
Many women with gynecological cancer report psychosocial distress, and clarification of the risks, vulnerabilities, and protective factors is required. The aim of this study was to investigate the lived experience of gynecological cancer patients and to understand the factors that underlie psychosocial distress. Semi-structured interviews with seven women diagnosed with gynecological cancer revealed the role of social support, or its absence, sel…
Neurosocialities
Neurosocialities: anthropological engagements with the neurosciences
Having Impact
Pragmatic Narratives of Hysterectomy Among Australian Women
How feasible are healthy eating and physical activity for young women
Objective: This study investigated young women's perceptions of the feasibility of physical activity and healthy eating behaviours, and how these vary by socio-economic status, domestic characteristics and weight status. Design: This population-based study used a mailed questionnaire to investigate perceptions of the feasibility of commonly recommended healthy eating and physical activity behaviours among a sample of young women. The feasibility …
Pragmatic Narratives of Hysterectomy Among Australian Women
Endurance and contest
Endometriosis is an often painful medical condition in which, in response to hormones associated with the menstrual cycle, the uterine lining grows in the peritoneum and other organs, bleeding into the surrounding organs and tissues. Diagnosis is not always straightforward, and women and health professionals alike may have difficulties recognizing period pain as a sign of anomaly, considering it instead as an inevitable part of menstruation. This…
Circuit Breaking
Pain resulting from endometriosis is experienced as both a chronic, ongoing condition and an acute episode at time of menstruation, often occurring in association with diarrhea, vomiting, nausea, heavy bleeding, and other reactions. Women expect pain with menstruation, however, and even if they experience major disruptions as a result, they find it difficult to distinguish normal from pathological discomfort. Drawing on qualitative research condu…
Constructing Hope
Hope and recovery are focal narratives within rehabilitation discourse, which is characterized by its goal of returning physical functioning to individuals in a way reminiscent of their pre-impairment ways of life. Rehabilitation is concerned with coming to terms with often devastating bodily disruption and learning strategies to minimize it. Rehabilitation provides individuals with skills and tools designed to enable them to return to their form…
The Art of (Re)Learning to Walk
Although trust has significant implications for health outcomes, the mechanisms by which its presence or absence influences these outcomes require elucidation. Drawing on ethnographic research conducted in southeast Australia, we explore the tasks of rehabilitation for people who lost a limb because of vascular disease, and the importance of trust in the relationships of patients with their health professionals. Trust underpins procedures and pra…
The Strength to Cope
Taking control
The chronicity of chronic disease, and its associated uncertainties and fluctuations in health status, pain and/or discomfort, often leaves those so diagnosed feeling that they have lost control. Treatment can exacerbate this sense of loss of control, as people surrender to the expertise of their biomedical providers and interventions. In principle, self-management aims to return control to the individual, but its promotion is as much motivated b…
It Gives Me My Freedom
People living with motor neuron disease (MND) experience profound and rapidly progressing impairment. In order to maintain their physical and social functioning, people so affected employ a range of technologies and technological aids (body auxiliaries) to enhance their life and maintain well-being. Using a phenomenological study design, we explored the experiences of 42 men and women who had been diagnosed with MND. Although many participants in…
Just One Thing after Another
Chronic conditions and their resultant difficulties in daily living frequently occur with other health problems, sometimes due to interactions or complications at a biological level, or as a result of common pathogens or risk factors. On other occasions, they develop independently. Drawing on research conducted with Australian women that began in the mid-2000s and is still ongoing, we highlight how chronic structural factors shape the risk factor…
Orchestrating home
The private space of the home is an important site of health care in most industrialised countries, and rehabilitation following intensive in-hospital treatment largely takes place in domestic settings. Home in this context is implicitly understood by individuals affected by illness (people with illness, family members, friends, carers), health care providers, and policy makers as an a priori entity that naturally provides continuity and stabilit…
‘I don’t get a climax any more at all’
Women typically report reduced participation in sex and satisfaction with their sexuality following Spinal Cord injuries (SCI) due to changes in sensation and physical functioning. Psychosocial factors are also important but, despite significant differences in the patterning and impact of SCIs by aetiology, these have not been explored in the context of Spinal Cord Damage (SCD, non-traumatic SCI). This article seeks to gain insight into the exper…
How development happens
This article describes how seed funding from one major Australian University, designed to encourage interdisciplinary collaborations among academics, led to the implementation of a safe and sustainable energy supply at a community development project in remote Timor‐Leste. This article reflects on the process, the results, and insights developed during the project primarily from the point of view of the academics. A participatory process of co‐de…
Psychosocial distress in women diagnosed with gynecological cancer
Many women with gynecological cancer report psychosocial distress, and clarification of the risks, vulnerabilities, and protective factors is required. The aim of this study was to investigate the lived experience of gynecological cancer patients and to understand the factors that underlie psychosocial distress. Semi-structured interviews with seven women diagnosed with gynecological cancer revealed the role of social support, or its absence, sel…
Neurosocialities
Neurosocialities: anthropological engagements with the neurosciences
Having Impact
Particularities in Common
Translating the Body
Pathways of disability-based discrimination in cancer care
Disabled people often report poorer health outcomes and increased barriers to accessing healthcare, compared to the general population. Our aim was to foreground lived experiences of disability-based discrimination, often indirect, and identify pathways through which this operates. We used a case study approach to explore the experiences of people with physical impairment accessing cancer services in England and Wales, from screening to therapy a…
Persuasive bodies
“He’s Back so I’m Not Alone”
Deep brain stimulation (DBS) for Parkinson’s disease successfully alleviates motor symptoms, but unanticipated changes in personality, self, and relationships can occur. Little is known about how these nonmotor outcomes affect patients and families. We prospectively examined the experience and meaning of DBS-related changes in personality and self for patients and caregivers. In-depth, semi-structured interviews were conducted with 22 participant…
Understanding Cognitive Impairment after Stroke
Post-cure
The curative imaginary is a powerful driver of hope and investment in medicine, often displacing attention and resources given to other illness-related fields of practice. Whereas cure implies an end to the sick role and the possibility of an absolute state of health, in practice those fields that are touted as having high curative potential grapple with the ongoing nature and incompleteness of post-cure care. By capturing the public imagination …
Neurodegeneration and the Intersubjectivities of Care
Caring for a family member or friend with a serious health condition is a common feature of social life. Often, such care is framed as a burden, an unwelcome rupture in the fabric of everyday life. We draw on research conducted in Australia and the UK to examine care in the everyday lives of people living with and caring for neurodegenerative diseases and to trouble care as a burden. Participants in our studies mobilized practices of care to coll…
Stroke recovery in rural Malaysia
Medicine (24 obras) · Psychology (23 obras) · Sociology (15 obras) · Political science (11 obras) · Disease (9 obras) · Social Psychology (9 obras) · Nursing (8 obras) · Computer Science (7 obras) · Health care (7 obras) · Gerontology (6 obras)