Emmanuelle Rial-Sebbag
Dados Biográficos
| ID | 876665 |
|---|---|
| NOME | Emmanuelle Rial-Sebbag |
| PRENOMES | Emmanuelle |
| SOBRENOME | Rial-Sebbag |
| ASSINATURA | RIAL-SEBBAG E |
| VERIFICADO | Não |
| TOTAL DE OBRAS | 7 |
| TOTAL DE CITAÇÕES | 3 |
| TOTAL COMO AUTOR | 7 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2013 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2024 |
| ÍNDICE H | 1 |
Chapitre 5. From individuals to social
Dans le cadre de la médecine personnalisée, la pharmacogénomique (PGx) permet aux praticiens de délivrer le bon médicament à un patient donné, en fonction des résultats d’un test génétique. Cette pratique soulève de nombreuses questions éthiques qui sont discutées dans la littérature, parfois dans le contexte plus large de la médecine personnalisée. Cet article s’appuie sur une revue de littérature originale car interdisciplinaire et basée sur un…
Chapitre 6. Le déploiement de la médecine génomique
La recherche génétique repose aujourd’hui en grande partie sur la réutilisation des données génétiques issues du soin au profit de la recherche. Cette évolution des pratiques emportant une communication de plus en plus marquée entre soin et recherche vient questionner la place accordée au patient regardé comme potentiel participant à la recherche. Afin de favoriser la circulation des données génétiques générées et de permettre leur réutilisation …
Epigenetics as an interdiscipline? Promises and fallacies of a biosocial research agenda
Following the spectacular rise of epigenetics since the early 2000s, an increasing number of social scientists have called for it to be recognized as an 'interdiscipline', at the crossroads of the life sciences and the social sciences. The aim of this special issue is to advance our knowledge of epigenetics and to address three main issues: the epistemological, conceptual and empirical transformations induced by epigenetic research, the public di…
Human rights in the postgenomic era
Over the past twenty-five years, international organizations have adopted human rights declarations in an attempt to address emerging ethical, legal and social concerns associated with genetic research and technologies. While these declarations point to important challenges and potential issues in genetics, the focus on genetics has been criticized for promoting the idea that there is something unique about our genes, and that therefore, they des…
How to responsibly acknowledge research work in the era of big data and biobanks
Currently, a great deal of biomedical research in fields such as epidemiology, clinical trials and genetics is reliant on vast amounts of biological and phenotypic information collected and assembled in biobanks. While many resources are being invested to ensure that comprehensive and well-organised biobanks are able to provide increased access to, and sharing of biomedical samples and information, many barriers and challenges remain to such resp…
Producing ‘Human Elements Based Medical Technologies’ in Biotech Companies
This article is based on the findings of an EU-funded qualitative research project, entitled ‘From GMP to GBP: Fostering good bioethics practices [GBP] among the European biotechnology industry’, which seeks to improve the understanding of bioethical issues through the observation of the daily practices in European biotechnology companies and proposes a methodology approaching ethical issues. The comparative study was carried out in biotech compa…
Direct-to-consumer health genetic testing services
Online availability of direct-to-consumer health genetic testing services for various diseases and behavioural traits appears to have created a business dynamic since its beginning around the turn of the millennium. What are the marketing strategies implemented by the companies commercialising these tests and the social expectations they feed on? From a quantitative and qualitative analysis of the websites offering such tests for health, it appea…
Epigenetics as an interdiscipline? Promises and fallacies of a biosocial research agenda
Following the spectacular rise of epigenetics since the early 2000s, an increasing number of social scientists have called for it to be recognized as an 'interdiscipline', at the crossroads of the life sciences and the social sciences. The aim of this special issue is to advance our knowledge of epigenetics and to address three main issues: the epistemological, conceptual and empirical transformations induced by epigenetic research, the public di…
Human rights in the postgenomic era
Over the past twenty-five years, international organizations have adopted human rights declarations in an attempt to address emerging ethical, legal and social concerns associated with genetic research and technologies. While these declarations point to important challenges and potential issues in genetics, the focus on genetics has been criticized for promoting the idea that there is something unique about our genes, and that therefore, they des…
Direct-to-consumer health genetic testing services
Online availability of direct-to-consumer health genetic testing services for various diseases and behavioural traits appears to have created a business dynamic since its beginning around the turn of the millennium. What are the marketing strategies implemented by the companies commercialising these tests and the social expectations they feed on? From a quantitative and qualitative analysis of the websites offering such tests for health, it appea…
Producing ‘Human Elements Based Medical Technologies’ in Biotech Companies
This article is based on the findings of an EU-funded qualitative research project, entitled ‘From GMP to GBP: Fostering good bioethics practices [GBP] among the European biotechnology industry’, which seeks to improve the understanding of bioethical issues through the observation of the daily practices in European biotechnology companies and proposes a methodology approaching ethical issues. The comparative study was carried out in biotech compa…
Direct-to-consumer health genetic testing services
Online availability of direct-to-consumer health genetic testing services for various diseases and behavioural traits appears to have created a business dynamic since its beginning around the turn of the millennium. What are the marketing strategies implemented by the companies commercialising these tests and the social expectations they feed on? From a quantitative and qualitative analysis of the websites offering such tests for health, it appea…
How to responsibly acknowledge research work in the era of big data and biobanks
Currently, a great deal of biomedical research in fields such as epidemiology, clinical trials and genetics is reliant on vast amounts of biological and phenotypic information collected and assembled in biobanks. While many resources are being invested to ensure that comprehensive and well-organised biobanks are able to provide increased access to, and sharing of biomedical samples and information, many barriers and challenges remain to such resp…
Epigenetics as an interdiscipline? Promises and fallacies of a biosocial research agenda
Following the spectacular rise of epigenetics since the early 2000s, an increasing number of social scientists have called for it to be recognized as an 'interdiscipline', at the crossroads of the life sciences and the social sciences. The aim of this special issue is to advance our knowledge of epigenetics and to address three main issues: the epistemological, conceptual and empirical transformations induced by epigenetic research, the public di…
Human rights in the postgenomic era
Over the past twenty-five years, international organizations have adopted human rights declarations in an attempt to address emerging ethical, legal and social concerns associated with genetic research and technologies. While these declarations point to important challenges and potential issues in genetics, the focus on genetics has been criticized for promoting the idea that there is something unique about our genes, and that therefore, they des…
Chapitre 6. Le déploiement de la médecine génomique
La recherche génétique repose aujourd’hui en grande partie sur la réutilisation des données génétiques issues du soin au profit de la recherche. Cette évolution des pratiques emportant une communication de plus en plus marquée entre soin et recherche vient questionner la place accordée au patient regardé comme potentiel participant à la recherche. Afin de favoriser la circulation des données génétiques générées et de permettre leur réutilisation …
Chapitre 5. From individuals to social
Dans le cadre de la médecine personnalisée, la pharmacogénomique (PGx) permet aux praticiens de délivrer le bon médicament à un patient donné, en fonction des résultats d’un test génétique. Cette pratique soulève de nombreuses questions éthiques qui sont discutées dans la littérature, parfois dans le contexte plus large de la médecine personnalisée. Cet article s’appuie sur une revue de littérature originale car interdisciplinaire et basée sur un…
Ethics in Clinical Research (6 obras) · Political science (6 obras) · Biomedical Ethics and Regulation (5 obras) · Law (4 obras) · Sociology (4 obras) · Biology (3 obras) · Business (3 obras) · Philosophy (3 obras) · Race, Genetics, and Society (3 obras) · Bioethics (2 obras)