Aliki Edgcumbe
Dados Biográficos
| ID | 8990314 |
|---|---|
| NOME | Aliki Edgcumbe |
| PRENOMES | Aliki |
| SOBRENOME | Edgcumbe |
| ASSINATURA | EDGCUMBE A |
| AFILIAÇÕES | University of KwaZulu-Natal |
| ORCID | 0000-0002-9771-459X |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 3 |
| TOTAL DE CITAÇÕES | 0 |
| OBRAS COMO AUTOR | 3 |
| OBRAS COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2024 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 0 |
Exploring the Challenges and Legal Implications of Secondary Use of Health Data in South Africa
The sharing of health data advances knowledge, fosters innovation, and promotes evidence‐based decision‐making. This practice involves using existing data for collaborative research or for purposes other than those for which it was originally collected. In South Africa, the secondary use of health data has significant potential to inform policy decisions, advance scientific research, and address societal challenges. However, the use of health dat…
WHO guidance for human genome data collection, access, use and sharing
BOX The 2024 WHO Guidance for human genome data collection, access, use and sharing introduces a ‘granularity maximisation’ principle, requiring informed consent to be as detailed as possible
Frozen and forgotten
As is the case around the globe, South African fertility clinics face an ever‐expanding problem: what to do with the growing number of surplus cryopreserved embryos. Fertility clinics remain hesitant to destroy these abandoned embryos, partly because of concerns about the legal ramifications. This article clarifies the legal position in South Africa and offers practical recommendations to assist fertility clinics in managing abandoned embryos. In…
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Frozen and forgotten
As is the case around the globe, South African fertility clinics face an ever‐expanding problem: what to do with the growing number of surplus cryopreserved embryos. Fertility clinics remain hesitant to destroy these abandoned embryos, partly because of concerns about the legal ramifications. This article clarifies the legal position in South Africa and offers practical recommendations to assist fertility clinics in managing abandoned embryos. In…
WHO guidance for human genome data collection, access, use and sharing
BOX The 2024 WHO Guidance for human genome data collection, access, use and sharing introduces a ‘granularity maximisation’ principle, requiring informed consent to be as detailed as possible
Exploring the Challenges and Legal Implications of Secondary Use of Health Data in South Africa
The sharing of health data advances knowledge, fosters innovation, and promotes evidence‐based decision‐making. This practice involves using existing data for collaborative research or for purposes other than those for which it was originally collected. In South Africa, the secondary use of health data has significant potential to inform policy decisions, advance scientific research, and address societal challenges. However, the use of health dat…
Data sharing (2 obras) · Ethics in Clinical Research (2 obras) · Medicine (2 obras) · Alternative medicine (1 obra) · Best practice (1 obra) · Biology (1 obra) · Biomedical Ethics and Regulation (1 obra) · Business (1 obra) · Computer Science (1 obra) · Cryopreservation (1 obra)