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Bianca Jansky

Dados Biográficos

ID939646
NOMEBianca Jansky
PRENOMESBianca
SOBRENOMEJansky
ASSINATURAJANSKY B
AFILIAÇÕESUniversity of Augsburg
ORCID0000-0001-8180-645X
VERIFICADOSim
TOTAL DE OBRAS7
TOTAL DE CITAÇÕES15
TOTAL COMO AUTOR7
TOTAL COMO EDITOR0
PRIMEIRO ANO DE PUBLICAÇÃO2022
ANO MAIS RECENTE DE PUBLICAÇÃO2024
ÍNDICE H2
  • Transformative medical ethics

    Open Access•Katja Kuehlmeyer, Bianca Jansky et al.•ARTICLE•Bioethics•2024

    We propose a step‐by‐step methodological framework of translational bioethics that aims at changing medical practice according to normative–ethical requirements, which we will thus call “transformative medical ethics.” The framework becomes especially important when there is a gap between widely acknowledged, ethically justified normative claims and their realization in the practice of biomedicine and technology (ought–is gap). Building on prior …

  • The ethics of mHealth as a global phenomenon

    Open Access•Verina Wild, Tereza Hendl et al.•ARTICLE•Bioethics•2024

  • Patient‐led innovation and global health justice

    Open Access•Bianca Jansky, Tereza Hendl et al.•ARTICLE•Bioethics•2024

    Health innovation is mainly envisioned in direct connection to medical research institutions or pharmaceutical and technology companies. Yet, these types of innovation often do not meet the needs and expectations of individuals affected by health conditions. With the emergence of digital health technologies and social media, we can observe a shift, which involves people living with illness modifying and improving medical and health devices outsid…

  • Disclosing Otherness

    Open Access•Bianca Jansky•ARTICLE•Journal of Contemporary Ethnography•2024

    In this article, I reflect on my empirical engagement in the global (digital) health movement #WeAreNotWaiting in the context of Type 1 Diabetes. I want to take my relationships and interactions in this community as a starting point to discuss the multifacetedness of doing ethnographic research in health-political activist communities while not being affected by the health conditions the research participants are affected by and not sharing their…

  • Digitized Patients

    Open Access•Bianca Jansky•ARTICLE•Science Technology & Human Values•2024•Citada por: 5•Referências: 34

    In this article, I explore knowledge practices in increasingly digitized, data-driven, and personalized healthcare settings by empirically focusing on the "looper community" in type 1 diabetes. This community develops and uses open-source automated insulin delivery systems and frequently criticizes slow innovation cycles and data monopolies of commercial device manufacturers. Departing from the literature on patient knowledge, I argue that studyi…

  • Device activism and material participation in healthcare

    Open Access•Bianca Jansky, Henriette Langstrup•ARTICLE•BioSocieties•2023

    The #WeAreNotWaiting movement is a global digital health phenomenon in which people with diabetes, mainly type 1 diabetes (T1D), engage in the development and usage of open-source closed-loop technology for the improvement of their “chronic living” (Wahlberg et al. 2021). The characteristics of a digitally enabled and technologically engaged global activist patient collective feed into existing narratives of user-led and open-source innovation. T…

  • Tales of self-empowerment through digital health technologies

    Tereza Hendl, Bianca Jansky•ARTICLE•Review of Social Economy•2022•Citada por: 10•Referências: 46

    Femtech technologies, such as period and fertility trackers, promise their users empowerment through reliable knowledge about and control over their bodies and ownership of their procreative health. However, the notion of empowerment through period and fertility apps deserves scrutiny. Based on a thematic analysis of a range of ‘female health’ app promotion materials, we explore the kind of empowerment promised by app providers and point towards …

  • Tales of self-empowerment through digital health technologies

    Tereza Hendl, Bianca Jansky•ARTICLE•Review of Social Economy•2022•Citada por: 10•Referências: 46

    Femtech technologies, such as period and fertility trackers, promise their users empowerment through reliable knowledge about and control over their bodies and ownership of their procreative health. However, the notion of empowerment through period and fertility apps deserves scrutiny. Based on a thematic analysis of a range of ‘female health’ app promotion materials, we explore the kind of empowerment promised by app providers and point towards …

  • Digitized Patients

    Open Access•Bianca Jansky•ARTICLE•Science Technology & Human Values•2024•Citada por: 5•Referências: 34

    In this article, I explore knowledge practices in increasingly digitized, data-driven, and personalized healthcare settings by empirically focusing on the "looper community" in type 1 diabetes. This community develops and uses open-source automated insulin delivery systems and frequently criticizes slow innovation cycles and data monopolies of commercial device manufacturers. Departing from the literature on patient knowledge, I argue that studyi…

  • Tales of self-empowerment through digital health technologies

    Tereza Hendl, Bianca Jansky•ARTICLE•Review of Social Economy•2022•Citada por: 10•Referências: 46

    Femtech technologies, such as period and fertility trackers, promise their users empowerment through reliable knowledge about and control over their bodies and ownership of their procreative health. However, the notion of empowerment through period and fertility apps deserves scrutiny. Based on a thematic analysis of a range of ‘female health’ app promotion materials, we explore the kind of empowerment promised by app providers and point towards …

  • Device activism and material participation in healthcare

    Open Access•Bianca Jansky, Henriette Langstrup•ARTICLE•BioSocieties•2023

    The #WeAreNotWaiting movement is a global digital health phenomenon in which people with diabetes, mainly type 1 diabetes (T1D), engage in the development and usage of open-source closed-loop technology for the improvement of their “chronic living” (Wahlberg et al. 2021). The characteristics of a digitally enabled and technologically engaged global activist patient collective feed into existing narratives of user-led and open-source innovation. T…

  • Transformative medical ethics

    Open Access•Katja Kuehlmeyer, Bianca Jansky et al.•ARTICLE•Bioethics•2024

    We propose a step‐by‐step methodological framework of translational bioethics that aims at changing medical practice according to normative–ethical requirements, which we will thus call “transformative medical ethics.” The framework becomes especially important when there is a gap between widely acknowledged, ethically justified normative claims and their realization in the practice of biomedicine and technology (ought–is gap). Building on prior …

  • The ethics of mHealth as a global phenomenon

    Open Access•Verina Wild, Tereza Hendl et al.•ARTICLE•Bioethics•2024

  • Patient‐led innovation and global health justice

    Open Access•Bianca Jansky, Tereza Hendl et al.•ARTICLE•Bioethics•2024

    Health innovation is mainly envisioned in direct connection to medical research institutions or pharmaceutical and technology companies. Yet, these types of innovation often do not meet the needs and expectations of individuals affected by health conditions. With the emergence of digital health technologies and social media, we can observe a shift, which involves people living with illness modifying and improving medical and health devices outsid…

  • Disclosing Otherness

    Open Access•Bianca Jansky•ARTICLE•Journal of Contemporary Ethnography•2024

    In this article, I reflect on my empirical engagement in the global (digital) health movement #WeAreNotWaiting in the context of Type 1 Diabetes. I want to take my relationships and interactions in this community as a starting point to discuss the multifacetedness of doing ethnographic research in health-political activist communities while not being affected by the health conditions the research participants are affected by and not sharing their…

  • Digitized Patients

    Open Access•Bianca Jansky•ARTICLE•Science Technology & Human Values•2024•Citada por: 5•Referências: 34

    In this article, I explore knowledge practices in increasingly digitized, data-driven, and personalized healthcare settings by empirically focusing on the "looper community" in type 1 diabetes. This community develops and uses open-source automated insulin delivery systems and frequently criticizes slow innovation cycles and data monopolies of commercial device manufacturers. Departing from the literature on patient knowledge, I argue that studyi…

Political science (6 obras) · Sociology (6 obras) · Computer Science (3 obras) · Health care (3 obras) · Psychology (3 obras) · Biomedical Ethics and Regulation (2 obras) · Epistemology (2 obras) · Innovative Human-Technology Interaction (2 obras) · Law (2 obras) · Mental Health and Patient Involvement (2 obras)

Ethnos_APP • Projeto Open Source • Licença MIT • Frontend v2.0.0 • Privacidade e Cookies • Documentação da API: api.ethnos.app/docs • Código da API: GitHub • DOI: 10.5281/zenodo.17049435 • Código do Frontend: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae